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Another fall…
I just posted in the broken hip post two days ago..and then my mom fell again today and has broken her right hip. I had to take her off of hospice to admit her to the hospital. She will have an ortho consult in the a.m. I will have to decide whether she should have the surgery or not..intense pain either way. The doc said…
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The risks of an assisted-living facility with memory care - Should I be worried?
Hello. Let me start with some background information about my mother. She is 81 years old. Three years ago, my mother began having hallucinations. She started seeing deceased family members in our home. First, my father. Then, her parents. Then, her sister. As these hallucinations went on over the years, I reported them to…
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A bit loss & alone
Well, this is not somewhere I ever thought I’d be. My aunt, Mom’s younger sister, was just diagnosed with Alzheimer’s & dementia - although we (my Mom & I) thought something was happening over a year ago (& have sense learned her son & DIL thought so too). (At Christmas she couldn’t even read the words “Merry Christmas” &…
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Keeping my grandpa safe during the night
Hi everyone! This is my first post, joined a few days ago because I need community. A few nights ago I couldn't stop crying and had to call my doctor's off-hours line because I knew I needed help. My doctor had an emergency phone appt with me yesterday, said there was nothing I could do myself except being apart of a…
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Logical decision-making and how to say no
Hi all - so appreciative to be here. Here's my challenge: Dad is a bit of a hoarder (historically, I don't think he's been shopping during the pandemic. He has a basement full of stuff that he never touches. For example: I think there's 5 glue guns and 47 peanut butter jars of screws, nuts, bolts, etc. A 2+Car garage…
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New member living in the US; my mom diagnosed is in India
Dear community, My mother (77 years old) was diagnosed with early stages of Alzheimer's-type dementia in March 2021. She lives with my father (81 years old) in Gurgaon, India. My sisters and I live outside of India. I live near Washington DC. Is there anyone else in the community in this situation - living abroad from an…
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I know it’s the disease but I still have feelings and insults hurt
I just need a good ol’ vent. I’m just so tired of my mom constantly insulting me and belittling me, and thinking she’s “helping” me. It’s on every issue… my grass is too long, I’m not losing weight fast enough, I’m going to send my daughter to the wrong school in 5 years, I don’t parent right, I don’t eat the right food, I…
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Personal Hygiene Items
My LO is in a memory care community and for the safety of all of the residents, they keep all of the personal hygiene items locked up. They will only allow items in the room if they are considered "safe for children". Has anyone found some safe products for use? One item specifically that I would like is denture powder. My…
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Wanting to go home(3)
Hello all - my mom has AD and lives with my dad in the house I was raised in. They have lived there for almost 50 years. My mom constantly asks to go home. Sometimes she means her childhood home, but often she means the house they still live in. She doesn’t recognize where she is as her home. My dad (who she no longer…
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My mother broke her hip...I am exhausted.
...and my life is now centered on her care. I'm exhausted. First the ER, then the hospital, now a rehab. With my daily visits, I see that her dementia has progressed significantly, so I found a memory unit to move her to. She asked me, yesterday, if she was my mother. This is not how she wanted to go. She has told me that…
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Non responsive facility
I’m new to this forum. My mom is in a memory care facility. I have trouble with the administrator answering my emails. Some are regarding care and others are suggestions for facility improvements. Very frustrating.
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End stages
Hello, My dad died on June 6. As a caregiver, it seems to me there are 2 stages. Manageable and UNMANAGEABLE. In my case, unmanageable came when maybe because of a UTI my dad was peeing everywhere (Yes, he had depends, but also 93 years of NOT peeing in his pants) and problems with constipation, bowels, too. And…
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Anyone Experiencing Wide Swings in Abilities?
One major surprise to me is that for the last year my son will have a stretch where he is showing many classic Alzheimer's behaviors like sundowning, and being unable to tell ahead of time if he needs to toilet, or trying to sleep 15 hours AND take many naps. And then we have 3 months where he knows exactly when it is time…
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Kinto
Please read the privacy information attached to this app. I personally am not comfortable with the data being collected.
