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all new to me(2)
My dad passed away in Sept fairly suddenly after a sudden cancer dx. That left me to fend for his wife with mild dementia. No will, no info and Ive spent months now just trying to figure out his finances and trying to pay the bills. She lives in PA and I am in NH. I am the only family she has which is taking a toll on me.…
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@ MNChickadee
Hi Chickadee, I would appreciate your input. My mom is extremely restless today, this is the worst I’ve seen her since being bedbound. Her morning meds consist of a Ativan and a Tylenol 3 with Codeine at 8am. That usually helps her a lot. She was tossing and turning so much we were afraid she would hurt herself on the bed…
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In need of direction
I have a dilemma and would love some suggestions on how to handle it. My mother has dementia and I am her only caregiver as far as family goes. I have power of attorney as far as medical goes at the moment. She lives in my home but still owns a condo in a town about 45 minutes away. My dilemma: my brother comes to visit…
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Mother makes too much for Medicaid
Good afternoon all. My mother's Dementia is getting worse. My sister is currently staying with her but must leave in 2 weeks. I am afraid that my mother is no longer capable to take of herself as the hallucinations and conspiracy theories are increasing. I reached out to Medicaid to try and get her on it but was told "she…
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Diaper Dilemna
* Mom is Stage 7 which also includes Incontinence. She has problems with both hips and legs so she’s , for the most part , immobile. During the day she keeps her diaper on (we call them her special underpants) , but while she’s sleeping at night she takes them off almost as fast as I can put them on her. Pull ups or tab…
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Bible Verse to Lift You Up 3/14/22
SEARCH MY HEART GOD THOUGHT: Jeremiah 17:10 NIV “I the Lord search the heart and examine the mind, to reward each person according to their conduct, according to what their deeds deserve.” VICTORY THOUGHT: I hope God finds my heart willing to serve others. POWER PRAYER: Lord God, mold me so when You examine my heart and…
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Rapidly Progressing Dementia
Hi All, It has been some time since I have been on the boards after losing my mom last February. I am finally in a place where I am trying to look back and process some of the information we went through in such a short time. In a nutshell- we went from first episode of psychosis for mom in October to passing the following…
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Long Distance Care?
Hi - My sister is in the process of EO diagnosis. She lives in TX and I live in NC. Is there anyone here who has experience with long distance care/support? I am working with her children (they live near her) to navigate this disease/process. Just looking for someone to exchange ideas with. TIA.
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Tips/Advice for long trip moving Dad into Memory Care in another state
My Dad has mid-stage dementia (Lewy Body, Vascular, Parkinsonisms) and lives in South Carolina. He wife of 15 years just passed away a few weeks ago, and my brother and I are getting ready to decide whether he will live in Texas near my brother (18-hour drive) or in Alabama near me (8-hour drive). We expect to make the…
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Alternative or unconventional Elder Care options?
Considering how ridiculously expensive nursing homes, assisted living, and HHA can be, I'm trying to collect information on alternative, or unconventional elder care options. Day programs aren't an option as when we pulled up and he saw the giant sign reading "Adult Day Care", he got so upset /offended he stormed down the…
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Real Help!
I have been pretty much on my own taking care of my mother over the past 3 years. I moved in with her in 2019 when it was obvious she shouldn't be alone. Last summer I hired Visiting Angels to come in 4 days a week for a few hours each of those days. She is a terrific blessing! Since I have my own small business, this has…
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So alert and present
Just wanted to share that I had such a good visit with my mom who is in a residential care facility on hospice. She was so alert and present. I brushed her doll's hair and then asked her if she would like to try. I couldn't believe it when she replied, "Oh I don't think I can." It was surprising she could understand her…
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There is no counselor title after my name
My parents have reached the age where a lot of their friends and siblings have died. Some friends don’t get out any more than they do. Others are snowbird friends, meaning they only saw each other in the winters. Each only has 1 sibling left and they aren’t in any better shape. My mom’s sibling, nieces and nephews don’t…
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Just had my essay on the journey through my father's Alzheimer's published. Please read...
I lost my father after an incredibly long battle with Alzheimer's about 15 months ago. Wanting to help others finding themselves in the same horrible and overwhelming situation, I wrote an essay about the experience, which was just published. I wrote it not only to tell my story, but to raise awareness, provide insight and…
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A beautiful song about Alzheimer's.
