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Shocked by sudden decline
Mom is in stage 7 and we have been seeing more motor and language declines lately (though she is stage 7 she's hung onto more language skills than would otherwise be expected.) As recently as 2 weeks ago, while it was difficult for her to follow conversation or find the words she wanted, she could answer basic questions,…
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CA Elder Attorney Recommendations?
Hello, I last posted here almost a year ago now & much has happened since then. My grandmother passed away. My grandfather who is in some early/mid stages of vascular dementia was finally seen for a second opinion but he passed the test (just barely squeaking by in several areas). So for now, he is free to live life as…
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Those who Comment on BIBLE VERSE TO LIFT YOU UP
Dear Friends, I am aware caregivers of many religious faiths are here on this Caregivers Forum. * Awhile ago, I was warned by Administration my posts were not a place for debating religion. Therefore, I will not respond to comments obviously seeking this type of debate. * I trust we are allowed to encourage and support…
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2nd Parent is Sick
I now have two parents with dementia. My father has been suffering for quiet some time now, and no longer walks or talks. I sit with him daily just looking at him, trying to memorize every sound he makes and what his face looks and feels like. I lay my head on his chest to listen to his heart beat. I miss his daily calls…
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New here(54)
My 87 yr old mom is showing early signs of Alzheimer. I'm very stressed out and joined today hoping to find others going through similar situations. She has been living with my family since my dad passed away 8 years ago. It started out with her just forgetting little things but it's been getting worse every day. This past…
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New to the Group(9)
Hi, My husband was recently diagnosed with Lewy Body Demenia. He has Parkinson's and was diagnosed in April of 2019. Most of the time he doesn't know where he is and sometimes who I am. He has hallucinations and delusions. He gets fixated on something and it can last for hours or days. Night times are the worst. He walks…
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Have you moved a LO into memory care when they were sick?
We have found a memory care facility we like and have had plans for them to come out for an assessment of my mom to determine if the fit was good on both ends. My mom's health is declining. We've started palliative care and will help my mom as much as she lets us. We were already overwhelmed but now with the additional…
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So much ice cream!
Hello! My 71 y.o. mom has dementia (presumably Lewy Body) and is living in an asst. living facility. I live out of state and talk with her daily, handle her finances, etc. My brother is local, visits her weekly and takes her to appointments. She is in the later middle stages with daily hallucinations, not oriented in time…
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Purewick
Hello, I did a search and read through some old posts. I saw people who were going to buy this and information, but no first hand experience with it. Has anyone purchased and used this? If so, what did you think? I'm considering it. Thank you!
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Is Lying a thing?
I first wrote last June - then I had to help run a camp. I was grateful for the suggestions then I forgot about this site due to life. When I returned from camp, Mom had a UTI and had worsened to the point that I couldn't believe. Thankfully, I left people to care for her. Then a few months ago, she climbed on a step-stool…
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Bible Verse to Lift You Up 3/8/23
DO GOOD * Psalm 34:14 New International Version "Turn from evil and do good; seek peace and pursue it." * When we stay close to Jesus and obey Him, we are able to do good with Holy Spirit's assistance. When we seek to please the Lord, we find peace. * Take away: Every morning say, "You and I together Lord." He is our…
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When to plan hospice?
Hi, I'm a family member that lives out of state from mom who has AZ. She's having delusions, hallucinations, and sometimes physical aggression. She is talking about death a great deal and has some pain. We have her in the very best facility possibe and they provide round-the-clock care. One of use family members (Dad,…
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Hospice while in Memory Care
The medical director at my mom’s memory care facility reached out to me about putting my mom on hospice. I was surprised to hear this because when I hear hospice I think of someone on their deathbed, but my mom still has a number of years before she’s close to death. While she is in the moderate stages and her dementia is…
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MC Facilities for Dad in San Diego CA
Hello All, My Dad has moved into the stage where he is having bouts of aggression and was sent to the ER from his MC facility (Truewood). The hospital is working on fixing his meds but we now have to look for a new MC facility. The current facility does not have staff to deal with my Dad's care needs. The family has…
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Question about calling out for help
I am looking for suggestions on sun downing and saying “help me” while lying in bed also wanting to get up and down out of bed! My mom is 94, early on set dementia that started about 1year ago!
