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Diagnosis for dementia?
My mother was recently discharged from the hospital after having an episode of some sort and falling. She stayed in the hospital for 2 weeks and she was experiencing dementia symptoms pretty bad. Her memory has been fading gradually over the past 6 years or so. The doctors were worried about it and tried to get an MRI but…
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Comparing Clinical Care in Boston
Hello, I'm from the Boston area and new to the discussion. I am wondering if anyone has gotten recent care for a loved one at either Boston Center for Memory (BCM) or Mass General Hospital's Memory Disorders Division? My 82-year old mother has mild ALZ but will probably NOT choose to pursue anti-amyloid treatments…
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Caregiver-only groups in DFW?
Anyone in North Texas know about groups for caregivers?
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Cardio surgery and Quality of life
For context, my dad had two valve replacements many years ago that seem to have been a factor in his dementia. The valve in his first surgery was crushed by scar tissue so his case was written in medical journal and the cardiology department at Vanderbilt (which is local to us) is really invested in his care. About a month…
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Homecare
I’d like to get a caretaker come over twice a week for a few hours. Where do I begin to search? And hubby likes sleeping until 10:30 or so. Therefore I should have the person over when he’s up and about? Thx
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Caring for spouse
my DH has EO dementia. He has an alcohol use disorder. He has guns as we live in the country and have chickens. He is 82 and I’m 83. I at a loss as to how to deal with everything and my family is worried about his gun use against me in his mental condition. I need help.
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Transitioning to AL
My mom is in a community with IL, AL, and MC. She’s been in IL there for 2 years and it’s time to transition to AL. We know she will eventually need MC too. Any tips on easing the transition when it’s in the same community? In a way it should be easier due to the familiar environment, but there’s also a feeling of being…
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cognitive vs ADLs
I expect that some of you have been in the situation I am in with my DW. Her neurologist described her condition as "severe" last week at a 6-month evaluation, but then went on to say that her ADLs are good and she is physically ok. That leaves me wondering if one is more important than the other regarding the need for MC.…
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Mom recently diagnosed, Dad in hospice, preparing for dad's passing
Hello, I just joined this forum, and am looking for suggestions. My elderly parents (93 and 91) are having difficulties. I am their primary caregiver. Dad will pass soon (home hospice), my folks are living in Senior Independent Living apartment together. We have not communicated the DEMENTIA diagnosis to my mother yet, and…
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Introducing myself
Hello, I'm a caregiver for my mother. She has been slightly cognitively impaired for a few years but recently had seizures and it has progressed her cognitive impairment. She has been diagnosed with mild cognitive impairment. Unfortunately, she is easily agitated and confrontational. It is very hard dealing with her…
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Hospice benefits
My DH was just approved for hospice services. He has been in a pretty rapid decline since moving into a wonderful residential memory care home in November 2024. While I am grateful that his remaining time with this wretched disease may be limited, am having trouble figuring out what value add the hospice services might…
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New on this Journey
I’m a 59yr old female who’s been diagnosed with Younger Onset Alzheimer’s. About several years ago I knew I was gradually forgetting the littlest things which grew to bigger things (how to get home) . At that point I went to my Neurologist who was seeing me for my Parkinson’s. Now I was in denial however, getting connected…
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Seizure that came with a gift
My husband had a seizure Tuesday morning. It was the scariest thing I’ve been through on this journey . It started with him yelling and screaming. Then his limbs began posturing . Finally he went completely rigid and his head tilted back and his breaths came in puffs. He bit his tongue and it began to bleed. When it was…
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She Is Dancing With The Angels
My wife Linda’s journey of this earth ended this afternoon. I have mentioned several times in my post how she loved to dance and she continued dancing almost to the very end. I attached the link below of her dancing. https://fb.watch/cj53jFIVCR/ She contracted Covid 3 weeks ago which lead to an infection that got out of…
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Hypersexuality
Its been a long time since I've posted, but his hypersexuality is much worse. He is not angry, or mean, or delusional, just talks about sex non stop. The only thing that makes me feel better is that I have caregivers who aren't nt phased by it, having seen it a million times. It makes me feel like I'm in a more normal world
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Unexpected peaceful moment
