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Is it normal to hate your parents?
Every last bit of empathy I had for my parents is gone. It has been a long road, and there is no end in sight. I want to be done with them. I believe both mom and dad now have dementia. Mom's condition has been clear for about six years and she has steadily declined. Dad's just became apparent recently. Mom is 86 and dad…
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How do I respond?
Hello, I am new to this board and I’m not a caregiver, just a friend who recently found out that a dear friend of 40 years has early onset dementia. I’m afraid I don’t know much about the disease or its stages, but I know he’s had it for probably about 4 years. I reconnected with him a few months ago. Since then I’ve taken…
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Seroquel effects?
We started my MWD on Seroquel about a month ago, 12.5mg once each evening. It seems to have generally helped with that time of day. However, just over the past 7-10 days, she is now way more agitated than she used to be the rest of the day. From the time she wakes up until the evening dose, she is scared and wanting to go…
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Dental care
I haven't seen much here and need some suggestions/advice. Wife is early-mid stage 7. she could use a good dental cleaning, lots of plaque. Brushes daily but breath is getting really bad. She cannot travel anymore and is at home. Hospice care.
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Leqembi
Any one experience. Please share. 🙏.
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Is this end of life symptoms? I’m so confused.
(Edited: I removed sentences that appeared to be critical of my spouse. He doesnt deserve that. We’re both trying our best.) MIL is 91 with lung cancer, kidney disease, and mixed dementia. She was recently discharged for the second hospitalization in 30 days. Since her first discharge at the end of March, she has declined…
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Dentist recommended all teeth be extracted
According to my mother in laws dentist/oral surgeon, she needs to have all of her remaining teeth extracted due to the extent of decay. This is scheduled to happen in one appointment. I am worried because she does not remember this appointment is approaching, and it will likely seem very scary for her after it has happened…
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Nutrition Tips - soft mechanical or pureed (and in general)
Forum mates, I went looking for tips to help me with the challenge of pureeing everything that DH eats, and still getting enough variety and nutrition in him to not lose too much weight, too fast. He is late stage 7 many of you know, and recently has rebounded from what seemed like his last hours on earth. He is of course…
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Reposting new thread for nickibaker
I am also going through a similar experience with a man I have known for 15 years- After being in the hospital monthly for COPD for 1 1/2 years, rehab twice, and finally home with a part-time aid, his dementia became a bigger issue than his COPD. He is in denial (part of Dementia) and can be difficult. He does not accept…
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Son looking to support caregiving mother
Hi - first thank your time in reading through this. I am sure that some of you have heard all of this before. My mother is caring for my dad. They are 4 hours away from me in Palm Beach County. My dad is still largely independent, but as things progress, things will get more difficult for my mother. I would like to hire…
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bathroom issues(6)
Hello this is my first post and am willing to listen to any/all recommendations for this problem. Has anyone experienced the loved one with dimentia having poop problems? The issue is she seems to some time poop on the floor. She also puts her hands in her poop. Today, I ended up loosing my cool when she had poop all over…
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She does not remember
Another sad day.... grandma thinks her granddaughter is grandma's cousin.
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Hygiene question
I’m sorry for the rather embarrassing nature of this question, but I don’t have anyone else to ask. My 91 yo MIL has recently had two incidences of incontinence. We’ve been able to avoid any additional incidents by going to the bathroom every 3 hours. My questions are: MIL regularly tells me that she doesn’t have to go and…
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How to cut down on the stress around tests/Dr. appointments?
Hi everyone - my mom tends to spiral in a big way whenever there is an upcoming doctor's appointment. This results in non-stop phone calls from her for a good 7-10 days beforehand, screaming, threatening to cancel the appointments, calling family members to accuse me of all sorts of things, etc. She is fine once we are…
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Lay flat recliner
I am looking for a recliner that lays flat. Any suggestions? T
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Rec for the BEST & highest quality Memory Care in/around Livingston NJ
Im so in over my head, and am feeling very lost. My goal is to identify the top 3 memory care residences in/around the area of Livingstion, NJ. Has anyone heard of The Winchester in Maplewood? All feedback is warmly welcomed. Im also looking for the top 3 agencies for 24/7 home care, as well as agencies or people who…
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New Scientific American report on Alzheimer's
A dear old friend of mine is the publisher of this Scientific American special report. He has given me permission to share it on the forum. You can access it on the site or download the PDF if you prefer.
