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Men’s support group
I know there is a men’s support group called Light Lounge, found in a 2022 discussion thread. Are there any other men’s support groups you have knowledge of?
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Constantly organizing and starting over
It seems to me what I'm about to describe is a common behavior, but I didn't see it on the staging tool. It seems akin to the hunting and gathering in early stage 5 but I'm interested in input from other folks. When looking for a check book recently my DB's wife mentioned she had to be careful with her stuff. DB was…
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I don't need help video
This popped up in my feed and I thought I'd share.
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Mourning my mom
Hi everyone. My mom has been diagnosed with alzheimer's disease for about 10 years now. Last year, had to place her in a memory care facility(the hardest thing ever). She has been doing well there and they are taking great care of her. She is still declining tho. She is in the the final stage of alzheimer's. So she can't…
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itchy skin?
For the past several months, DH has had itchy skin—chest and back—after getting out of shower and when getting up/dressed in the morning. I know hot showers can cause this, he has actually "toned down" his prior hot showers. He doesn't scratch, but wants some cortizone cream put on places he meticulously points out.…
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Looking for care help for EO Alz Canton, GA
*** closed... thank you *** Hello. I am looking for someone to help my brother-in-law care for my sister. She is 61 with beginning late stage Early Onset Alzheimers. They live in the Woodstock/Canton area. What is the best way to find someone that knows what they are doing? He has interviewed so many that don't quite get…
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Need advise
New to this platform. My mom has been living with me for 5 years. I discovered all the symtoms of memory loss almost two years ago. I have 4 siblings but receive very little help from one and help when needed by the other. Two siblings refuse to have contact with my mom. I am heartbroken bc of this. I don't know where to…
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Personal Stigma
Why is the stigma associated with mental health, dementia, Alz, etc. so pervasive? It affects all of us, even those afflicted……
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Can Anyone share positive stories of your LO moving to Memory Care?
I am curious to hear positive stories about Memory Care, if anyone here has any? I am waiting on that phone call from MC to move my mom into the facility. Mom is having big delusions that really stress her out at home and I wonder if she will benefit from the activities and positive distractions at MC ( I am trying to be…
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Respite care for a vacation
As I waffle about MC placement, I know that what I really want is to take a vacation, by myself, preferably for 2 weeks. I have no family who would be free to care for DH. MC facilities in Tucson advertise respite care but they will say "only if we have a bed available" which makes it hard to plan. Has anyone successfully…
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New to the group
Hello, my name is Laurie. I am diagnosed with Alzheimers. I'm 61 yrs old. My doctor wants to start me on an infusion course of meds. Has or is anyone doing this? We're you able to get insurance for it. Thanks for your help.
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Need to vent
So mom moves into ALF tomorrow. She just called me screaming and crying. She said I can't wait to lock her up in a home and get rid of her. I know this is coming from fear, but still not easy to hear. The ALF is gorgeous, looks like a hotel , I would live there! Tomorrow is going to be worse. I just hope she doesn't give…
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The dreaded has finally happened
my sweet DH has just begun to not know who I am. Lately he’s been asking me what my name is. He used to shadow me all the time but now it’s only intermittent. He used to say my name a 100 times a day and then he started asking me what my name is. The other day I told him and he looked at me and asked if I was his sister.…
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So very weary...
Visited DH today for a couple of hours. Not very responsive, couldn't get him to look toward me while taking a picture. Last week he was tapping his hands on everything (table, his legs, etc.) Now he's rubbing the palms of his hands constantly. Then he started rubbing my hands. Aide says he is eating everything but has to…
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Interesting Article on Liver Disease and Dementia Misdiagnosis
The attached article is about Liver Disease and Dementia Misdiagnosis. I actually have a close friend who was diagnosed with an unspecified dementia and he lost his job, home and driver’s license due to his cognitive decline. A few years after his dementia diagnosis he was treated for Hepatitis C with one of the newer…
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Just needing to rant
Since my stepmother passed away a year ago, husband and I have been caring for my father with early onset Alzheimer’s. We are his only caregivers because my sister lives out of town. I have really been struggling lately dealing with the way my dad talks to me. As my husband says, “he stays on your a**.” Any time I try to…
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Looking for memory facilities-what to look for
I am starting the unbelievable search for a facility for my DH. He is not there yet but I don't want to wait until he is in crisis. Any suggestions? This is breaking my heart and is the hardest thing I have ever had to do. To admit I can't take care of him anymore is killing me.
