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Gonna put you in a home!
Tongue in cheek title btw. I have toured 5 local facilities and 4 of them are nice enough, they all have a progression to nursing home or memory care as needed, and costs and T&C are similar. My situation is much better than many who post, and my heart goes out to the caregivers and LO who are suffering the worst…
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Youtube goes live on March 22nd at 5pm ET
https://youtu.be/_jsR5Dv2LRA
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On grief(1)
Residual grief hasn’t lessened the grief I’m feeling during these final days. It was just 4 years of grief. Dang it! She hasn’t eaten in 8 days.
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Questions(5)
I’ve been on a pathway to diagnosis for several years now with my mom. And the day that I’ve been scare of every day arrived. My mom’s neurologist called and said it’s Alzheimer’s. And it flattened me. We have an appointment on Tuesday and he’s going to tell her the diagnosis at that point. He told me to bring all of the…
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New hearing aids - challenging
Has anyone else given hearing aids to their LO with dementia?I had hoped they would improve our communication and experiences, but she complains of “noise.” When hearing aid is touched, it will produce static (when I put them into her ears, and later, if she puts on a hat, or touches her hair, etc). I remind her that the…
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Bible Verse to Lift You Up 3/24/22(1)
TODAY'S REMINDER * 1 Corinthians 13:4 New International Version “Love is patient…” * “Patient (patience)—able to put up with problem or pain without complaining or becoming angry.”-NIV Dictionary. * STICKY NOTE: When my patience is tested, I will pray immediately. Like Comment Share
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Hiatial hernia
https://www.mayoclinic.org/diseases-conditions/hiatal-hernia/symptoms-causes/syc-20373379 The ER sent him a prescription for a higher dosage of Hydrocodone and another medicine to reduce inflammation and acid reflux. The hernia made his compression fracture in his L1 vertebrae worse, so he has to go to his back doctor…
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Sundowners(4)
Hey all. I know Sundowners is definitely a big thing with AD. Recently, it's really been rough on my Grandfather. He sleeps pretty well once he falls asleep, but when he gets tired he starts talking about things we don't know about or remember, which makes it hard on both us and him. How do you guys handle it? Just agree…
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Respite to Permanent AL / MC questions
Hi all, I have posted on previously asking about what it would be like when we placed my mom. Everyone was so helpful. I am very glad we had started the research and I had identified some potential facilities. We had emergency work needed on her house which was a safety issue. She could not be there for the work and we…
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Early Onset Dementia Can't Get Help
My wife is in the final stage of dementia. She is only 60, turns 61 on April 22. So she is still too young to be on medicare. It is going to take us a while to get her on medicaid, because I have to sell 2 of our vehicles, put my work van under a company name instead of just using it under my name, and a few other things.…
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Constipation(7)
I know this has been posted a few times here, but just want to see how you keep your LO regular. We just went 6 days without a BM (everything seems very slow even 3 weeks post op), after a couple days miralax, daily stool softeners, milk of magnesia and suppository last night and enema this morning, we seemed to have…
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A toxic friend
I was hoping that someone might have some advice for me. My MIL has moderate to severe dementia and is in MC. Last year we brought her up from FL to her home state to live near us as we were aware that her condition was deteriorating. When she lived in FL she had a housemate who helped to take care of her. One of the…
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Paradoxical behaviors
Does this happen to anyone else? On days my FIL is more ornery with me, he is also more alert. Like this morning, he was contrary to getting changed and up in his chair, but he has fed himself his whole breakfast with a spoon! (2 eggs and sausage cut up in gravy). We have days like this and days where he is like a limp…
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Please do this by end of day today
It is a 3-minute video and includes extremely moving words from the patient advocates – it is a great compilation that makes the case for CMS to provide coverage. We encourage everyone to share with their friends, families, and professional networks on Facebook, Twitter, and other social media. This can help get the word…
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MC added Antidepressants and psychotropic meds broke arm
I had to place my mom in a MC unit. I did all my research a 5 star facility on medicare.com. The Facility that she was placed in put her on medication without notifying me. She was already on buspirone 15 mg twice a day and Trazodone 100 mg at night. January 4 they added depakote 250 mg twice a day and Lexapro 5 mg twice a…
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Taking mom's computer away & obsessed with her money
Mom is 80 and has Alzheimers and is in an assisted living center. Some how she can still manage to get onto her computer to check her internet banking to monitor her money. My sister manages her finances for her and does a great job. She pays mom's bills but mom still writes some checks on occasion. Mom is a very social…
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Should we have another hospice evaluation?
