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Not Accepted into Hospice
Hi, So, my dad, who last week, couldn't move in bed, was NOT accepted into hospice. He was too well today? I really don't understand and I am very upset and aggravated. I have been anguishing over this since last week. Don't the hospice people understand that with Alzheimer's one day can be good and the next bad? I think…
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Newbie Here(4)
My fantastic MIL has just been diagnosed. She lives around 300 feet from us and I want to support her as much as I can. Is there a beginner's kit or list of things I (or she?) should do or have right away? Sorry if this is a silly question but I am kind of learning and researching in real time here if you know what I mean.…
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I'm new- Grieving while they are still right there
My sister, my best friend, went in a two week period from being a full-time hospice social worker to having major memory issues, delusions and very active hallucinations. She tried a new anti-depressant, but the doctors said it couldn't have been the drug that caused it- personally I don't see how it couldn't be. They…
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Alone(3)
I am so thankful for this forum and group. It is a lonely journey, except for the care and compassion found here. As of now, my dad is doing okay, not liking to talk, but he is aware and helpful to his wife when asked to do something. Can seem engaging when visitors come. Good for both parents really, other wise they…
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Bible Verse to Lift You Up 4/22/22
WAITING * Lamentations 3:25 Amplified Bible "The Lord is good to those who wait [confidently] for Him, To those who seek Him [on the authority of God’s word," * PRAYER for all of us: Dear Lord, today I wait for Your help. I will not worry. I know You are faithful. Amen. * Today, I am waiting for the Lord's help and…
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Escaped Light Memory Care Unit, Moved to MC, trying to escape there
My mom is 86 but physically healthy outside the dementia/Alz. She hated the light memory care unit from day one. This week she succeeding in escaping. (so much for locked units) The police found her unharmed, but the facility said she had to go to the regular memory care unit across the street. So, she hates that too,…
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Asking a home heath worker to mask indoors?
Is it too much to ask? We’re just at the point of finding some in-home help. Mom is 79 and was diagnosed 2 years ago. Along with Alzheimer’s, she is also nearly blind due to loss of peripheral vision and very frail due to rheumatoid arthritis and COPD. She’s lost a lot of weight over the past 5+ (nearly half her body…
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Dad not seeing mom's dementia, I am exasperated
I feel like I cannot do much besides watch a series of debacles unfold and help pick up the pieces afterward. The last six years mom's cognitive decline seems very clear, and a number of my parent's friends mention it to me. When I bring it up to my dad, he mostly refuses to discuss it and sometimes it escalates with him…
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Assisted Living(5)
Hello, I’ve been considering moving my mother into assisted living for a while now. She was diagnosed with early onset Alzheimer’s in 2019 and has lived with me and my husband for the past 2.5 years. I feel guilty for wanting to move her there because I don’t think she has reached the point where her condition warrants the…
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Newbie here(3)
Hi I'm new here and I'm very excited about connecting with others who are in situations similar as mine. It will be great to talk to someone who understands. I'm currently living with my 80 year old grandmother who was diagnosed with alzheimer's and dementia a few years ago. I work full time and I'm her primary caretaker,…
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When parent with ALZ becomes abusive
Hello! This is my first post but it is going to be a heavy one. I am an only child. Father passed before I was born. My mother’s relationship with me has never been solid. I underwent a lot of abuse through her growing up and had to be hospitalized mentally twice due to her. My mother and I’s age gap is of 43 years. As of…
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Another first-timer
Hi Everyone, This is my first post, though I've been hanging out with ya'll since November. That's when mom wasn't able to continue at her AL facility, but didn't qualify for Medicaid (Medi-CAL), and didn't have the money for private pay MC. So we brought her home to live with us. She's 89, and I'm guessing she's in stage…
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MC LTC is it giving up
I am going to look at several LTC facilities this week. I see no other options. Interestingly the more i learn about MC the more i hear/see my DW will probably actually do better there than at home due to the routine. Recently my daughter, her husband and their cute dog stayed here three days. My DW loves them and…
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Just beginning this journey with my mom
Hello. I’m trying gather information or help for my mom. She lives in VA, not far from VA Beach. She has been having memory issues that have been getting gradually worse. She asked her NP for a referral to a geriatric/memory doctor. She contacted them. They asked her to complete a 17 page questionnaire. She finally heard…
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First Post - Drowning
I have been reading for some time, and am very grateful for the thoughts and ideas I've been able to benefit from to date. I'm not sure why I was driven to post, and I'm not sure what I'm hoping for, but I am coming up empty on ideas. Apologies, this is a long story, and I'm a little too strung out to revise appropriately.…
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I'm new here - struggling with my mom's changes
Hello. I just found this today and I'm so excited! My mom was diagnosed with Alzheimer's about 2 years ago. At the time, you could tell something was off, but she was fine for the most part. Now 2 years later, her personality has completely changed and she is struggling with most of the day to day tasks. She is still at…
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What can I do when Dad refuses to be diagnosed?
