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I need to vent
Let me start by saying this, I do not have time for smart comments or any rudeness. Hence why I have stopped posting on here before. I’m very frustrated, My Aunt is getting worse. Today while at the nailery she became enraged because she didn’t want the nail tech to cut her natural nails down short and started cursing,…
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Should she go to the dermatologist?
My mom has a suspicious growth on her back. Originally the hospice doc said, from pictures, that it looked like a cutaneous horn, which is most likely a benign lesion. Well it’s changed and grown and looks like a melanoma to me. I’m not a doctor and will have them look again. My mom has had a few cancerous and…
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Trying to solve a mystery here - stomach issue since hospital.
Dad has been back in his home for a week now and we have been dealing with an all-day-long upset stomach issue. The next day after getting from the hospital, I came in to find dad in a dirty diaper and stressed to sister that we have to try and keep him changed although I know the nursing home and hospitals were not doing…
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Full Code Hospice Patients and Nurse Responsibilities
Many people do not know that their Loved One can be on a full code resuscitation status; the following link discusses that and also has detailed information for nurses regarding their responsibilities especially addressing biases: https://www.myamericannurse.com/innovative-care-approach-hospice-patients/ J
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Emotional vent about dementia stigma
My mom won't tell anyone about my dad having dementia. Not even his sisters or her brothers let alone any family friends local to us. My nephrologist and shrink are begging me to reduce my stress. I've lost 34 pounds in three months. I can't tell how much she has lost, but when I hug her, she's getting so thin. I'm…
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The CPSC Recalls Certain Bed Rails
CPSC recalls certain adult portable bed rails, safety devices linked to deaths : NPR
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Mother in law doesn’t want to move
My spouse is trying to move her mom to a different assisted care facility, since she will soon need memory care and the other facility will eventually bill Medicaid. Her daughter has power of attorney, but MiL says she will revoke that as she still has substantial capacity. Until very recently, she had been asking to move…
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Oral surgery risks?
I've read through various posts about dental care and oral surgery on this site, going back in time, and I am not sure what to do. If anyone knows an oral surgeon who works with people living with dementia, in the Boston area, please let me know. My mother, who I think is in Middle Stage (it's been about 7 years since MCI…
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anyone uses full code hospice
Hello, I just hope to hear anyone's experience of selecting full code hospice for elder dementia parents. We have full code for my mom but the rehab did not implement. Very sad. Thanks. DP
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Toxic Weekend
I'm new here. My mom is living with me. She's 88 and have mid/moderate dementia, hearing loss, anxiety, and depression. In turn, I am anxious and depressed. It's been particularly bad this week and weekend. She doesn't have a social life at all, refuses to join any clubs or anything, and when asked if she'd like to move…
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Aggressive behavior and alternative treatments
Good evening all, I am new here. My mother is 80 years old and newly diagnosed but we've known longer than we have admitted to ourselves. My dad, sister and myself did not have a good relationship with my mother prior to this partly because of her narcissism. For me caring for her is difficult, a challenge to care for…
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dementia and trouble regulating body temp?
It’s 78 degrees F outside at midnight and upper 90s in the day and my dad keeps turning the heat on. Is this part of dementia? I’m trying to figure out if he’s struggling with using the thermostat or if he’s cold so I can help. He won’t talk to me about it.
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Advice for door locks
We are new to all of this. My MIL has moved in with my husband and I and our two kids 11 and 9. It's been a learning experience to be sure. After reading some posts she is in good shape so far. Unfortunately she loves to putz late at night. She will spend hours picking small things off the floor. The last few nights we…
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new and need help advice
I am new and I am taking care of my mother and father. I am emotionally and physically drained. With my brother's help we make sure our parents have meals, do the daily things needed and take them to the store. They live in their own home together and are married for 66 years. They do not want to go to an assisted living…
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Want to help Dad, he won't let me
Hi, I am new here and just want to see if anyone may have any advice for me. My dad was just diagnosed with ALZ in February 2022 but has been showing many signs quite a bit before this. My mother has vascular dementia and has been in AL for a year. They have been married over 60 years. She''s doing incredibly well where…
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The struggle of preserving their dignity!
