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Long term care
How have you handled the transition to a care facility? Mom has intermediate ALZ, and it is starting to progress rapidly. My dad has almost died 2 or 3 times this year due to the stress of being a caregiver. Right now mom is in a COA program, I do the cooking, laundry is done by my sister or me, and my siblings and I…
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How to handle critical relatives
I have a question that I'm sure has been covered before. How do you deal with relatives who don't help with care yet are full of advice and are somewhat critical if anything happens with your loved one. More specific my mother has a UTI and on her birthday my sister and my aunt asked when am I going to place my mother in a…
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Selling my Dad's car without the Title in CA
We need to sell my dad's car, now that he is in an AL/ MC facility. I have the POA, but not able to find or access the Title ("Pink Slip" as we call it in CA). Any suggestions on how to do this through the DMV?
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The simplest decision is too much
Mom may or may not have a UTI. Hospice ordered her an antibiotic. She’s been on hospice for 5 days. Due to cognitive decline. Today was another sad day for me. She called me at 11. Basically it seemed to me that she was looking to be told what to do. So I told her to get dressed and go to the AL dining hall. Lunch would be…
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Bible Verse to Lift You Up 10/27/24
Dear Caregiver, there are many verses here, so my suggestion: Read a bit now, pray and think about it, and come back later to read a bit more. It is always worthwhile rereading and meditating on familiar verses especially these about love. You give up and do so much because you choose to help someone who needs you. That is…
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going without mom to Social Security for request replacement card
Dear friends, tomorrow I am going in person to the Social Security office to request a replacement Social Security card for my mom. In the process of requesting the appointment the algorithm stated I would need "medical certification" why my mom could not present herself. Also, I am my mother's power of attorney; I do have…
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new
Hi, I thought I sent a message but I don't know how to see it. After I post this will I be able to easily see the responses? My sister was diagnosed with Alzheimer's/Dementia last June after a PET scan. We finally have the follow-up appointment with her doctor Nov 7th. How does the doctor determine what stage/level my…
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Humor from my PWD
Me: are you sleeping? Her (with eyes closed) yes I am. Me: and talking too! Her: (eyes still closed) I’m talking and sleeping. I have many talents.
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New here
Thought I would introduce myself to the community and glad I found it. DW was diagnosed recently with AD after a lengthy and somewhat frustrating medical journey. She’s 55 and pretty far along as far as the scales go-in the 6’s. Anyone have any insight into the awareness of the disease. She seems pretty aware of what’s…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Attempted suicide and does not remember
She attempted suicide this morning with a knife , struggling with staff, they sent her off to a mental hospital and now she does not remember … Anybody experienced that ? Wondering if Alzheimer alone is causing this or another form of dementia or mental illness
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Genetic tests showed that certain patients were predisposed to brain injuries if they took Leqembi
NYT: What Drugmakers Did Not Tell Volunteers in Alzheimer’s Trials Gift link. https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?unlocked_article_code=1.UU4.KqG8.FPSRwXrExKTl&smid=url-share
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Numbers items
Hi I'm new to this group. My mom has some form of dementia going on we have not got to the neurology evaluation yet. Just wondering if anybody else's loved ones number things. Like shoe number one and shoe number two, the shirt is number nine. It occurs with food and pretty much everything for the past few weeks. Had a…
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New to community
I am a caregiver for my parent who lives with me. It's been a little over a year and it has been challenging. It's a little better now but early on I cried almost everyday. My father has had mood changes. Looking for ways to manage. I wish my family was more supportive. Everything is left up to me.
