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Do I correct or allow it to be
My mother is living with us now and has for the last 6 months after taking a fall. She is not officially diagnosed with ALZ but there is no doubt that she has it. Many signs and symptoms as well as "confirmation" from her GP. This has been a learning experience and will continue to be. Question that I keep mulling over: If…
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Grieving no matter what
My father died of COVID in January. He and my mother lived in assisted living. He had physical disabilities and my mom has dementia. They helped each other immensely and were married 63 years. At the time of his death, assisted living asked us to hire a sitter 24/7 or move her. They did not have memory care and did not…
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Link: How To Manage Your Anger When Caring For Someone With Dementia
I came upon the following quite by accident and it is a really excellent writing on how to manage your own anger when caring for a LO with dementia; well worth reading: https://www.iona.org/manage-anger-caring-dementia/ J.
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lot's of good info
I just watched this; https://www.youtube.com/watch?v=dlPbYKSlvXIv
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So fed up my mom getting out of her wheelchair and hurting herself
My mom has Parkinson's with significant mobility issues and serious dementia. I can not get her to stop getting out of the wheelchair and frequently hurting herself. She does not press her button for help most of the time. She either flops to the floor to crawl around or she hurts herself getting back into the wheelchair.…
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Stuck(1)
My mother is stuck. She isn't alive, she isn't dead. She can't move or speak and hasn't for a year. She has been on hospice for two. She sleeps like 22 hours a day. BUT they wake her up to feed her and so on she goes. She is stuck. Is anyone else been through this? Is anyone else in this? how does it ever end?
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Not sure where we are...at this point in the care giving
Hello, My Uncle (87 years old, diagnosed 2 years ago with lewy body dementia ) who I’m heavily involved in the caregiving has become weaker, although he can sort of walk slow (wish he would use the walker we got him). Last few months he started sleeping a lot during the day time. Today I asked him if he just woke up from…
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Is this sleep apnea ?
Hi all, I have been reading here for a long time but have not posted much. DW is 57 with EOAD around stage 5 (MMSE=12). She has had several incidents where she has trouble breathing in the middle of the night. It starts out with snoring loud enough to wake me up. I try to get her to change position, usually move from…
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Tips for transitioning off online routines
Hello, My Dad is in the middle stage of Alzhemer's. He used to go online to pay bills and review financials but now he has problems understanding what's happening and doesn't remember many details. I have tried to take over doing all of the online tasks that he used to do but he forgets and wants to do it himself. He also…
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Open mouth
Hi all! My LO has been walking around with his mouth open more and more. He only has it open when walking and not all the time, but like I said it's happening more frequently. Is this some another symptom? Other things I've noticed over the past few weeks, more comfortable changing clothes where ever he's at in the house…
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How will she grieve?
Hello,This is an odd question and I’m not sure this is the right forum. My mom has Alzheimer’s and has recently returned to a MCF. My dad, her husband of 56 years, entered hospice this week. He is not actively dying, but has COPD and the doctors have run out of ideas. I’m worried about how my mom will be when my dad dies.…
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Bible Verse to Lift You Up 6/16/21
NEVER SHAKEN GOD THOUGHT: Psalm 112:6-7 NIV “Surely the righteous will never be shaken; they will be remembered forever. They will have no fear of bad news; their hearts are steadfast, trusting in the Lord.” VICTORY THOUGHT: Whether my life is easy or difficult, I trust God. His help and love are my security. POWER…
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Paperwork when LO moves to AL/MC in a new state
At the beginning of this year, PWD moved to MC in a different state from where her home is located, but she still owns the original home. Her drivers license is from her home state and was recently renewed just for ID purposes (she doesn't have a car or drive anymore). We will probably get around to selling her home in a…
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Doctor visit today- ever feel like it’s pointless?
I took my Mom to a doctor visit that she asked for today. Dad had one too for a followup on his pneumonia. Now, mind you, Mom wanted this doctor visit when Dad had his last one but I couldn’t get her in. As late as Sunday, she was still desperately wanting this doctor visit due to various aches and pains, and oh yeah, she…
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My dad and I are clashing and I’m ready to move out
I don’t know how he expects me to help him when all he’s doing is pushing me away. He’s so moody and I get it. He’s tired. But so am I. Like if I don’t correctly hear what he says he gets angry and says “you just don’t want to listen!” I’m sorry but when you raise your voice at me I automatically start to shut down. This…
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Caring for aged parents
I’ll listen to discussions on “caring for your parents”. Mom 91, lives with my wife and I. She has a mixed VD with ALZ. Confirmed diagnosis about two years ago after a fall. but looking in past it’s believed to have been going on for many years. We have home health aides 2x/wk for her. Recent health issues have forced my…
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Caregivers, I Love and Thank You All!
