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Daughter of dementia patient: The inevitable?
After my dad’s diagnosis, I’m terrified of getting dementia myself. I grew up with difficulty learning and remembering things effectively while also dealing with anxiety and depression. So I’ve always been kind of like my dad, I found ways around the problem , never actually taking the time to learn…how to learn…until I…
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Bible Verse to Lift You Up 10/20/24
WORKING FOR PEACE Psalm 4:8 NLT "In peace I will lie down and sleep, for you alone, O Lord, will keep me safe." Matthew 5:9 NLT Jesus' Words "God blesses those who work for peace, for they will be called the children of God." THINK ABOUT THIS Do you lose peace often? If so... What tends to make you lose peace? Have you…
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BIBLE VERSE TO LIFT YOU UP 10/11/24
GOOD WORKS/MUCH FRUIT John 15:5 NIV JESUS’ WORDS “I am the vine; you are the branches. If you remain in me and I in you, you will bear much fruit...” Ephesians 2:8-10 NIV “For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God—not by works, so that no one can boast. For…
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She wants her car
79 yr old sister-in-law recently admitted to a MC Unit after a fall and broker her arm. We knew she was declining and this accident made us realize she can no longer live alone. We immediately got DPOA & POA Healthcare. She thinks she is in a hotel “that serves meals” and wants us to bring her car so she can go home.…
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Dreadful fear and the "Dark Thoughts"
My father died Jan 2nd (1 day before his 86th birthday). He had end stage Alzheimer's and a very aggressive form of cancer which was discovered just 2 weeks before his death. My Mom is seriously struggling with reality. She calls me at LEAST once a day and tells me people are trying to get into the house and that the "dark…
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Sometimes you just can't win
So...my brother. He just sent me an email telling me that I was using an old email address for him. I checked. The last two emails that he sent me was from that old address. Now, I have to be certain that I'm using his preferred email address (no matter which one he used) or he'll think I'M confused. Sigh.
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Automated pill dispensers
hi. Does anyone know of a good automated pill dispenser? I was on the alzstore.com and I ordered an automated pill dispenser made by med ready and it doesn’t work. For some reason I thought this store was connected with the Alzheimer’s Association, even though it doesn’t say so, and it turns out the return policy is really…
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I'm making a little progress with my brother
Today, his doctor's office actually called me back for the first time. They're going to send me a copy of the neuropsych report. They're calling it "mild" dementia. As we all know, it doesn't stay mild. It always progresses. I asked them to put me down as an emergency contact. They'll probably have to confirm that with…
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Buying things
My Dad still lives at home with my Mom, he had a stroke 9 years ago and developed dementia pretty quickly. We are in the process of getting him in a long term care facility because my Mom can no longer care for him. We need help though, he still has a golf cart and he goes for the store everyday and they let him get stuff…
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Another update about my brother
I went with my older brother this morning to see the neuropsychologist who tested him three weeks ago. She diagnosed him with mild cognitive impairment. She wants to see him again in a year to repeat the testing. If he has declined in that time, she will likely diagnose Alzheimer's. His short-term memory is so poor, I'm…
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Memory care in New Jersey
Hi all, my uncle (who raised me and is practically my father) was recently diagnosed with dementia. I live in NYC and he lives in Virginia, I’m hoping to move him to a memory care facility in New Jersey in a few months. Are there any memory care facilities in NJ that people can recommend? Thanks so much!
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Started a home health aide for my mom. I'm doing the right thing, right?
