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Bible Verse to Lift You Up 12/8/24
GOD TEACHES AND LEADS YOU AND ME Isaiah 48:17 New Living Translation “This is what the Lord says— your Redeemer, the Holy One of Israel: “I am the Lord your God, who teaches you what is good for you and leads you along the paths you should follow.” I am always asking the Lord for His guidance. I suspect you do too. He…
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dosage of psych medication your person is on ?
Her medication per day; RISPERIDONE 0.5mg, CITALOPRAM 5mg, VENLAFAXINE 75 mg , blood thinner APIXABAN 5mg She remains highly anxious and agitated , frequently crying and shaking. she is also very delusional and experienced another episode of delirium 2 days ago …during which she became combative with a nurse, . A few hours…
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
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Cruises for PWD and caregivers
I don’t know if this link will work - the article is from the Washington Post travel section 12-1-24. I no longer have a subscription so I can’t share it.
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Father's Illness Holding 23 Year Old Son Back; Need Advice
I am the caregiver for my DH with Alz. Our oldest son works from home and has moved in with us in the country (rural area) to help financially and practically. He is 34. Our youngest son (23) lives with our daughter (33) in the city and they both visit frequently. She visits every other week for 4 days & our youngest (23)…
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One day and the arguing has already begun
So Mom died yesterday. I told my siblings I was inviting my step siblings over to select anything and everything they wanted from mom’s apartment in assisted living. After all it was my step-dad’s too until he died in February. The will says everything is divided six ways. I was mom’s POA and I’m the executor of the will.…
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Caregiver daily log with timestamps, for a caregiver agreement
Would anyone happen to have an example of a daily care log they keep? Tasks completed daily with times. I was told to keep records of everything I am doing and the times they were done. I am looking for an easy way to keep track of this. Any pictures of examples would be great.
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A little humor
Maybe the last quip from MIL. She is in the “active dying” stage, mostly unresponsive. After spending a few hours with her this morning, I woke her up to tell her I was going home, I’d see her tomorrow, and I loved her. Although her speech is now hard to untangle, I swear she said “it was nice seeing you”.
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The last mile
I though I was ready for MIL to finish her journey but this is so hard. She’s dying of breast cancer which we chose not to treat. Hospice started morphine a few days ago. I never ever thought I would say this, but thank god for her dementia - she isn’t suffering and has no idea what’s happening to her. Although on some…
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Holidays
My wife of 60 yrs passed last May after the long battle. I know she is in a better place now but the holidays are here now and it's taking a toll on me. Thanksgiving I broke down and my daughter was there to console me but with Christmas fast approaching what to do?? Loneliness is a killer. My best friend lost his spouse…
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How to get over how mad dad was at me for moving him to ALF
My dad passed away two months ago. It came four months after I moved him and my mother to an ALF. Mom has moderate dementia. Dad had COPD and late-stage CHF when I moved them. It was clear to me in the few months prior to the move that dad had become too unwell to care for himself or mom appropriately. I did not know he…
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My watch over dad has ended and it feels so empty
My dad took his last breath in this life just yesterday. He was 89 years old. He and mom, who has dementia and is in memory care, were married 65 years. I moved both to an ALF about four months ago. I think my timing turned out to be just about right. I thought the world would look different without my dad in it, but it is…
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Bible Verse to Lift You Up 12/1/24
GOD IS WITH YOU AND ME Psalm 139:16-18 New International Version “Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be. 17 How precious to me are your thoughts, God! How vast is the sum of them! 18 Were I to count them, they would outnumber the grains of sand—…
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It’s over
MIL died early this morning. At the moment I’m feeling profoundly relieved and grateful that her journey is done. I know there’s a host of emotions waiting for me but just now I’m going to enjoy a little peace. It’s early morning here and I’ll wait til family members are up to call them. But the funny thing is I wanted to…
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Happy Thanksgiving
Thinking of the community here, both past and present, and wanted you all to know that I'm so very thankful for the opportunity to interact with you, and for the kindness that everyone meets when they share their journey here. This truly is one of the most reasoned, courteous, and helpful forums around.💖 Your person may…
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Terminal agitation or restlessness
Mom started this stage of the dying process yesterday . Made worse when she refused her Valium. She hasn’t yet started morphine because she doesn’t appear to be in pain. Neither does she have labored breathing even though we can’t keep her cannula in her nose. It was really bad yesterday and only a little better today with…
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Out of psych hospital
After a suicidal attempt and a month journey in a psych hospital, she will be released tomorrow ! The AL is taking her back in a more secure wing Don’t know what to expect .. she has been wanting to die for the last few months , begging , crying and when she finally met a doctor to discuss she just said it was no longer…
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Prime example of clueless family
This was in the newsfeed I have: Prime example of clueless siblings! makes ya mad!
