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Showering
The subject of a loved one having hygene issues and refusing to shower comes up often. In the NY Times, there is an article dated April 30, 2024 by Anna Gibbs titled "Why Is It So Hard to Shower When I'm Depressed?" I started reading with a hunch that there might be some overlap with what caregivers here experience with…
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In home care recommendations
Hello! I’m new to this forum. I’m supporting my dad who is sole caregiver for my stepmom who has dementia - I’m not sure what stage she’s in but the disease has progressed to point where it’s getting too much for my elderly dad to take care of her on his own. He’s struggling with accepting her true progression and knowing…
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My sister is revising all my parents plans - I just can't deal with it
I moved both parents to an ALF three months ago. They both have gone downhill rather quickly. Mom has stage 5-6 dementia. Dad has COPD and was recently diagnosed with CHF. Both are double incontinent. Dad is showing signs of dementia too. Their living conditions are challenging. Ten years ago, they did their Wills, DPOA…
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Relatively strong appetite in late stage 7?
My mom is in MC and on hospice in what I would say is late stage 7: in a wheelchair, no communication, no facial expression, rigid limbs, super skinny (her hands look skeletal—there is no other word), little or no vision in her left eye, semi-sleeping most of the time, etc. She is in her early 70s, diagnosed with EOAD more…
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Scratching, Scratching and more Scratching
It never quits. She has scared herself and I just keep plugging the leaks. I have tried EVERYTHING. Dermatologist said it was a part of the disease. Googled it and yes there are a lot of Alz patients that do this. I have tried lotions, oils, pills, changed washing detergent to hypoallergenic, don't bathe by 3 times a week,…
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Sundowning
Hello ! I am new here just looking for advice. My mom is 53 years old and in the late stages of Alzheimer’s disease. She starts sundowning around the time I get home from work and I’m looking for tips and advice on how to deal with it. Im so tired after work and I just want to relax so I get frustrated. She is on meds for…
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Suggestions please
my g.m. In law is the one I am helping to take care of. She is 75 and getting more age spots. She believes she is being abused when she sees them and thinks they are bruises. Any suggestions on how to deal with false abuse claims?
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All necessary input relative to the initial discussion about my Aunt received. None further needed.
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Dad with dementia, COPD, CHF now in renal failure-wants no treatment
I moved both parents to an ALF three months ago. Both with AD. Dad has COPD and had been hospitalized to treat new onset CHF three months ago. When he was released from the hospital we moved him straight into an ALF with my mom. The ALF called last night saying dad now shows signs of beginning stages of renal failure. They…
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New Here: Looking for support/community for "secondary" caregivers, extended family
Hi Everyone. My first time here. My sister in law was diagnosed with early on-set Alz about 16 months ago (after about 4 years of misunderstood difficulties) and seems to be progressing very quickly. I'm with her at least two days a week as a secondary caregiver to 1) spend time with her and 2) help take some of the…
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How can I care for my mother on my own without losing myself?
My mother is 61 and has been diagnosed with dementia. I'm young - 33 and dating. I have a life to live but I am also the only person who can care for her. My father died 10 years ago and my living brother refuses to support her care as he "has done enough in this life" after my grandfather had dementia and father died of…
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My Sweetheart never stops surprising me!
whent to dinner with friends last night talking about our aches and pains so out of the blue she says “ I have dimentia and forget things” and then our friend says we all forget , I look at her and said that’s first time you’ve talked about it I’m proud of you. She smiled and we had dinner.
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Comic relief
Lately, MIL has been having pretty lucid conversations - she seems to be understanding a lot more. Even though she remains unclear about a lot of things (like where she is), she’s making so much sense all of a sudden that I’ve been second-guessing my decision to place her in MC last year. Until this happened - we spent 5…
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When Vascular Dementia & Alzheimer’s came to Our House
Hello All, Glad to make your acquaintance. We are the Jacksons’ Just received my husband diagnosis on October 26, 2023. Vascular Dementia & Alzheimer’s ( moderate). Reading 📖 all your posts to become familiar with what’s down the road ahead.
