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Stuck with what to do
This is my first post ever, on any forum whatsoever! The process of trying to care for and protect my parents (one with Alz and the other with vascular dementia- both in total denial) has opened me up to all kinds of new and unpleasant experiences. At least this one feels positive. I don’t know where to go from here- my…
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Literally the Last Thing I Needed
Hi everybody, hope you’re all doing well. Bit of backstory to this predicament; my mom (60 diagnosed with ALZ) was a single parent to me (25) and my younger sibling (20). My sibling and I have separate fathers, mine passed when I was 7 and theirs is alive but not active in our lives. He was an abusive man to us and my…
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I’m going nuts
Do any members experience wild swings in day to day health and cognition of their LOs? One day, MIL acts like she’s about to die. She’s sleeping 18 hours, largely incoherent, confused as to day, time, etc, not eating much and seems to be in pain. Then the next day, she wakes up and she’s almost normal. Alert, good…
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Transitioning?
My mom will soon be 98. She's been in memory care for three years. For the last 1.5 years she's been in Stage 7 of Alzheimer's. She's been on hospice for 2 years now. About 1.5 years ago hospice told me she was actively dying and had only days to live. She was in bed on oxygen for about 3 weeks, struggling to breath,…
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Thoughts
I went to every doc appt. Kept telling them about the continued memory loss, personality changes. He is freezing all the time and continues to loose weight. He scored a 10/30 on his SLUMS. I felt like I was banging my head on a brick wall…like no one was listening. I'm witnessing this slow, agonizing decline that I can't…
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Preparing for in home care
Yesterday I had a semi-productive meeting with a VA social worker. We have been offered up to 30 days of care in our home, the care will only be for 6 hours a day. In addition, they have one single respite bed (for hundreds or more vets) at their facility that is available for up to 14 days but those hours will be deducted…
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Placement Decision
At some point I will have to decide about placing my wife in a memory care facility. This will be difficult. I know many of you have already been through this. I would be interested in any information you would be willing to share on how and why you decided on placement.
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new to this group...
Hi, I am new to this group. I first noticed something was off with my DW in early 2019. After lots of reluctance and denial, we got a EO ALZ diagnosis in late 2021. Right now, I am 57 she is 59. I would estimate we are in the middle of stage 5. Fortunately my DW mostly remains pleasant and cooperative throughout. She did…
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Interior keyed door locks
A quick thank you to whoever posted about making sure you have a room inside your home where you can lock yourself in for safety. No, I haven't needed to do that yet as DH is pretty quick to diffuse thanks to two antidepressants meds he's taking. However, he is starting to show a tiny bit of sundowning on occasion and I…
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The feeling of Guilt
Hi everyone, my mom was diagnosed several months ago with Alzheimer’s. She lives with my dad but my father has been having a really hard time copping with this and refuses to learn anything about the disease. My mom always took care of my dad , she did everything. Now things have changed and he just doesn’t know what to…
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Won’t take Meds
Hello, I take care of my mom who has Alzheimer’s. She was diagnosed in 2019 and is in the late stages I believe. We have many many issues these days. She is pretty much nonverbal or her language is a mixed up string of words. She needs help with all daily routines, hygiene, toileting, showering, completely. She needs 24/7…
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Clinical Trials
Hello good people, I am a nurse and helping my mother newly diagnosed with AD. Her neurologist said there's nothing more he can do and our best option is to find a clinical trial. I am finding this difficult as she cannot undergo MRI due to a metal clamp for an aneurysm she has. The new infusion drug Leqembi is…
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Dad was caught driving!
