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Anosognosia in dementia
Hello New to this community and this is a first post - learning to manage the diagnosis of dementia in my 80yo mother which is complicated by what appears to be Anosognosia - which without any experience I had labeled as either being in denial vs an inability to acknowledge due to the condition. Either way it is a…
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First post - Feeling abandoned by siblings
For the past 3 years I have basically been the sole caregiver for my mom with Alzheimer’s. She is currently living alone at home. I expect she will be moving into memory care in the near future. At the start my brother and sister gave excuses why they couldn’t help—no time, can’t handle, lived 15 miles away while I live…
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At what point do you consider MC
Is there any right time or stage to consider MC for your spouse? Cost is not a consideration in this case. But when is your LO better off in a structured environment than dealing with caretakers that she can't stand?
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Adult Day Care
Does anyone have experience with the Embassy Forest Hills Center in Columbus, OH? I need to find some day care for my wife who has dementia, and want some personal recommendations. Thank you.
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Pool Safety?
I’m new here and this is my first post.. my mother (67) is a few years into Alzheimer’s and still living at home with my father who is her primary caregiver. I am about a 10 minute drive away, often busy with my kids (6 and 3), but I spend time with mom a few days a week to give my dad some down time. Mom is left alone…
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hospice
My dad is in memory care. I'm not sure the stage. He is totally incontinent but eats well, will answer a basic question if its a few words but does have "word salad" when he tries to say more than a few words. He usually only remembers his mom and dad and thinks they are still alive. My questions….since he is in memory…
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Dark humor
I’m tired so maybe that’s why the thought came to me that I’m finally a mother. DH and I were never blessed with kids. Now, I’ve become a parent! I realized this when MIL called for me at 3 AM. She couldn’t tell me why she’d called. I asked if she needed to go to the bathroom and she agreed. We went and after she was…
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Another good day
Consider this a continuation of something I posted in April. I wanted to update on how the not driving is going. It's now been about 2 months since DB last drove. YB has been having issues with a car repair and DB has leant him his car. The fix has been slow for a number of reasons, and DB is getting anxious. I got a call…
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Off Topic: Oprah's Recent Weight Loss Shiw
Oprah recently had a show on TV on which she presented several obese people with medical conditions affected by being obese. She touted the effects of medication (semaglutide) to help with weight loss for the morbidly obese. I have no issue with this. But Oprah is not morbidly obese, nor does she have medical problems that…
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Besoin de réponses
Bonjour Je suis nouvelle sur ce forum, mon mari a 62 ans et la maladie d'Alzheimer depuis janvier 2021, à ce jour je me pose beaucoup de questions sur cette maladie. Il vie cette maladie comme si il n'avait rien, refuse toute conversation même le mot Alzheimer. sur ce sujet. Comment lui faire comprendre qu'il faut que je…
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ReCODE protocol
My primary care physician has recommended the book "The End Of Alzheimer's", Dale Bredesen, MD. I am interested in pursuing this non-traditional approach to peerhaps reversing Alzheimer's. Has anyone out there had experience with it?
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Redirecting conversations over the phone with mom with dementia/Alz
My mom is in a memory care facility 3 hours away from me. Often, we have very pleasant conversations over the phone. Recently, she has been saying she is trying to call her mom/dad to pick her up and take her home (they have been deceased several decades). When I try to redirect, she will get extremely upset and repeat,…
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So done with Donepezil
Sorry for another poop topic but I just need some suggestions and maybe a pep talk. Mom has been on 5mg donepezil (generic name) since maybe May, possibly April. A little after she started taking it, she started having diarrhea and not making it to the bathroom in time with other loose BM. At the time, she was also eating…
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Stop visits with neurologist
Hello! I am wondering how others handle simplifying visits to doctors. My dad has Alzheimer’s and, while I can take him to local doctors, going out of the county to see specialists is not easy. He broke his neck last summer two different times and is following up with the neurosurgeon virtually. Our local hospital sends…
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Last will and testament
My mother was diagnosed with Alzheimers about 5 years ago. It has been a challenging 5 years. She is now in Memory Care and seems to have lost most of her memory. She is clearly not able to make any legal decisions on her own. About 12 years ago, she made a will. She was most likely of sound mind at that time. In her will,…
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Ex-husband care
My ex husband is living with me and he is not diagnosed but I have no doubts. There is no one willing to take him on and not sure what my legal status is and what should be steps to take.