I just wanted to share with those who would understand. Tonight, I had one of those truly unanticipated moments of peace and dare I say joy? After getting DH into bed, I poured myself an adult beverage, stepped out onto the patio, sat in my chair, and listened to the wind blowing in the trees (it’s really gusting here in…
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Repeating instructions and forgetting appointments
Hello, new to the forum, excited to get started. My mom not diagnosed with alz yet, but lots of symptoms. Constant repeating instructions, daily occurrence. Confused and forgets doctor appointments. Not sure how much more I can help, daily I remind and go over instructions,
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Memory loss and difficulty speaking
This is my mother's MRI report. Could this be the cause of memory loss and difficulty speaking?Multiplanar multisequence MRI of the brain with I/V contrast was performed. 06-Nov-2024 07:45 Extra axial spaces: A well-defined avidly enhancing extra axial mass showing isointense signals to gray matter on T1/T2 measuring 3.5 x…
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Giving up
My dh is in stage 4,also has vd and multiple health issues. Does all his adls. He appetite is poor,has lost alot of weight. Yes I have tried boost and any thing he will eat. Was talking with him this morning. Ask him if point plank are you giving up? He said why? I said your getting weaker and your voice is getting weaker.…
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Struggling to get him to do anything
DH is becoming more and more resistant to things he needs to do, like changing clothes, brushing teeth, washing. Maybe I created this problem myself in the way I’ve been handling it but I’m at a loss as to what to do next. He used to get undressed at bedtime no problem, so could slip clean underwear and clothes at that…
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Follow up on Blount Alzheimer’s Center Cuts.
I was devastated by the cutbacks at the Blount Cenetr for Alzheimer’s research. There is no cure for for my DH, but I know the Center is working so that my children and grandchildren will be spared this vile disease. Not expecting much, I contacted my congressperson. A few days later, my congressperson phoned me! He…
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Onesies
My spouse is about Stage 6 and has lived in memory care/assisted living for 2 1/2 years now. He has moved from the more independent through the middle and is now in the section where residents require the most care. The nurse called me this week and said he is peeing wherever he is, and wonders if I mind them trying him…
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All alone
This is a sad story. My partner (F) and I (M) are both 75. We have been together almost 33 years. She is the love of my life. Over three years ago we moved far away to a new area which is more affordable so we could retire. We have only each other. There are no children, family or friends. After we moved, she developed…
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Sad and scared
I am new here, and I's prefer to exist in denial but I know it's better to connect here. So here I go... My 75y.o. mother was diagnosed with Alzheimer's (early stage) January 2nd, 2025. I live 4 hours away which is close enough to be available and far enough away to make it complicated and difficult. My maternal…
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Hiring through Care.com
Hello - we are looking to hire someone in the immediate term through care.com until we can get mom's long-term plans settled. For those who use or have used care.com: What questions did you ask when interviewing candidates? What red flags should I be on the lookout for with candidates? Any watch-outs to be aware of when…
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Repetitive questions
How do you deal with the repetitive questions? My DH is driving me nuts. He will ask the same question 8 times or more in the course of 15 or 20 mins. Then later it will start all over. I know it is not his fault but my patience is wearing thin. I have my own health problems (Pancreatic cancer) which he is oblivious to( no…
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When to cancel the cell phone line
My DW is in stage 5. In the past few months, she has lost complete interest in even trying to use her cell phone. She has not gotten a meaningful call or text on her phone in months. I have been moving all her accounts to my phone number. Every month when I pay the cell phone bill it makes me feel financially stupid. The…
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Advice for surgery?
Hi - it’s been a minute since I’ve posted. I hope everyone is doing as well as they can. I’m here because I could use a little advice. I’m going to be having surgery later in the spring. There is a 4-6 week recovery period, including up to 2 weeks of bed rest. My husband is well cared for in his facility. What I’m trying…
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Tiempo disponible
Soy la unica a cargo del cuidado de mi papa. Estoy cansada, agotada y de muy mal humor. La enfermedad de mi papa se llevo mi vida social, y los pocos amigos que tenia. El vive conmigo y lo cuido de dia y de noche. Se que no soy la unica pasando por esto. Que hacen para tener paciencia?
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Retirement
Well. I worked full-time during these last six+ years of solo caregiving as my DW has progressed to now Stage 5. I’ve been losing my mojo every year of this, with this past year ending up with me completely burnt out. I am lucky, my employer is a Family Medical Leave Act employer,, so I’ve taken the last 1.5 months off on…