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T-PAU217
just wondering if your LO had this blood test as part of the AD diagnosis process.
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In home help
Tomorrow I will be talking with an agency that will provide in home help for my DH so I can do so many needed things that I have been putting on hold since his diagnosis in January. I have been utilizing family and friends to spend time with him when i have appts or do something socially, but some of his needs are more…
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Advance Directive for Dementia
I saw some brief mention in this forum of an Advance Directive for Dementia but not a detailed discussion on how frequently people use it. It is used as a supplement to a standard advance directive. It is not legally binding, and is also a very uncomfortable thing to perform (e.g. do not prolong life), so I have a feeling…
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My LO and the hired caregiver issues
I am the significant other/POA and official caregiver for my LO. We have been together for 39 years but he now has mid stage dementia. I hired a caregiver to help me at home, 3 times a week for 4 hours. The caregiver helps with toileting, bathing and household chores. The caregiver will keep him company so I can go out to…
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Incontinence before Dementia - forgetting pads
My Mom was diagnosed with dementia 5 years ago. She was having kidney/bladder/incontinence issues before that. She recently started forgetting to put in a pad. Yesterday she stood and peed while we were having dinner with some friends. She knew she was doing it. She had forgot to put a pad in, but didn't realize it. She's…
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First time visiting since he was placed in a nursing home
I'm the daughter of a parent with dementia. My father was in the early stages of dementia the last time I saw him. He was losing his ability to speak clearly, stop frequently, and figure out how to express his thoughts or feelings. That was three or four years ago. His illness spiraled since then and became too difficult…
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How to get her to visit a facility and move ?
We need to move her , we found a good facility ,but they want to meet her first and evaluate her ! She will not accept. She live alone in AL facility, has her meds delivered morning and evening She is morning-downing every day , very agitated ,confused them by afternoon totally normal. She eats ,dresses and bathes on her…
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Alz medication
My Dh was on namenda and was unable to take it . The neurologist put him on Donepezil hcl . Has been taking it for about 2 weeks. Has been incon of stool 2x now. Is this normal at first or is he progressing. Any way he refuses to take it now. We are running out of meds.
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Dental problems
My DH who is in stage 6/7 has been having problems with his teeth for at least a year. He has several front teeth that have decay and lost a crown several months ago that the dentist was not able to replace because of decay underneath it. He said he would likely need about 7 teeth pulled. The dentist said he was unlikely…
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Physical therapy vs Occupational therapy ?
Good morning all. My DH had his first physical therapy spot yesterday. My DH wanted me there for the intro , I was, adding info when he wasn't able to recall time frames of events. When the physical exercise began he wasn't able to follow her verbal directions and kept apologizing. The therapist said it's okay, you've just…
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Trouble finding caregiving help
My husband has early-onset Alzheimer's that has progressed to moderate stage. He doesn't need help with personal care yet but he has difficulty communicating, can no longer drive and can't operate the coffeemaker, microwave, TV, etc. He's still cognitively very aware but finally agreed to let someone come in to help…
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Med Help Needed
Hello! My dear mom is unable to verbalize anything now. She has recently begun to be more combative and agitated with the staff at her nursing home. The Dr. felt she may be in some type of pain, so he prescribed traMADol HCl Oral Tablet 50 MG before bed. He said it is a good place to start. Mom is already on 75mg of…
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Early Memory Loss Lecture
I live in Orange County, California. Yesterday I took my brother to a lecture at the local Senior Center. The lecture was titled "Early Memory Loss". When we went to visit the senior center in June, this was on the calendar for July and DB was interested. I spoke to him this weekend about going to this Monday, per his…
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What qualifies for SNF?