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Off topic -- I got to see the Northern Lights - couple of photos
It was dark enough and I stayed up to see them. I didn't get to sleep until close to 4am because it took awhile for me to calm down from the excitement. 🙂
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support for adult grandchild caregiving a grandparent
Hi! Are there any online or telephone support groups or other connections happening for adult grandchildren who are the primary caregivers of a grandparent with dementia? Thank you. ❤️
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Bathroom
hello! Recently my dad who has EO has been waking up in the middle of the nights to use the bathroom and he has been unable to find the toilet. Causing him to pee on the carpet and honestly anywhere except the toilet! Any advice? I’ve thought about the alarms to wake me up when he gets out of bed but I’m looking for…
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Child has dementia
I have a very dear friend whose daughter is 25 and was diagnosed eight months ago with dementia. My friend has been trying to find a support group for other parents who have children with dementia but she is unable to find anybody else. She feels extremely alone in this difficult time. Does anyone know if there is a…
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Tips for usefulness
Any tips/suggestions/things to do to not feel powerless against this disease as a caregiver?
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Forgetting people
Has it been your experience that once people are regularly forgotten, the memory is gone for good? Two days in a row, MIL couldn’t remember how many times she had been married (once) and to whom. Yesterday, I showed her photos and she was able to recall her marriage. But tonight, even when my spouse showed her early and…
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Palliative Care vs Hospice Care
Although I’ve research via the Internet and searched this site extensively, I’m still not clear on the difference between palliative and hospice. If “who pays” and “chemo/radiation/targeted therapy/surgery” is removed from the equation - what are the primary differences between palliative and hospice? In hospice, would at-…
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A YouTube Interview with Our Own Lickety About Her Film & Blog!
Hey, folks, it's a GREAT interview with our own LicketyGlitz about the journey of caregiving, her blog, her new film, and the wonderful fellow caregivers she met through this forum. https://www.youtube.com/watch?v=kGMEvsjBhdE
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How do I take away hobby supplies?
My close friend has Dementia and wants to keep sewing but keeps taking her machine apart, or breaking needles, etc. I go to her assisted living apt and fix the machine but it is down again the next day. She was an avid quilter but can no longer keep it going. She will take the needle out and then claim someone else did it,…
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Resources for Early-Onset Dementia
Hi all, I am looking on behalf of a friend for resources/support groups/etc for people with early-onset dementia, and caring for someone with early-onset dementia. She is located in the NYC area so anywhere within a 1 hour radius there or any online resources would be amazing. Looking for things like support groups,…
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Where does a middle-stage person live?
My sister is 65, looks youthful, could almost "pass" for a non-dementia person if you don't try to have a conversation with her. Up till now we have had her living in a small house with a 24 hour aide. The landlord wants it back for his son, so we have to move her in July. It is not financially sustainable for her to…
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Mother is having nightly delusions and I'm no longer sure we can care for her at home
My mother is 86 and has moderate to severe dementia. Her short term memory is all but gone, and now her long term memory is going as well--at night, mostly, she is waking up my father and asking him question after question about who he is, who her husband is, whether she has children, who the person in the other room is…
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Help with how to handle parent who lives with us
5 years ago we moved and Grandma insisted she didn’t want to live alone. We purchased a home together with her. 7 months ago she received an Alzheimer’s dementia diagnosis with anognosia and she has declined rapidly. She walks with a walker or holding onto walls, in incontinent, had her license taken away, can no longer…
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What do I tell Mom when she asks to go home?
Hello, I'm new here, and new to caring for my Mother who is middle stage with dementia. Long story short, my Dad was her primary care give until he passed away suddenly about 2 months ago. He hid from the family his illness (cancer) and the extent of Mom's dementia. I live out of state, so that was pretty easy for him to…