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How to support my Father who is caring for my Step Mom with Alzheimers.
Deep breath, and here I go. My Father turns 67 in 2 weeks. 10 years ago he decided to take early retirement because my step-mom [will call her Mom past this] was starting to show signs of memory loss, the doctors said it was too early to diagnose anything, but he wanted to get as much fun and travelling in while they could…
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working at dad's house and sorting through things
Hello dear ones, We're going to dad's to work on things at his house beginning tomorrow. This time my spouse is joining me, thankfully. It's a buddy system task, for sure. I think it was HB who explained it as a uniquely sad task. Agreed. And several of you mentioned having someone with me if possible when I posted about…
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CT Scan Finally
So, here are the results from my dad's ct scan: FINDINGS: The ventricles are normal in size and configuration for age. Enlarged bifrontal extra-axial spaces secondary to bifrontal cortical volume loss. There is no acute hemorrhage or mass effect. The gray-white matter differentiation is preserved. There are no extra-axial…
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Father in law early stages , and visiting him soon
Hi everyone! So glad I found this website right now. What a relief wow. Story goes , my husband went to visit his parents in a different state last week. When he arrived, his brother pulled him aside and told him there father is starting to forget things, ask where he is, fighting with his wife and more. Side note : My…
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Respite
I'm a nearly two weeks out from my magical respite. I hope to never forget the feeling of those days alone, knowing my DW was having fun with her family. My stress and anger and despair was alleviated in a huge way from it. The flip side is that it's made room for grief again. I've been crying like crazy the past few days.…
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Seroquel
I’m new to the community. My dad has dementia these past 5 years on namenda and donezepil. Lately he has started so sundown and will start having these episodes of looking for his wallet and blaming my mom (main caregiver) she’s stealing his money. Our doctor said to try seroquel but I’m scared as when I’m reading about…
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Absolutely CRAZY in the mornings
Every morning now since a month or so .. She is totally confused, agitated, shaking, paces back and forth in the kitchen , crying, does not want to live anymore, terrified of not understanding her surroundings, does not know what to do … Then slowly she calms herself , we supervise her while she makes her coffee, her…
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My dad is 63 with Early on set
Just wanting some support. My dad was diagnosed with Early onset Alzheimer's in September of 2023 and it seems that it is progressing very fast. He now needing help putting on clothes, seeing things that are not there, moving his hands like he is fixing something in the air, bothering well, and struggling with holding…
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Tips for What To Say
So…..my mom has failed to recognize me as her daughter. She refers to me in the third person, "Daisy," does this or "Daisy," does that. When she asks me what "my" name is, I say, "Daisy." When I give her my last name, of course, it's the same as "her daughter's." When she asks me about my birthday, I say the same one as…
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Middle of the night convo made me laugh
DH: (Sleeping soundly, suddenly asks a thoughtful question at 2 a.m.): ”Are you fixing…my…” Me: (holding my breath a tad, in interpretation-prep mode. Not sure where this is going or what it will mean for the rest of the wee hours I was hoping to just sleep) DH:… “Trans-ma-tazz-ma-tay-shun?” Me: (Thinking. Stumped!) “Uhh,…
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undiagnosed
My MIL exabits many symptoms of dementia. None of the adult children have medical POA. The FIL and MIL have medical POA on each other but that is all. Both are just under age 80 and FIL has physical ailments while MIL has dementia symptoms. I communicate with their primary. Due to HIPPA it is a one sided conversation. All…
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Does it really matter what we call it??
My DH has hadcognitive issues for many years. I noticed it when I retired 12 yrs ago. Executive function deficits, no initiative. Withdrawn, apathy. He was in denial. 6 yrs ago physical problems manifested. Sitting most of day, extreme chronic constipation, balance issues, autonomic dysfunction, nightly sleep problems.…
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When to go from AL to Memory Care?
Wondering how we determine when the right time is to move mom from Enhanced Assisted Living to Memory Care. The plan is to move her to the Memory Care wing at her current Sr Living bldg where she is in the Enhanced Assisted Living setting. She has always been an anxious person, is currently on Zoloft and…