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Excessive Sleeping
Of course I am taking him to the doctor and consulting them about this. Still, I have found other people's experiences helpful on this dementia journey we are on. My dad recently fell, luckily he didn't hit the floor hard, I was able to slowly lower him to the ground. His legs became noodles and he couldn't hold himself up…
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Best bidet, hearing devices
Hi! Has anyone gotten a bidet to assist with cleanliness for their loved one with Alzheimer's? My Mom's psychiatrist recommended one because my Mom is refusing to shower and is at risk of skin breakdown. She has moderate Alzheimer's and is unable to keep up with ADL's on her own, but (thankfully) she still knows where she…
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Sleeping all the time(2)
My LO is sleeping all the time. Any advice. Don't know what to do, if anything. Person becomes agitated, very mild mannered person all his life, when asked to do to anything. It's heartbreaking and causes anger/frustration/sadness when in his family. Thanks
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New here- very worried about genetic link
Hello I am new to this forum, this topic and this new life with my mom. I only have a few minutes to write since I have young children so I will try and be brief! After years of wondering about my mom's cognitive decline she is finally being seen by Mayo. Her brain scan and spinal are next month. We have tried to talk to…
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A little bit of good news
A couple of months ago Peggy started having a lot of anxiety, so much so that she told me that she was afraid of everything and that she couldn't do anything. We started her on an anti-depressant, and it's made a world of difference. She's back to doing memory care activities, particularly karaoke (which she loves). This…
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Need Advice re: POA and a companion dog
Hi Everyone, My mom has mild Alzheimer's and is currently in AL (I moved her last year and then moved to be 10 min from her). Recently, she's been visiting independent senior living apartments and says she doesn't like her AL and wants to move. First, I feel like her dissatisfaction with the current AL is part of her…
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Constant Calling
(I am new to this site, however, I have done a few alz webinars.) My Mom has 24/7 care at home with 3 different caregivers during the weeks. She is always calling my sister that lives 20 miles away and many times it is non-stop calling until my sister picks up the phone. (I live 5 hours away.) Usually she really doesn't…
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Good resources for younger kids who have to help with caregiving in a home
https://aacy.org/
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SICK, DISTRESSED, CONFUSED
My DW has had AD now for 11 years. I have been able to care for her most of this time by myself. In the last 3 years i have arranged for friends of her to work/ play here with her so i could have a little freedom. Also two part time caregivers but they all leave at 5 and no Sunday help. She still insists on me to be here…
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My son’s speech at the funeral
We cared for my mil for almost 5 years. My almost 14 year old son spoke after the funeral Mass. He held up three pieces of paper. Each had all of our names on it. He said the first piece was our family. We are all together and “on the same page.” He took the second piece and folded it in half. He said this was us after his…
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Don't-Care-Caregivers
Phew, documentary filmmaking is running me ragged, but I gotta some time to write a couple of caregiver tales! Don't-Care-Caregivers: What are the options when you feel like you're out of options? https://www.stumpedtowndementia.com/post/don-t-care-caregiver What's the scoop, poop? I spill the dementia family caregiver…
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The Challenge of Delusions
Hi everyone. Just joined and have been, as I'm sure many of you are familiar with, under intense stress trying to care for my mom who is suffering from vascular dementia (first diagnosed when she got lost last May). She had slowly declined until two trauma events, an MRI in July that sent her into a severe panic attack…
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Short Term Memory
Hello I am having a hard time seeing my mom like this. I lived with her for a long time and we used to do a lot of things together. Now since she was diagnosed with early on dementia. Me and my brothers are tying to get her healthy again. She gets tired very easy and has a hard time doing things on her own. It wears her…
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Flummoxed - staff/resident crushes with a side question of sexual orientation thrown in
Well, this is tricky. My sister Peggy moved into memory care back in October, and has generally done well there. In spite of being about twenty years younger than the other residents, she's made friends, and seems to be well-liked by staff and residents (even with Alzheimer's she's pretty easy-going). Sooo, a few weeks ago…
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What to Do if LO is suddenly angry and wants no help from you now, the POA?
