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Zunveyl new med on the horizon
I came across some info about this medication today. It just received FDA approval in July 2024 and is predicted to be on the market in early 2025. I'm very curious about it because my wife has been taking rivastigmine and has been having a horrible time with the nausea side effect. I also read this study that was posted…
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Peroxynitrite scavengers for the treatment of Alzheimer's disease
This new study "confirms" what I have been saying for years: "The elevated levels of ROS (reactive oxygen species) are among the major pathological alterations in AD. Among them, peroxynitrite (ONOO-) exhibits a greater impact compared to other reactive oxygen species and plays an important role in AD, but the role…
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15 Minutes of Fame
Hello friends! I haven’t been here for awhile. I wish that everyone is peaceful on their journey with their LO, yet for myself and many, that just isn’t possible. I just happened to meet the author of this book, Tryn Rose Seley, on a trip in Ireland/Scotland. I’m spending almost 3 weeks with her and others on this…
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NYT: Reducing inflammation may help forestall dementia & provide other benefits
Gifted link for 30 days below. Article states that GLP-1 receptor agonists like Ozempic may reduce inflammation, which can provide other benefits beyond weight loss, and that "There’s also increasing evidence that inflammation affects dementia and, more broadly, aging itself" It also states that we can't rid ourselves of…
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Help
Good afternoon all. I am new to the group, but not new to the feelings associated with being a caregiver to someone who is aging and losing their mental capacity. My mom, who will be 82 in November, and lives with my husband and I, is exhibiting more signs of dementia, and it is becoming worse. I am at my lowest point to…
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Study re: thickening liquids for dementia patients not helpful
https://www.nytimes.com/2024/09/14/health/medical-practices-treatments-patients.html?unlocked_article_code=1.Kk4.dDUs.VucQhUUuduot&smid=url-share
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Type of humor that works with PWD
Doctor gave me a handout on things that helps with brain health for PWD, and it included humor. I realize it depends on the person and stage, but I suspect that "juvenile" humor works with PWD, compared to clever things that may be hard to grasp. So this may include things like simple puns, knock knock jokes or even potty…
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EOAD Delusions about son, advice?
Hi, My husband has EOAD. In middle stage. He believes our son has brought his friends over and they ate all the food. Current he does not want to see our son when he visits and is upset/restless when he is here. For now our son is staying away while we figure this out. My husband also will say I don’t know where our son is…
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Don’t know who to address as question
for those of you who may not know me my wife is in a good place with this so far. Doesn’t drive, not interested in cooking. Has short memory loss and confused at times. Can be left alone and people surprised when I tell them. Ok question. Last 3 nights at same time she gets up to go to bathroom and pees on way. She’s aware…
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A laugh at the end of a tough day
I won't vent about my day - we all have them. I will share something that made me snort-laugh. So my husband was pointing at the dog on this magazine. I said "oh, it's a cute dog" and he replied "well, it's Kevin Costner."
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Resigning as Power of Attorney and feeling guilty
I don't know if anyone else has ever done this but I decided this weekend that it was time for me to give up power of attorney for my mother. I am feeling horribly guilty and sad about it, but at the same time, also a little relieved. I didn't really want this role to begin with, but I am the organized and responsible one…
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Should my aunt- having recently moved into AL - have a phone?
Hi, Part of her sundowning has been to have episodes where she's very confused and worried about where her sister is, or, most recently, where her (deceased) father is. Generally, someone in the family (but unfortunately most recently the police) gets a frantic call from her at all hours about these types of concerns. Now,…
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Long vent, sorry in advance...
