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Should my aunt- having recently moved into AL - have a phone?
Hi, Part of her sundowning has been to have episodes where she's very confused and worried about where her sister is, or, most recently, where her (deceased) father is. Generally, someone in the family (but unfortunately most recently the police) gets a frantic call from her at all hours about these types of concerns. Now,…
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Long vent, sorry in advance...
In 2021 my grandparents moved my great aunt into the same apartment complex as me, less than a year after my mother passed away suddenly (and without warning) back in 2020. I was instantly forced into caring for my aunt without any sort of discussion. So now I am 35 and am currently the main caretaker for my 94 year old…
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In Home Hospice
I spoke to a hospice liaison and she told me steps about the process to get a home health nurse out to see my Dad whose dementia is worsening. He says he refuses ever going to a nursing home but my questions is, how do we ensure he is home when the nurse comes by? He has a golf cart and is still cognitive at times but he…
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the nightmare of respite
Sorry, I need to vent to my hive before I take someones head off. My DH is in stage 7 and on hospice. I am having family from out of state come to visit. I was so excited. I was going to put him in respite care for the week. Picked out a spot that was suppose to be one of the best in the city. Friday morning comes to drop…
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Memory Care transition
Well it has been 2.5 weeks since my DH has been in memory care. Prior to this, he spent 3.5 weeks in the hospital. The first couple of days he was there, I literally slept like a log. My bed didn't even look like i had moved a muscle. But as the days wear on I'm finding my big old house so quiet. It's sad. The facility is…
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My husband is in the hospital
After struggling with my husband’s escalating agitation for 10 days at home, I took him to the ER Wednesday night. It was the worst night of my life. The minute they put a wristband on him, he ripped it off and all hell broke loose. We were bustled into a locked room in 30 seconds. For the next seven hours, they knocked…
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Living with Early Onset
Hello community, My father has been diagnosed with early onset Alzheimers. As you all may relate to, times get rough. I live with my father and 2 other family members with a brother who has recently moved out. At the age of 23, I have a lot going on - with a full time job and hobbies. I love my father and would do…
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Visits in MC
My mom’s new MC is extremely skilled and way more caring. They have asked me to shorten visits and come maybe 3 times a week until she settles in. Last few times i have taken her out have really unsettled her and made her want to leave. Intellectually i know this makes perfect sense. Emotionally it is completely…
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Memantine
My husband’s doctor recommended Memantine. (He called in the Rx, but I have yet to pick it up….) Has anyone had any success/issues with it? I saw a post from a few years ago that didn’t sound promising from the few responses that I read. I am wondering if anyone has any other experiences to share.
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We Moved—WISE OR NOT?
My first post to the forum was last October. I asked about the moving to be near family after an Alzheimer’s diagnosis. I was seeking stories of others who did. After much thought, I made the decision to move near our daughter and son in law. It was a three states away move. I say “I” made the decision because my DH is no…
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Help With Care for My Mom & Myself
My mother was recently diagnosed with Dementia. Currently, I have in-home help which I plan to continue as much as we can. I am wondering if anyone knows of support groups (the ones I've found in my area are already full). This is completely new to me and I want to ensure I am doing the best I can for my mother. Any help…
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Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
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Bedtime Routine for TV-Lover with MCI
Hello! I am new to the group. Very grateful to find this resource. My 80-year-old mom was diagnosed with MCI almost a year ago. Biggest issue right now is trying to get her to bed at a good time at night. She is gradually staying up later and later to watch TV and then sleeping later in the morning, groggy all day, doing…
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1st night in MC tonight!
The move went well from her AL which was 20 minutes away to MC only 6 minutes from me. She seemed okay. Until I had to leave and she realized I was leaving. Rookie mistake - she has her cell phone. Right after I got home the director called me to inform me that everything is ok and it’s normal but she is upset that my…
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Father Refusing Help
Our 80 YO father was in an auto accident requiring around the clock care, and refusing home healthcare or rehab centers. He also has been victim to a financial scam recently and is making poor decisions and is paranoid and verbally abusive. What can we do if he refuses outside professional help and a mental fitness,…
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Deception but not the usual topic
my mom has dementia and I've well read on the topic of the tendency to lie to fill in memory holes, or confabulation. I cannot find any material on this behavior: We will giver her a plate of food and ask her to be sure to eat it all. Total of 4+ ozs between all the items so not a large helping by any reasonable gauge.…
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Legs giving out
DH fell in the bathroom— he’s on blood thinners and I was told months ago by doc and visiting nurse that if he falls he needs to go to the hospital to check there are no blood clots. So here we are. I called an ambulance because i could barely get him up and knew I couldn’t get him to a car service safely (I don’t drive)……
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DH diagnosed with Dementia
I am new here. My DH was diagnosed with early dementia last year and I am looking to make connections and find support from people who are in the same situation. I love my DH so much and reassure him that I will remain by his side, but he will make comments such as "I hate being like this and you don't deserve this!" and…
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Disability vs Social Security at 62
DH, 61 yo, has multiple health issues. He does not have a diagnosis of dementia but has some cognitive issues. MR Venogram done in May for another issue shows microvascular ischemic changes, supratentorial white matter, and mild global parenchymal volume loss. So nothing definitive for dementia changes. However, his health…
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Cups and silverware
Looking for recommendations on cups and silverware for my mother. Mom opens every cup I have purchased. She flips, twists, pops….whatever it takes to get the lid off. Not entirely sure why she’s focused on that but I was hoping there are some recommendations on mugs or cups etc. Silverware- I have seen adaptable silverware…
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Leqembi
Is anyone using Leqembi and what is your experience?
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Painful Delusions
For about 7-8 years my step dad and I were the main caregivers (we luckily eventually had in home care almost 24/7, but we still managed a lot) for my grandma with dementia, my mom completely checked out and couldn’t face it. It’s been about 8 years since my grandma passed and now my mom is showing signs. We are still…
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Updating trust while DH is still able to consent
After reading various posts here, I realize time os of the essence to make changes we've talked about for years but never got around to doing. DH is in the early stages, still able to comprehend, give input and give consent. There is no CELA in my town. Closest one is 75 miles away but there are several trust attorneys…
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Have a plan!
can some list,for those who have no idea, what exactly should be in “The Plan” moving forward
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Feeling utterly awful and needing some space to express myself
I haven't been here in a few weeks. My mom finally left the hospital and went into MC on August 19. Everything was going better than expected. She was adapting and rarely asked about me, which, while bittersweet, was good. However, she was rushed to the ER Friday night. She developed COVID. She's 90. It has turned into…
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I don't think I can do this anymore...
My husband is so rude, mean and nasty I feel like I don't want to take care of him anymore. He has had 4 meltdowns already today…which all end in him degrading me in every way imaginable. He complains constantly about me having access to his finances (god knows I wish I didn't have to),but he can't handle even the simplest…
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Shocking decline since May and now COVID
Has anyone seen their spouse rapidly decline in a short period of time? Since May, my DH has become extremely confused, constantly packs his clothes, hallucinates and is hardly audible. He was diagnosed with COVID on Sept. 1, hospitalized on Sept. 2. He is still in the hospital and he cannot understand what is asked of…
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Raw plant based possible remedy
Grand rising family!I wanted to ask a quick question?I was told that raw plant based diet could help reverse the early onset Alzheimer's and wanted to know if anyone else have heard this same information or heard of anyone who has reversed it using this method