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Improving emergency care for people with dementia
Michael Ellenbogen has been working on this important project for some time. He is one of the co-authors in the linked article. https://outlook.live.com/mail/0/inbox/id/AQMkADAwATE0YTEwLTZkZWMtZWY4Ni0wMAItMDAKAEYAAAMe8X2mg8UKQKMXq%2BSo2HGuBwC6%2FjKngSETRo24yIoaaSzbAAACAQw
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Not Sure if it’s the End
Hi all. Been caring for my aunt for almost 2 years. She’s almost in her mid-nineties and came to live with hubby and me close to 2 years ago. It’s been a rough ride, as I’m sure it has for many, here. My Aunt is almost fully incontinent now, and has frequent delusions. I have a little bit of a medical background, but…
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Building diet resources after my father's early-onset diagnosis - seeking your experiences
Hello everyone, My father was diagnosed with early-onset Alzheimer's earlier this year, and through our journey, we've found it challenging to find good dietary resources and support. I'm working on building an online resource to help others facing similar challenges. Before building it, I'd really value hearing about your…
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Has anyone had a PWD who experiences seeing shapes, etc. that appear transparent and "see through"?
Hi, My Mom is 102 and, while having extremely short term memory, has never until now described or shown evidence of other dementia-related symptoms. The past few days, however, she's convinced that she's not at her house and needs someone to pick her up and take her back home (she's been in AL for the past 9 years), etc.…
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While I wait
I’m working on trading in my anger at all those people who made this journey harder. I don’t want to hang on to the bitterness.
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This is hard....
Hello all....I'm new here and I am feeling so overwhelmed. I am the caregiver for my sister who has Alzheimer's and the things I have gone through over the past year has been exhausting. I have no other help and her Medicare has been cancelled, so I'm kind of on my own until after January when I can apply to have it…
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Some good advice
This is my caregiver education for the month of November as an adult foster care provider for my loved one. I thought it was good advice that we can all use.Communication and Interpersonal SkillsThe caregiver/member relationship can often be tenuous and difficult. Home care is a stressful setting that typically involves…
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Keeping a list , documenting the journey
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Anyone ever move a loved one on Medicaid to another State?
My sister’s nursing home has asked us to move her. They are citing that she is “exit seeking” and that she is difficult to deal with - saying that she needs to be in a memory care wings. They do not offer the service. I suspect that is not the true reason - yes, she is difficult, and she is an exit seeker (5-6 times a day…
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Language issues
My spouse has had problems with language for several months. I mention it when people ask about him, but I struggle to explain it. So, yesterday, I started a list. He was staring out the kitchen window (at the sunset). When I asked, "What's up?" he said, " I'm looking at the thing that's going to go away soon." What do…
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I have a question about Parkinson's Disease
I have a friend who has Parkinson's Disease. Her voice is very soft and I have to ask her to repeat two or three times before I can understand what she is saying. She wears hearing aids and probably doesn't hear her own voice well. I would like to suggest that she receive speech therapy to improve her voice and speech. Can…
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Advice on auditory hallucinations?
I've been searching and reading the forums for a while, looking for my situation but I've not quite found it. I'm a caregiver for my aunt. She's diagnosed with Dementia, but doing quite well, able to clothe herself, eat, walk around, etc. The biggest problem is hearing voices, as she has been for a year. For the most part…