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What kind of safety gate should I use?
My husband is in stage 5-6, still very fit physically. I need to keep him from going upstairs, to prevent falls on the steps. Has anyone found a good 'baby gate' for this? I have solid wood to attach to at the base of the stairs. The latch has to be complex enough that he can't easily open, and it has to be sturdy enough…
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AL nurse told mom she has dementia
I went to visit Mom today. It seems she asked the AL nurse what was wrong with her, why couldn't she remember things. The AL nurse told her all that was wrong was she had dementia. Really- why would she tell her that? And why would Mom all of a sudden latch onto it and remember it long enough to tell me? The doctors told…
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Wanting to go home, when we are home
Everyday my 80 year old husband with moderate dementia, wants to know how he is going to get home. We live in a home in the same community that we have had several houses. We have lived here for 4 years. I try to explain that we are home, he says no. I tell him not today, he says he can’t stay here. I have tried to divert…
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Accelerated Progression from Stage 5 into 6
My DH's Alz has advanced significantly in the last 6 months. Then he contracted COVID and in the hospital for 2 weeks. The illness and hospitalization have made him much worse. He is going to be moved from the hospital into a Rehab Facility. Are there any suggestions on how to lessen the fear and anxiety for him? I then…
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Head feels "weird" or "funny"
Has anyone heard of this? My mom will often say her "head feels funny". It doesn;t hurt and she says she can't describe it but that it feels "weird". I can't find anything on google, but just a couple of people reporting it too. Any insight would be welcome. She is physically totally healthy. Thank you!
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Behavior shift-FTD
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New stage
DH has entered a new stage. He's sleeps almost all the time. We're having difficulty waking him enough to eat. For almost 3 weeks now he's eaten very little, decreasing more by the day. Almost nothing in the last week. His drinking has also slowed over the past 2 weeks, to just a little bit. I've told them that I'm ok with…
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MC facility not communicating about anger issues
I have learned from my DH's staff at memory care that he has been in several altercations in the last month, always in the evening after dinner. He struck other residents and caregivers on several occasions. The only reason I know about it is from the CNAs who are on the floor. Neither the head of the nursing department or…
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Parallel living
Not sure how else to describe this but DH constantly refers to our "Other house"? Which he says is identical to this one, but he wants to take his belongings there. I'm continually putting things in our car for the "morning" to be taken there. After he goes to bed I take them out of the car and put them away. Sometimes…
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New to all of this
My mom has just received what I assume is a diagnosis. The doctor put her on Aricept. I saw her MRI results, although they didn’t make much sense to me, the end result suggested AD. My grandma and great grandma had it too, so it wasn’t terribly surprising. She still manages to do most things, but a week or two ago she was…
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DH wants a divorce
My DH is in the advanced stages of Parkinson’s disease and dementia. He has been in assisted-living for two years, and the disease has been progressing rapidly these last months. He has had moments of clarity, but has been confused most of the time. His ability to speak has become very limited. So I was quite surprised…
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Zunveyl new med on the horizon
I came across some info about this medication today. It just received FDA approval in July 2024 and is predicted to be on the market in early 2025. I'm very curious about it because my wife has been taking rivastigmine and has been having a horrible time with the nausea side effect. I also read this study that was posted…
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What do these abbreviations mean?
Hello All. I'm new here. What are the common abbreviations used here? What do they mean? Thank you 😊
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How I feel one year after DH's death
DH died 1 year ago yesterday. It feels odd. One year is a fairly standard metric for measuring time, but it does not feel real. I remember his death as if it were yesterday. I feel the loss and despair of multiple life times. My heart ache is acute. The brain fog remains. I move forward with sadness that he is gone and…
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Legs are weak....
DH is moving slowly into another phase, he is sleeping some most days and has mentioned several times his legs "are sore." I asked if that meant weak, and he said yes. Some days he works a little weeding and would do more if he could see well enough or could handle tools much….but often he doesn't have very much exercise.…
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Is incontinence around the corner?