In 2021 my grandparents moved my great aunt into the same apartment complex as me, less than a year after my mother passed away suddenly (and without warning) back in 2020. I was instantly forced into caring for my aunt without any sort of discussion. So now I am 35 and am currently the main caretaker for my 94 year old…
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Living with Early Onset
Hello community, My father has been diagnosed with early onset Alzheimers. As you all may relate to, times get rough. I live with my father and 2 other family members with a brother who has recently moved out. At the age of 23, I have a lot going on - with a full time job and hobbies. I love my father and would do…
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Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
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Bedtime Routine for TV-Lover with MCI
Hello! I am new to the group. Very grateful to find this resource. My 80-year-old mom was diagnosed with MCI almost a year ago. Biggest issue right now is trying to get her to bed at a good time at night. She is gradually staying up later and later to watch TV and then sleeping later in the morning, groggy all day, doing…
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State Policies on Caregiving and Alzheimer's Disease
Information from Michael Ellenbogen: We invite you to join us for our next webinar, "State Policies on Caregiving: Opportunities for Supporting Dementia Caregivers" on 10/1/24. This webinar will introduce the caregiving policy approaches of New York and Illinois, discuss successful strategies, identify policy gaps and…
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Un-dressing issues
Dear all, has anyone found a good strategy to keep a person with advanced dementia (FTD) dressed? My dad is still ok with keeping his clothes on when we are outside or at the groundfloor (with a lot of talking from us explaining this is absolutely necessary for XYZ reason, trying to make him laugh etc.) but it's becoming…
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LTC Insurance and Travel
My LO has an LTC claim started (not yet approved) and is likely eligible for benefits, but she is still eager to take trips. Does anyone know whether, typically, an LTC company might pay home healthcare benefits while the patient is still taking pleasure trips with a close companion to monitor them? Or do the LTC companies…
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Looking for a friend to get through this with in the Sacramento area
I am following the lead of Bailey who posted this request for her area. Thanks Bailey for the idea. I am 60 years old and caregiving my mother. I am looking for someone caregiving a parent or spouse at home for mutual support in the sacramento area.
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Question about Thyroid Related Alzheimer’s or other Dementia
my DW has developed a very fast progressing Dementia still waiting for a accurate diagnosis, via MRI. She has lead a very healthy life, no major medical issues, no hospitalizations. Stays very current, with our PCP, She was tested and had a lean MRI IN 2018. Her only health. Concern was her thyroid and her weight had been…
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How to keep my sister decent in hospice during my respite.
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Challenges over Loss of Control
Good afternoon! I'm a brand-new poster and am an only child to my 79-year-old mom with VD. She's in memory care and has been in decline for years, with bigger deficits after stroke-type symptoms and multiple falls. Over the past year, she's become more paranoid and accusatory about my not visiting enough, the management of…
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Early Stage ALZ and hallucinations
Hi all! My Mom is 85 years old and has early stage ALZ. She is living in a senior living center (as assisted living) and loving it. She generally does quite well, just the bad memory and confusion from time to time. While she was living in her home (with her husband who has since passed away from lewy body), she was having…
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Rehab facility won’t restrain LO for safety; legal?
LO in rehab after breaking hip. Won’t sleep in bed, sleeps I. Chair and fell out. Facility says they cannot “ safety belt” her in the chair or restrain her in any way. Just got a call back… she is unresponsive and going back to ER. I live 3 hours away. Why can’t she be secured for safety purposes? This seems like negligence
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Sedation for MRI?
DH had brain MRIs and is now totally against another. He said he won’t do “the coffin “ …But he may have NPH and neurosurgeon needs MRI of spine. The possibility of him getting back walking ability etc by draining some excess spinal fluid with a brain shunt is all new to me but that hope makes me think it’s worth trying to…
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Broke my heart
My DH has done nothing for 2 years,besides watch TV and feed the birds and squirrels. Here in the last 2 weeks he has been cleaning out his man cave( which was disaster d/t I'm not to move or touch anything). He hoarded box's? Today I ask him what was going on with the cleaning? He said 'I'm aware of my mortality and I…
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NPH Discussion Group
I am interested in Normal Pressure Hydrocephalus (NPH) for my DW. Searching these message boards turns up a lot of useful information, often referring to a Yahoo Group on the topic. Yahoo shutdown their groups in 2020. Does anyone know of a similar discussion group that is currently active? Thanks
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Care.com settles with the FTC over misleading claims
Good to know. Care.com misled caregivers and families — and made it 'impossible' to cancel, the FTC claims
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Sundowning
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