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When do you know to start Hospice?
We have been managing our Dad very well in his home, he has 2 nurses that are covered by his insurance. Before he got bad he put it in writing that he wanted to die at home, and when he stopped eating he did not want nursing home care or pallative. We are following his wishes and we have a family atty. He is at the point…
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What about an abusive patient
I had a whole thing typed out explaining things in detail, but it disappeared and I wasn't sure I should post it anyway. Suffice it to say I live 4 hours from my parents, Mom has alzheimers and has become extremely verbally and mentally abusive of my Dad who takes care of her at home. She has cut them off from their…
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Only advocate and caregiver for grandma
I am new here and posting for the first time. I just returned home from my weekly visit with my 89 y/o grandma at a skilled nursing longterm care facility. She has been there now for 4 years and I have been trying unsuccessfully to move her closer to me for the past 2 years. She is in the late stages,rarely…
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Thank You For Caring
CAREGIVERS NEAR OR FAR WHO REALLY CARE tend to be the best people among us, and they never regret their sacrifice of love and care. Thank you!
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Taking this all in
:( My mom, 71 years old, got the diagnosis not too long ago. My dad, same age, told me yesterday. My parents live in Ohio, I live in Massachusetts. Her mother died at 75 from the disease, well, from a heart attack. But she had Alzheimer's for about 10 years. I don't have many memories of my grandmother, as I was very…
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desperate to help uncooperative mom
My mom is living in a different state alone. Over the past year she has let her life and responsibilities unravel. She has harrassed the banks to where they close her account, forgets to pay bills and now is delusional and hallucinates about a man living in her apartment. She calls the police over and over. I called…
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Asking for support
I live in another state from my mother who is living alone with Alzheimers, in her home, by herself and refusing any help. I have her trust, POA, DPOA etc and have assumed responsibility for her finances, or so I thought. She has a manager at the bank who has now helped her take some money and open another account. She has…
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Delusions without memory loss?
Hello ALZ Community-My mom has been having delusional thinking and believes she is being tracked/under surveillance since about 2019. She believes “people” are turning her family and friends against her. She believes family members have put things in her food. The challenge is her memory is better than mine, is it early…
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HELP... Not sure where to turn.
I am hoping that someone on this group can point us to some help that is not a sales pitch, google has not been our friend. My MIL fell 4 months ago and broke her hip, she is 89. We live 2 hours away and have been living with her most of each week ever since. While she was in rehab we found little notes all over the house,…
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Bible Verse to Lift You Up 1/15/24
OUR HOPE IS GOD’S UNFAILING LOVE Psalm 147:5 New Living Translation 5 How great is our Lord! His power is absolute! His understanding is beyond comprehension! 11 No, the Lord’s delight is in those who fear him, those who put their hope in his unfailing love. When the winds of sickness, stress, anger and fear are strong and…
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Which type of doctor
Hi, my brother has early onset and has just reached the stage where he is getting angry and wandering away. My sister-in-law had to call the police to find him today. He is in great shape, and gets a long way quickly. He is also getting angry that he can't find the keys to his truck. (Sis-in-law has them hidden.) His anger…
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Acting out in MC
Hello. We tearfully placed my father in memory care earlier this month. He is in the transition phase in which we have agreed not to contact him. The head nurse (who is wonderful) has been good with communication and we are aware that my father struggles with sundowners and can become angry and frustrated easily esp during…
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Update on my brother
I did spend a few days with him in early December and I saw him again over Christmas. His memory is terrible. He can forget what he's doing while he's doing it. He agreed to allow me to administer the Montreal Cognitive Assessment test. He scored well in all areas except memory. This doesn't seem like Alzheimer's and I…
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Transitioning from Home to a Care Facility
My mother still lives with her partner and always been adamant that she won't live anywhere else. But due to her partner's health problems and her own cognitive decline, that may not be feasible for much longer. I'm looking for some guidance on how to have a kind but effective conversation about the need for her to have…
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Clothing
I am needing to purchase and send sports bras to my aunt in a mcf. Any suggestions on what to get that will be easy for her and the person helping her dress? Thank you.
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I am realizing that my friends,
while trying to support me, do not truly understand my situation of having a sibling with dementia/Alzheimer's living in a far-off state, commenting "things will get worse before they get better," or "hope things look up for you soon," when there is no "getting better" or "looking up." I think that perhaps my situation is…
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GPS Tracker?