Hi All, Three months ago we had a hospice evaluation for my MWA who lives with me and my husband. At the time the nurse said she wasn't ready/didn't qualify. Over the last two-three weeks she has had some pain and swelling in her knee which she has complained of, as well as her back (she has spinal stenosis, so the back is…
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Assisted Living vs. Memory Care (Early/Mid Stage)
Hi all, First time posting here. My dad is early stage, but the latter part of early stage I think. He still lives at home alone (my mom passed away last year). Dad is 92 years old and in good overall health (knock on wood). He has someone that comes to the house M-F from 2-7 to make sure he has dinner, takes his…
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LO laying backward
Question for the group. My father recently started leaning backwards (stiffening his back) while sitting in his wheelchair and anytime I try transferring him from the wheelchair to bed (visa-versa). Shortly before this, he no longer tries using his legs to stand up (he was able to stand/walk short distances but won't now).…
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Support groups in person in Md
Hi, I am looking for in person support group. In this case I do not like doing online as I am not to crazy about doing that. I need to get out without my loved one. Any suggestions? I live on the Easter Shore of Md Thanks HDill
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Bible Verse to Lift You Up 3/24/22
WHAT'S YOUR BATTLE TODAY? 2 Chronicles 20:15 New International Version "...“Listen, King Jehoshaphat and all who live in Judah and Jerusalem! This is what the Lord says to you: ‘Do not be afraid or discouraged because of this vast army. For the battle is not yours, but God’s.'" me: I often ask God to fight a battle for me.…
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getting help vs dealing with the consequences
I'm overwhelmed. I get it. I need help. But it's NOT THAT SIMPLE! I can go for a walk. But who knows what chaos I will be coming back to. Even if I come home to "relative" serenity, chances are I plowed through that walk in "relative" anxiety. The biggest issue now with LO is paranoia. This is pertinent because the…
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Should I be taking my mother to a psychiatrist or neurologist?
My mother is 74 years old and detected with Dementia. I had an appt with a neurologist back in Dec and since I cannot really tell my mother's condition which way it is progressing I would like to get her evaluated again. With the psychiatrist they need her consent and she is not in a state to comprehend or agree to seeing…
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So the latest update on my dad:
He has a consultation today with a general surgeon to have a colon polyp removed. He’s been to the ER twice. He’s on antibiotics for pneumonia through this Thursday. He has 2 vertebrae in his lower back with compression fractures. He needs to get more pain meds from his doctor before he runs out in the next couple of days.…
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I thought this was a good session.
https://www.youtube.com/watch?v=x0mDmmb_LwE
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Lost my mom
My mom died a month ago. She was being cared for by hospice at her MC community. She died peacefully and painlessly, which is the best I could have hoped for. The last 6 years of my mom being diagnosed with Alzheimers/dementia have been the hardest years of my life. I am grateful for the support and advice I received…
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Growth - palate (warning gross)
Today, my FIL was napping reclined and was snoring with his mouth open. I noticed a large growth, roughly 1 1/2” in diameter and 1/2” thick in the roof of his mouth (hard palate). I would never have noticed this brushing his teeth and such. It must be pretty new because he had a dental appointment in 2020 and she did not…
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Alternatives for care
I'm looking for alternatives for my mom's care, and I'm open to suggestions: CURRENT SITUATION: Mom is Stage-5 and in an assisted living facility. She is unhappy there, but it is a controlled access community so she is not confined to a memory care unit. NON-OPTIONS: She cannot live with either child (one is handicapped…
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DH refusing to use CPAP
For six years my husband has worn a CPAP full face mask to bed each night. Even though he gets up 6-8 times a night due to anxiety and overactive bladder, he put the mask back on when he returned to bed. But, in the last week he will put it on then remove it within minutes or refuse to wear it at all. Has anyone…
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UTI confusion / delusions improve after treating UTI?
My mom has been telling all kinds of tall tales the past month - and retelling stories from the past that are all jumbled up - all combined with paranoia (neighbors watching every move) and accusations. We are getting her checked for UTI as I type. So if it is a UTI, will the delusions resolve? For the record, she's not…