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When to suggest palliative care
My neighbor is age 91 years, with congestive heart failure, arthritis and macular degeneration, no dementia. She complains often of difficulty breathing. She spends most of her time in bed, getting up only to eat small meals which her housekeeper sets out for her, and to go to the bathroom. She refuses to go to urgent care…
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Conference: Caring For People With Memory Loss
CARING FOR PEOPLE WITH MEMORY LOSS JUNE 3, 2023 | 8:00 AM -4:30 PM CST | HYBRID CONFERENCE FREE HYBRID CONFERENCE REGISTER NOW! Choose to attend in-person or virtually via Zoom Join experts in a lively, informative discussion related to memory loss, caregiving tips, and what you can do to help. Register to attend for free…
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Bible Verse to Lift You Up 4/7/23
CURTAIN TORN WE NOW HAVE ACCESS TO GOD THE FATHER Luke 23:44-46 New International Version The Death of Jesus It was now about noon, and darkness came over the whole land until three in the afternoon, for the sun stopped shining. And the curtain of the temple was torn in two. Jesus called out with a loud voice, “Father,…
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Feeling judged
Dad was moved to MC almost two months ago from AL where he lived for almost three years after finding out he had Alzheimers. Dad also has just been diagnosed with cancer and has begun hospice. He has an old friend who has been judgmental of me for encouraging him to make the initial move and was vary angry at me when it…
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The programmers are trying
Today I got an email inviting me to complete a survey and then to participate in testing this website. So the organization is listening to us. However, they still have a few unrealistic expectations about the people using this website. Below is a partial paragraph about their test process: —…will be reaching out to you in…
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“Being Mortal” + hospice hospice hospice
Please please please take note: You do not have to decide yourself whether your LO is eligible for hospice. If your LO is declining, CALL THEM. Their assessment will give you the answer. You may not be ‘seeing’ what is clear to others. If you see your LO daily or even regularly,, sometimes their true condition is not…
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Support for mother-in-law
Hello. I recently got married. My husband want to live with his 84 year mother temporarily and I agreed. After a month I began seeing signs of mental and physical decline. My husband needs help but I have no clue on how. Apart of me feels resentment and the other part wants to support him. When I tell him about his mom…
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Confused
Husband was diagnosed in 2010 with moderate stage AD. The neurologist later said frontotemporal dementia. Thru 2017 there were no major problems. He drove, walked daily, handled money. In 2018 after being hospitalized twice with pneumonia things went down hill. He started getting lost driving &/or walking. He turned left…
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How Did Things Escalate So Bad So Fast
A few days ago I posted my first post on this website asking for advice. I was thinking I might have to put my DH in MC because he was starting to become aggressive . It was just a passing thought in my mind. I didn't thing it was anything urgent. Everyone who responded was so kind and nonjudgmental and gave me such good…
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Dementia post surgery affects
My sister in law was in a bad accident and post surgery her dementia progressed from her being functional to what appears like end stages of alzheimers. She doesn't recognize people in the current timeline and doesn't want to eat or drink and is bed ridden. Is there any hope she might improve at all? Or are we looking at…
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bad day
I've been optimistic about my partner who is recently diagnosed (although the changes started earlier) but today, I felt angry at my partner for some trivial matter, that anger grew, but, ultimately I realized I was overwhelmed with grief and needed to cry about the future "my husband and I were going to have" that is now…
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Bible Verse to Lift You Up 5/8/23
Dear Friends, I so appreciate your comments. Thank you for each one. Hugs, Veronica (Ronnie) Badowski * Isaiah 30:21 “Whether you turn to the right or to the left, your ears will hear a voice behind you, saying, ‘This is the way; walk in it.’” * VICTORY THOUGHT: God communicates with me; He directs my life. * POWER PRAYER:…
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Nutrition and Alzheimer's Disease
This is a good reivew of the potential of various nutritional interventions to slow down the progression of mild and moderate Alzheimer's disease. https://neurosciencenews.com/nutrition-alzheimers-cognition-23180/
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When to know if it’s the right time to put your parents into AL and how to go about it.
I love my parents deeply and have a great deal of respect for them however my dad has concussion syndrome from 2 previous falls and a brain bleed that has caused slight dementia, an auditory processing disorder and speech issues. My mom suffers from dementia and sciatica and a need to never follow Drs. Orders or physical…
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Dementia Super Stars
I've been in the game so long now I forget that newly minted caregivers may not be aware of the GOAT of dementia caregiving. Ladies and gentlemen, I give you... Dementia Super Stars! Yeah, we got 'em.