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Do you have an explanation?
I’m stumped. And thought you all would get a kick out of the recent conversation: Just 5 minutes ago, DH paused in his repetitive folding of a corner of blanket and asked me…”What do you know about this?” Holding it up for me to see. Hmm. My turn to pause. You all know the feeling. It’s one of those moments where you…
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Social Security Denied-because of Teacher Retirement-no Property Tax Exemption
Young onset husband worked for 18 years as a teacher. He left 10 years ago for what we called "stress" then, but same symptoms he's experiencing now. Confirmed Alzheimers. Because he never wanted to return to school, he transferred out his measly retirement account to an IRA. We were just denied SSDI, I'm assuming because…
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Just reading if you have Alzheimer’s you have Dementia, but if you have Dementia don’t have Alz
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gobbling food
HI Friends, We have beautiful weather today in New England. I hope you do, too, wherever you are! My DH has been gobbling his food. I'm assuming this is an executive functioning issue. (He's also not wearing his partial dentures because after paying off (over a year) $4,000 to replace the ones the puppy destroyed; the dog…
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Ethnic Differences in Amyloid Levels
It turns out that not only are fewer African Americans and Hispanics being recruited into Alzheimer's disease clinical trials, they are being excluded more often because they generally have lower levels of amyloid than Caucasians. And herein lies the whole problem in Alzheimer's research for decades. If amyloid is the…
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Peggy's funeral was this last Friday
I'd been dreading it for all of the obvious reasons, but I was happy with the way it turned out. Peggy's friend M and I did the bulk of the planning, and we were on the same page from start to finish. Honestly, I don't think I could have done it without his help. I was determined to keep the eulogy as light and cheerful as…
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Today is going to be rough
I could use a little strength and grace today. No need to reply but maybe send some positivity my way? I slept badly last night and then started the day at 4 am when I had to change and shower my husband. Why the bad sleep? Today is the day I make my husband's funeral arrangements. I know it needs to be done. And I know…
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Allowing myself a snarky moment
MIL’s stepdaughter talks the talk but does not walk the walk — she rarely visits MIL in MC nor does she offer to help me with caregiver responsibilities. She finally visited her stepmother in MC and told me “I really should visit more often because she lights up every time she sees me”. Actually MIL lights up for everyone…
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Mom was moved to MC side but not MC wing she is refusing to stay in room
Due to my mom's needs, not eating and blood sugar dropping dangerously low (44 once a week), continually calling for various "needs", and most specifically wandering at night she was moved to the MC side of AL. She is not specifically in the MC wing. She is terribly, terribly angry with us and refusing to stay in her room.…
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Actual supplemental oxygen use
Question for you all. What’s the likelihood that someone at stage 4 will wear the supplemental oxygen as often as they should? and does the possession of a Inogen bring that likelihood percentage up? Mom had an 86% oxygen level on 3/27 and an 84% level on 4/11. It had been over 90 in late February. PCP prescribed…
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Sex is not my friend
DH has been quiet about this for several months now. All of the sudden now he wants it again (he also has ED and things were not going well before). He grabbed a beer when we got home from church and then wanted to get all frisky. Unfortunately, I made the remark that he looked like he was more worried about getting a beer…
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Is this typical advancement?
Unlike previously, for the last couple of months my DW no longer has been asking to go home. She is no longer clingy or shadowing. She has also stopped trying to leave the house. Have others seen this same progression with the disease?
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Two Story Reality Check
As I see it, DB is in Stage 4 per Tam Cummings. Though, "begins to have stumbles or falls", is one of the behaviors, DB has not shown that yet. Although YMMV, the guidance is the phase is 1 - 4 years, and let's say he's in his 2nd year. Also he is EO, and I have read this often progresses faster. DB and his wife live in a…