My LO is a dignified 70 year old lady who has been accomplished during her life. She always worked hard and raised two boys herself after being left by the father during pregnancy, and took the opportunity to go to college. She has been very strong and resilient. Unfortunately, she has now declined to a state in which she…
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Can’t call mom
Today I am putting down a deposit for a place for my mom. We are still not 100% sure if it will be in AL or MC, but I know for 100% that this sucks. My heart breaks knowing I will have to do this. I had dream after dream last night about it. Sleep is hard to come. And I constantly think of what the day will look like when…
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Hospice recert decision - good news
Forum mates - following up to share the decision: DH is continuing on hospice. Will be reviewed again in 60 days as always. I was prepared for either decision to be "good news" as my earlier post noted. https://www.alzconnected.org/discussion.aspx?tid=2147561119&g=posts&t=2147561109 There are pluses and minuses to…
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New and looking for any initial tips and guidance.
My mother in law is in her 70s. Both of her parents had Alzheimer’s. We’ve always thought that it could be something she’d have to go through as well. In the recent years we’ve noticed some changes and in the last few months it has become more and more apparent that we need to help. At this time she can not get through a…
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Illness and dementia
Any advice for male with middle-stage Alz who has the crud that's going around? We managed to get to a family wedding (a long trip, but a huge blessing) but we (parents, myself, and my husband) got sick after returning. My mother got my Dad to the doctor yesterday, and he has bronchitis and sinus. He is still living at…
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How did you deal with the transition of walking with assistance to bedbound?
My LO can currently walk with assistance. She is "not allowed" to walk without that assistance due to her wandering and falling, as she will not use her cane or walker. Since the diagnosis of this disease and not being able to feed herself very well, she has lost relatively quite a lot of weight and is now very light and…
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A few questions on the benefits of Continuing Care
Hi All, We have been evaluating, touring and interviewing various MC's for our LO, who has stage 4 (with signs of stage 5) Alzheimer's. I understand the benefits of a MC facility also having LT Care, but what is the difference between LT Care and LT Memory Care? Is LT Care usually sufficient for an Alzheimer's resident or…
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Bible Verse to Lift You Up 62/22
IMITATE CHRIST GOD THOUGHT: Ephesians 5:1-2 NIV “Follow God’s example, therefore, as dearly loved children and walk in the way of love, just as Christ loved us and gave himself up for us as a fragrant offering and sacrifice to God.” VICTORY THOUGHT: I love people when I am willing to sacrifice my time, talent and energy…
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Best way to handle prescription medications
My mother is at the stage where she's independent enough to live on her own, but she's not able to handle her medications. When the pharmacy calls to tell her she has a prescription ready, she picks it up and sets it on her kitchen countertop. I come over on the weekend and fill her locked, medication dispenser and she has…
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Terrible Week! Could this be progression.
I’ve been keeping track of things that don’t seem right with my mom for the last 2 years. My mom has no formal diagnosis. She refuses to get tested etc..From January to April there were 11 things that I noticed with her memory or behaviour. In the last month there have been 8 of these things. Three of them last week, which…
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Progression may get him booted from hospice
DH has a recertification visit today, requested by a new team member yesterday afternoon. It is possible he will “graduate” from hospice, mainly due to his weight gain which is a no-no basically. To clarify, one of the expected signals of decline for hospice is weight loss. Unfortunately, his brain is failing in the area…
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Medicaid nursing home staffing law in Illinois
Here is the link. Your thoughts as to if it will help? No idea why the link isn’t activated Check out this article from The State Journal-Register: Pritzker signs bill to provide $700 million annually for nursing home staffing…
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THE BIG M WAS TOLD THE BAD NEWS!!!
So...I told mom we needed to put her in assisted living. I said that she was getting worse and she needed more monitoring and I was not able to do that. There was a silence and she said she's not going. She'll run away. I told her if she did that how would she find her way back to the house? She said, "Well, now I have to…
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Prevagen
My mom was diagnosed with Alzheimer’s in August 2021 and has been very resistant to the diagnosis and any medication. She finally agreed to take Celexa and Aricept and eventually Namenda. However, she stopped taking her meds in February because she said she was tired of everyone else telling her what to do. Now, I have…
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Having a tough time dealing
Okay you guys here's the situation. My grandmother was diagnosed with moderate to severe dementia earlier this month. We had noticed that something was going when she started to forget important dates and around the holidays this past year when she forgot to pay bills that normally she was always early or on time for. The…