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Transitioning?
My mom will soon be 98. She's been in memory care for three years. For the last 1.5 years she's been in Stage 7 of Alzheimer's. She's been on hospice for 2 years now. About 1.5 years ago hospice told me she was actively dying and had only days to live. She was in bed on oxygen for about 3 weeks, struggling to breath,…
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Clinical Trials
Hello good people, I am a nurse and helping my mother newly diagnosed with AD. Her neurologist said there's nothing more he can do and our best option is to find a clinical trial. I am finding this difficult as she cannot undergo MRI due to a metal clamp for an aneurysm she has. The new infusion drug Leqembi is…
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Life with Dementia - Tips for Caregivers
I was looking for the best practices foods and exercise list, and found this. Best practices across a range of areas to consider. Helpful tips here. https://www.alzheimers.gov/life-with-dementia/tips-caregivers
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Regarding instrumental adls
I don't know why instrumental adls are not mentioned more frequently. I think new members could get a quick understanding of what their LOs can and cannot do. Instrumental adls are learned at high school level. If your LO is functioning at below a high school level, your LO should not be left alone and needs close…
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So confused and so tired
First post here - My husband was diagnosed with Stage 4 Alzheimers last year from a neuropsychologist. Afterwards, we went to a neurologist who diagnosed MCI. We have had blood tests for B12, sleep studies, an MRI and more recently a PET scan done. The blood test and sleep study turned out fine. The MRI and PET scans were…
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Off Topic: Michael Ellenbogen's trip to Tennessee
Michael Ellenbogen recently returned from a trip to Tennessee and gave Judith and I permission to share his photographs. He saw the Duck Parade on Judith's recommendation and was an assistant Duck Master. Happy that he continues to travel.
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another interesting but incomplete newspaper report
The Washington Post had another interesting article today, talking about a new website from the Alzheimer's Asssociation—called DICE—about strategies for caregivers to de-escalate dementia behaviors. Supposed to be the first of its kind—but it must not be up and running yet, there was no link provided to any such website,…
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Move Mom in With or Without Her Furniture
Hello, my Mom recently moved in with me. She seems to be adjusting but she mentions some of her things such as her leather couch, a desk etc. I could make room for the couch, but it might be crowded. I’ve been back and forth on whether to have it brought here, a 16 hour drive away. Sometimes I think it would really help…
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Marketing Senior Living-Big Article today
Lead article in the Washington Post this morning is about A Place For Mom--37.5% of their "Best of Senior Living" facilities have been cited for serious substandard care, and the reviews are manipulated. Cautionary tale about doing your own research. I'd post a link but am sure it's behind a paywall.
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In the blink of an eye... (reposting)
Dear Forum Mates, Join me on my little walk down memory lane. This thread is almost 3 years old and reminds me of where we were in my beloved's progression at that time. We all got a little (or big!) chuckle out of some of the antics our LOs were able to get into "in the blink of an eye". This is a stress reliever as we…
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Refusing to eat/doesn't like food
I'm a part time caregiver for my grandma; she has alzheimers. We are at the stage where she doesn't like most foods. And even if we try to encourage her she will spit it out. Any advice? Things that have worked for yall? Even food supplements?
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Grief and guilt after moving parents to ALF, how to deal?
Last month I moved both parents to an ALF. I did research in advance and found a nice place close to both their kids. Initially, I felt relieved. One month on however, I feel mostly grief and guilt and am surprised. Is this common? Mom has mobility issues and AD for nearly seven years. Parents now are 86 and 89. What…
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Brief Update on a good day
I've read many discussions on how our PWD can get combative over their driving privildges. I realize it's still early days, but here's how it's going. Per last update, brother was prescribed generic for Aricept a couple of weeks back. He can complete more of his sentences than before. He says he's feeling much better. He…
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Philly Area Caregivers: Free Tam Cummings Conference
This looks very interesting if you are in the area.
