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Dealing with the soul-sucking nature of witnessing this disease
I guess somewhere along the line I read that your LO with AD becomes somewhat unaware of how much they have actually declined. The unawareness protects them from fully realizing the impacts and the toll it takes. For those around them however, we do see it. We are aware of it. We also deal with the reality of watching…
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Income tax refund
Mom is probably end of stage 4. She has vascular dementia. Her memory is not bad, but reasoning logical thinking is a problem. She lives with my brother, but is alone while he is at work. ( I think that will have to change soon). I am DPOA. Her income tax check just came in the mail and she saw it before my brother could…
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Things are a little less terrible
My DH is on his second Geri psych hospitalization this month at a facility about an hour away. I’ve been trying to get him help for his agitation and aggression, as well as for his anxiety and depression. Thanks to all of you on this forum who’ve provided support and great suggestions for our situation. The APRN is trying…
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Very disappointed so just venting
Just lost a bid for a house that's closer to DH's MCF, under a mile. I've been looking since last November and finally found one that was almost perfect. Although bids were the same amount, seller chose the cash offer—who has $2million cash?? I even wrote an impassioned letter along with my bid as to why I wanted to buy…
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Cameras
Can anyone recommend cameras that are simple to set up and operate? thank you
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amyloid pet scan and Medicare Advantage
My DW (80) has just recently been (tentatively) diagnosed with Alzheimer's but need an amyloid PET scan for confirmation. We have UHC Medicare advantage and are told the diagnostic tool is not approved yet. Not sure what to do. Start of a long journey.
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Whats going on
For several weeks now my sister hasn’t joined us.. she use to sitting with us all the time inside the house or outside. Past few weeks this has stopped. If we are outside she comes in house. If we are sitting in our living room and if she come to where we are she will go back to her bedroom and stay there. What is this…
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Constant itching/scratching
My 83 year old mother is in advanced stage and is constantly itchy. The doctors say there is no physical reason for the itching. I read online that changes in the brain can cause the sensation of itchiness in Alzheimer’s patients. The dr prescribed Ativan, an anti-anxiety medication but does not to seem to help. She says…
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Mom finally placed in home for wellbeing and safety. Sister not supportive
Recently placed my 93 y/o mom in a home care setting with 9 other ladies, as she is on hospice with moderate to advanced dementia and very frail. I did this as POA after 2 years and 4 doctors saying mom needed 24/7 care. My sister insists on taking her out of the home for prolonged stays (10-15 days/mo) either at my…
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Hospice and end stage Alzheimer’s
UPDATE and RECAP: My husband with Alzheimer’s, diabetes, etc started hospice care March 8th, 2024. He is 71, and was diagnosed with MCI 8 years ago, which quickly progressed to an Alzheimer’s diagnosis through a spinal tap done to check for biomarkers. I am 62. Anyways, hospice gave him 6 moths give or take when he was…
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Going out coming to an end?
My dh has been living at assisted living and has now been moved to the memory care unit where he gets more support (help showering, making sure he changes clothing—I don't think he's incontinent). Every Sunday I take him out for lunch and to take a walk somewhere—the mall, a store, a park, a variety. But I'm afraid that's…
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Seroquel and now he’s showering again
The neuropsychologist increased the seroquel to 25 mg twice a day and now my DH is showering again almost daily! (Happily!) Before he would give in and shower maybe once every 5 days. And -he is so much more manageable in the evenings. For weeks he was incredibly agitated about going “home”. He would go back and forth to…
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I don't understand this.