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May seem like a silly question
GM all, I have a question that I’m pretty sure I know the answer to but my wife mentioned to friend that she’s feeling depressed, now understand my wife head spins when you mention Nurologist, so do I need to speak to Nurologist about this or if this something her primary Doctor can take care of ?????
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feeling helpless
My wife was recently diagnosed with early onset dementia probably due to AD. After seeing a Neurologist for 2.5 years, including an inconclusive spinal fluid analysis they now think they can diagnose it as early onset dementia. As I type this, there has been no course of treatment for her prescribed by our Neurologist. He…
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Staying up all night and wanting to go home
My wife has recently been getting up at night and asking to go home. I ask her where she means and it's usually her childhood home that she's been out of for 50 years now. I started her on Melatonin which my doctor said was ok to give her. It worked a few nights but then she had her worst episode last night when she stayed…
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New Article Sent by my CELA: 5 Medicare benefits consumers should know about. TRUE??
Hello fellow caregivers, My CELA just sent me an article titled, "Alzheimer’s disease and dementia care: 5 Medicare benefits consumers should know" because she wanted me to know that it looks like Medicare Part A will pay for up to 35 hours of in-home care per week for dementia patients who are homebound and require…
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NYT Magazine: Racing to Retake a Beloved Trip, Before Dementia Takes Everything
A touching story about a daughter and father's trip to Europe. I gifted article so it's unlocked for 30 days. I learned about a 1950's themed adult day care and artificial village called Town Square. But the key part of the story is about reminiscence.…
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How to know I’m making the best desicion
I’m new to the discussion. I need help. I am struggling with the deduction to bring my father to my home in California. He currently lives by himself in another state has had a dementia diagnoses since 2017. Currently he his doctors have recommended for him not to drive. VA has only approved 6 hours a week of home health.…
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Leqembi infusions
Hello. My DH has been diagnosed with Alzheimers and recently began receiving Leqembi infusions every two weeks. I would appreciate hearing from any other caregivers who are undertaking this treatment. I'm looking for support and advice or tips.
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Today's Win
After some conversations with my state senator (and her super nice aide) the state of Delaware passed a resolution today naming September 22-29, 2024 FTD Awareness Week. It was oddly emotional to be there to see it pass.
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Barely survived S In storm
60 hours with no electricity, 72 hours without TV, phone or internet. Stuck in the house with a spouse that does nothing but watch TV and drink beer. I had to watch him every minute to prevent him from opening the fridge or trying to fix the TV. He fidgeted, paced, and repeated himself all day, for 3 days. I pity those of…
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Morning Meds
I talked with my sister's care facility this morning to see how she was doing with a med change her neurologist made recently. The med tech said she was doing good. She didn't have her morning meds because she didn't get up until almost 10:00. When I asked why they didn't give her the meds when she got up, the tech said,…
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Too involved? Waiting on crisis?
My grandmother, father, aunt and oldest sister had dementia and have passed. My living sister is having memory problems (67 yrs old). She asked me to go to doctor with her, I did. Doctor ordered blood work, an MRI and an appointment with a neurologist. MRI came back normal. Blood work came back with elevated liver enzymes…
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Some useful resources
Michael and I were not sure how useful some of these resources are, but some may be useful to some here.
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Medical POA question
I had an interesting event happen yesterday. I took my mom to a pulmonologist appointment. A doctor she has seen several times. As usual, there was a form to sign while in the waiting room. I had mom sign it- consent for treatment and to bill the insurance. She signed her first name and I had to prompt her to sign her last…
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Evanthea dementia reversal
Hello everyone. Just seeing if anyone has heard of or has any thoughts on the Eventhea dementia reversal clinical trial?
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POA
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Suggestions PLEASE
Hello everyone! This my first post, as a matter of fact, this is the first time I am dealing with someone with dementia. I am overwhelmed to say the least. I recently came to stay at a shelter, as I lost my house. This was 2 months ago. It's a small shelter, at present, there is just myself and another person, who has…