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Bible Verse to Lift You Up 6/6/23
CALLED TO A GODLY LIFE BIBLE REFLECTION 2 Peter 1:2-3 (NIV) “Grace and peace be yours in abundance through the knowledge of God and of Jesus our Lord. “His divine power has given us everything we need for a godly life through our knowledge of him who called us by his own glory and goodness.” What are a few ways Christians…
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Mom wandered for the first time. Ready to give up on doing it myself (NYC)
I've been doing this for about 3 years now, It's exhausting, frustrating, but it was all I knew. She's EO (66 now) I love my mother but at the risk of sounding selfish I want to start the process ASAP of getting her proper care that doesn't involve me staying by her side 24/7. Because now I don't know when she'll just up…
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Trouble getting an appointment for diagnosis
Hello community - I am not sure if anyone has advice, but I am struggling to get an appointment for my mother to get diagnosed. Her primary care doctor believes Alzheimers is the likely diagnosis but we cannot get the right care plan in place without an official diagnosis. I am also scared for her safety - she seems to be…
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Feeling guilty and anxiety
Hi all, my mom is at a nursing home a little over an hour from me and has been for a few months now. Before this she was in the hospital for 4 months awaiting placement. In the last year or so my husband and I had not really taking time off due to moms increasing paranoia, hallucinations, and all the symptoms that come…
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When is it time to think of assisted living
My husband has had alzheimers for a few years now but it seems to be taking a negative turn, both physically and mentally. Nights, for me, are the worst as he is unsure of himself going to the bathroom (which he does alot), getting back to bed, etc. We have a helper most days but I work and this lack of sleep is making me…
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Drugs to Treat Alzheimer's Disease: Comparisons
There are two basic types of treatments for Alzheimer's disease: drugs that limit the formation of oxidants, and drugs/natural products that limit the formation of oxidants, remove them, and reverse part of the damage that they do to the brain. The second types of treatments are more effective. To limit the formation of…
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Recommendation needed for medicine containers
Hey Everyone, Thank you to everyone for their amazing support and knowledge. It sucks we are all on this road together. I need a recommendation. My mom is going to start taking her Galantamine, but I'm nervous she either won't take it or take too much. It's twice a day with food. She also needs her allergy pill. She…
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Resilience in Dementia Caregiving Webinar (sent by Michael Ellenbogen)
This seminiar looks like it could be interesting and valuable: The interagency Focus on Aging: Federal Partners’ Webinar Series addresses topics of interest for older adults, including those living with Alzheimer’s disease and other types of dementia. The next webinar in the Focus on Aging: Federal Partners’ Webinar…
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SSD denied
Hello, My 52 year old husband was diagnosed w EO Dementia/Alzheimer’s in February this year. He worked at a medical center at our State Univ from 2010-2022 then started a new job and had been there 6 months. He was denied SSD because he didn’t work where he contributed to SS over the past 10 years. He DID work at other…
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Next Steps, I'm at a Loss
Hi All, My heart goes out to anyone going through this. Thank you for standing with me, supporting me. I've written a couple of these discussion posts and gotten great advice, so I wanted to reach out again. Just as a mini-bit of feedback. I now have two parents with what we think is dementia. My father no longer speaks or…
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What can this be but that?
Hi Everyone, Thank you to everyone who has offered me help and advice, it is beyond appreciated. I have posted something along the lines of this, but now that I have more information, I wanted to reach out with a specific question, instead of a large post with lots of stuff at once. My mother is sick and I know that…
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By QBC- a vent about parents
I visited my parents in the AL today. My mom was out walking with the physical therapist when I got there. Which gave my step-dad the opening to tell me he wasn’t going to his first neurologist appointment next month. Because, of course, there is nothing wrong with him. It’s just so frustrating to try to deal with all his…
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Sitting in car with mom waiting for not real person
Usually she gives up it’s been 1.5 hours I don’t know how to get her to come to my house today
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Both parents in assisted living
Hello! My family and I are new to an Alzheimer's diagnosis. In fact, we have never had a relative with any kind of dementia, other than very mild cognitive decline, and that at a very advanced age. However, my 88-year-old father was diagnosed with Alzheimer's in September of 2022, and at that time he was likely heading…
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The new normal - which makes me bone tired
After the last few months of instability, I think Peggy is settling into a new normal as she hovers at the beginning of Stage 7. She eats only finger food now, none of us let her walk by herself anymore because she's likely to fall. She doesn't eat in the dining room anymore because there are too many people in there for…
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Caregiver with a Mother that has just been diagnosed with Dementia.
