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Comic relief
Lately, MIL has been having pretty lucid conversations - she seems to be understanding a lot more. Even though she remains unclear about a lot of things (like where she is), she’s making so much sense all of a sudden that I’ve been second-guessing my decision to place her in MC last year. Until this happened - we spent 5…
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When Vascular Dementia & Alzheimer’s came to Our House
Hello All, Glad to make your acquaintance. We are the Jacksons’ Just received my husband diagnosis on October 26, 2023. Vascular Dementia & Alzheimer’s ( moderate). Reading 📖 all your posts to become familiar with what’s down the road ahead.
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May seem like a silly question
GM all, I have a question that I’m pretty sure I know the answer to but my wife mentioned to friend that she’s feeling depressed, now understand my wife head spins when you mention Nurologist, so do I need to speak to Nurologist about this or if this something her primary Doctor can take care of ?????
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feeling helpless
My wife was recently diagnosed with early onset dementia probably due to AD. After seeing a Neurologist for 2.5 years, including an inconclusive spinal fluid analysis they now think they can diagnose it as early onset dementia. As I type this, there has been no course of treatment for her prescribed by our Neurologist. He…
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Staying up all night and wanting to go home
My wife has recently been getting up at night and asking to go home. I ask her where she means and it's usually her childhood home that she's been out of for 50 years now. I started her on Melatonin which my doctor said was ok to give her. It worked a few nights but then she had her worst episode last night when she stayed…
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New Article Sent by my CELA: 5 Medicare benefits consumers should know about. TRUE??
Hello fellow caregivers, My CELA just sent me an article titled, "Alzheimer’s disease and dementia care: 5 Medicare benefits consumers should know" because she wanted me to know that it looks like Medicare Part A will pay for up to 35 hours of in-home care per week for dementia patients who are homebound and require…
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NYT Magazine: Racing to Retake a Beloved Trip, Before Dementia Takes Everything
A touching story about a daughter and father's trip to Europe. I gifted article so it's unlocked for 30 days. I learned about a 1950's themed adult day care and artificial village called Town Square. But the key part of the story is about reminiscence.…
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How to know I’m making the best desicion
I’m new to the discussion. I need help. I am struggling with the deduction to bring my father to my home in California. He currently lives by himself in another state has had a dementia diagnoses since 2017. Currently he his doctors have recommended for him not to drive. VA has only approved 6 hours a week of home health.…
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Leqembi infusions
Hello. My DH has been diagnosed with Alzheimers and recently began receiving Leqembi infusions every two weeks. I would appreciate hearing from any other caregivers who are undertaking this treatment. I'm looking for support and advice or tips.
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Today's Win
After some conversations with my state senator (and her super nice aide) the state of Delaware passed a resolution today naming September 22-29, 2024 FTD Awareness Week. It was oddly emotional to be there to see it pass.
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Barely survived S In storm
60 hours with no electricity, 72 hours without TV, phone or internet. Stuck in the house with a spouse that does nothing but watch TV and drink beer. I had to watch him every minute to prevent him from opening the fridge or trying to fix the TV. He fidgeted, paced, and repeated himself all day, for 3 days. I pity those of…
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Morning Meds
I talked with my sister's care facility this morning to see how she was doing with a med change her neurologist made recently. The med tech said she was doing good. She didn't have her morning meds because she didn't get up until almost 10:00. When I asked why they didn't give her the meds when she got up, the tech said,…
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Too involved? Waiting on crisis?
My grandmother, father, aunt and oldest sister had dementia and have passed. My living sister is having memory problems (67 yrs old). She asked me to go to doctor with her, I did. Doctor ordered blood work, an MRI and an appointment with a neurologist. MRI came back normal. Blood work came back with elevated liver enzymes…
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Some useful resources
Michael and I were not sure how useful some of these resources are, but some may be useful to some here.
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Medical POA question
I had an interesting event happen yesterday. I took my mom to a pulmonologist appointment. A doctor she has seen several times. As usual, there was a form to sign while in the waiting room. I had mom sign it- consent for treatment and to bill the insurance. She signed her first name and I had to prompt her to sign her last…
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Evanthea dementia reversal
Hello everyone. Just seeing if anyone has heard of or has any thoughts on the Eventhea dementia reversal clinical trial?
