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A suggestion for early to midstage caregivers
I have learned so much from those of you who share your experiences with this awful disease. To stay I was depressed and overwhelmed when I learned my DH has VD is an understatement. You have taught me so much about this disease, it's progression, what to watch out for, how to prepare myself as best I can for what is…
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My mother hides her purse nightly
My mother hides her purse and wallet nightly in her room at her assisted living facility. For now, she has a private room that locks and is very secure. She swears that people come in nightly and steal her purse however after a diligent search of her room, the purse is always located. We have tried to be consistent with…
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An even sadder Day
I'm back home, sadly, Donna didn't make it. Due to there being no traffic I got to the hospital an hour before her pickup time (better early than late). When they brought her to me she was crying but I calmed her down by telling her she be home with Jazzy soon. Then we took a short walk, about 100 feet, to the car. Half…
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Donezepil and diarrhea
Hello, My mom has moderate vascular dementia and is on Donezepil 10 mg. While eating she gets diarrhea, I can’t hardly take her out. I always have a change of clothes for her in my car and the doctor ordered anti diarrhea meds. Any other tips? Or does anyone know of a med for vascular dementia that does not cause diarrhea?…
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Feeling sorry for myself
Just got finished cleaning a foot of snow off and away from my car. Im 70 my husband who has alz and vd was in the house watching TV. Just having a woo is me day. Don't need to answer Just needed to vent. Thanks
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Travel documents for parent with dementia?
(Apologies, but I feel like I have to redact this post and the follow-ups at this point to keep some details private. Thank you all, especially H1235 and Victoriaredux.)
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onset of possible panic attacks and fear of falling
My mom is 87, diagnosed with Alzheimer's, with very little short-term memory and not much long-term memory. On friday, Jan 9, 2026, over a 3 hour time period, she had a dramatic change in her condition. She started slurring and having uncontrollable shaking of her body (arms, legs, hands) - almost like a seizure (although…
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Early-Onset ALZ Diagnosis
Hi! I am 56 years old, and I received my early-onset ALZ diagnosis. I have positive amyloid and tau PET scans, as well as having two copies of APOE4. No treatment started & hoping and praying for new treatments for APOE4/4 carriers!
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Laundry addiction
Quite unique and bothersome issue here. Dad;s currently in AL and I'[m looking for an open and reputable vetran friendly MC. He has been in MC for 18 months. He is addicted to doing the residents' laundry. He's claiming that he has been given this job by management/front office. He has gotten so bad that his private aides…
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Dad newly diagnosed, lives alone 3 hours away & I don't know where to start
My 75yo father has been experiencing memory issues for years. We just received the alz diagnosis with a blood test confirmation. Living alone, no family other than me, driving, medications, food, safety, poa - all of it is a lot, but we are navigating. My biggest question and concern is where and how to navigate his…
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Help me please
Hello, I'm caring for my mother that moved in with me a week and a half before christmas. And my brother filed for guardianship over her, and unfortunally he got it. Well here is the problem he is supposed to be getting this so called guardianship account set up. And I'm living off of a very limited income. We are slowing…
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Asking for Help
My dad is scheduled in February to start Leqembi. I am having a hard time wanting to try this experimental treatment. I love my dad. I am worrying about the negative side effects. My dad is at stage 3-4 of Alzheimers. He is coherent. My mom agrees with my dad. I have already let go of my father. He isn't the father, I once…
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Dad newly diagnosed
Hi Everyone. This is my first post. My dad was newly diagnosed this past June with early onset Alzheimer’s. I feel like I am in a state of complete shock. I have gone into “panic mode” and I want to make sure I’m doing all of the right things. My dad is still very early on, but the not knowing of what’s next and when is…
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CSVD and behavioral changes
I was diagnosed last year with CSVD, but for about the last 3 years, I’ve gotten angrier, losing my short term memory, so much to the point where I can’t even hold proper conversations, because I’m often getting in arguments with my adult children, and often can’t remember what it was about. Is this common with CSVD? Thank…
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Need to move mom; don't know where to start...
