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support for adult grandchild caregiving a grandparent
Hi! Are there any online or telephone support groups or other connections happening for adult grandchildren who are the primary caregivers of a grandparent with dementia? Thank you. ❤️
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Bathroom
hello! Recently my dad who has EO has been waking up in the middle of the nights to use the bathroom and he has been unable to find the toilet. Causing him to pee on the carpet and honestly anywhere except the toilet! Any advice? I’ve thought about the alarms to wake me up when he gets out of bed but I’m looking for…
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Child has dementia
I have a very dear friend whose daughter is 25 and was diagnosed eight months ago with dementia. My friend has been trying to find a support group for other parents who have children with dementia but she is unable to find anybody else. She feels extremely alone in this difficult time. Does anyone know if there is a…
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Tips for usefulness
Any tips/suggestions/things to do to not feel powerless against this disease as a caregiver?
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Forgetting people
Has it been your experience that once people are regularly forgotten, the memory is gone for good? Two days in a row, MIL couldn’t remember how many times she had been married (once) and to whom. Yesterday, I showed her photos and she was able to recall her marriage. But tonight, even when my spouse showed her early and…
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Palliative Care vs Hospice Care
Although I’ve research via the Internet and searched this site extensively, I’m still not clear on the difference between palliative and hospice. If “who pays” and “chemo/radiation/targeted therapy/surgery” is removed from the equation - what are the primary differences between palliative and hospice? In hospice, would at-…
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A YouTube Interview with Our Own Lickety About Her Film & Blog!
Hey, folks, it's a GREAT interview with our own LicketyGlitz about the journey of caregiving, her blog, her new film, and the wonderful fellow caregivers she met through this forum. https://www.youtube.com/watch?v=kGMEvsjBhdE
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How do I take away hobby supplies?
My close friend has Dementia and wants to keep sewing but keeps taking her machine apart, or breaking needles, etc. I go to her assisted living apt and fix the machine but it is down again the next day. She was an avid quilter but can no longer keep it going. She will take the needle out and then claim someone else did it,…
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Resources for Early-Onset Dementia
Hi all, I am looking on behalf of a friend for resources/support groups/etc for people with early-onset dementia, and caring for someone with early-onset dementia. She is located in the NYC area so anywhere within a 1 hour radius there or any online resources would be amazing. Looking for things like support groups,…
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Where does a middle-stage person live?
My sister is 65, looks youthful, could almost "pass" for a non-dementia person if you don't try to have a conversation with her. Up till now we have had her living in a small house with a 24 hour aide. The landlord wants it back for his son, so we have to move her in July. It is not financially sustainable for her to…
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Mother is having nightly delusions and I'm no longer sure we can care for her at home
My mother is 86 and has moderate to severe dementia. Her short term memory is all but gone, and now her long term memory is going as well--at night, mostly, she is waking up my father and asking him question after question about who he is, who her husband is, whether she has children, who the person in the other room is…
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Help with how to handle parent who lives with us
5 years ago we moved and Grandma insisted she didn’t want to live alone. We purchased a home together with her. 7 months ago she received an Alzheimer’s dementia diagnosis with anognosia and she has declined rapidly. She walks with a walker or holding onto walls, in incontinent, had her license taken away, can no longer…
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What do I tell Mom when she asks to go home?
Hello, I'm new here, and new to caring for my Mother who is middle stage with dementia. Long story short, my Dad was her primary care give until he passed away suddenly about 2 months ago. He hid from the family his illness (cancer) and the extent of Mom's dementia. I live out of state, so that was pretty easy for him to…
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Young caregiver
Hi, I am a 25 year old young caregiver. For almost 4 years now, I have been the sole caregiver of my 58-year-old mother suffering from early Alzheimer's, since my father passed away in 2020 due to the pandemic. I am Italian, but given my mother's condition we moved to China, her homeland, to take better care of her. I…
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young adult children of Alzheimer’s patient forums?
