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Things to Remember
I am a brand new joiner and I have no idea why I didn't do this 3 years ago. Everyone battling this disease with a love one please remember that our loved ones did not ask for this and they can't do anything about it. Therefore, it is left to the ones that pull up their boots and dive into the situation, at times with no…
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Rocking and crashing into things
I made a lighthearted comment the other day that I needed to wrap my FIL’s geri-chair (and furniture) in bubble wrap, but it is really gotten worse and I’m wondering if there is an underlying issue. We did manage to get a urine catch yesterday with a condom catheter so waiting on the results of that. Anyway, if the wheels…
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Their awareness
My LO is stage 7a; that’s the best guess by hospice. She still seems to know that I’m significant, but sometimes thinks that I’m her sister, niece or one of my other sibling. The other day she directed a question at both me and my sister, she said, “which one are you?” We do not look alike. But that day she was adamant…
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New, 1st Post & Exhausted
I'm exhausted dealing with my Mom. A year ago I moved her to the house at end of driveway. She seems to be changing fast, at least to me. Saw Neuro & she has normal pressure hydrocephalus. Did not pass 5 min memory test but did ok. Will now have 4 hour memory test then back to dr. I don't know what that test shows. I'm…
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Mystery Solved - Stomach/Bowel Issue Since Hospital
Hi all that chimed in to help me with a previous post. Turns out the problem was not the iron pills (although will keep watch once back home hopefully). We tapered down, we changed to a slow release, and we eliminated for a few days and problem still not solved. Yesterday, while I was there, it got even worse although he…
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How To Know Where A Loved Ones Head Truly Is
I'm sure much of what I'm going to say is redundant to so many here. Its been about 6-8 months since my mother has been, somewhat, diagnosed. Its been a real struggle learning the best way to care for her, and keep myself grounded. One of the most difficult aspects I deal with, is knowing where her mind is. There are…
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Enacting POA
My mother has undiagnosed dementia. Recently she is having significant paranoia and delusions. She refuses to go to memory care clinic for evaluation and diagnosis. She lives on her own with my brother living about 20 minutes away. We are her HCP's and POA's but only if she is considered not legally competent. What do we…
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Help with juggling children and my mother who has Alzheimer’s, dementia, macular degeneration, and c
I’m new here. My 89 year old mother was just diagnosed with Alzheimer’s and dementia. She also hasmacular degeneration in both her eyes. She had 3 compound vertebrae fractures in her lower back back in February. Now she thinks she can’t walk or do anything for herself. I moved in to take care of her with my 3 young…
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Bible Verse to Lift You Up 6/9/22
A WORTHWHILE LIFE Mark 12:28-34 Good News Translation The Great Commandment 28 A teacher of the Law was there who heard the discussion. He saw that Jesus had given the Sadducees a good answer, so he came to him with a question: “Which commandment is the most important of all?” 29 Jesus replied, “The most important one is…
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Visiting in AL
I moved my mom into AL on Monday. I had her go out with family members for the day and then drop her off at the new place, we were there to help her get settled. We had dinner with her and got her settled. She has been more busy in the last 4 days than the last 4 years. She is so happy and positive. We get great calls…
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Pick my Battles?
My Mom is 91 with early late stage Alzheimers. We have been able to keep her in our family home. I have a full time live in care giver to help me. She's no longer ambulatory, verbal but seldom makes sense and is very hard to transfer because she really doesn't want to be touched. My Dad is 94 and still lives in the home as…
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I don't know what to do(6)
I thought Hospice Pallitive Care was a good thing, until now. I am the daughter of an 81 YO Alz Mom. She lives with me and has been going to a day program. She has no major issues besides Alz. I got Hospice because I thought I would get some relief. Her anxiety (severe itching) was off the charts. They were going to give…
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Tricks, resources for keeping up on medicines
My 76-year-old mom has been diagnosed in the past year with a mild cognitive impairment and inoperable lung cancer. She has medicines to take in the morning and in the evening. My question: Is there a service I can use to make sure she is taking her medicines? I am in Idaho and she is in Maryland. She doesn't want full…
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PLEASE HELP!(2)
My grandma has dementia. She was diagnosed by her primary and she needed to go to s specialist to see just how far along she is, needless to say she DOESN'T want to do that because she doesn't think anything is wrong with her... My dad and step mother who moved in with her to help her with bills since she only gets her ss.…
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Forgetting how to inhale breathing meds
Starting a new thread to continue the emerging discussion from our Hospice Recert - good news posts. https://www.alzconnected.org/discussion.aspx?g=posts&t=2147561124 Others dealing with chronic respiratory conditions may want to chime in if their PWDs have gone through the issue we are having — DH is no longer…
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Can someone help me figure out how to convince my wife to work with me on detecting and establishing
My wife’s father passed away 10 years ago from ALZ after struggling and declining for almost two decades from his first diagnosis at age 63. My wife is now 63 and I believe she is beginning to show similar symptoms as her father had: increased agitation, declining ability with time/dates/money, irritation. Memory is still…
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Struggling with care plan - first post
I've seen a lot of similar stories posted here but....I hope I can get some good advice and feedback from the group. My mother (currently age 86) started down the Alzheimer's path several years ago, but the decline has been especially precipitous in the past year (due to a combination of a fall & fractures, and the COVID…
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I need to vent
Let me start by saying this, I do not have time for smart comments or any rudeness. Hence why I have stopped posting on here before. I’m very frustrated, My Aunt is getting worse. Today while at the nailery she became enraged because she didn’t want the nail tech to cut her natural nails down short and started cursing,…
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Should she go to the dermatologist?
