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Father with early-onset now in late stages
Hello, I was made aware of these discussion boards through resources at my university and thought I'd give it a shot. I live in Orange Country, CA. I'm a 26 year old Female and my father got diagnosed with early-onset Alzheimer's when I was 13. He was in his early 50's. He has progressed extensively in the last six years.…
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DNA test to help with medication selection?
Just got a call from a nurse at my husband’s geriatrician’s office. She was telling me about a new program they have for their dementia patients. One service they offer is DNA testing to see which medications and what dosages might be most efficacious. This would be very useful in trying to find the right medication to…
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Rapid Decline?
My DH dropped 3 points on MMSE in 6 months. I was told this is rapid decline. His score is 18 but they said he has/had high cognitive reserves. I put him at solid stage 5 with a foot in stage 6 on Tam Cummings. Has anyone experienced this with their LO? Does it continue dropping at a rapid rate or can it be a one off? I’ve…
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Omaha area
Hello all! I am looking for people/groups in the Omaha area for those who have been diagnosed at an early age (50’s). I have called around but no results. Just thought I’d through it out here and see!
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New to everything.
I really enjoy reading the posts and discussions. Changes seem to be coming fast. Moms fell about 6 weeks ago and I now believe this may have somehow triggered these new events. She is finding items around the house, clothing, pantry items, nail polish and doesn’t recognize them and thinks I’m playing tricks on her,…
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Stopped showering and talks to pictures
I am new here. My DM was diagnosed with Alzheimer’s 3 years ago but is in denial. He is slowly getting worse and I think he is in stage 3-4. I have two issues: 1. He is now talking to pictures of family on the fridge all day. Yesterday he insisted I leave the light on for them. Is that normal? 2. For the last 3 weeks he…
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Feeling down
Mom went to AL 4 months ago. I’m DPOA and have taken most of the blame. When we moved her we did not bring much to decorate her room. Two decorations broke in the move and my brother said he would fix them and bring them to her( he didn’t). My brother insisted she would just ask for what she wants to decorate. Big surprise…
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Eye Doctor Visit
I think my dh's eyesight has gotten a lot worse than his current eye glasses can help with. Any suggestions about how to handle a visit to an eye doctor and/or how to find one that is comfortable with dementia patients? He's in late stage 5 with strong aphasia, stiff body and hard of hearing. He will be a handful.
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Resigning as Power of Attorney and feeling guilty
I don't know if anyone else has ever done this but I decided this weekend that it was time for me to give up power of attorney for my mother. I am feeling horribly guilty and sad about it, but at the same time, also a little relieved. I didn't really want this role to begin with, but I am the organized and responsible one…
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Should my aunt- having recently moved into AL - have a phone?
Hi, Part of her sundowning has been to have episodes where she's very confused and worried about where her sister is, or, most recently, where her (deceased) father is. Generally, someone in the family (but unfortunately most recently the police) gets a frantic call from her at all hours about these types of concerns. Now,…
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Long vent, sorry in advance...
In 2021 my grandparents moved my great aunt into the same apartment complex as me, less than a year after my mother passed away suddenly (and without warning) back in 2020. I was instantly forced into caring for my aunt without any sort of discussion. So now I am 35 and am currently the main caretaker for my 94 year old…
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In Home Hospice
I spoke to a hospice liaison and she told me steps about the process to get a home health nurse out to see my Dad whose dementia is worsening. He says he refuses ever going to a nursing home but my questions is, how do we ensure he is home when the nurse comes by? He has a golf cart and is still cognitive at times but he…
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the nightmare of respite
Sorry, I need to vent to my hive before I take someones head off. My DH is in stage 7 and on hospice. I am having family from out of state come to visit. I was so excited. I was going to put him in respite care for the week. Picked out a spot that was suppose to be one of the best in the city. Friday morning comes to drop…
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Memory Care transition
Well it has been 2.5 weeks since my DH has been in memory care. Prior to this, he spent 3.5 weeks in the hospital. The first couple of days he was there, I literally slept like a log. My bed didn't even look like i had moved a muscle. But as the days wear on I'm finding my big old house so quiet. It's sad. The facility is…
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My husband is in the hospital
After struggling with my husband’s escalating agitation for 10 days at home, I took him to the ER Wednesday night. It was the worst night of my life. The minute they put a wristband on him, he ripped it off and all hell broke loose. We were bustled into a locked room in 30 seconds. For the next seven hours, they knocked…
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Living with Early Onset
Hello community, My father has been diagnosed with early onset Alzheimers. As you all may relate to, times get rough. I live with my father and 2 other family members with a brother who has recently moved out. At the age of 23, I have a lot going on - with a full time job and hobbies. I love my father and would do…
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Visits in MC
My mom’s new MC is extremely skilled and way more caring. They have asked me to shorten visits and come maybe 3 times a week until she settles in. Last few times i have taken her out have really unsettled her and made her want to leave. Intellectually i know this makes perfect sense. Emotionally it is completely…
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Memantine
My husband’s doctor recommended Memantine. (He called in the Rx, but I have yet to pick it up….) Has anyone had any success/issues with it? I saw a post from a few years ago that didn’t sound promising from the few responses that I read. I am wondering if anyone has any other experiences to share.
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We Moved—WISE OR NOT?
My first post to the forum was last October. I asked about the moving to be near family after an Alzheimer’s diagnosis. I was seeking stories of others who did. After much thought, I made the decision to move near our daughter and son in law. It was a three states away move. I say “I” made the decision because my DH is no…
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Help With Care for My Mom & Myself
My mother was recently diagnosed with Dementia. Currently, I have in-home help which I plan to continue as much as we can. I am wondering if anyone knows of support groups (the ones I've found in my area are already full). This is completely new to me and I want to ensure I am doing the best I can for my mother. Any help…
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Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
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Bedtime Routine for TV-Lover with MCI
Hello! I am new to the group. Very grateful to find this resource. My 80-year-old mom was diagnosed with MCI almost a year ago. Biggest issue right now is trying to get her to bed at a good time at night. She is gradually staying up later and later to watch TV and then sleeping later in the morning, groggy all day, doing…
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1st night in MC tonight!
The move went well from her AL which was 20 minutes away to MC only 6 minutes from me. She seemed okay. Until I had to leave and she realized I was leaving. Rookie mistake - she has her cell phone. Right after I got home the director called me to inform me that everything is ok and it’s normal but she is upset that my…
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Father Refusing Help
Our 80 YO father was in an auto accident requiring around the clock care, and refusing home healthcare or rehab centers. He also has been victim to a financial scam recently and is making poor decisions and is paranoid and verbally abusive. What can we do if he refuses outside professional help and a mental fitness,…
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Deception but not the usual topic
my mom has dementia and I've well read on the topic of the tendency to lie to fill in memory holes, or confabulation. I cannot find any material on this behavior: We will giver her a plate of food and ask her to be sure to eat it all. Total of 4+ ozs between all the items so not a large helping by any reasonable gauge.…
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Legs giving out
DH fell in the bathroom— he’s on blood thinners and I was told months ago by doc and visiting nurse that if he falls he needs to go to the hospital to check there are no blood clots. So here we are. I called an ambulance because i could barely get him up and knew I couldn’t get him to a car service safely (I don’t drive)……
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DH diagnosed with Dementia
I am new here. My DH was diagnosed with early dementia last year and I am looking to make connections and find support from people who are in the same situation. I love my DH so much and reassure him that I will remain by his side, but he will make comments such as "I hate being like this and you don't deserve this!" and…
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