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New to this group
Thank you for accepting me to this group. My Mom is 91, lives alone, drives (not well) and has not been diagnosed but I hope that will happen this next week. Her PCP retired and she strongly dislikes the PA who took over to the point where she will not go to him. I have found an NP who has treated Mom in the past who we…
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Hallucinations(21)
Hi I’m new here. Thought I would post my situation and ask for suggestions. After 3 years of various doctors, 1 hospital stay and 4 neurologist, my mom was diagnosed with Lewy Body Dementia last week. I guess some part of me was still hoping that it was something that there was a magic pill for. I’m still reeling. I should…
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Mom Won't See Neurologist
Hi All, I'm new here and things have spiraled quickly. I noticed some fairly large red flags 2 years ago and set up a neurologist appt for her. Flew out and took her, and she was at the time willing to go, and open about things. That was November 2019. Her mother died at 69 from Alzheimer's, and was in an MC for a year or…
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Struggling with next steps
Hi all - I have read many posts and while they are comforting in terms of knowing we are not alone with this, I'm sure each situation is somewhat unique so finally decided to post my own situation. Mom was diagnosed in Feb 2021, but we had been trying to get her to see someone about her memory issues and seemingly more…
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LO with MCI who wont accept help
I have a twin sister who is getting dementia. Her main problem now is *no* short term memory. Her husband died recently and she has no children so I am pretty much it to help her. She knows and acknowledges that she has no memory and refers to herself as "addled". But she doesn't want help. I am trying to get her to accept…
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Appropriate Living/Care Solutions for people with early onset dementia
My dad is 65 and is in amazing physical health, with pretty severe cognitive decline which has presented a dichotomy that is hard to address in traditional care situations. All of his children are working full time jobs with children of our own and his physical stamina actually creates more safety issues as he sometimes…
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Packing list for memory care
We have decided to move my mom to memory care. I know it is the right thing to do for everyone (including my mom), but my heart is still heavy. My dad has been truly incredible, but the care she needs now is just more than he can realistically provide at home (even with a wonderful aide who is there 3 days a week). He has…
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Dental options/risks - dentures, implants, etc?
My 70 year old mother is in a moderate stage of Alzheimer's, and I recently moved back to manage her care. She currently lives alone in a house (though we did try to move her into AL a couple years ago, but this failed before we even got through her front door). Her teeth are in horrible shape, and one broke off shortly…
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Moving parents with ALZ
My parents both have Alzheimer's and have been in a memory care community that does not take Medicaid for the last 2 years. Their finances will only sustain them for another 14 months, and I have found another memory care community with two openings that will accept their private pay, and switch to Medicaid when their…
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An awe-inspiring story of a caregiver - helped my perspective
Yesterday I was feeling mired in stress and anger, wishing that this awful journey caring for my Dad could be over and I could be free, and I came upon this story in one of my news feeds. It is a story of a woman in Dallas whose son was paralyzed in a football accident in high school, and she dedicated the rest of her life…
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Different future needs for spouses w/ dementia
Caring for a couple from afar. Dad: Physically healthier but cognitively at level 5/6-ish. Happy demeanor. Will go along with anything (for good and bad). Decision making is very confusing for him. I am the closest family member at 3 hours away. Stepmom: Lots of physical ailments but sharper. Maybe stage 3? Paranoia and…
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Gratitude(1)
It has been years since I posted on this site. However, I still see some familiar names. My dad died of Alzheimers in Sept 2018. I spent a few of the most difficult years of my life on this site, daily. At the time my sisters and I always noticed there were "angels in our path" guiding us on the difficult journey. We also…
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Bible Verse to Lift You Up 7/8/21
LOYAL TO GOD GOD THOUGHT: 2 Chronicles 16:9 NIV “For the eyes of the Lord range throughout the earth to strengthen those whose hearts are fully committed to him…” * me: When we are stressed and overworked, that is just the right time for us Christians to ask ourselves if we still are being loyal to God in our heart, and…
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Worse than I thought
Last time I posted I noted that mom was moving into stage 6. Well, based on updates I've gotten from her care team, and a quick reference to the FAST scale, we are more like late stage 6. It seems like things have moved at the speed of light the last couple months. Mom speaks a little less. She's definitely more…
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New Member(13)
Hello, My father has Dementia & he lives with my brother and his family. My Dad is always mean to their 8 year old daughter. He upsets her. Has anyone dealt with this situation? If so, how can it be handled?
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I thought this was great survey and it shows what people do not know.
https://www.aarp.org/content/dam/aarp/research/surveys_statistics/health/2021/dementia-diagnosis-perceptions.doi.10.26419-2Fres.00471.001.pdf