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Sometimes I Forget
There are other stressors in our lives and when they add up and I get anxious and grouchy sometimes I forget that she really doesn't know that the question she just asked is the same as it was the 20 other times she asked. That just happened. I snapped at her and she got her feelings hurt. I tell myself I have to do…
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Update: out of Geri psych unit
After six weeks in the hospital (2 in a medical bed waiting for a Geri psych bed and 4 in the Geri psych unit), my DH was released back to his memory care on Friday. Zyprexa was the drug that finally helped him after they tried Seroquel and Risperidone. He still feels anxious sometimes due to his disorientation, but hasn’t…
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My sister doesn't get it.
My mom is mid-diagnosis, determining which type of dementia she has. My mother-in-law passed with Alzheimers about 10 years ago, so I know what I'm seeing. Mom lives 3/4 time with my sister and 1/4 time with me. My sister gets very frustrated (understandably) with my mom. She vents to me (fine) and I try to explain to her…
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Just Rambling... Again...
Is my DH the man I knew or someone new? Does this - the worst of his personality - come from who I know he's been the last 31 years but now just exacerbated because of his disease or is this just the disease? In any case it is impossible to continue with. If he were sweet and had the disposition of some that I hear of I…
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Activating springing DPOA
My mom's MCI is getting worse. How do I get my mom to the doctor to declare her incompacitated? What kind of fiblets can I use to coax my mom to see the doctor? I'm going to schedule a visit to her PCP and see if she can get a referral to see her neurologist to conduct a neuropsychological test to determine how impaired…
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Update on the move and my LO
Hi Everyone, It has been just over a month and a half(about 6 weeks) since bringing my father for his visit. Which is his now home/long term stay. He is now telling me we need to look into flights for him to go back home. He truly thinks nothing is wrong with him. I feel like he is at the cusps of Memory Care and home. He…
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@PRC regarding Grief
(This has been reposted from the "Supporting Those who have Lost Someone" section for more exposure) Please include "@PRC" in your reply so responses go to PRC Well, here goes. I lost my DW in March after 5-6 years as her caretaker and I still feel completely lost and overwhelmed by grief. As many times as I read from…
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Another update about my brother
I went with my older brother this morning to see the neuropsychologist who tested him three weeks ago. She diagnosed him with mild cognitive impairment. She wants to see him again in a year to repeat the testing. If he has declined in that time, she will likely diagnose Alzheimer's. His short-term memory is so poor, I'm…
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Shower
I have tried everything I can think of to get my wife to take a shower, she is uncomfortable with me in there with her, she instantly forgets why she is in there, I've tried a nurses aid too any ideas 🤔
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Car ride
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Rehab facility won’t restrain LO for safety; legal?
LO in rehab after breaking hip. Won’t sleep in bed, sleeps I. Chair and fell out. Facility says they cannot “ safety belt” her in the chair or restrain her in any way. Just got a call back… she is unresponsive and going back to ER. I live 3 hours away. Why can’t she be secured for safety purposes? This seems like negligence
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Hospice
Joy has transferred from the hospital to hospice care…we are days not weeks to saying goodbye…. NeverFearTheDream #JoyInAlzheimer’s simplebender.com
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Dog…how should I tell DH
Our dog of 13 years is struggling and I believe it is time to let him go. DH loves this dog. Should I tell him that he fell asleep and didn’t wake up or tell him the dog is in rehab to help him walk? Has anyone had experience with this they can share? Thank you
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Mom in and out of delirium in hospital
I'm feeling very lost and confused on how best to help my mom, who lived independently and has recently had two falls that she doesn't remember. (Early in the morning, either disoriented or sleepwalking.) The latest resulted in her fracturing her pelvis. At first, we did our best to care for her at home with home health…
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Sedation for MRI?