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A recap of the World Premiere! And info on the next festival...
Hello caregivers! I got a recap of the Wine, Women, & Dementia World Premiere at the Julien Dubuque Int'l Film Festival, and the skinny on our next festival - we are headed to Vero Beach Film Festival in June! More details in the post: Lock up your sons and daughters, Florida, Wine, Women, & Dementia is headed your way!
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Just a vent
I am having a difficult mental health day today and keep oscillating between negative comments about myself in my mind. I'm also struggling with engaging with my mom, I'm just socially tapped out. I am so frustrated. Now I just found out that the one caregiver I have some animosity with is coming in about half an hour for…
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Update on Mom and Angel
I thought I’d start a new thread to update how my mom and her dog Angel are getting along in MC and see if anyone has any helpful suggestions in the next phase of this dilemma. I originally posted about my mom’s obsession regarding feeding her food to her dog, Angel, how that obsession makes him sick enough to require vet…
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first time caregiver
i need some tips (anything you can think of) im a first time caregiver for a lady with dementia.i have no experience what so ever,but got hired anyway.this is my 2nd week and im honestly wanting to quit.this is the most stressful and overwhelming job i have ever had.when she has a bad moment and cussing me out or being…
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Unconditional - a documentary about caregiving
Here's the first paragraph of the article. TV news anchor Richard Lui’s second film, “Unconditional,” is personal. It follows half a dozen family caregivers as they navigate emotional and bureaucratic minefields. The film follows a diverse array of caregivers from all different backgrounds, across the United States. It…
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OT: internet question
Can anyone tell me, what does it mean to be "tagged" in a post?
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new facility/I blocked my mother's calls
I moved my mother into a facility that has all stages of care. This was after a couple of hospitalizations and rehab stints. Her last AL facility was fine, but she was there about 7 hours after a rehab stay and was re- hospitalized. I felt like this was going to be an ongoing cycle, so I made the decision to move her into…
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The many forms of caretaking
I am taking vacation from my mom (who is in AL) today. She doesn’t have a formal dementia or Alzheimer’s diagnosis but she does have “memory issues” and confusion. No UTI and no other tests. Doctor has still not ruled out atypical dementia but I’m pretty sure it’s because her primary is a first year resident and doesn’t…
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Aromatherapy in the Treatment of Alzheimer's Disease
I am not sure where to post any more since they took away the clinical trial forum, but I will start here. This is the latest among many articles and a few clinical trials dealing with the effects of aromatherapy on Alzheimer's disease and other forms of cognitive impairment. Natural essential oils derived from herbal…
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Posts for Michael Ellenbogen
A couple of us are going to start posting information received from Michael. Through his contacts he gets lots of important valuable news about dementia, which he has graciously shared on Alzconnected over the years. I will start with some of the items that he has sent me here. National Alzheimer's and Dementia Resource…
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My mom
So my mother had her Eeg test done on the 17th of March 2023. She was hospitalized for 6 days and then released... Her results were: Focal unaware Complex partial seizures Presumably left temporal lobe onset. Given all that she has gone through/goes through as some details given in previous posts..... Can this lead to…
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Donanemab
Does anyone have any more information on this new study? Said it might slow progression by attacking the plaques or eliminating them.
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The Alzheimers Association site has become just to complicated for me and I am really thinking
The Alzheimers Association site has become just to complicated for me and I am really thinking of giving up. I have asked for help from moderators and they just ignore you. That don car one bit about those with dementia and the caregivers. This change was a disaster and they are maying changes by the seat of their paints.…
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When other residents leave AL / MC does mom understand?
My mom has been in AL for over a year now. She is fully integrated in the community and has friends and is well liked by staff. Lately sadly there have been several departures. A few folks passed, and a few folks are moving to families homes or out of state. Today one of my moms best friends had to say good bye and when…
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Had a hilarious 'conversation' with Peggy today
So, I didn't go to memory care today, but I called Peggy on the phone. The first thing she asked me was if our parents had passed away. I said "yes...." waiting for the meltdown to start. Instead, she said "Oh! I didn't know!" So we talked about our parents for a few moments. Then she asked if me and my brother had also…