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Help With Care for My Mom & Myself
My mother was recently diagnosed with Dementia. Currently, I have in-home help which I plan to continue as much as we can. I am wondering if anyone knows of support groups (the ones I've found in my area are already full). This is completely new to me and I want to ensure I am doing the best I can for my mother. Any help…
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Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
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Bedtime Routine for TV-Lover with MCI
Hello! I am new to the group. Very grateful to find this resource. My 80-year-old mom was diagnosed with MCI almost a year ago. Biggest issue right now is trying to get her to bed at a good time at night. She is gradually staying up later and later to watch TV and then sleeping later in the morning, groggy all day, doing…
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1st night in MC tonight!
The move went well from her AL which was 20 minutes away to MC only 6 minutes from me. She seemed okay. Until I had to leave and she realized I was leaving. Rookie mistake - she has her cell phone. Right after I got home the director called me to inform me that everything is ok and it’s normal but she is upset that my…
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Father Refusing Help
Our 80 YO father was in an auto accident requiring around the clock care, and refusing home healthcare or rehab centers. He also has been victim to a financial scam recently and is making poor decisions and is paranoid and verbally abusive. What can we do if he refuses outside professional help and a mental fitness,…
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Deception but not the usual topic
my mom has dementia and I've well read on the topic of the tendency to lie to fill in memory holes, or confabulation. I cannot find any material on this behavior: We will giver her a plate of food and ask her to be sure to eat it all. Total of 4+ ozs between all the items so not a large helping by any reasonable gauge.…
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Legs giving out
DH fell in the bathroom— he’s on blood thinners and I was told months ago by doc and visiting nurse that if he falls he needs to go to the hospital to check there are no blood clots. So here we are. I called an ambulance because i could barely get him up and knew I couldn’t get him to a car service safely (I don’t drive)……
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DH diagnosed with Dementia
I am new here. My DH was diagnosed with early dementia last year and I am looking to make connections and find support from people who are in the same situation. I love my DH so much and reassure him that I will remain by his side, but he will make comments such as "I hate being like this and you don't deserve this!" and…
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Disability vs Social Security at 62
DH, 61 yo, has multiple health issues. He does not have a diagnosis of dementia but has some cognitive issues. MR Venogram done in May for another issue shows microvascular ischemic changes, supratentorial white matter, and mild global parenchymal volume loss. So nothing definitive for dementia changes. However, his health…
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Cups and silverware
Looking for recommendations on cups and silverware for my mother. Mom opens every cup I have purchased. She flips, twists, pops….whatever it takes to get the lid off. Not entirely sure why she’s focused on that but I was hoping there are some recommendations on mugs or cups etc. Silverware- I have seen adaptable silverware…
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Leqembi
Is anyone using Leqembi and what is your experience?
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Painful Delusions
For about 7-8 years my step dad and I were the main caregivers (we luckily eventually had in home care almost 24/7, but we still managed a lot) for my grandma with dementia, my mom completely checked out and couldn’t face it. It’s been about 8 years since my grandma passed and now my mom is showing signs. We are still…
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Updating trust while DH is still able to consent
After reading various posts here, I realize time os of the essence to make changes we've talked about for years but never got around to doing. DH is in the early stages, still able to comprehend, give input and give consent. There is no CELA in my town. Closest one is 75 miles away but there are several trust attorneys…
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Have a plan!
can some list,for those who have no idea, what exactly should be in “The Plan” moving forward
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Feeling utterly awful and needing some space to express myself
I haven't been here in a few weeks. My mom finally left the hospital and went into MC on August 19. Everything was going better than expected. She was adapting and rarely asked about me, which, while bittersweet, was good. However, she was rushed to the ER Friday night. She developed COVID. She's 90. It has turned into…
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I don't think I can do this anymore...
My husband is so rude, mean and nasty I feel like I don't want to take care of him anymore. He has had 4 meltdowns already today…which all end in him degrading me in every way imaginable. He complains constantly about me having access to his finances (god knows I wish I didn't have to),but he can't handle even the simplest…
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Shocking decline since May and now COVID
Has anyone seen their spouse rapidly decline in a short period of time? Since May, my DH has become extremely confused, constantly packs his clothes, hallucinates and is hardly audible. He was diagnosed with COVID on Sept. 1, hospitalized on Sept. 2. He is still in the hospital and he cannot understand what is asked of…
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Raw plant based possible remedy
Grand rising family!I wanted to ask a quick question?I was told that raw plant based diet could help reverse the early onset Alzheimer's and wanted to know if anyone else have heard this same information or heard of anyone who has reversed it using this method
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Caregiving has isolated me. Age 35 and burnt out
I am burnt out caregiving my mom with dementia. It wouldnt be so bad if I had community where I live— We recently moved to las vegas area to be near my sister so she could help out with mom too (I used to live in California). However me and my mom know no one here and its been very strange having no community or friends…
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State Policies on Caregiving and Alzheimer's Disease
Information from Michael Ellenbogen: We invite you to join us for our next webinar, "State Policies on Caregiving: Opportunities for Supporting Dementia Caregivers" on 10/1/24. This webinar will introduce the caregiving policy approaches of New York and Illinois, discuss successful strategies, identify policy gaps and…
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MCI and severe sleep apnea
my husband just finished testing (mri,blood,cardiac,cognitive). No unusual findings, doctors are leaning towards MCI. My only thought to make sense of all this since he has no underlying health issues is his sleep apnea which we have just started to address 3 weeks ago with sleep studies and cpac. does anyone have any…
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The trap we get into
DH has been waking me up several times a night. I hit my limit at 7. So when he went back to sleep Sunday morning I decided no more sleeping during the day when he kept me up all night and told him so. I told him to get up as we were going to church.He told me to go without him. I said no and I was going to be very noisy.…
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Ideas for Social Interactions and Activies?
I’m wondering how some of you provide socialing opportunities and activities for your LO? Prior to diagnosis, our lives in a small town revolved around food and drink: dinners out, bbq’s, etc. Now these activities are too much for DH, though he still wants to do them. He’s been a craft beer aficionado for a very long time.…
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Difficult and lonely
I had a friend disable DH truck. He went berserk. He is still upset after 7 days of trying to get me to have it fixed. Now he is upset over some scam. All his cards are locked. Our retirement money was moved to a brokerage firm. Thank goodness. I took him to the bank to withdraw cash, he randomly walked into a bankers…
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Reluctance to get further tests
My wife has a recommendation from her primary Dr for a brain scan and further diagnosis by a psychiatrist/gerintologist. What are my next steps?
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Asking when to go home continuously today
Hello all, So everyday/week it’s something new to loop over. Apparently today my Lap is aware we are in the beginning of the month based off of something he read in the paper. This has set him on looping of needing to know his bills are paid and there is enough money in his accounts. He still has a whole house that will…
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Anger from loosing driver’s license
This is my first post. I care for my mom and dad who have dementia. They are not advanced but in the mild/medium stages. They have different dementias. My dad has three different areas affected including the front part of his brain. This controls his reasoning, understanding, etc. The doctors have had his driver’s license…
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Does occupational therapy help
DH in early to middle stage ALZ. There is another neurologist nearby that offers occupational therapy for dementia as part of their treatment. It is a hassle to change doctors, but if having DH do some kind of therapy that would slow the progression I would make the effort. At home, he plays Sudoku for several hours a day…
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Iris L
Iris, I found your life story absolutely fascinating. If others want to read it, it can be found on Lorita's thread at the end on the page 4. https://www.alzconnected.org/discussion.aspx?g=posts&t=2147558954 Thank you for sharing it!