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Started a home health aide for my mom. I'm doing the right thing, right?
Hi - my mom is 87 and living with dementia. I arranged to have a home health aide come 4x/week. Today is day 2. I know it's the right thing to do and wow, it feels really hard. I guess I'm coming here for reassurance. My mom is about 6.5 hours away, single, and I'm her only child. We have no other family nearby. I work…
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Update on long distance mother
I posted once earlier this year and have struggled ever since. This year has been very strained with her continuing to be angry and blaming that we have taken everything from her. She continues to hang up on me if I call. My 89 yo mother was dx 11/2 years ago we think she progressed to moderate stage but hasn’t been back…
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Things for mom to do
My mom lives 5 hours away. She refuses to take part in any of the “activities” that are available at her ALF. She does not like games of any kind, puzzles, etc. She has a piano in her room which she plays periodically but otherwise she just sits there and watches TV. She has asked me “what am I supposed to do here?” And…
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Mom is 275 miles away
Hi everyone, I am the eldest daughter of four, I share POA and Advanced Healthcare with my brother, the youngest, who lives about an hour and a half from mom. Two sisters in between, one is in FL, lives within an hour but had a brain tumor and is dealing with her own health issues. I live about 275 miles, about a 7 hr…
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Caretaking the Caregiver
DH and I live about 50 miles from his mother who has mid-stage Alzheimer’s. She still recognizes all of us, but STM is rapidly failing. Her husband (DH’s step-father) has done a wonderful job taking care of her. Up until the past two weeks, DH’s nephew was living in the house, so there was someone to give some…
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My brother had his neuropsych testing done today
We won't get the results until the 19th. It didn't take nearly as long as my hubby's testing did in 2013. I don't have any idea what the doctor thinks. I'll find out later. I did tell her that I want to know if he is still safe living alone and driving. He's driven me around a good bit the last two days. I never felt…
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Update on my brother
I am visiting with him now. He lives in Colorado Springs and I live in Albuquerque. I had previously called his doctor's office to rat him out on his memory loss. Today, my brother told me that he was referred to a local clinic and the appointment is in July. Yay! There is a wrinkle, naturally. He is a big Colorado Rockies…
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New behaviors from mom
Hi all I am new here. I live 5 hours away from my mom. She recently threw away her wedding rings including her beautiful 50 year wedding anniversary diamond rings my dad gave her. He passed away 12 years ago. She said since he won't come home and doesn't care about her she doesn't care either....the entire family is…
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Long Distance daughter but in town son
Hello, I am writing because I live over a thousand miles away from my mom who was recently diagnosed with dementia. I have been there twice in 6 months to get her settled in a facility, visit, etc. My brother lives about 2 miles away from her but does not go to see her very much. And every time I call her, she’s very upset…
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Father in law early stages , and visiting him soon
Hi everyone! So glad I found this website right now. What a relief wow. Story goes , my husband went to visit his parents in a different state last week. When he arrived, his brother pulled him aside and told him there father is starting to forget things, ask where he is, fighting with his wife and more. Side note : My…
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Long distance care
Hello Everyone, I am thankful there is a place for help. I lost my mom 14 years ago to this disease and know the stress first hand. Now, it is my father who lives in Florida and my sisters are both there. One lives on the same street not the other. My father's wife is in the hospital and was removed by her daughter's…
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How to redirect on a phone call
I posted this in general, but then saw the option for "long distance care", so reposted it here: My mom is in a memory care facility 3 hours away from me. Often, we have very pleasant conversations over the phone. Recently, she has been saying she is trying to call her mom/dad to pick her up and take her home (they have…
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Am I Making The Right Decision
Hello, new to the Group. My mother was diagnosed with Alzheimer’s about a year and a half ago not to mention other health factors that she has going on. Right after getting diagnosed expressed that she wanted to be put in a facility is her memory got worse, or she wasn’t able to take care of herself. Me and my siblings…
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Bible Verse to Lift You Up 6/24/24
GOD’S FAVOR FOR THE RIGHTEOUS Psalm 5:12 NIV "Surely, Lord, you bless the righteous; you surround them with your favor as with a shield." James 5:16 NIV 'Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective." THINK ABOUT THIS…
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Seeking information about amyloid protein tests
Hello All, My best friend from childhood, now 61, is living in Orlando, Florida; she has, according to DNA testing from 23andMe, genes from both her father and her mother for Alzheimers. Her mother is in her last stage of alzheimers and is unlikely to live through the summer. My question: Cognito is running a new clinical…
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I'm making progress with my brother's diagnosis
I found out today that he is scheduled to see a neuropsychologist on two days in August. Yay! This will mean two trips up there that month, but I'm going to do it. I emailed them a copy of the signed HIPAA form so that they can talk freely with me. We're on the way!