HELP! My aunt has no children and asked me, a nurse, her niece to be her medical and general POA years ago. She fell in 2018 broke her spine and pelvis and me and my husband flew to her state to help her at her request. We helped her find a SNF/rehab after the hospital discharged her after three days, then an assisted…
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First days in assisted living with MCI
TLDR - don’t move LO into a facility on a Friday. Be warned. I felt pressure to get on with it because I have to go home to my country in a couple of weeks, but the first availability for movers was Friday morn, which they annoyingly switched to afternoon as I said in the other thread. It’s not a disaster but is making mum…
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Caregiver’s chronic grief
My 86 year old mom has moderate Alzheimer’s and is living in a nursing home. My siblings live out of state so I’m the primary caregiver. My mom is forgetting faces and names but she knows I’m her daughter. When I visit her, I try to focus on having a nice time with her by giving her a pedicure and taking her out for walks.…
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Losing stamina
There's no question that my father needs to be in Assisted Living. He is still living alone by himself with a daily caregiver/aide coming for 5-6 hours during the day, but leaving him alone at night has become riskier. He can no longer work his phone except for calling a few simple preset contacts. He would not be able to…
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Recent UCSF study on sleep and loss of neursons
I thought others might be interested in this article. UCSF research indicates that loss of neurons causes drowsiness in Alzheimer's patients. https://www.ucsf.edu/news/2022/03/422536/loss-neurons-not-lack-sleep-makes-alzheimers-patients-drowsy
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Being Mortal
This is a really important book. I highly recommend it to anyone who is caregiving to a PWD. It's about what matters in the end of life. "Being Mortal" by Atul Gawande. Thank you Terrei for mentioning this book recently. I ordered it the same day I read your comment about it.
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Bible Verse to Lift You Up 3/31/22
GAIN CHRIST * Philippians 3:8 Amplified Bible "..., I count everything as loss compared to the priceless privilege and supreme advantage of knowing Christ Jesus my Lord [and of growing more deeply and thoroughly acquainted with Him—a joy unequaled]. For His sake I have lost everything, and I consider it all garbage, so…
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Update on My Heart (Dad)
Well after much back and forth with hospice, they agreed dad could go to the ER by ambulance and they would pick up if the hospital didn't keep him or discharge if the hospital admits. So he was taken by ambulance to the ER on yesterday. They admitted to the hospital stating he is dehydrated, low sodium, and blood sugar…
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Stage 8(1)
The situation is too abrupt. It escalated from a fall, surgery, an ICU stay, to home on comfort care for 10 days. That was brutal. There was so little sleep for the 3 main caregivers.Then there was the funeral two days ago. Now I can’t power down. I’m looking at jobs and classes to brush up on my skills. My brain is…
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Eating prevented by sedation - is this withholding food?
My mom is 85 and has had dementia progressing steadily since 2018. She was in memory care, generally agitation-prone and hyper ambulatory, capable of recognizing family but mostly speaking in word salads. She’d lost a lot of weight from just not showing interest in or keeping focus on food. A femur fracture from a fall…
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Self-Care (Free patterns for mini-quilts!)
Free Patterns for Mini Quilts Free Patterns for Mini Quilts Use these free patterns for tiny quilts, all less than 26" square, for projects you can assemble in a flash.
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Need guidance. Mother in law not accepting any help
Hello. This is my first post on this website and I’m hoping anyone going through this can offer some guidance. My mother-in-law has started showing signs of cognitive decline and dementia. Over the past few weeks we’ve received calls from several people who are concerned. We discovered that she is not paying her bills or…
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Bible Verse to Lift You Up 4/7/22
MY RECENT ONLINE MUSINGS WITH VERSES (SCROLL PAST LG. SPACES) DO NOT FRET Psalm 37:1-2 New International Version Psalm 37 Of David. "1 Do not fret because of those who are evil or be envious of those who do wrong; 2 for like the grass they will soon wither, like green plants they will soon die away." BELIEVE, NOT DOUBT…
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Can't hire caregiver because 'That's YOUR job.'
Hi everyone, so I posted not too long ago about being a young person dealing with caregiver stress. I am so grateful for all the replies I received and noticed a common suggestion is hiring a caretaker for our home. My grandma is 99 years old, bed-bound, and needs help with everything. My mom can't help much because she…
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Finding someplace that accepts Medical
Hello, I am trying to help my step-father, who was diagnosed in December with Dementia of potential 3 different / co-morbid varieties (VD, FTD, or LewyBody). He was never one to plan for the future in any capacity. As such he doesn't have private insurance, or long term care insurance. The doctor has diagnosed his stage as…
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King Boo Re: Deaf Metal
King Boo- Was it you who suggested Deaf Metal? If so, many thanks. I ordered my mom (not a PWD) a pair of simple CZ studs after she lost one of her hearing aids and she's really happy with them. I was quite impressed with the quality and the shipping time was phenomenal- under 48 hours. HB