We can’t afford memory care. We can’t afford FT home care. I’ve been FT cater for two years. The first year I was still very angry and in denial. (I’ve been angry at him for years now not knowing what’s going on, being abandoned, etc). It took about 6 months of working on myself to get to the point now where I think I’m…
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She did it again.
last nite out with friends and she was talking to someone and says “ I have dementia but I’m getting better” that’s second time in couple of weeks to mention dementia…
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Bathing, Shower design
Does anyone have any advice for designing/building a shower? We have a leak and are going to replace out tub/shower with an accessible shower. Should it have sliding doors or curtains? Where should the grab bars be located? Is a built in seat useful or better to have separate seat? He is still active but not so flexible,…
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Dementia family member & Theft
I would be very interested to know if anyone has found any - even short term - "tricks", methods, remedies to a dementia family member stealing. It was be sunglasses from a family member or just out in the open someone's personal item on a table when they aren't looking. Not ill-meaning or strategic, simply can't help it.…
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In Home help
We had an incident last week: I left my husband alone for 90 minutes while I ran errands and when I returned he had either allowed a total stranger into our house to "view something" in the backyard or he hallucinated the entire episode. Then this week his diagnosis was changed from mild cognitive impairment to early…
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Baby Doll or Fidget Blanket
My Sweet mom is in a nursing home and is beginning to fidget with her hands. She likes to try to fold her clothing protector, and my one sister wants to get her a baby doll. My other sister suggests a lap blanket with things on it for her to play with. Does anyone have any thoughts on which is better? Thank you!
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Rivastigmine
anyone have experience with Rivastigmine daily patches?
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Constantly organizing and starting over
It seems to me what I'm about to describe is a common behavior, but I didn't see it on the staging tool. It seems akin to the hunting and gathering in early stage 5 but I'm interested in input from other folks. When looking for a check book recently my DB's wife mentioned she had to be careful with her stuff. DB was…
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I don't need help video
This popped up in my feed and I thought I'd share.
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Absolutely CRAZY in the mornings
Every morning now since a month or so .. She is totally confused, agitated, shaking, paces back and forth in the kitchen , crying, does not want to live anymore, terrified of not understanding her surroundings, does not know what to do … Then slowly she calms herself , we supervise her while she makes her coffee, her…
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Hint: preparing food in oven is less stressful
I cook most meals for PWD, unless it's takeout. I found that using an oven causes fewer problems, since using a cooktop will often encourage PWD to "help", which causes more problems and poses danger. With an oven (let's say it's baked cod on a sheet pan), you can quickly prep, put into oven and wait until done. While this…
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Is there any early warning system for dementia?
I am worried about my grandmother and grandfather developing dementia. Although they don't have any clear symptoms yet, they often forget small things, which concerns me. My great grandmother passed away due to dementia, so I am even more worried. The dementia screening tests seem too simple and unreliable, and it feels…
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Suggestions for software for keeping track of everything
I think I should start keeping stuff organized and am wondering if anyone is using any particular software that they find useful. So far, everything I have has just been written down in a book and the stuff that's printed off is in a folder. I would love to just get everything into a program that will make it easy for me…
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Support group?
I am 22 and a caregiver of my grandma with dementia and looking for a support group chat for people who are also a caregiver. I was thinking of making a discord server or instagram group chat. Please comment if interested. I would like to share info I know and get advice from others. 🙏
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Need suggestions!
Hello out there. We are moving my LO into memory care in the next couple of weeks, but not sure how to go about telling her without a complete meltdown. Looking for suggestions/ideas/success stories. I intend to make up a little white lie in order to have it make sense to her as to why she would have to move out of her…
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Forget Me Not
While I have found this site very helpful I have also searched You Tube and found several other very informative sites for caregivers like myself and loved ones that others may find helpful. I found Answers About Alzheimers on You Tube and a very informative and helpful book Forget Me Not by Debra Kostiw. Using the…
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Post from new caregivers group- please respond to poster
@Penny Hansen Penny posted the following on the new caregivers group. Please tag her when you reply. My DH has recently moved to an increased level of memory loss. He does not recognize me or our home. He has a lot of questions, and I am unsure how to respond. Some of the articles I read encourage the caregiver to meet…