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Music gives us our best moments lately
Every morning we listen to music, usually the Beatles or Elton John stations on Amazon Music. We sing along and sometimes "kitchen dance." Today, while singing along to Bohemian Rhapsody he came up with "gee algebra has a devil set aside for me." I'm so glad we can find ways to still giggle.
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new to group and sad/anxious about my dad’s decline
Hi all, I am the POA/ caregiver for my 90 year old dad who has dementia. He lives in a facility that is just a couple of miles from me and for the most part has been happy there. I was also POA for my mom who died 2 1/2 years ago after a 19 year journey with alzheimer’s. Although it was difficult to see my mom decline, she…
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clenched teeth
DW has started clenching her teeth the past day and today. She will not take any meds, or food or even let a straw in her mouth for liquids. Any suggestions?? Meds are opioid for pain and anti anxiety, stool softeners. The Percocete is essential for spinal stenosis, she is bed ridden since this past week. Learning how to…
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“She’s mostly in her own little world now”
Those following our story know my DW is in the final stages of Semantic Dementia and on hospice. She is losing weight in each monthly weighing. But she is still hanging on although clearly declining weekly. I was discussing my DW’s situation with the hospice nurse. I noted that my DW seems to be in a state of being either…
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Hospice for dad
Dad officially got approved for hospice at home. Yesterday the assessment nurse came and started paperwork. Today the RN came and waiting for SW and HHA to come. I told the care team to communicate with me on anything they need to know. I know my mom is relieved and hope my dad will continue to cooperate with staff. So far…
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Therapeutic Lie
Hi everybody! I was looking for some advice on how to explain to my mom (60 with ALZ) the idea of starting to go to an adult day care program. There’s this wonderful program that’s 5 minutes away from us, in a senior center that my mom is familiar with already because her mom used to go there. I’be recently heard the term…
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Anger vs Guilt
Hi. I am an only child of a single mother since I'm 6mos old. Mom doesn't have a formal diagnosis yet but definitely some form of dementia. She lives alone currently. She is solely dependent on me for everything. I am extremely diligent, and have everything organized and do to make things easy for her, reminders, signs and…
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Tale of the phone: master manipulator?
My DH has been in MC for about a month now. I visited him once and he actually seemed happier than he had been at home for a long time. It was a quick visit with my DDIL and granddaughter (age 3 yo). I brought him some items he had asked for and he seemed happy to see all of us, especially my granddaughter. Throughout his…
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Please take action on this as it is extremely important.
If you have ever wanted to be part of history to bring the biggest change to dementia and other ND this is your chance.
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Please take action on this as it is extremely important.
If you have ever wanted to be part of history to bring the biggest change to dementia and other ND this is your chance.
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Please take action on this as it is extremely important.
If you have ever wanted to be part of history to bring the biggest change to dementia and other ND this is your chance.
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We’re finally calling hospice agencies
it’s been a difficult process in many ways because I, the primary caregiver, am not the primary decision maker. Additionally, as she is not my own mother, it was very important that my spouse arrive at this decision without feeling pressured. I think DH needed time to process the terminal natures of his mom’s two serious…
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Home care
I’m so tired and drained. I need help or I’m going to pass out. This week I’m calling Visiting Angels and asking you all who else can I call? I need someone to come in a couple of times a week just so I can have a break. Asking hubby to get ready this morning was a huge challenge. I’d ask him to get dressed and he sits and…
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Doesn't know me anymore
Hello, I'm new to this forum. My husband & my Mom both have dementia. My hubby is in a long-term care facility now. We've been on this journey for 10 years. He's been in care for 2. He doesn't know me anymore. I knew this day would come. He thinks I'm the nice lady that comes to visit him. We've been married 34 years. I…
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Planning trips
we are trying to plan a few trips to see family and it’s very frustrating to my Lo. He has always been the one to plan everything down to the last detail. It frustrates him that he can’t do that now. So he just wants to shut down and go no where, He says he can only see/think about today. He would just as soon stay home as…
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Help remembering which apartment is hers?
The situation: a woman with early dementia is able to go out and navigate the town safely, and she enjoys this independence so we don't want to squash it. The trouble is, when she gets back to the apartment building, she sometimes forgets which door is the family apartment and ends up knocking at the wrong one, confused…
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Dislikes Sister and an old friend
My wife has recently gone through some changes with her sister and an old friend. My wife was never close with her sister and this old friend growing up, but we've had a great relationship with both in the past 20+ years. A recent visit from her sister however sparked a memory of long ago when she didn't care for her…
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Only child of an only child
Hi! I’m new to this and initially resisted a support group. I think because I’ve just been overwhelmed. My dad lived in Florida and I seen him a few times a year, a week at a time. He would say to me “I’m sure you can see the old man’s mind is starting to fail”. I wasn’t with him enough to realize this was more than normal…
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New member, need support/advice
Hello! I am new here and I am looking for any advice and support, as my 70yr dad just got diagnosed with Alzheimers. We lost my mother last August to Lewy Body Dementia and I am pretty much the primary care person left for dad. I have his POA, but still struggle with how to handle him and the things that need to happen…
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Veteran's Resources - for Housing Modifications, etc.
HISA grants: — Lifetime benefit for Veterans and Servicemembers. $6,800 will be approved to: Address a service-connected disability; Address a compensable ...Clothing Allowance · Guide and Service Dog page · Automobile Adaptive EquipmentPeople also askHow much is the VA hisa grant? Will the VA compensation increase in…
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Memory Care
Well the AL facility gave my LO less than a month to get acclimated to her new surroundings. They are suggesting she be moved into MC. She's going to MC during the day and back to AL at night because they have no room for her. I think they're wrong! I think this will kill her!!! But my brother thinks it's the right thing…
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New to this
My DH is in the early stage of Alzheimers or dementia. He will not go to a doctor and is in denial about what is happening to him. I am slowly picking up all of his responsibilities but he is still able to do some of the things he used to do. Lately, it has just been so exhausting and I have become so isolated. I could use…
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Don't Know What to Do
I have been caring for my dad in his home in CA since December (Live in NC). I have left my family, home, job, friends-LIFE. I'm struggling with the idea of being here "forever." My dad cannot be alone, cook, eat properly, drive, conduct personal hygiene properly, etc. I have full POA (financially & healthcare). He spends…
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Memory care question
I’m wondering for those of you with loved ones in a memory care facility. Do you write a message saying,” ‘Name’ will visit you tomorrow? “ I see my husband every day, but as soon as I’m out of sight he forgets I was ever there. When I see him the following day, he seems so relieved and asks, “How’d you find me”? This…
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Drugs
what drug works best to manage delusions?
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Husband fell in MC
Last Sunday my husband either fell forward out of his chair or fell in the hallway picking something up. It was 6:28 am when I got the call he was going to ER. He was there several hours and returned to facility. My son who was with him said he slept most of the time. Since the fall he is totally different man. Not…
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Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Share Your Story with the Alzheimer's Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Constant anger
I’m sure you have experienced days where nothing that you say or do is the right thing. Well I’ve been having many days like this! I understand DH is angry with his situation and has an overwhelming need to have control of his life again but this is becoming absurd! I am finding it very difficult to deal with . This…