My mom told me a neighbor saw my dad driving at intersection of the apartment complex going the wrong way! He got confused and stopped in the middle of it. I warned my mom not to leave the key fob easily accessible to dad but she thought that dad has enough sense to not drive. Ha! Anyway, thank goodness they have watchful…
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New here, need advice
Hello everyone, Im new here. I was recommended this site after I posted for help on reddit. My mother is going to be diagnosed tomorrow with Alzheimer's. I've seen the signs in her for a while now, but have been putting off the inevitable. Alzheimer's runs in our family. Her mother passed from it, her brother is starting…
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Early Onset Diagnosis
Hello, I am new here! I have been diagnosed with early onset Alzheimers last year after many tests. I am honestly still struggling with the diagnosis on most days. I find myself making excuses to stay alone. I have been making these excuses long before my diagnoses and have been having memory problems for awhile too. I…
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Life with Dementia - Tips for Caregivers
I was looking for the best practices foods and exercise list, and found this. Best practices across a range of areas to consider. Helpful tips here. https://www.alzheimers.gov/life-with-dementia/tips-caregivers
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The niggling things that add up
no wonder we are all tired. I play a constant juggling game in my mind that wears me out before I get anything done. I need to get the oil changed in the car, the time to do that is before a MC visit, since it’s on the way (but it’s 45 minutes each way). So scheduled it for this morning, but then the cleaners called and…
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New diagnosis after 4 years
I am brand new to this group. As I am reading your posts I am encouraged by the support you give one another. I sure could use it! My DH started showing signs of dementia 4 years ago. We have been going to the doc all this time. One week ago, after doing some tests, they have diagnosed him with vascular dementia. Even…
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Regarding instrumental adls
I don't know why instrumental adls are not mentioned more frequently. I think new members could get a quick understanding of what their LOs can and cannot do. Instrumental adls are learned at high school level. If your LO is functioning at below a high school level, your LO should not be left alone and needs close…
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So confused and so tired
First post here - My husband was diagnosed with Stage 4 Alzheimers last year from a neuropsychologist. Afterwards, we went to a neurologist who diagnosed MCI. We have had blood tests for B12, sleep studies, an MRI and more recently a PET scan done. The blood test and sleep study turned out fine. The MRI and PET scans were…
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Mood cycles
Hi everyone I am new here. I have been taking care of my mom by myself now for several years. She showed slight memory issues, as we all do, before the Covid outbreak, but when the world shutdown and me being in Healthcare, I wasn't visiting much, and she didn't have much outside the house activities. This is when the…
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Newly Diagnosed - Infusion Therapy?
Hi all, I am new to this group and am excited to learn from everyone! My Mom is 85 and recently diagnosed with "early stage" alz. The Neurologist is wanting an updated MRI, but feels that she is a good candidate for infusion therapy. Has anyone has experience with this?? She does very well (still drives and volunteers at…
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Expectations of hospice
Hi, My mom has been in hospice for 6weeks and they recently increased her anti-agitation/anxiety meds by quite a bit and are not letting me as poa have say in if it is too much or not. I want to be respectful of staff at her facility and make sure they are safe providing cares but also do not want her to be overly…
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Change Meds
hello everyone my mom been on Seroquel 50mg but it has not help her at al as a matter of fact she seems to be getting worse , the dr stop it and now wants her to take olanzapine once a day at nighttime . My question is anyone here giving this meds to a love one and if so what is your thought on it and if you are seeing…
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Getting so disappointed with myself
Every morning I try to tell myself that this will be the day I have the patience and positivity I need to get through the repeated questions, the intense shadowing, the snapping at me for no good reason. And most every day, I disappoint myself. With my DH in probably late Stage 5, I should know better than to argue or snap…
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Do you visit your spouse in MC daily?
I've been tryiing to visit my DW in MC at least every other day but it's becoming difficult in the sense that at first my DW is glad to see me and I her. After an hour or so she becomes agitated with me, sometimes for not being there 24/7 like I used to, or when it's time to leave. She looks hurt and sad and I'm sure she…
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A hybrid Memory Care plan?
My DH has been in MC for about three months. Prior to that, when he was home, the biggest issues were sundowning from about 3 to 6 in the afternoon when he would get manic and confused, and waking up at night to go pee but going in inappropriate places in the house or going outside to pee off the deck. The sundowning was…
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Fibs for MC intake
I am going to move DW to a MC place in June. Among the things I’m worried about, one is what story to tell her, which can be shared with family and friends when they visit her in MC. Any suggestions that have worked well for any of you? I am advised that it should be short, simple, and not anxiety-producing. But any…
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Need Guidance Please!!!
Hi everyone This is my first post here. I'm so happy to have found this forum because we're in desperate need of guidance. My sisters and I are so lost. I apologize for the long post in advance. This is a lot to share so l will just give you highlights. My mom has always been high functioning, independent and very driven.…
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New to Forum - Dad has ALZ
Hey guys! New to the forum and glad to have this as a resource. Feeling compelled to find others that are in a similar boat. The last few days have been unusual with my Dad and I'm recognizing that I need an outlet to discuss this others that have gone through similar experiences and can offer insights and support - so,…