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I don't understand this.
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Family Conflict
I just moved to CA with my ex with whom I have been living for the past six years for financial reasons. We are good friends and support each other. Unfortunately, he has been showing signs of early onset dementia. I convinced him to move to S. CA to be closer to our daughter who seemed willing to be supportive and helpful…
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Sister lives with me
Hi, My sister has Alzheimer’s and lives with me now. The past few weeks she has went downhill fast. This is what is going on with her.staying by herself more and more,hiding things,not taking baths,doesn't want to do anything only sit around I try to get her interested in doing things but she when I turn around she’s gone…
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Navigating Family Dynamics: Post removed
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Thread or group for research discussion?
I heard a report yesterday that there are at least 120 therapies in development and at least 75% of them involve targeting things other than amyloid. After that, I searched the name of the person who said that and came across a podcast where they were discussing some latest developments. Made me wonder if there is a thread…
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Using respite for the first time
One of the hospice services my husband is eligible for is respite care. We're scheduled to use it this week for a few days while I go to our nephew's graduation. I'm nervous about it. He's never done well in a hospital setting, even before the FTD (seriously, he tried to leave the ICU hours after having an MI in 2015). I…
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Separating Parents in AL - How to handle the physical move itself?
Suggestions for Thursday's move? We have to: Tell our mother (stage 6a/6b with anosognosia) we have decided that she and Daddy need separate rooms in order to receive the care they each need Respond to her confusion, frustration, fear, and anger (her symptoms manifest with great anger) Support our dad (who already knows…
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Comments on Medicare Proposals on Improved Hospital Care for Dementia Patients
Michael Ellenbogen wants to encourage anyone interested to make comments on this measure. I am going to include Michael's comments: Please get people to make comments on this site ASAP. Very important. You must submit your comments by June 10 on the Regulations.gov site. Pls see the proposed CMS Measure link added here.…
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Parents in AL, likely moving to MC soon and too hard to visit them
I moved both parents to AL five weeks ago. That was difficult enough. Then last week the DoN called saying both parents seem like a better fit in MC. We met at the facility and agreed to try an increased level of care in AL "for now". After only five weeks, I did not want to disrupt my parents and with another move so…
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Lumbar Puncture?
Good evening everyone. My mom was diagnosed today with Alzheimer's. But she doesn't fit the diagnosis 100%. The part of her brain that should be damaged/shrinking seems to be fine on the MRI. So the doctor suggested a lumbar puncture to 100% confirm the diagnosis. I know the procedure is painful and causes issues, so I'm…
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Really Mom? LOL
They really don’t know how bad off they are, but they notice everyone around them. Mom was complaining to me on the phone about the other female residents of the AL. They seem to keep watch over her since my step-dad died: monitoring her eating habits, checking her progress ( or lack thereof) on the puzzle she’s been…
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Choosing an acceptable meal or menu
I ponder whether to ask a PWD what they want to eat, or whether I should just choose what is healthy. The former brings some joy but may not be healthy. The latter may be good for health but a person may dislike it. Ideally, you can find something that meets both needs. I understand that the sense of taste or smell…
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Hospice at home vs memory care facility
My DW started to have memory issues 9 years ago. Along the way I investigated a number of memory care facilities in our area. However, she does not wander at night or otherwise disrupts my ability to get a good night’s sleep. As She lost her abilities to care for herself I brought in caregivers from an agency to allow me…
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Nutrition Ideas?
Seeking suggestions for high calorie, high energy foods I can puree for DH in addition to our current go-to list. I thought adding a non-dairy meal replacement shake daily would help with providing extra nutrition and calories for this Stage (7), even though he is going to keep losing a few lbs at each month's weigh-in I…
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Music gives us our best moments lately
Every morning we listen to music, usually the Beatles or Elton John stations on Amazon Music. We sing along and sometimes "kitchen dance." Today, while singing along to Bohemian Rhapsody he came up with "gee algebra has a devil set aside for me." I'm so glad we can find ways to still giggle.