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An Important Week in Alzheimer's Disease Research
This week there were three important findings regarding Alzheimer's disease: The first found that Alzheimer's disease is primarily caused by oxidative stress and that it potentially can be treated with a series of antioxidants. The editor for this group concluded that: "I anticipate that the OS (oxidative stress)…
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Bank account considerations
Just some general info that may help some. Sometimes being added to checking + savings account as signatory is more advisable than using a DPOA. If your LO can sign, they can be taken to the bank(or whatever the bank requires) + ask to have you added to the account. This is sometimes easier than dealing with a POA. Also,…
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Experience with Clonazepam/Klonopin?
Mom's been having some changes in her sleeping habits and right now I'm trying to figure out if it's the medication she's on or something else. About a month and a half ago, she was put on hospice, all her regular meds stopped, and was put on Clonazepam. I thought it was to help her sleep through the night; my sisters said…
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10 Absolutes in Dementia Care list
Recently shared by another member here. Thanks @Chug
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I'm so tired.
My great grandma recently moved in with me. I knew there would be an adjustment period, but months later the behavior is only getting worse. She doesn't ever sleep a full night and is just never happy. She is 94 and acts like the biggest diva. Almost like the entire would should be ready to serve her and nothing is ever…
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Entertainment/Communication
My DH with ALZ always says 'I've see this before or I've been here before' regarding any new tv show, movie or visiting a new place. My mom with vascular dementia never did this. Does anyone else have this issue? It's very frustrating to try to do anything together.
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Anosognosia in dementia
Hello New to this community and this is a first post - learning to manage the diagnosis of dementia in my 80yo mother which is complicated by what appears to be Anosognosia - which without any experience I had labeled as either being in denial vs an inability to acknowledge due to the condition. Either way it is a…
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First post - Feeling abandoned by siblings
For the past 3 years I have basically been the sole caregiver for my mom with Alzheimer’s. She is currently living alone at home. I expect she will be moving into memory care in the near future. At the start my brother and sister gave excuses why they couldn’t help—no time, can’t handle, lived 15 miles away while I live…
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At what point do you consider MC
Is there any right time or stage to consider MC for your spouse? Cost is not a consideration in this case. But when is your LO better off in a structured environment than dealing with caretakers that she can't stand?
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Adult Day Care
Does anyone have experience with the Embassy Forest Hills Center in Columbus, OH? I need to find some day care for my wife who has dementia, and want some personal recommendations. Thank you.
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Pool Safety?
I’m new here and this is my first post.. my mother (67) is a few years into Alzheimer’s and still living at home with my father who is her primary caregiver. I am about a 10 minute drive away, often busy with my kids (6 and 3), but I spend time with mom a few days a week to give my dad some down time. Mom is left alone…
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hospice
My dad is in memory care. I'm not sure the stage. He is totally incontinent but eats well, will answer a basic question if its a few words but does have "word salad" when he tries to say more than a few words. He usually only remembers his mom and dad and thinks they are still alive. My questions….since he is in memory…
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Dark humor
I’m tired so maybe that’s why the thought came to me that I’m finally a mother. DH and I were never blessed with kids. Now, I’ve become a parent! I realized this when MIL called for me at 3 AM. She couldn’t tell me why she’d called. I asked if she needed to go to the bathroom and she agreed. We went and after she was…
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Another good day
Consider this a continuation of something I posted in April. I wanted to update on how the not driving is going. It's now been about 2 months since DB last drove. YB has been having issues with a car repair and DB has leant him his car. The fix has been slow for a number of reasons, and DB is getting anxious. I got a call…
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Off Topic: Oprah's Recent Weight Loss Shiw
Oprah recently had a show on TV on which she presented several obese people with medical conditions affected by being obese. She touted the effects of medication (semaglutide) to help with weight loss for the morbidly obese. I have no issue with this. But Oprah is not morbidly obese, nor does she have medical problems that…
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Besoin de réponses
Bonjour Je suis nouvelle sur ce forum, mon mari a 62 ans et la maladie d'Alzheimer depuis janvier 2021, à ce jour je me pose beaucoup de questions sur cette maladie. Il vie cette maladie comme si il n'avait rien, refuse toute conversation même le mot Alzheimer. sur ce sujet. Comment lui faire comprendre qu'il faut que je…