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Therapeutic Lie #2
Hi everyone! This is kind of a continuation of my last post. I am trying to get my mom (60 with ALZ) in to an adult day care program, and it did not go well. Well, we didn't even get to the day care place. I took all of your guys' advice about saying it's a place where I volunteer at and have some friends I want her to…
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Family Conflict
I just moved to CA with my ex with whom I have been living for the past six years for financial reasons. We are good friends and support each other. Unfortunately, he has been showing signs of early onset dementia. I convinced him to move to S. CA to be closer to our daughter who seemed willing to be supportive and helpful…
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NIGHTMARES
Has any one had any nightmares? I have quite a few. The last one that I had was where I am raped by 2 men one held me down while the other one f——d me then they took turns and the other one did the same then they forced me to give each one a b—- job. I woke up screaming and sweating profusely. Well this morning while…
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antipsychotic meds and dementia
Others are likely very aware of this, but I just saw an article on a new study from the United Kingdom about adverse reactions in people with dementia from antipsychotic drugs. If anyone is interested, the article I saw was in "Worst Pills, Best Pills News" June 2024 issue. Perhaps someone more tech savvy than I can post a…
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Just need to talk to my friends (196)
Amazing how fast we got to page 20 this time. We are good friends and we like to talk. We almost had more rain this afternoon but ended up with only thunder and a sprinkle. The weather man just said there will be bad weather all through the south tonight. Prayers for everyone in the path of the storms. David, it's May…
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Stuck on going to CVS to demand drugs
My DH does many things repetitively, and I can usually deal with it because it's just me. But now, he insists on going to CVS to ask for medication but he has nothing to be filled. If I try to redirect or explain, I'm a bitch who wants him to suffer. I even got an old prescription refilled hoping he would be satisfied, but…
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Mom has Alzheimer. Suspecting dad starting to as well. Where should I start?
Mom was diagnosed 10 years ago. Dad has been her main caretaker. I took care of them from doctor appointments to their finances. Lately, my dad has been accusing me of stealing from him from an old jacket that I gave him years ago to money and gold which I don't have access to. My mom onset was way different, she just…
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Mom wants to revoke POA
My mother is threatening to contact a lawyer to revoke the POA that I have. I am an only child and have MPOA and DPOA. She is recently paranoid that I am stealing from her and not making decisions according to her wishes. My father worked forever and worked with attorneys to set up a family trust that contains real…
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New behavior with Visitors
Mom is in an ALF and is heading soon to a MC as advised by case worker/administrator because she is steadily declining. She is getting increasingly non/compliant and not eating/drinking water. Doesn’t want to leave her recliner or her room. She has visitors and phone calls every day and all of them are reporting back to me…
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Update
So I took mom to her doctor ,asked for something to help her sleep and I have been in a peaceful bliss for 2 nights now ..thank you everyone for your suggestions !
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Sister lives with me
Hi, My sister has Alzheimer’s and lives with me now. The past few weeks she has went downhill fast. This is what is going on with her.staying by herself more and more,hiding things,not taking baths,doesn't want to do anything only sit around I try to get her interested in doing things but she when I turn around she’s gone…
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I feel like I’m in another country and don’t understand the language
Today my DH had a follow up Dr appt for his last ER visit. He told the doctor he didn’t remember being in ER and feels his memory is getting worse. After the visit, driving home, he seemed worn out. He turns to me and says “I think I have it” and I asked what does he think he has and he says I have “it.” It is what his…
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Should I or shouldn’t I?
Should I involve my DW, early-mid stage, in planning for later stage care? Thinking about things like bringing in a hospital style bed and sit down shower, other changes to make the home safer. On one hand she will object, now, for aesthetic reasons, on the other hand I feel it might not be good to “spring” such things on…
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Sorting
My gal likes to sort stuff. This is mostly making piles according to some mysterious logic. This has a soundtrack that goes with it: "this goes here, and that goes there, and this goes here, and....." and then a resorting. it can be magazines, or picture books, and unfortunately anything i leave in plain sight. Bills,…
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Dad seems angry
I'm new here. My dad was diagnosed just over 3 years ago with dementia. He has lived with me for the last 3 years. Lately, in the last few weeks, I've noticed he is way more confused, forgets he lives here, and yesterday he was just plain angry about everything. He came out and asked if we were gonna do something about all…
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Update: finally some calm weeks
Hi everyone, I just want to reach out and give a quick update: I haven’t been on here as much because my mom is actually doing very well. Miraculously she seems settled into MC again, after a few months of misery. Now, she often tells me she feels good. Part of it was my VERY open talks with staff. I’m so grateful they…
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SSDI for Early Onset
for those of us who are still working while on this journey and your significant other has had to stop working and applied for SSDI. I have a couple questions. At what point did your loved one stop working? It is my understanding this disease is considered a compassionate allowance under SSDI. Since we are officially…