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clenched teeth
DW has started clenching her teeth the past day and today. She will not take any meds, or food or even let a straw in her mouth for liquids. Any suggestions?? Meds are opioid for pain and anti anxiety, stool softeners. The Percocete is essential for spinal stenosis, she is bed ridden since this past week. Learning how to…
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We’re finally calling hospice agencies
it’s been a difficult process in many ways because I, the primary caregiver, am not the primary decision maker. Additionally, as she is not my own mother, it was very important that my spouse arrive at this decision without feeling pressured. I think DH needed time to process the terminal natures of his mom’s two serious…
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Help remembering which apartment is hers?
The situation: a woman with early dementia is able to go out and navigate the town safely, and she enjoys this independence so we don't want to squash it. The trouble is, when she gets back to the apartment building, she sometimes forgets which door is the family apartment and ends up knocking at the wrong one, confused…
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Dislikes Sister and an old friend
My wife has recently gone through some changes with her sister and an old friend. My wife was never close with her sister and this old friend growing up, but we've had a great relationship with both in the past 20+ years. A recent visit from her sister however sparked a memory of long ago when she didn't care for her…
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Hiring through Care.com
Hello - we are looking to hire someone in the immediate term through care.com until we can get mom's long-term plans settled. For those who use or have used care.com: What questions did you ask when interviewing candidates? What red flags should I be on the lookout for with candidates? Any watch-outs to be aware of when…
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Incontinence Venting
Here's the thing. An incident of urinary incontinence isn't a huge deal. I can handle the diapers and cleanup. Most days. Last night and this morning were rough though. At his aide's suggestion, I brought in the briefs with tabs (we had been using pull ups). She has no problem using them (quick stand-up change, doesn't…
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From the NYT: Alzheimer's Takes a Financial Toll Before Diagnosis
https://www.nytimes.com/2024/05/31/business/economy/alzheimers-disease-personal-finance.html?unlocked_article_code=1.wE0.0r2q.SLXBA3o0-_FV&smid=url-share Preaching to the choir. HB This is a gifted link.
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Are these common signs your LO has to move from AL to MC?
I just moved both parents to Assisted Living last month. The Director of Nursing called today and told me that both have declined rapidly since her initial assessment when they moved in and that both should move the Memory Care section. First, how likely do you think it is that both parents declined so rapidly in six…
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I’m going nuts
Do any members experience wild swings in day to day health and cognition of their LOs? One day, MIL acts like she’s about to die. She’s sleeping 18 hours, largely incoherent, confused as to day, time, etc, not eating much and seems to be in pain. Then the next day, she wakes up and she’s almost normal. Alert, good…
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Transitioning?
My mom will soon be 98. She's been in memory care for three years. For the last 1.5 years she's been in Stage 7 of Alzheimer's. She's been on hospice for 2 years now. About 1.5 years ago hospice told me she was actively dying and had only days to live. She was in bed on oxygen for about 3 weeks, struggling to breath,…
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Clinical Trials
Hello good people, I am a nurse and helping my mother newly diagnosed with AD. Her neurologist said there's nothing more he can do and our best option is to find a clinical trial. I am finding this difficult as she cannot undergo MRI due to a metal clamp for an aneurysm she has. The new infusion drug Leqembi is…
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Life with Dementia - Tips for Caregivers
I was looking for the best practices foods and exercise list, and found this. Best practices across a range of areas to consider. Helpful tips here. https://www.alzheimers.gov/life-with-dementia/tips-caregivers
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Regarding instrumental adls
I don't know why instrumental adls are not mentioned more frequently. I think new members could get a quick understanding of what their LOs can and cannot do. Instrumental adls are learned at high school level. If your LO is functioning at below a high school level, your LO should not be left alone and needs close…
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So confused and so tired
First post here - My husband was diagnosed with Stage 4 Alzheimers last year from a neuropsychologist. Afterwards, we went to a neurologist who diagnosed MCI. We have had blood tests for B12, sleep studies, an MRI and more recently a PET scan done. The blood test and sleep study turned out fine. The MRI and PET scans were…
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Off Topic: Michael Ellenbogen's trip to Tennessee
Michael Ellenbogen recently returned from a trip to Tennessee and gave Judith and I permission to share his photographs. He saw the Duck Parade on Judith's recommendation and was an assistant Duck Master. Happy that he continues to travel.