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Can't use the Connection feature
Can someone please instruct this knucklehead how to use the "Connections" feature? I can accept a connection from someone BUT after that I don't know what to do. I realize this is probably simple for most folks. Sincerely, abc "knuckehead" 123
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Got the call
Hello everyone, it's been a while since I posted. Busy filling out paperwork for VA LTC for my mom. I got the call today, they have a bed for her. Will be taking her early next week. I wish I could have kept her here till she passed but it didn't work out that way. She is almost 88 years old and her physical health has…
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What to do to save oneself
This is the 2 nd UTI in a year. My wife had me leave 3 days ago cause she didnt know who i was. One day later she wanted to know why i was gone. Married 50 years this Feb. my daughter was here so it was ok but first time we’ve ever been apart. Even now a week later she isnt always sure about me. We have been dealing wit…
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Visit from the Hospice RN
My mom is comfortable, clean, eating when she's awake and well cared for here at my house. This long good bye is killing my dad, it's breaking him down more and more each day. He asked the nurse this morning if she is suffering. The nurse said no, actually she is very comfortable. He then asked the nurse how much longer…
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Can you or can you not go to the emergency room when on hospice?
This is all so confusing reading online. Some readings state as long as the reason for the emergency room visit is not related to the reason you’re on hospice. Others readings just out right says no once on hospice. I king of understand that once you go on hospice you are saying no more treatment and no more er visits. But…
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Expectations for MC activity/engagement
Hi. I'm new to alz.connected and to this world in general. My mom had a fairly sudden onset of Alzheimers (not sure of diagnosis) following a hospitalization in December. For safety and diabetic care, we moved her to AL. (Near her home in Florida). However after a few weeks, she was trying to leave ("elope"), among some…
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Finally diagnosed
Mom officially diagnosed last Friday. Have strongly suspected for awhile. Would guess stage 4. I am an only child and live 1,500 miles away. Dad is doing everything atm. Currently visiting and trying to get some things set up. Unfortunately she has started to be abusive, which I know is common (watched her mom die from…
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Move to single level home? Or stay in our 2 Story home?
My husband was diagnosed with Alzheimer’s Disease in January 2022. We have legal guardianship of our 8year old and 3 year old grandchildren. My spouse has balance problems and has fallen down the stairs. Luckily minor injuries. There are no bedrooms or full bathrooms downstairs. Safety risks are high with upstairs,…
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The National Imperative to Improve Nursing Home Quality: Honoring Our Commitment to Residents, Famil
https://nap.nationalacademies.org/read/26526/chapter/1 Chapter 10 is the recommendations
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Update on my mom(3)
My momma is still with us. Eating only baby food, drinking water, milk and fruit juice. Sleeping most of the time. She knows me and my sister, sometimes I'm not sure if she knows who dad is. She seems so depressed and disgusted in general. I got to spend 5 hours with her today without a sitter and I really needed that time…
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Mourning my loss, and wandering alarm available
My dear sweet 94 yr Mum died 10 days ago - at home, with all her children holding her hand as she left us. I had put her in home hospice care earlier in March due to her contracting a UTI, then pneumonia. The antibiotics she took for the pneumonia helped her to rebound, but then I think she was just plain tired. She ran…
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New Here and Looking for Support
This is my first post, not only to this message board, but any message board. I realize there will be little left of me if I don't seek guidance about how to cope with the watching a LO become lost. My mother isn''t formally diagnosed, or at least I don't think she is--as the neurologist said, there's a high probability…
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Mom’s done almost a complete reversal
My mom was diagnosed with Lewy Body Dementia in October. She had a very rapid decline and the neurologist said she was in the moderate to severe phase. She started having scary hallucinations in January and the neuro prescribed Aricept and Depakote. She was still having intermittent hallucinations so they increased her…
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Sippy cup
DW shares her hot chocolate with dog so I got her a new cup. Showed her how to use it but she closes opening when taking a drink. I'll crazy glue it open. I did ask my daughter-in-law if she would come in twice a week for a half a day so I can get a break. Start that when snow finally leaves. She already helps out when I…
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Do I just allow the loopy behavior?
This may sound like a rhetorical question. LO with middle stage dementia is currently obsessing all day long. Checking every drawer, every closet, pulling everything out of the closet, tearing apart her room, her drawers, all day long. She is sure that people are stealing her things. It starts innocently enough with her,…
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What do you do about inappropriate gifts?