DH had brain MRIs and is now totally against another. He said he won’t do “the coffin “ …But he may have NPH and neurosurgeon needs MRI of spine. The possibility of him getting back walking ability etc by draining some excess spinal fluid with a brain shunt is all new to me but that hope makes me think it’s worth trying to…
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Mom sang to me 🤗
Hello Alzconnect Family. Today's visit was nice, Momma sang to me. Sometimes visits are nice. I kissed prayed and hugged her. God bless. ✌️
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Broke my heart
My DH has done nothing for 2 years,besides watch TV and feed the birds and squirrels. Here in the last 2 weeks he has been cleaning out his man cave( which was disaster d/t I'm not to move or touch anything). He hoarded box's? Today I ask him what was going on with the cleaning? He said 'I'm aware of my mortality and I…
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new pcp
Took MIL to her new-ish PCP yesterday. Definitely going to look for someone else. This was her second time with this one, as her usual one that we liked left the practice, and now we know for sure this new one doesn't have experience with a PWD. What PCP said: 'you know you need to bathe, change clothing and underwear…
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NPH Discussion Group
I am interested in Normal Pressure Hydrocephalus (NPH) for my DW. Searching these message boards turns up a lot of useful information, often referring to a Yahoo Group on the topic. Yahoo shutdown their groups in 2020. Does anyone know of a similar discussion group that is currently active? Thanks
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Finally made an appointment with CELA - any advice?
Soooo…with my mom safely placed in MC, and DPOA, etc. done, I have finally made an appointment with a CELA. I am so clueless: what should I ask? Obviously will ask about financial planning and services. What else? It is really just an intake interview but a big first step for me. I have been thankful we have made finances…
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Care.com settles with the FTC over misleading claims
Good to know. Care.com misled caregivers and families — and made it 'impossible' to cancel, the FTC claims
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Is this sundowning
My Dh has been increasingly waking up after a couple hours sleep getting dressed and going outside. He doesn't go anywhere just thinks it's really early in the morning. Last night I got to him before he went out. Should I think about getting a alarm or lock? To be honest I don't know what I'm suppose to be doing. Don't…
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She is the Love of My Life, will she come back for a moment?
My DW, first showed signs of mild cog impairment during covid, July of 2020. Sill very mild what everyone thought was stress related. Then in 2/2022 we both were infected with a severe. Case of covid with brain fog, that I have been able to recover from. Not so luck has been my DW, although I have made many efforts since…
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Memory care in New Jersey
Hi all, my uncle (who raised me and is practically my father) was recently diagnosed with dementia. I live in NYC and he lives in Virginia, I’m hoping to move him to a memory care facility in New Jersey in a few months. Are there any memory care facilities in NJ that people can recommend? Thanks so much!
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Sundowning
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Without love where would you be now?
my DH Lonny passed August 12. My son came to visit and we went to dinner. After dinner a band started playing. I said to my daughter “I wonder if they know the song “Long Train Running” by the Doobie Brothers. It was “our song” that we danced to many times in the 1970’s. The next song they played was our song. 😭💔 Grief is…
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Will a distinct dementia diagnosis make a difference?
My mother is 88 years old and has been demonstrating mental decline for many years. She lives with my Stepfather who has been doing the heavy lifting almost exclusively for the years of this decline. 8 months ago, they asked to move closer to me because they knew they'd need more help as time progressed and they wanted to…
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How to pay for AL
Mom was diagnosed with vascular dementia 1 and a half years ago. She has been in AL about 6 months. She has enough money now to pay for 1 more year. We have been to the lawyer and I have DPOA, she made a will, a living will, a medical POA and a ladybird deed (at her death the house goes to my brother and I and there can be…
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Any suggestions for a toothpaste that is safe to swallow?
And preferably does NOT foam. How do you manage oral care for someone that is unable to rinse and spit? My primary concern is keep her mouth sufficiently clean to avoid excess bacteria and minimize the risk of infection. Thanks everybody!
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Here we go again -Sorry this is long
There's nothing like a toxic family to make caregiving unbearable. I spent 7 years caregiving for two elderly family members with dementia. I have two siblings that questioned absolutely EVERYTHING and would not listen to me even though I was the one doing the actual work. I spent as much time explaining and defending…