Hi - my mom is 87 and living with dementia. I arranged to have a home health aide come 4x/week. Today is day 2. I know it's the right thing to do and wow, it feels really hard. I guess I'm coming here for reassurance. My mom is about 6.5 hours away, single, and I'm her only child. We have no other family nearby. I work…
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Update on long distance mother
I posted once earlier this year and have struggled ever since. This year has been very strained with her continuing to be angry and blaming that we have taken everything from her. She continues to hang up on me if I call. My 89 yo mother was dx 11/2 years ago we think she progressed to moderate stage but hasn’t been back…
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Things for mom to do
My mom lives 5 hours away. She refuses to take part in any of the “activities” that are available at her ALF. She does not like games of any kind, puzzles, etc. She has a piano in her room which she plays periodically but otherwise she just sits there and watches TV. She has asked me “what am I supposed to do here?” And…
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Mom is 275 miles away
Hi everyone, I am the eldest daughter of four, I share POA and Advanced Healthcare with my brother, the youngest, who lives about an hour and a half from mom. Two sisters in between, one is in FL, lives within an hour but had a brain tumor and is dealing with her own health issues. I live about 275 miles, about a 7 hr…
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Caretaking the Caregiver
DH and I live about 50 miles from his mother who has mid-stage Alzheimer’s. She still recognizes all of us, but STM is rapidly failing. Her husband (DH’s step-father) has done a wonderful job taking care of her. Up until the past two weeks, DH’s nephew was living in the house, so there was someone to give some…
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My brother had his neuropsych testing done today
We won't get the results until the 19th. It didn't take nearly as long as my hubby's testing did in 2013. I don't have any idea what the doctor thinks. I'll find out later. I did tell her that I want to know if he is still safe living alone and driving. He's driven me around a good bit the last two days. I never felt…
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Update on my brother
I am visiting with him now. He lives in Colorado Springs and I live in Albuquerque. I had previously called his doctor's office to rat him out on his memory loss. Today, my brother told me that he was referred to a local clinic and the appointment is in July. Yay! There is a wrinkle, naturally. He is a big Colorado Rockies…
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New behaviors from mom
Hi all I am new here. I live 5 hours away from my mom. She recently threw away her wedding rings including her beautiful 50 year wedding anniversary diamond rings my dad gave her. He passed away 12 years ago. She said since he won't come home and doesn't care about her she doesn't care either....the entire family is…
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Long Distance daughter but in town son
Hello, I am writing because I live over a thousand miles away from my mom who was recently diagnosed with dementia. I have been there twice in 6 months to get her settled in a facility, visit, etc. My brother lives about 2 miles away from her but does not go to see her very much. And every time I call her, she’s very upset…
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Father in law early stages , and visiting him soon
Hi everyone! So glad I found this website right now. What a relief wow. Story goes , my husband went to visit his parents in a different state last week. When he arrived, his brother pulled him aside and told him there father is starting to forget things, ask where he is, fighting with his wife and more. Side note : My…
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Long distance care
Hello Everyone, I am thankful there is a place for help. I lost my mom 14 years ago to this disease and know the stress first hand. Now, it is my father who lives in Florida and my sisters are both there. One lives on the same street not the other. My father's wife is in the hospital and was removed by her daughter's…
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How to redirect on a phone call
I posted this in general, but then saw the option for "long distance care", so reposted it here: My mom is in a memory care facility 3 hours away from me. Often, we have very pleasant conversations over the phone. Recently, she has been saying she is trying to call her mom/dad to pick her up and take her home (they have…
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Am I Making The Right Decision
Hello, new to the Group. My mother was diagnosed with Alzheimer’s about a year and a half ago not to mention other health factors that she has going on. Right after getting diagnosed expressed that she wanted to be put in a facility is her memory got worse, or she wasn’t able to take care of herself. Me and my siblings…
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Bible Verse to Lift You Up 6/24/24
GOD’S FAVOR FOR THE RIGHTEOUS Psalm 5:12 NIV "Surely, Lord, you bless the righteous; you surround them with your favor as with a shield." James 5:16 NIV 'Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective." THINK ABOUT THIS…
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Seeking information about amyloid protein tests
Hello All, My best friend from childhood, now 61, is living in Orlando, Florida; she has, according to DNA testing from 23andMe, genes from both her father and her mother for Alzheimers. Her mother is in her last stage of alzheimers and is unlikely to live through the summer. My question: Cognito is running a new clinical…
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I'm making progress with my brother's diagnosis
I found out today that he is scheduled to see a neuropsychologist on two days in August. Yay! This will mean two trips up there that month, but I'm going to do it. I emailed them a copy of the signed HIPAA form so that they can talk freely with me. We're on the way!
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New to this forum and wanting advice
Hi all. My dad has has been suffering from Parkinson’s Dementia about 5 years now. From my understanding (and anyone can correct me if you have better knowledge than me) it is a little bit different from regular Dementia in the sense that it won’t cause him to pass but his mind has deteriorated in much the same way. Over…
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What can you really do for someone long distance?
My brother lives a six hour drive from me. He lives alone and has no family in the city where he lives. I am his closest relative. He has had short term memory problems since he had radiation therapy for oral cancer in 2014. According to his daughter, who lives in Florida, his memory is getting worse. He won't talk to a…
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Mom is constantly angry with my sister
My Mom was diagnosed with Alzheimers in the fall of 2022. She is understandably having a very hard time with the loss of her financial independence and is constantly accusing my sister of controlling her. We have POA and I tell her we're making the decisions together, but her anger is focused on my sister, who is the…