Hi, Hoping for some guidance from those who have lived it. Need to move my mom out of her home (she refuses) due to decreasing cognitive abilities (dementia). She lives 8 hours away in the middle of nowhere, with no facilities to move into in her community (rural, northern MI). She has too much money to qualify for help,…
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Therapist offering free workshop on caring for caregivers this Friday 11-1pm
hey everyone, I have a friend, psychotherapist, Lia Avellino who is offering a virtual workshop, Caregiving for the Caregiver. It's for anyone supporting others whether at home, at work, or in your community, definitely those with Alzehimer's. It's a 2-hour live workshop as an opportunity to slow down, reflect, and explore…
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Sitting Vigil
I am sitting vigil tonight at DH's bedside. It took three tries to insert a new Foley catheter this morning. Each insertion in recent months had been more and more difficult. He began bleeding out. He has an enlarged prostate and a latent tumor that he's had for 23 years. He may have a new tumor, too. He has lost a great…
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Barely Surviving Everday…
Hi, I am new here. By a grace of God, I was given this website, believe it or not from a woman that was a customer service representative at the Treasury Department. My mom has Alzheimer’s, and I suspected it four years ago and sent the alarm to the family. Nobody believed me, and thought it was natural aging, and…
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Not one to post pics or memes, but this struck a chord
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His Battle Has Ended
The love of my life, my DH Joe, lost his battle with dementia on October 31. He was diagnosed 15 years ago and progression was slow until the last year when he was in memory care. It broke my heart to move him there but it got to the point where I couldn't keep him or myself safe. Hardest decision of my life. In Aug/Sept,…
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Why isn't Alzheimer's mentioned more?
So, here we all are. Why isn't Alzheimer's and dementia talked about more in our society? It's crippling and life-altering to us caregivers and our loved ones. My DW has it. Her mother has it. Her grandmother had it. My dad had it. My uncle had hit. My brother-in-law's brother has it and my 1st cousins wife has it. It's an…
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NEED TO FIND A SUPPORT GROUP in or NEAR LOVELAND, COLORADO
My wife of 46+ years is developing dementia. I'll confess it's pretty heavy for me at present. I need to find a support group for myself and maybe with her in the Loveland or Berthoud, Colorado area. I do not want to go as far as Fort Collins - an hours drive and it's a college town. She is 78 and I'm 79 and a retired…
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Stages of Alz
I see many mentions of stages that your loved one is at. Where can I find this information. My DH is in the later stages but I'm curious which one and how it is defined. Thank you.
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Relieved, sad, brutalized, and bewildered
My spouse passed away yesterday. Diagnosed with MCI/EOAD after a spinal tap 11/2021 age 61 Hospice 6/2025 age 65 Died at home 1/21/2025 age 65 Early onset can go fast, but that young heart can keep going at the brutal, brutal end. 6 days with no food or water, 2 days of agonal gasping. Excruciating. I am so glad it is over…
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wandering
With so many of you having concerns about your LO wandering from the home,I thought I'd mention child locks on the outside doors. I installed these at the top of the door, above eye height, and my DH has no idea they are there. Even if he did, he does not have the dexterity or the mental capacity to figure out how to slide…
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Mother to Mother
Hi everyone, My name is Stacey. My mom was diagnosed with Alzheimer’s last year at 64 years old. We saw signs for a few years now looking back, but we always just chalked it up to anxiety symptoms. My mom is my best friend and I am having such a hard time with this diagnosis. Since last year, things have really progressed…
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Early in the process
My husband was advised by neurology dept that he probably has Alzheimer’s Doctor can’t see him for 4 months to confirm. What am I r do?
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Parietal or Atypical Alzheimers
I’m just wondering if anyone out there has a loved one with parietal Alzheimer’s. My DH’s AD is on the left parietal lobe. This is a very different path than the usual AD. His first symptoms were severe deficits in Math. We noticed he kept over tipping waitresses, who didn’t mind at all. His social skills were the same for…
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I Would Pay Money for a Little Anosognosia
As my DW loses her ability to speak and has started becoming more anxious and paranoid, she will say to me, "I am about to lose it all." and then she'll cry. So I cry and think of how utterly unfair it is that she knows, really knows that her brain is failing her. I know her thinking she has nothing wrong would bring it's…
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Aunt's caregiver guilt
My aunt has no children, no spouse, no partner, ever. She is the kindest human, but a loner. I am her caregiver; she was diagnosed with moderate dementia. I know it is not safe for her to live alone and I took her keys away months ago. She wasn't caring for herself, eating appropriately, taking her meds, and I watched her…