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Hypnagogic hallucinations
My wife told me she's been having trouble when trying to fall asleep because she's seeing things like vivid scenes of people and something like static on an old TV. We did a Google search and it sounds like hypnagogic hallucinations. We haven't been able to find any connection with MCI or dementia. But this is something…
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Bible Verse to Lift You Up 1/1/25
When Enthusiasm Is Gone Isaiah 40:30-31New International Version30 "Even youths grow tired and weary, and young men stumble and fall; 31 but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." me: When my enthusiasm…
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What planning?
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Disregard
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BIBLE VERSE TO LIFT YOU UP 12/29/24
WHEN EVERYTHING IS READY * WE WILL ALWAYS BE WITH JESUS! John 14:1-3 New Living Translation “Don’t let your hearts be troubled. Trust in God, and trust also in me. There is more than enough room in my Father’s home. If this were not so, would I have told you that I am going to prepare a place for you? When everything is…
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Bredesen randomized controlled trial
I recently listened to an interview on People’s Pharmacy with Dale Bredesen. He mentioned that he is the study chair for a randomized controlled trial for his approach to addressing a treatment approach for MCI or early stage dementia. Here’s a link to the page with more info about the trial…
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Vascular dementia
We are new to vascular dementia. My husband was just diagnosed a month ago, as well as frontal lobe syndrome,, , my father has dementia, but I’m finding this vascular dementia different. My husband pushed me yesterday. I’m wondering if there are any medications to help with his mood swings any input would be helpful thank…
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Handling SS and Medicare addresses when moving into facility
Hi, What do you do with your LO's Social Security address when s/he moves to a facility? My "understanding" is that it's linked to Medicare, so using any address other than the residence of the recipient will cause problems with the Medicare supplement and Part D plans in place that rely on the residence zip code. (I tried…
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Wonder if I have PTSD after my dad died
My dad passed away four months ago. I had moved him and my mom to an ALF approximately four months prior to dad's death. Their conditions at home had become unsafe. For one thing, I keep ruminating about the status of their living conditions at home prior to their move to the ALF. In my mind, I still see the glaring red…
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Change of living arrangements
Hi all, first time posting on one of these discussion boards but hoping for some help to support my partner as she navigate’s her grandmother’s dementia. Grandma (in her late 80s) has had several strokes which have accelerated dementia symptoms. Until recently she had been able to live somewhat independently in her own…
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Question about genetic risk and prevention
Hi, all. Sorry that we're all here because of this horrific disease. I have quite a bit of dementia and alzheimer's in my family, I'm trying to understand my genetic risk and any preventative measures I can take. In my family both of my maternal uncles, one of my mom's first cousins, my mom's grandmother, and my mom's aunt…
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Thinking of you
The holidays can be so hard. Thinking of you no matter what stage you’re in.
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From the NYT: The Lives They Led
This end-of-year article includes a section on Naomi Feil. You'll need to scroll down quite a bit to find it. https://www.nytimes.com/interactive/2024/12/20/magazine/people-who-died.html?unlocked_article_code=1.jE4.z51J.efbTs9_Va8M0&smid=url-share
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Christmas Cards
In a year filled with bad news, I am sitting here with a box of Christmas cards wondering what to write. I want to send cards; this is the only contact I have with many of the friends and relatives on my list. Caregiving is isolating enough without letting my last few contacts in the outside world slip through my fingers.…
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behavioral advice needed
Hi, A few months ago my husband and I joined a state funded Medicaid/Medicare association that provides day care, OT, PT, medical care, etc. So far it's been great for both of us as he is an 85 yr old with ALZ and I am his wife/caretaker, 75 year old with physical disabilities. We go 3 days a week to the daycare to give me…
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Mom is at peace
Mom passed away early this afternoon. My son and I were with her. I hadn’t been there very long. The change between last night and noon today was a lot. She’s at peace now. I’m continuing to feel numb - but l do feel relief.
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Seeking Advise - I am 25
I am 25 and my mother was diagnosed with early onset Alzheimer’s at 60. I am new here and need help knowing what to do. She’s about in the mild/moderate stage. My father passed away 2 years ago and the only family around is my younger brother who is 22. She has a sister that lives about two hours away. Family and friends…
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Inevitable Falling
I am sole caregiver for mother with later stage dementia. Hospice comes by 2 or 3 times a week, paid caregiver once a week, brother visits maybe once a week. That leave Mom and I alone … 76.2% of the week (yes, I did the math). Mom has started falling. A couple of bad falls, several (mercifully) mild ones. Two or three…
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Mematine smell?
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Help needed… grandfather thinks he fell in love with a nurse and had a big outburst, dementia?
I'll try to keep this as short as possible. My grandfather recently had a toe amputated about two weeks ago as it became infected (diabetic). He had to then come home on IV antibiotics, that I was to administer (i'm his grandson and POA). One day when I went to visit, a few days after the surgery, he had a nurse in his…
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Waiting for Dr in Chicago
Finally got a referral for my LO for a neurologist at a clinic specializing in dementia and they can’t see my LO until February of 2025. Is that normal? (I’m new at this) My LO recently got an MCI diagnosis. We are seeking treatment and I worry things could change a lot in 8 months.
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Bible Verse to Lift You Up 12/8/24
GOD TEACHES AND LEADS YOU AND ME Isaiah 48:17 New Living Translation “This is what the Lord says— your Redeemer, the Holy One of Israel: “I am the Lord your God, who teaches you what is good for you and leads you along the paths you should follow.” I am always asking the Lord for His guidance. I suspect you do too. He…
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dosage of psych medication your person is on ?
Her medication per day; RISPERIDONE 0.5mg, CITALOPRAM 5mg, VENLAFAXINE 75 mg , blood thinner APIXABAN 5mg She remains highly anxious and agitated , frequently crying and shaking. she is also very delusional and experienced another episode of delirium 2 days ago …during which she became combative with a nurse, . A few hours…
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
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Cruises for PWD and caregivers
I don’t know if this link will work - the article is from the Washington Post travel section 12-1-24. I no longer have a subscription so I can’t share it.
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Father's Illness Holding 23 Year Old Son Back; Need Advice
I am the caregiver for my DH with Alz. Our oldest son works from home and has moved in with us in the country (rural area) to help financially and practically. He is 34. Our youngest son (23) lives with our daughter (33) in the city and they both visit frequently. She visits every other week for 4 days & our youngest (23)…
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One day and the arguing has already begun
So Mom died yesterday. I told my siblings I was inviting my step siblings over to select anything and everything they wanted from mom’s apartment in assisted living. After all it was my step-dad’s too until he died in February. The will says everything is divided six ways. I was mom’s POA and I’m the executor of the will.…
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Caregiver daily log with timestamps, for a caregiver agreement
Would anyone happen to have an example of a daily care log they keep? Tasks completed daily with times. I was told to keep records of everything I am doing and the times they were done. I am looking for an easy way to keep track of this. Any pictures of examples would be great.
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A little humor
Maybe the last quip from MIL. She is in the “active dying” stage, mostly unresponsive. After spending a few hours with her this morning, I woke her up to tell her I was going home, I’d see her tomorrow, and I loved her. Although her speech is now hard to untangle, I swear she said “it was nice seeing you”.
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The last mile
I though I was ready for MIL to finish her journey but this is so hard. She’s dying of breast cancer which we chose not to treat. Hospice started morphine a few days ago. I never ever thought I would say this, but thank god for her dementia - she isn’t suffering and has no idea what’s happening to her. Although on some…