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In -home Care, Topanga, Ca. sources
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New to this forum and wanting advice
Hi all. My dad has has been suffering from Parkinson’s Dementia about 5 years now. From my understanding (and anyone can correct me if you have better knowledge than me) it is a little bit different from regular Dementia in the sense that it won’t cause him to pass but his mind has deteriorated in much the same way. Over…
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“I don’t belong here. I don’t belong anywhere.”
My DH has started saying this on an almost daily basis. He was DXed June 2021 with mild mixed dementia (ALZ and vascular) and has progressed to what I estimate to be mid-to-late stage 5. I started him at a day program two days a week and on citalopram 15 months ago. Three weeks ago, via a geriatric psychiatrist, we added…
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My evening agitation is off the charts
Mornings I'm a nice guy. Evenings definitely not. Two different people.
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Father with dementia - Alz
New to this group and really hoping to learn from others about helping my dad the best I can. Diagnosed Aug 2023, mild cognitive dementia. Have done the Amyloid PET (no plaque present) however Amyloid intermediate risk via blood work. The last month we’ve seen significant decline in memory (almost no short term), no…
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Hospice timing with Alzheimer’s .
Hello, My husband is 71 with vascular dementia and was also diagnosed with early onset Alzheimer’s about 8 years ago. He also has diabetes and coronary artery disease , along with a couple of other things He is mostly in stage 6 Alzheimer’s, and has declined a lot in the last 2 months. He can no longer be alone, tries to…
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One success, one scare and one funny
Success—took my HWA to an adult day care for the first time today and he loved it! Scare—have an appointment with an oncologist tomorrow to investigate some odd blood test results. Funny—getting ready for bed last night and my HWA looked at me and asked, "Just what is your purpose here?" 🤔
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Reading post
How do I read someone’s full post?
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Navigating Family Dynamics: Post removed
Post removed
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Taking away her car - Mother with early onset Alzheimer’s
My mother has been diagnosed with early onset Alzheimer’s and within the last 5 months we have seen it get significantly worse. Her mind struggles and she has gotten lost while driving probably 30 times now. Two weeks ago she popped two tires while out and we knew her time was coming to get her off the road. Then these…
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A good Geri psych is hard to find and even harder to get into
The quest for psychiatric help for my DH continues. My husband came home from 2 weeks in an acute care Geri psych unit not much better than when he went in. I’ve been trying to get him into one of the two non-acute Geri psychs in our state so that all his psychiatric meds can be adjusted. Apparently the acute facilities…
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Agresion y frustracion
:/ Hola, Quisiera recibir informacion a guia de que hacer en casos cuando mi Tio que tiene Alzheimers se pone agresivo o frustrado con ella. Mi Tia no tiene los recursos economicos para poner a mi Tio a un lugar de cuidado para ancianos. Ya que algunos lugares de aqui en Houston le han querido cobrar alrededor de $7,000 al…
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How do you process your thoughts, feelings, and slow burning grief?
Hi everyone. I’m new here. So glad I found this online community. The last three years have been super intense. From my mother getting diagnosed to losing her job to hiring at-home care, and the moving to assisted living in Jan 2023. This is a short summary, of course. But now she needs 24/7 supervision and it’s just SO…
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Thread or group for research discussion?
I heard a report yesterday that there are at least 120 therapies in development and at least 75% of them involve targeting things other than amyloid. After that, I searched the name of the person who said that and came across a podcast where they were discussing some latest developments. Made me wonder if there is a thread…
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Trying to figure out what triggers the reactions
There are a lot which influences the reactions of those afflicted with Alzheimer's. Trying to figure out the 'triggers' can be helpful but also frustrating.
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Memory Care--The Fishbowl
Memory Care is a closed and controlled environment, welcome to The Fishbowl
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Dementia
My wife was diagnosed in Feb of this year and she has asked why she has that problem, I have told her why but she denies she has dementia. It has been hard to but I have gotten better which consists of listening and being patient. Things have changed. Is there any suggestion?
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Using respite for the first time
One of the hospice services my husband is eligible for is respite care. We're scheduled to use it this week for a few days while I go to our nephew's graduation. I'm nervous about it. He's never done well in a hospital setting, even before the FTD (seriously, he tried to leave the ICU hours after having an MI in 2015). I…
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Diagnosis pre or post ALF
Question, I am currently looking for an ALF for mom. I don't have any formal diagnosis yet for Dementia. She definitely has a memory problem and her sister has Alzhiemers. I am told to wait to get diag until after she is housed. Thoughts?
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Overwhelmed
Hello. First timer here. My MIL is the one who needs help. My DH and I live about a 5 minute drive from Mom’s. DH is eldest of 4 sons, with the other sons living hours away. Last month was the neurologist appointment, attended by DH and youngest brother. MIL didn’t do well on the tests. Neurologist stated signs of…
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Heartbroken
I know I'm not the only one but I am just so sad. I make myself get up and go through the motions of life everyday but it takes all the energy I have. Knowing I will be without him someday is breaking my heart. The tears won't stop.
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I'm new here and I can't find the right place to post.
Sorry, I looked at about a 100 links here and I didn't find anything that fit. I'm simply looking for the correct forum to post my question regarding my wife who has early onset Alzheimer's and her children who live all over the country. Is there a place where I can ask this question?
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Mobile phone in MC
In a week, my DW will move to an apartment in MC. I wonder what advice you all have regarding cell phone. She barely uses it any more, because she can not do so safely and effectively, but . . . How will I or her friends reach her?
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Not Diagnosed yet
I have been left with the responsibility of caring solely for my grandmother who is showing very progressed signs of dementia. My issue is, how do I get her a diagnosis and help, if she refuses to go to the doctor and her son (who is states away) has POA over her and refuses to acknowledge there is a medical need? I am so…
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dad bombarding me with calls
I switched out my a 90 year old dad’s phone from a smart phone to a flip phone because he had gotten to the point where he really couldn’t manage the smartphone anymore (even though he is convinced he could). He doesn’t like the flip phone and he keeps calling or trying to text me to tell me he isn’t going to use it!! My…
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Separating Parents in AL - How to handle the physical move itself?
Suggestions for Thursday's move? We have to: Tell our mother (stage 6a/6b with anosognosia) we have decided that she and Daddy need separate rooms in order to receive the care they each need Respond to her confusion, frustration, fear, and anger (her symptoms manifest with great anger) Support our dad (who already knows…
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Thank you!!!
I just wanted to say a huge thank you for this space with all the wisdom from people. I just joined a few days ago, and today is the first time I have ever felt the “permission” to go on dnd. I have never felt the okayness to just slip out. I have done both and never experienced such relief. I don’t have to listen to the…
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Two days in the life ...
My son and I went to visit my mom in her MC on Saturday. She smiled when she saw me but really lit up when she saw "the boy" (she doesn't remember his name). She reached out and gave him a big hug, something uncharacteristic of her these last few years. We played a simple color matching game (he played on her "team" for…
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Mom with Dementia, Dad can’t take care of her alone anymore
Hi I am Carol and I am new here. My Mom was diagnosed with vascular dementia about 4 years ago. She has has a slow decline since the beginning of this year and I reached out to palliative care for help. Mom is 81 and Dad is 84 and not I. The greatest condition to be caring for her alone. She fell in April, broke her…
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New Drug - not approved as yet
Just something to watch if it applies to your LO’s situation