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New to this forum and wanting advice
Hi all. My dad has has been suffering from Parkinson’s Dementia about 5 years now. From my understanding (and anyone can correct me if you have better knowledge than me) it is a little bit different from regular Dementia in the sense that it won’t cause him to pass but his mind has deteriorated in much the same way. Over…
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What can you really do for someone long distance?
My brother lives a six hour drive from me. He lives alone and has no family in the city where he lives. I am his closest relative. He has had short term memory problems since he had radiation therapy for oral cancer in 2014. According to his daughter, who lives in Florida, his memory is getting worse. He won't talk to a…
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Mom is constantly angry with my sister
My Mom was diagnosed with Alzheimers in the fall of 2022. She is understandably having a very hard time with the loss of her financial independence and is constantly accusing my sister of controlling her. We have POA and I tell her we're making the decisions together, but her anger is focused on my sister, who is the…
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Trying to Help my Mother with Memory Loss
Hello all, This is my first post. I am an only child and my parents live a 7 hour car drive away. Last year, I noticed that my mother was experiencing memory loss, but my father is in denial. Last May, I went up to visit and got her to see a neurologist. Her memory loss has gotten worse. She can't remember how many days…
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Rapid Progression of Dementia or Alzheimer's
Has anyone experienced a parent with Alzheimer's having a sudden rapid progression of their disease? My mother was able to walk just a month ago. She began becoming unstable so we got her a walker. The walker wasn't cutting it so we got her a wheelchair. She seemed weak. One morning we weren't able to get her up and about.…
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Being trans and caring for someone with Alzheimer's
Hey all, I am new here and looking for some type of support, but am unsure if this is the right place? I am a transgender person early-ish in my transition and my grandmother/best friend has been diagnosed with alzheimer's for around 2 years now. As my transition has progressed, so have her symptoms. Some of my family has…
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Trade with someone living in Nashville?
hi there this is my first post and I’m so grateful to be here and for this community. My dad has recently been diagnosed with mild cognitive decline though once he quit drinking, I’m hoping he gets that diagnosis revisited. I’m exploring alternatives to the horrific options that I see in terms of forcing him into memory…
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Grandmothers recent diagnosis - guidance
Hi everyone! My grandmother, and very best friend, was formally diagnosed with Alzheimer’s yesterday. We knew this was coming, as her mother had it and she began showing signs about a year ago. However, I feel so completely lost and heartbroken. I was hoping for a bit of guidance on how to handle the utter darkness I feel.…
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Sister with Severe memory issues
I am new here and live about 45min wa from an only sister who in this past year has shown signs of severe memory/reasoning issues but refuses to go to a doctor because she says nothing is wrong with her. She lives alone and I do not know what to do to help her. Her symptoms seem to be progressing pretty fast.
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Defiant Sister with Damentia Symptoms
I am a two year younger sister living 45min from my older sister who shows severe short term memory loss, reasoning abilities, comprehension difficulties and some inability to think of words. She defiantly refuses to go to a doctor because she thinks nothing is wrong with her. I am soooo stressed over not being able to…
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Who offers Medigap for elderly people with dementia?
Hi All, my Mother is 81 years old and has dementia- I am needing to sign her up for supplemental health insurance because the MC facility I am trying to get her into requires it in addition to her Medicare. All the companies I have called so far to ask if they offer Medigap for someone with dementia have said no. I need…
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Sib is main caregiver
My mother is in an assisted living facility and lives in the same town as my brother. He is the main care taker for my mom. He makes the dr appointments, he takes her groceries and brings her home to his house for weekend getaways. His wife is the main care giver, takes her to hair appointments managed her meds when she’s…
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Questions to be asking
I currently live out of state from my LO. They were recently diagnosed with EOA and from my research I believe that they are in early stage. I call every few days to check in on them. What are some questions that I might want to ask that can help me know how they are progressing through EOA? I know there are limitations…
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Never Dealt With Alzheimer's Before and Need Some Guidance
Hello. I have never been close to someone who had Alzheimer's before (I'm 54) and I need some guidance, please. My father (Jamie) passed away in 1988 at age 50 from brain cancer. His best friend, Charlie, has been close to me ever since. He gave me away at our wedding. He's now 87 and has been in good health his entire…