You may not hear it often enough, and unfortunately, definitely not from the people from whom it would mean the most, but don’t let that make you doubt that you are loved and appreciated. Having recently joined this board, I thank and love you for your presence. I thank and love you for the ability to share, and I…
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Dealing with Anosognosia?
I posted a similar thread awhile back, it was about friends who were telling my parent that they didn’t ‘notice’ any problems, and the problems this was causing us: https://www.alzconnected.org/discussion.aspx?g=posts&t=2147554320&boardid=77 That is less of an issue, but one of these friends had the bright idea that my…
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New to board(3)
Glad to find a group that is dealing with the life of caregivers of those with dementia. My situation is a bit different from most I have seen posted. My parents are both in their 90's...doing the math I am in my 70's but fortunately have 2 children of my own who are helping as they can. My parents still live in their own…
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So it begins..guardianship
Both my father's sisters spent time with Dad and my stepmother this weekend. I let the CELA know we wanted to pursue guardianship after their visit and the results or lack of. Unfortunately, a new scammer has hit my Dad and stepmother with both thinking we (his kids) are trying to revoke her citizenship thru some "firm"…
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Intro and Major Family Ugliness
Hi everyone. First time poster. Not sure precisely what I am looking for other than I am feeling lost and have lots of questions to figure out how to help my Mom. I am not her primary caregiver and live several states away. The major issue weighing on my mind at the moment is a huge, angry, divide between my brother and I…
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How to know when mom needs 24/7 care?
Hello, I am new to the boards. My mom is 75 and late stage 4/early 5 AD according to her last assessment in September. She is still living in a senior apartment building (not assisted living) with caregivers and me coming in. She cannot live in my home for various reasons. She has been declining rapidly in the last few…
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My dad is resisting his new residency at memory care facility
Hello! Needed a place to make me feel normal so trying this out. I moved my dad into a memory care facility on Friday. He is 63 with early onset. It has progressed fast but not fast enough to weight down his love for outdoor activities. Even when he realized he couldn't do a lot of things he would tell me well I can still…
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What is possible if a Medicaid application is denied?
I'm not sure if I am using the proper terminology. Hoping this is clear. What happens if a Medicaid application for nursing home or AL facility is denied? Is there an appeal process generally or does it depend on the state? Is it advisable to hire a CELA to help with the appeal (if an appeal is possible?)
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Advice/At Start of ALZ Journey
Hi all, I’m new to the board. My mom is almost 78, lost my dad to small-cell lung cancer after a 57-year marriage back in February. (Mom has had a lousy year, not to put too fine a point on it.) Prior to Dad’s passing, my brother and I had noticed Mom starting to repeat stories and be more emotionally volatile. We were…
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Another sleepless night for me
How many of you have sleepless nights because you are worried about your LO? Or because you feel overwhelmed by this diseas? My spouse and I took a two night trip. I told the office manager at the ASL about it but I asked her not to tell my parents. Telling them just guarantees they will sabotage it by having some issue or…
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And this is why I don’t gamble!
Trying to do good, I called my mother and sister’s cable company! (Mom is diagnosed, and is between moderate to severe; suspect sis has dementia too - not sure what stage, have appointment coming up.) I negotiated a new receiver with many more options than their old receiver (knowing that they would probably not use the…
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Alzheimer stages & catheter
I know each case is different, there is no set rules but I just don't know what to think about my mothers stage. She was diagnosed with Alzheimer's in Feb 2021. In January 2020 she lived alone, drove herself a few miles to the store once or twice a week. Today, 18 months later, she is living with me, unable to care for…
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Non Traditional Caregivers Support Groups
When this first all started I tried to go to classes but in my area - they were all really just certification classes for nurses so they could check a box. Different titles same sheets. Same quick pace. I remember this one older guy was just dying for some answers and they shushed him because they had a lot to cover. I…
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Conflict with family
Hi all I’m new here, and a relatively new caregiver. Mom has been living with my husband and myself for about 2 and a half months now. Prior to that she lived with my sister. We moved her in with us because I’ve the previous 6 months she had become suspicious of my sisters husband and then that extended to my sister. The…