My cousin, Gary Brown, wrote a beautiful, haunting song about his experience watching as his mother, Valda Brown, declined with Alzheimer's and ultimately passed away. As I my mother lives with Alzheimer's, the song comes to my mind often. It can be found on youtube.com at this link:…
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MC for family member age 50
I am doing research for my family in Texas (I'm in Georgia) looking for inpatient memory care for my 50 year old niece in San Antonio who was diagnosed 2 years ago with early onset Alzheimer's. She has been living with her mother (my sister) since her diagnosis but she has progressed to the point that inpatient MC is going…
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How do I answer garbled questions?
My dad's dementia is getting worse. Today he's been asking me garbled question that don't make any sense, such as "What are the seeds?" or "What are the seas?" How do I answer questions like this?
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Pain from unknown causes
My DH was diagnosed VD last May. He complains of pain in several parts of his body. I've taken him to his doctor and ERs but they can find anything wrong. Marijuana seems to help. Is pain like this in anyway normal with VD?
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Anybody under the age of 30 on here??
I’ve been feeling very lonely in my journey with my dad. I think part of it is seeing all my friends my age (26) have healthy parents. No one can come close to understanding the pain I’m going through. I think being so young and losing a parent to this kind of disease is especially hard. I know losing a parent at any age…
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Mixed Dementia new diagnosis not just Alzheimer's
My son's neurologist/Alzheimer specialist has decided his many challenges are due to an unknown "mixed dementia" instead of the working diagnosis of Alzheimer's and some unknown possible psychosis. This is not often to get this diagnosis from a living patient but my son does have PET brain scans showing clearly all the…
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Cognitive impairment and memory loss diagnosis. Coping?
HHi. My dad has not been diagnosed with alz or dimentia but has been diagnosed with cog. Impairment and memory loss. He can still do many things but writing and communication are difficult sometimes. Hes has days of worry, agitation, pacing, a feeling something is off and worrying about someone taking advanyof him. I have…
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Input on How to Get Parent to Doctor for Diagnosis
After a recent visit to my parents' home, I have realized my mom needs to be treated for this horrific disease. It has been three years since I have seen my parents; but in telephone conversations, I have been suspecting that Mom is worse than Dad has shared with me. Mom has fought Dad any time he has tried to talk about…
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Bible Verse 3/8/22
Romans 13:8-12 Amplified Bible "Owe nothing to anyone except to love and seek the best for one another; for he who [unselfishly] loves his neighbor has fulfilled the [essence of the] law [relating to one’s fellowman]. 9 The commandments, 'You shall not commit adultery, you shall not murder, you shall not steal, you shall…
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DESTRUCTION WOMAN
hey GUYS !!! here is one i am CURIOUS ABOUT... my MOM is about MID STAGE... i feel like she is moving to a LATER STAGE... but, in general, she is in GREAT SPIRITS... likes to have FUN... we (or her and an aide!) go out to a RESTAURANT for LUNCH every day... she SUNDOWNS... she REPEATS... but, like i said... she is…
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Ward of the State?
Does anyone have knowledge/experience with making a loved one a ward of the state? Any information/facts will be greatly appreciated. I am starting this thread in an attempt to help a new member here. Thank you. Sincerely, abc123
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Please do your part of local
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Probably a Longshot for PA/NJ people
A free matinee and discussion led by a Certified Alzheimer's Group Facilitator. Free Matinee at The Newtown Theatre on March 16, 2022 (newtownyardley.com)
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Parent stuck in the middle, what can I do about placement?
My parent is 65, and I am 27 their only child. They have a diagnosis of unspecified dementia, their progression has stalled so to speak. My parent is on Medicaid, but unfortunately given their level of functionality they have not qualified for many home care hours. They mostly require prompting and supervisory care, been…
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Risperidone - doc prescribing 0.25mg - any insight
I searched the forum and found posts relating to this drug from a few years ago. Just thought I would check in with the group to see if anyone has had more recent experience with Risperidone & their LO? My father is 72 and in stage 6E. His agitation, pacing (and shadowing) is wearing on my mother (primary caregiver). Doc…
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How to get ADLO to accept home help
Hi I'm the SO of an EO women. I'm in the early phase of this journey. My first goal is to be able to have her stay in her house as long as possible. I'm with her nearly 7X24. I don't think this is healthy for either one of us. She has no insight into her condition and believes she can manage herself and her house on her…