I searched through old posts but did not find an answer. My DH does not make it to the bathroom in time for peeing. It seems that every time he is having to change his clothes. I will make the necessary changes to prepare for this but is this how it starts or is this just older men issues? He is aware he has to go but just…
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Not my spouse, but I'm used to you guys.
My big brother, who has a diagnosis of MCI - amnestic type - got it into his brain that he needs to drive cross-country to visit his stepdaughter in Florida. This will be the end of October. She is due to have her second baby on October 10. No amount of reasoning will convince him that this isn't a good idea, naturally.…
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Progression or something else
My DH, 72yo, was diagnosed with moderate dementia this year but has been having memory and word finding problems for years. He started on oral Aricept and did not tolerate so started the exelon patch. About a month ago, he started talking about people being in the house. He was at home alone while I worked at that time. We…
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Peroxynitrite scavengers for the treatment of Alzheimer's disease
This new study "confirms" what I have been saying for years: "The elevated levels of ROS (reactive oxygen species) are among the major pathological alterations in AD. Among them, peroxynitrite (ONOO-) exhibits a greater impact compared to other reactive oxygen species and plays an important role in AD, but the role…
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15 Minutes of Fame
Hello friends! I haven’t been here for awhile. I wish that everyone is peaceful on their journey with their LO, yet for myself and many, that just isn’t possible. I just happened to meet the author of this book, Tryn Rose Seley, on a trip in Ireland/Scotland. I’m spending almost 3 weeks with her and others on this…
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Any Friends from Metro-Detroit Attending Tam Cummings Event?
In my search for MC for my DH (69) I've landed on the email/newsletter list for several Detroit-Area MC facilities. I don't always appreciate these and have unsubscribed from most, but I received an Eventbrite invitation from a local facility to attend an upcoming event: Dementia Education Conference with Dr. Tam Cummings,…
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Seroquel too strong?
First time DW took it, she conked out (sleeping) just 2 hours afterward. Woke up for 2 hours, kinda spacey, then went down again. I called medical office to tell them. Was told cut the pill in half tomorrow. But I am still concerned — she is small-framed, which could be a factor. Prescribed b/c, although she's been…
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NYT: Reducing inflammation may help forestall dementia & provide other benefits
Gifted link for 30 days below. Article states that GLP-1 receptor agonists like Ozempic may reduce inflammation, which can provide other benefits beyond weight loss, and that "There’s also increasing evidence that inflammation affects dementia and, more broadly, aging itself" It also states that we can't rid ourselves of…
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DH was placed in a Geri-Psych program yesterday
What a sad day! My DH was admitted to the hospital yesterday for much-needed medication management. He has been more and more out of control lately and the final straw was when he threated to hit another resident here who was just walking by. My choices were to have him placed in a more expensive Memory Care not a part of…
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Advise from anyone on Medicade in NJ
I’m curious on story’s that happen on Medicade when it’s time. Did they take your home ? When partner is no longer around what happens to you with bills? Anything will help. And has anyone had a Reverse mtg when all this medicade stuff started and what did you do ??
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I have no idea what he means...
Many times I can interpret what my DH is trying to say, or I can give a satisfactory answer to some question even if I'm not sure what he's asking. But a few times lately, he fixates on something and repeatedly mentions it and I have no idea what he means. I take a guess and give an answer but I know the comment will come…
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In Person Support Group & Volunteering Disappointment
My third attempt at joining an in person support group was a bust. In our prior home, the first meeting I went to, no one showed. The second, (different group) I tried, three people were there. The leader monopolized the meeting with her personal journey and no one was a full time caregiver except me. Now in the new…
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Problem with Eating
My DH is stage 6 Alzheimer and ten days ago was accepted for Hospice care. He has always used utensils and honestly uses forks and spoons when it would be easier to eat the food with his hands, such as he will cut up sandwiches and use a fork to eat them. So he is still using utensils to eat but the last couple of days he…