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POA
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Suggestions PLEASE
Hello everyone! This my first post, as a matter of fact, this is the first time I am dealing with someone with dementia. I am overwhelmed to say the least. I recently came to stay at a shelter, as I lost my house. This was 2 months ago. It's a small shelter, at present, there is just myself and another person, who has…
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Caregiving "shift" ending at sundown and restarting at sunrise.
While each PWD is different and some stay up at any time in the evening, some PWD may want to go to sleep somewhat early, which is convenient if it avoids sundowning. So that may be around 8 pm in summer. This also gives a caregiver some time on their own later, in order to do personal tasks, such as paying bills, or…
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Joyful surprise
I’ve been trying to get DH to shave for several days without success. This morning he said to me “I go to work today right?” Actually he goes to daycare which he believes is his work. So I agreed that yes he goes to work today. He got up, went to the bathroom and shaved.
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A real conversation between MIL and DH
The movie Yours, Mine and Ours is blaring in the background. MIL is very hard of hearing so everything is always at 90% volume. ********** DH: I want you to try this cookie. It’s not too sweet. MIL: (suspiciously) What is it? DH: it’s a cookie. MIL: What? DH: A COO-KEY MIL: What’s a COO-KEY? DH: You know what a cookie is!…
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always feeling cold
My DW is in moderate to late moderate stage. Through the winter she always said she was cold especially her legs. However, now that it is much warmer she will at times still say she is cold even when the room temp is 80 and she has a light blanket on. I have mentioned this recently to both her PCP and Neurology PA. Blood…
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Closing Doors
I'm a 24/7 caregiver for my mom, who has stage 6 dementia. She has an extremely annoying habit about doors. When she goes to the bathroom or the back porch, she never shuts the door all the way. The bathroom is the worst for me (I've seen things I can't unsee). But the porch isn't much better as it lets in summer heat. The…
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Husband newly diagnosed and was still working
My 74 year old husband started having dreams that he thinks are real back in November. He was officially diagnosed in March. He was running his own business into the ground. Found out he hadn’t filed taxes in 5 years. Made him close the business and now we are being sued by one of his clients for $1M. If we lose this case,…
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When it is time to take cell phone away
My Mom has been in memory care for 7 months with moderately severe dementia. I'd say she's Early to Middle Stage 5 on the DBAT. She still has her cell phone. I don't think she calls anyone except me, but she receives calls periodically from friends and family. I monitor her email account from my computer and today I…
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Do you take your LO in AL to the store to buy supplies?
Mom moved to AL about a month ago. I’m curious if you take your LO out weekly to buy supplies? I avoid it since I never know what she is going to decide she “needs”. I’m worried her room will fill with clutter or just multiples of things she already has. If I ask if she needs anything she will just tell me she needs to go…
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Bible Verse to Lift You Up 6/24/24
GOD’S FAVOR FOR THE RIGHTEOUS Psalm 5:12 NIV "Surely, Lord, you bless the righteous; you surround them with your favor as with a shield." James 5:16 NIV 'Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective." THINK ABOUT THIS…
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A Warning re:PWDs and others who live alone
Yesterday I got a telephone message on my landline from "Anonymous": "This is your official notification that you have been placed on my schedule to be served court-sealed documents. You will be served either at your place of employment or place of residence. At that time a signature and two forms of identification will…
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Early onset: navigating caregiving AND parenting simultaneously
Lately, I've been feeling more ready to wander around these forums and read about the struggles and heartbreaks of other caregivers. We are fairly new to this reality and I'm finding acceptance of our circumstances little by little. I recently found the Dementia Behavioral Assessment Tool (DBAT) and it's given me such a…
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Mom is always worried she is in trouble
The last several times I’ve been to the AL, Mom’s first question is ‘ did they call you?’. The next is ‘ am I in trouble? At some point, she will say ‘ I had a meltdown’. Sometimes it’s ‘last night’. Sometimes it’s ’this morning’. All of this appears to be in her head because the AL is not calling me or reporting said…