Hi, I'm supporting my sister-in-law, who is caregiver for my 62-yo brother, who has early-onset Alzheimer's for about the last 4-5 years, but it is now turning a corner in its progression. He is getting frustrated easily and wandering off. They live on 15 acres out in the country and he knows his way around generally, but…
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Bible Verse to Lift You Up 1/1/24
CAREGIVERS SET THEIR HEARTS ON LOVE AND CARE FOR THE HELPLESS Isaiah 1:16-17 New Living Translation 16 Wash yourselves and be clean! Get your sins out of my sight. Give up your evil ways. 17 Learn to do good. Seek justice. Help the oppressed. Defend the cause of orphans. Fight for the rights of widows. * HOLY SPIRIT HELP…
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Bible Verse to Lift You Up 12/23/23
Great Verses About the Messiah Isaiah 9:6-7 New International Version 6 For to us a child is born, to us a son is given, and the government will be on his shoulders. And he will be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace. 7 Of the greatness of his government and peace there will be no…
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Bible Verse to Lift You Up 11/27/23
THE LORD, THE GOOD SHEPHERD Ezekiel 34:15-16 New Living Translation 15 I myself will tend my sheep and give them a place to lie down in peace, says the Sovereign Lord. 16 I will search for my lost ones who strayed away, and I will bring them safely home again. I will bandage the injured and strengthen the weak... JESUS,…
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Step Dad issues
Hello, my mom has gotten to the place where she needs FT care. My step dad is her primary caregiver but my wife and I have been paying for her care for 6 month (25-40 hours per week). We convinced them to move and downsize. Which they have as of this week. They made over 200k on their house, have SS funds monthly and a…
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Struggling with a solution
Hello everyone! My name is Michael. I live in South Carolina about 4 hours away from my parents. My mother has dementia and her cognitive decline has been rapid over the past few months. My father has health problems and hearing issues, but is able to take care of himself. However, my mother requires a lot of monitoring.…
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Picture phone- good idea? bad idea?
My mom has recently had a lot of trouble using her phone and this has become a source of a lot of anxiety. It is a cordless phone and she struggles to use it. I'm afraid she'll forget how to answer when I call. It seems she is now in the middle stage of Alz, so I know it's not going to get any better. I bought a picture…
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Mom won’t go to a Doctor
Hi- I’m new to this board and to the reality that most likely my Mom is in the early stages of dementia. I live out of state from her and my father. For years my Mother refuses to go to a Doctor. She says that she’s afraid they will find something terribly wrong with her. She won’t admit it but she obviously struggles with…
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Bible Verse to Lift You Up 12/16/23
CHRISTMAS REMINDS US WE ARE LOVED, BLESSED AND SAVED! Genesis 22:15-18 New Living Translation 15 Then the angel of the Lord called again to Abraham from heaven. 16 “This is what the Lord says: Because you have obeyed me and have not withheld even your son, your only son, I swear by my own name that 17 I will certainly…
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Both My Parents Have Dementia
I am so heart broken as both my parents are in the last stage of Dementia. I live in North Carolina and they are in Florida. I went to visit them recently in the facility they are in and fortunately with private care. But the suffering, crying, pain, delusion, being uncooperative not to shower or eat is beyond what one can…
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I may be starting all over again.
I lost my hubby to early onset Alzheimer's disease in 2020. I have recently become aware that my oldest brother (he's 68) has been having cognitive issues since his cancer treatments in 2014. He had oral cancer. He had 2-3 surgeries, radiation, chemo, the works. I was busy caring for my husband during that time, so I…
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Sister with dementia
My sister is 67 y/o and lives about 100 miles from me. My mother recently passed and I have been dealing with her ALZ the past few years. Although I have other siblings, it falls heavily on my shoulders. My sister lives alone in a smaller town. Her husband died in Jan 2022. Her son lives in San Antonio and actually has…
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It's come to this
I visited my parents this past weekend. My mother has dementia and my father is in poor health. But they want to be together in their home. Mom can't cook anymore and until recently, dad drove them out to eat every day. But now he is too dizzy to drive and has decided mom can drive them to doctor appointments (he has…
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Anger and aggression
I'm a newbie to this forum. My 85 yo mom, diagnosed with Alz a couple years ago, lives with my sister in another state. She often has angry outbursts that are stressing my sister out. My mom has also had lifelong depression, probably bi-polar. My brother and I are both doing as much as we can from a distance, and my…