My mom has a few old friends who regularly mail her gifts that may have been welcomed 4-5 years ago but now that she's in memory care, no. Things to eat like big boxes of chocolates--which she eats in one day and which make her terribly sick--or individual servings of cream for her coffee--the aids stir cream into her…
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Speech change
My lo, all of a sudden, has totally and suddenly changed how she talks. No disrespect intended, she talks like Forrest Gump. Is this normal for alz. patients?
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hubby is so weak hospice now says to keep him in bed
24/7. He is eating but not like he used to. Has had a fever and peeing blood clots for 4 days now, they prescribed antibiotic but it's not working, most likely the suspected bladder cancer. Hospice went from saying he was doing great a week ago to saying looks like he is "transitioning" and saying it could be weeks????? :…
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Unplugging coffee maker by pulling on cord, not plug
Mom (PWD) makes coffee every morning and for whatever reason now unplugs the coffee maker when she's done. In and of itself that's not a problem, but she's unplugging it by pulling on the cord (unsafe!) and not by pulling out the plug. Any thoughts what to do here? Dad wants to just take away the coffee maker, but it's one…
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typing through tears
It's been a week. I miss him so much. The initial relief I felt that my dad is no longer suffering has turned to deep sadness. My heart goes out to all of you who are caring for a loved one who is suffering from Alzheimer's. As we say in Judaism, May the memory of your loved one be for a blessing.
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Early Stage dementia- Who should tell people about the illness?
DH has Early State Dementia. Is it appropriate for the caregiver, in this case Wife, tell family and friends about the diagnosis? Is it better to let DH tell them. Also need to inform Financial Planner of diagnosis. Should DW do it if DH is not ready to talk about it?
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Feeding my mom, in ICU, late stages
My mom has late stages Lewy body. She is currently in the ICU. She has been staying in a nursing home under hospice care. Our hospice provider recommended she get admitted because she had not eaten or drank for 4 or 5 days while at the nursing home. She got admitted to ER 3 days ago with dehydration, UTI, 175 heart rate…
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If you use the Wyze camera
you might want to check this out. https://gizmodo.com/you-should-probably-stop-using-your-wyze-camera-right-n-1848731446
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Bilingual caregiver wanted
I'm finding that hiring a caregiver is quite a frustrating process. I only want someone for 20 hours a week, someone who speaks Spanish and English, and who lives fairly close by to area code 91307 so that she, preferably can arrive early in the morning and handle the early morning duties. I have tried to reach out to…
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VA Benefits(1)
Hi everyone! I hope everyone is doing well. We just had high seventies temperature here. At least for today then back to winter. Mom is a Korean war widow and I'm trying to get through approval for benefits. I have this benefits counselor agency that says they will take care of everything as it is complicated (government,…
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My brother doesn't want to go to eye doc for macular degeneration
My brother, who lives alone but I care for, has macular degeneration which is getting worse. Before the pandemic, he went to an eye doctor who proposed some kind of treatment which he rejected because it was too invasive. I made an appointment to go back with him this week to find out if there was anything else that might…
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Coping with caregiver stress?
Hey everyone. I'm a caregiver for two elderly people I live with, one with Alzheimer's (grandma, 99) and the other with chronic pain and limited mobility (mom, 74). I'm 29 (my parents had me at a late age) and I feel awful all the time dealing with this on my own. I recently learned about "caregiver stress syndrome" and…
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In-person support groups
I’m a bit behind the curve on asking for help. My sister/housemate is getting worse every day, and I need someone to talk to about her condition. Are there in-person support groups in Austin?
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Assessing over medication - 30 days?
My mother, 75, good general health, except for blood sugar and a neuropathic type pain. It doesn't seem like peripheral neuropathy, I wonder if it is some sort of post-stroke pain or just a dementia symptom. Dx in late December with EOAD, stage 4.2. I was told stage 4 lasts about 2 years and since she may have had a…
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Does your LO do this?
When my mom is in bed she often puts her feet on the floor and then her head comes off the bed and almost touches the floor. The only part on the bed in her bottom and she has fallen ot of bed. She does the same thing on the couch if she falls asleep there. We've tried a bed rail and a bumper, but then she is unable to get…