My mom has a suspicious growth on her back. Originally the hospice doc said, from pictures, that it looked like a cutaneous horn, which is most likely a benign lesion. Well it’s changed and grown and looks like a melanoma to me. I’m not a doctor and will have them look again. My mom has had a few cancerous and…
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Trying to solve a mystery here - stomach issue since hospital.
Dad has been back in his home for a week now and we have been dealing with an all-day-long upset stomach issue. The next day after getting from the hospital, I came in to find dad in a dirty diaper and stressed to sister that we have to try and keep him changed although I know the nursing home and hospitals were not doing…
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Full Code Hospice Patients and Nurse Responsibilities
Many people do not know that their Loved One can be on a full code resuscitation status; the following link discusses that and also has detailed information for nurses regarding their responsibilities especially addressing biases: https://www.myamericannurse.com/innovative-care-approach-hospice-patients/ J
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Emotional vent about dementia stigma
My mom won't tell anyone about my dad having dementia. Not even his sisters or her brothers let alone any family friends local to us. My nephrologist and shrink are begging me to reduce my stress. I've lost 34 pounds in three months. I can't tell how much she has lost, but when I hug her, she's getting so thin. I'm…
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The CPSC Recalls Certain Bed Rails
CPSC recalls certain adult portable bed rails, safety devices linked to deaths : NPR
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Mother in law doesn’t want to move
My spouse is trying to move her mom to a different assisted care facility, since she will soon need memory care and the other facility will eventually bill Medicaid. Her daughter has power of attorney, but MiL says she will revoke that as she still has substantial capacity. Until very recently, she had been asking to move…
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Oral surgery risks?
I've read through various posts about dental care and oral surgery on this site, going back in time, and I am not sure what to do. If anyone knows an oral surgeon who works with people living with dementia, in the Boston area, please let me know. My mother, who I think is in Middle Stage (it's been about 7 years since MCI…
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anyone uses full code hospice
Hello, I just hope to hear anyone's experience of selecting full code hospice for elder dementia parents. We have full code for my mom but the rehab did not implement. Very sad. Thanks. DP
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Toxic Weekend
I'm new here. My mom is living with me. She's 88 and have mid/moderate dementia, hearing loss, anxiety, and depression. In turn, I am anxious and depressed. It's been particularly bad this week and weekend. She doesn't have a social life at all, refuses to join any clubs or anything, and when asked if she'd like to move…
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Aggressive behavior and alternative treatments
Good evening all, I am new here. My mother is 80 years old and newly diagnosed but we've known longer than we have admitted to ourselves. My dad, sister and myself did not have a good relationship with my mother prior to this partly because of her narcissism. For me caring for her is difficult, a challenge to care for…
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dementia and trouble regulating body temp?
It’s 78 degrees F outside at midnight and upper 90s in the day and my dad keeps turning the heat on. Is this part of dementia? I’m trying to figure out if he’s struggling with using the thermostat or if he’s cold so I can help. He won’t talk to me about it.
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Advice for door locks
We are new to all of this. My MIL has moved in with my husband and I and our two kids 11 and 9. It's been a learning experience to be sure. After reading some posts she is in good shape so far. Unfortunately she loves to putz late at night. She will spend hours picking small things off the floor. The last few nights we…