Hi...I am new to Alzconnected. 7 years ago my husband and I moved my dad in with us. He was struggling with keeping up with his own home. My mom passed away of breast cancer in 2005 so he did well for a while after her death on his own. Once he was here we started to notice little things here and there. Over the last 3…
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Our Family is Not Sure What the Next Step Is
My mom was diagnosed with Early Onset Alzheimers in August 2020. She is currently 56 years old. It has been less than two years since her diagnosis, and the disease has progressed very rapidly. Suddenly within the last week she has been very lost and has begun having problems swallowing. She shakes and gags and is unable…
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Is it the meds (anti-siezure meds added), or another step in the progression?
I'll start with the short summary of my question: my mom has recently experienced a number of changes (for the worse). Is there any way of knowing if these are indicative of another step in her dementia progression? Or is it due to other factors, such changes to her meds, including the addition of anti-seizure drugs? Is…
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When to Start Hospice with ALZ
I am the DD of 93 y/o male with Alz diagnosed in 2018. The last 4 months he has deteriorated greatly. He doesn't want to eat, even sweets. He becomes constipated a lot because he doesn't drink enough and he doesn't want to walk. He has been sleeping more and more. Last Monday, his aide couldn't wake him up and and when he…
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In my early 30s, trying to support my parents
My dad was diagnosed with Alzheimer's disease last spring. He is still in the early stages, but his MCI is getting in the way of daily functions and his ability to express himself easily. He and my mom are about to turn 70. His executive functioning is pretty limited these days so my mom has now taken on a lot of tasks for…
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Is the anger real
Everyone says don’t take to heart the anger and hate mum throws at me but it’s hard. Mum is in a care home, been there since mid covid, there was no other option, she was a greater fall risk, dementia increasing and couldn’t be left overnight. She had a fall, went to hospital, from there to rehab and from there to the…
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Bible Verse to Lift You Up 4/15/22
WASH FEET John 13:3-7 Amplified Bible "3...Jesus, knowing that the Father had put everything into His hands, and that He had come from God and was [now] returning to God, 4 got up from supper, took off His [outer] robe, and taking a [servant’s] towel, He tied it around His waist. "5 Then He poured water into the basin and…
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Feeling guilty and failing at my duty
As some of you know, I’ve been ‘down in the back’ for over 4 months now. Compressed fractures two months apart and then I sneezed the wrong way eight weeks after the second one. It’s been two weeks after that and I’m coming up for air the last couple days. Started physical therapy again this week. Other than phone calls,…
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Near the End of the Journey
Hello everyone, I'm new to this but here we go. I take care of my grandma who is in the late stages of alz. She was originally in rehab at a home that I was going to put her in but there was a fall actually multiple falls while she was there and one of those falls fractured her femur. It was supposed to be a simple which…
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Can things settle down?
I haven’t been on here in awhile. My mom does not have a formal diagnosis. She first showed behaviour and personality changes 2 years ago. Along with some hallucinations. She has been living with me for a year now, since I was diagnosed with breast cancer. We are still noticing some subtle changes, but for the most part…
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Looks like LO has had a decline
Hi all, it's been a while since I updated on our LO. I believe she has begun a significant decline over the last few weeks. Meal times are iffy. Some days she eats and drinks no problems but there are getting to be more days than not that she just stares at her plate and drink and doesn't touch it no matter how much we…
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ISO Daily Reminder gadget?
Hello, I’m looking for a product available in the USA that allows me to send visual reminders to my mom (who has Early Alzheimer’s and lives alone). Not only a clock, but also reminders about medications, doctors appointments, social events etc. Something she can prop up in her kitchen where she will see the daily…
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So Many Medical Conditions - It's Confusing
There is so much to consider medically it is exhausting for me to monitor. Mom is 90, 130 lbs, 5ft. 4ins with...Moderate Cerebral Atrophy/Moderate Cerebellar Atrophy, Aphasia, Nocturia, Type 2 Diabetes, Hypertension, Hypotension and Microvascular Ischemic Disease, Heart Disease.. The atrophy's and Microvascular Ischemic…
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Mom can't talk anymore
Hello, I haven't wrote much. I need to say that I am better now. My mother's illness has mentally hurt me plus COVID added more mental conditions. I am seeing a therapist and started working again, I haven't worked for 3 years. It's a start. My mom doesn't recognize me now close to a year and as the title says, cannot talk…