I am looking to connect with any other young adults that are helping caregiver for their parent. I am 28 and while most of my friends parents are healthy and well my father, my own personal super hero, one of my favorite people on earth is becoming someone I don’t even recognize anymore. Just looking for support from peers.
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My mother keeps asking if her parents are alive
my mom, 75, is in the early stages of Alzheimers. She recently has been asking if her parents are alive (they both died over 25 years ago) and my dad told her that yes, they died a while ago. He didn't want to lie and didn't know what to do. My mother started crying that she didn't get a chance to say goodbye to her father…
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Employment
Does anyone have any suggestions for employment for my husband who has early onset of dementia/mild cognitive impairment? He recently retired from teaching and still would like to do some type of work. Technology is not a strength of his. Does anyone have a loved one that is working with early onset? Any information would…
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Help! Dealing with Mom wanting to go home
Mom has been in memory care for one month. She's asking to go home per usual, and I am following the points suggested to me to redirect, etc. My question is emotionally how do you deal with the guilt of it all? I am so sad, and just want to tell her the truth (of course, I won't..she's unable to process) but the feelings…
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Disregard
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He ate the diaper cream 🥹
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Attitude issue
My oldest and dearest friend died yesterday after an 18 month battle with glioblastoma. My husband doesn't remember her illness, our multiple visits with her or her death. He keeps asking how I am and reacts badly when he doesn't get a cheerful reply. I just can't do it, the grief is too great. This has added another layer…
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After EEG and MRI - Questions for Doctor
After reading here for a while, and becoming familiar with the Tam Cummings assessment tool I have some ideas of what's coming. I have read here that a good strategy is to provide the Dr a list of questions/concerns to be addressed during the appointment, but to do it out of sight of the PWD. There are things I've read…
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Is it normal to hate your parents?
Every last bit of empathy I had for my parents is gone. It has been a long road, and there is no end in sight. I want to be done with them. I believe both mom and dad now have dementia. Mom's condition has been clear for about six years and she has steadily declined. Dad's just became apparent recently. Mom is 86 and dad…
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How do I respond?
Hello, I am new to this board and I’m not a caregiver, just a friend who recently found out that a dear friend of 40 years has early onset dementia. I’m afraid I don’t know much about the disease or its stages, but I know he’s had it for probably about 4 years. I reconnected with him a few months ago. Since then I’ve taken…
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Seroquel effects?
We started my MWD on Seroquel about a month ago, 12.5mg once each evening. It seems to have generally helped with that time of day. However, just over the past 7-10 days, she is now way more agitated than she used to be the rest of the day. From the time she wakes up until the evening dose, she is scared and wanting to go…
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Dental care
I haven't seen much here and need some suggestions/advice. Wife is early-mid stage 7. she could use a good dental cleaning, lots of plaque. Brushes daily but breath is getting really bad. She cannot travel anymore and is at home. Hospice care.
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Leqembi
Any one experience. Please share. 🙏.
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Is this end of life symptoms? I’m so confused.
(Edited: I removed sentences that appeared to be critical of my spouse. He doesnt deserve that. We’re both trying our best.) MIL is 91 with lung cancer, kidney disease, and mixed dementia. She was recently discharged for the second hospitalization in 30 days. Since her first discharge at the end of March, she has declined…
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Dentist recommended all teeth be extracted
According to my mother in laws dentist/oral surgeon, she needs to have all of her remaining teeth extracted due to the extent of decay. This is scheduled to happen in one appointment. I am worried because she does not remember this appointment is approaching, and it will likely seem very scary for her after it has happened…
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Nutrition Tips - soft mechanical or pureed (and in general)
Forum mates, I went looking for tips to help me with the challenge of pureeing everything that DH eats, and still getting enough variety and nutrition in him to not lose too much weight, too fast. He is late stage 7 many of you know, and recently has rebounded from what seemed like his last hours on earth. He is of course…