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AFTD meet and greet
if you’re in Delaware, southeastern Pennsylvania, eastern Maryland, or south Jersey, I’m hosting a dementia caregiver meeting on behalf of the AFTD. It’s on Saturday, October 26 at 10:30 in Middletown, DE. Details in the link:
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Heavily shaking and drugs
Mother is now in a semi autonomous home, she is adapting well but now realizes that something is wrong with her .. she does not understand Alzheimer but is terrified at her brain not functioning properly , she will say ; if only I could make my brain stay where it is supposed to be , I would have no problem.. She is…
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Blocking porn on laptops/cell phones
Hello All, First post here - I just signed up today. I am a part-time caregiver for my father with dementia and he has no problem watching porn when I am in the room, multiple times a day. I can hear it! My mom can't because she has hearing issues. But she sees it as well. And the psychological damage is indescribable. I…
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Short-Tempered Caregiver
I've been reading through these posts and I see a lot talking about the PWD getting angry, but I didn't see anyone talking about situations in which the caregiver is short-tempered and yelling at the PWD. My mother's primary caregiver is her husband who is not physically abusive to her, but is very short-tempered (always…
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Bible Verse to Lift You up 10/20/24
WORKING FOR PEACE Psalm 4:8 NLT "In peace I will lie down and sleep, for you alone, O Lord, will keep me safe." Matthew 5:9 NLT Jesus' Words "God blesses those who work for peace, for they will be called the children of God." THINK ABOUT THIS Do you lose peace often? If so... What tends to make you lose peace? Have you…
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Open Discussions with your LO in early Cognitive Impairment
My LO and I were married 25 years ago. She was, and still is, a vibrant, beautiful, and active woman with almost childlike enthusiasm to learn new things. LO is a passionate Christian, a strong conservative, and a woman who never leaves the house without being meticulously made up and dressed. She was never comfortable…
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Health Insurance Considerations
My mother has Stage 6 ALZ and is in MC in hospice care. My brother holds her DPOA, and we three siblings all hold the healthcare POA, able to act individually. We consult often about her care and make major decisions jointly with no disagreements. My mother's current Medicare Advantage Plan is being discontinued, and my…
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Right?
I just want someone to tell me I’m right (yes I’m venting about family and MC staff). My guiding principle is “if it doesn’t bother her, don’t fix it”. MIL recently lost her upper dentures but she doesn’t realize it and doesn’t miss them. No action needed. What do I hear from MC staff? I should get her fitted for a new…
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Wife pissed off at me
wife pissed off at me , need advice let it go or leave it alone. ??
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Funny, not funny
MIL lost her dentures. She doesn’t realize they’re gone and she’s eating well, so I’m not subjecting her to a visit to the dentist. The staff at her MC is really upset, even though I’ve assured them it’s no biggie. They’ve searched everywhere - they even checked all the other residents’ mouths! I swear sometimes I think…
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Mom was accepted into hospice
it’s rather surreal typing that subject line. I got a call from the hospice agency out of the blue yesterday it has been two months since her first evaluation and they wanted to evaluate her again. I told the first person that called that I wanted to wait two weeks. The AL nurse is on vacation. Two hours later the second…
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Circles and circles and circles
I teach elementary school, which means I have circular conversations all day. I have a parent in early stages of degenerative brain disease, which means I go home and have circular conversations. I foresee lots of screaming in my car.
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Respite care services Denver, CO?
Hi- new to this space. My mother was recently diagnosed with beginning stage Alzheimer's and capgras. My father is the primary care partner at the moment and he needs respite. Does anyone know of an assisted living facility in the area that will do short term respite care? Thanks!
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Facebook reel is not appropriate
I’m just going to vent here because I’m sure not going to vent there. If you have Facebook, you know there are public reels that show up on your feed - mostly cute little snippets- gender reveals, military homecomings, new puppies etc. Some middle aged man has been putting up reels of his elderly father with dementia. It’s…
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Picture telephone
I am looking for a phone for DH to use that can dial by pressing the button with a picture or name on it. I have Spectrum internet phone service (landline). I purchased 2 so far and neither have worked with this. Has anyone had luck with this?
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Advice on in home behaviors
Does anyone have any suggestions on how to explain to my Dad that he needs to throw his depends away when they are wet vs just leaving them on the floor? Any advice on how my Mom or I can explain this to him and him not get furious at my Mom like he has been any time she asks him something? For example, he has on a depend,…