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Vascular Stroke and Dementia
Hi all. I joined the forum a few weeks ago and reading everyone's posts has been very insightful and acknowledge the sacrifices we are all making for our LO. Here's my story: I am the sole caregiver for my previous partner, 74. We have lived together for many years and are best friends. He has no children, parents…
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Introducing Mys
Hi, all. I just joined ALZConnected! My wife has a lot of health issues, beginning with multiple myeloma (diagnosed almost 13 years ago). Last year she developed serious arrhythmia which resulted in 60 hours in ERs, two hospital stays, ablations, and a pacemaker--all the while being partially blind due to much-needed…
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The end is near??????
Hi. I'm new here and I'm very confused and saddened. This is a long read..sorry. My 90 year old mom seems to gradually be fading away. I don't know how to cope or handle the changes or change in general. I'm 40, been living with my foster mom since 11. When I came she was in her 60s very active and alive. Always working,…
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Food Foraging
My DH has always had a sweet tooth, snacking habit. Lately it has become an issue. He no longer can distinguish food/labels and now gets into cupboards he never bothered with before. He often gets up in the middle of the night and rummages through the fridge. A few of the things I have caught him with or worse yet found in…
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New here - a few questions
Hello All! I am new to the forum. I have been caring for my parents (one advanced ALZ, one beginning ALZ) for 7 months. Here a few issues that I would love feedback on: 1. My Dad (advanced) tends to insist that things are wet when they are dry. I have looked in my reference books and assume this is a sensory issue. In the…
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WWD Family Caregiver Documentary Update
I have been so overwhelmed with getting Wine, Women, and Dementia up off the ground I have have hardly had time to keep up with my dementia communities. I believe what the family caregivers have to say in the film is going to more impactful then my blather, so I hope it will be worth it! An update on where we are at with…
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Looking for Support(2)
Hi Everyone...1st timer here. I have had my mom living with me for about a year. She was living independently in a suite we have for her with occasional bouts of confusion lasting a day or so. But last month she has declined significantly....not able to do any of her ADL''s and couldn't even stand on her own and confused…
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can PWD decline rapidly?
My brother, who is a doctor, feels that incompetent doctors missed something and that is why my mom is declining quickly. He doesn't live here and hasn't spent much time with my mom over the last several years. He said that if there's a sudden change, something was missed. It was my understanding that a PWD could decline…
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Helping mom with a move
Mom is healthy ready to move out of house to a more supported living environment. Dad has Alzheimer’s so they are moving to a multi care living complex. This includes independent living, assisted, living, memory care. Mom is the key caregiver and is excited to move. Dad doesn’t have any recollection of looking up places…
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physical changes as dementia progresses and scary moment
I'm curious to know what are common physical changes that happen to PWD. My 82 year old mom has moderate/late moderate dementia but was in good physical health until recently. I'm noticing she barely has an appetite anymore and eats very little. She seems to have a harder time chewing and swallowing. Because of this I am…
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Mom died yesterday(2)
I have not posted here in a long time, but wanted to share that my mother passed peacefully yesterday. She was in the end stage of this wretched disease, and stopped eating a week ago. Hospice was on board, and helped keep her comfortable. My sister and I were by her side when she left this world. Many thanks to the…
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Fidget Blankets(1)
My LO has a habit of getting tissues, putting them in her pocket and the twisted them over and over. She doesn't realize she is doing this. I saw some fidget blankets. Has anyone used them and do they help satisfy the need to keep her hands busy?
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Good news! Hospice care!
Hello. I have tried updating since last summer with moderate frequency since we moved our LO into our home from her assisted living facility. She was deemed "pre-hospice level of care" in January 2022, and just last month she was deemed hospice level of care. She has mostly lost the ability to move on her own. It is…
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What kind of lawyer
Need help to understand what type of lawyer I should reach out to. My sister and I have POA for our mom with dementia. We haven’t formally done anything with it yet, but slowly have been working to gain her trust so we can help her pay her bills, write checks for the home care aides, manage grocery costs, etc etc. I…
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Handling hypersexuality
He keeps posting what he's trying to search for on facebook status, and he's searching for porn. He says explicit stuff in the middle of a conversation and it's so gross. And if you're here to yell at me or judge me for not taking away his internet yet then I'm not here for it. I'm doing my absolute best. No one wants him…