Pleasure to meet everyone and I'm very happy to find this group. My mother who is 78, has recently been diagnosed with Alzheimer's with a potential pathway of Dementia. Though this did not come as somewhat shock to myself and my siblings, we primarily found out after she was evicted from her apartment, her spouse left her…
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Help needed with severe situation.
I have posted about my current situation before. That both parents have cognitive problems. My dad went out for over 1 hour and 20 minutes on Sunday on a suspended Drivers license and no wallet with id. Then my mom tried to erase the camera system by powering down the cameras on the power strip. She additionally told the…
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Head's up to you caregivers!
I often read that caregivers put up calendars so their LOs with dementia can be prepared for appointments and events. I don't have Alzheimer's Disease but my memory and cognition are very bad and I want to tell you my experience. This afternoon I received a voice-mail message. Apparently, I had missed my medical…
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Lapse in Judgement
My mom was diagnosed with focal unaware seizures presumably left temporal onset ..and I want know if lapses of judgement can be seizure related or if Alzheimers or dementia might be setting in. My mom had a major lapse of judgement today. Today despite me warning her not to, she decided to open the door for a total…
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Self pay to Medicaid
Hello all, I am looking for any help I can get. I also need direction. I have a LO (82) MIL with VD who is currently in MC. The issue is that she will be running out of her retirement funds sometime during this time next year. I don't want to sound insensitive but can't take care of her any-more. I have my own MP. My…
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Need advice(26)
My husband and I moved his mother from Arizona to Minnesota about 2.5 years ago. She had the beginnings of dementia at the time and not surprisingly it has progressed. She is currently living in an assisted living facility (not in memory care). My husband and I visit her about once a week at her residence and, when she is…
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Bible Verse to Lift You Up 5/30/23
CHRIST GIVES ME STRENGTH * TODAY’S BIBLE VERSE Philippians 4:13 New King James Version “I can do all things through Christ who strengthens me.” * MEDITATION My parents were always there for my husband, our two children and me. Yet, I struggled as their caregiver, feeling sorry for myself. I thought, “Why me? Why do I have…
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WWD Coming to Vero Beach Film Festival!
Celebrate Alzheimer's & Brain Awareness Month in June by celebrating your big, bad caregiver selves at the movies! The dementia family caregiver documentary Wine, Women, & Dementia screening at: Vero Beach Film Festival Saturday, June 10, 12:00 noon IRC Commission Chambers - 1801 27th Street, Bldg A, (South), Vero Beach,…
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I need a friend/mentor
I am looking for someone to talk to. I’m so alone, sad and scared. My mom is 76 and is at the beginning stages and I am her primary caregiver.
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Tinnitus and Alzheimer's
My MIL with Alzheimer's has been complaining for about a month of buzzing/ringing in her ears. My husband tells her it is tinnitus and that she needs to turn on a TV or something to have sound to distract her. She has a doctor appt coming up and I will have it checked out there. But I really feel that this ringing is…
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Podcasts on FTD
I learned about this a week ago and have listened to three so far. She interviews various professionals such as nurse practitioners who work with dementia or especially FTD Posting in case they are helpful for anyone else. https://talkingftd4you.podbean.com/
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Alzheimer's online course
Where can I study to learn how to take care of my grandmother and care for myself when caring for someone with Alzheimer's
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Sleep issues
Hey I’m new so I hope this makes since. My client isn’t sleeping well at night but becomes very agitated after lunch because she’s so tired. How long should I let her nap so it doesn’t interfere with her sleep at night.
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Contacting Central & North Florida Alz Chapter
Are any of the forum admins able to get me a phone number or email for the Central & North Florida Alz Association Chapter? Wine, Women, & Dementia is playing the Vero Beach Film Festival so we are contacting caregiver support services in the area to spread the word. I called the 800 number and left my name and number, but…
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By QBC - lots of new people on the forum
One result of the recent forum revamp is lots of new people ( and the reemergence of lurkers) on the forum. It’s definitely changed the feel that the longer posters are used to. We are a very honest and open group here. We post what we think and feel in the moment. We have to to really get and give the best advice, support…