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Health Changes
So my LOs health is changing. She has bad knees, which make it hard for her to stand. She is losing strength too. She’s been in assisted living since last December, I’ve brought her home a few times since she moved into the facility - for family get together or cook outs. She uses a transport wheelchair while at my house.…
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Child of Patient vs. Spouse of Patient
I'm very glad this forum is here. Here is my situation: My mother is 78, in the middle stages of dementia. It is difficult for her to complete a sentence, and her short term memory is basically non-existent. Her husband (my step father) suffered a major stroke a few years ago and lost the use of his right side. They live…
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Bible Verse to Lift You Up 6/25/22
UNION WITH JESUS * John 15:5 AMP "I am the Vine; you are the branches. The one who remains in Me and I in him bears much fruit, for [otherwise] apart from Me [that is, cut off from vital union with Me] you can do nothing." me: Prayer, worship, praise and meditation on Jesus' Words are what we need to stay in union with…
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Hospice won't accept non-Alzheimer's dementia patients?
Has anyone encountered a hospice program that will not accept non-Alzheimer's dementia patients covered by Medicare? One of our local hospice programs evaluated my wife (who has vascular dementia) but would not accept her because - according to them - "Medicare will not cover hospice care for dementia patients unless they…
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Thank you all for the support for MC move day
We did it! Thank you all so much for the support along the way. May Flowers especially you. Yesterday I started the story. Told mom that when the apartment next door to hers was being worked on they messed up something with the plumbing and the water would be cut off today. We would have to make a temporary move, but it…
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New Caregiver(3)
Good morning. I am new to being a caregiver for my 80 year old father. He was diagnosed with dementia in 2015. My mom took excellent care of him until her death 9 weeks ago. Since that time, my dad has been moved into my home. He has accused me of kidnapping him. Everyday he asks where my mom is, what time is she picking…
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Days to the move
I will be moving my mom in just 3 days. I will tell her about the move the day before. I wake up rehearsing what I will say. I fall asleep rehearsing what I will say. All while imagining her response. She presents very well and is very verbal and able to tell you how she is feeling so this scares me. I hate to see her…
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Happy Father's Day
Sending warmest wishes for a Happy Father's Day to all fathers and all those who have served as father's to children . . . you have given much to children's futures with one of the two most important figures in a child's life . . . (the other being Mother.) J.
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Looking for Dad, redirect
Good morning. Just wanted to pop in since I was up. I "caught" mom out in the hall looking for dad. Monday he had a stroke and was hospitalized and against better judgement my older sister took her to see him Tuesday. He's doing great now and they're looking to see about discharge. Mom thought he was dead. This wasn't the…
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charitable donations
Is the Alzheimer's Association a good place to send donations or do those that run it take alot in salaries? My DH is 92 and has AD and for future reference I want to know when he passes if I should list the Association as a choice for friends and family to send donations in his name.
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Should we try harder to move Mom?
I am new to this group. this is kind of long as I provide background. The question I want to ask is “should we be trying harder to relocate Mom? Would she benefit from a move?” Mom is 85, and was diagnosed with AD 4 or 5 years ago. Symptoms came on suddenly associated with a UTI. She did OK at home with Dad for a couple…
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New here. Stressed to max
I've much to say but have spent more time reading the forum more than anything thus far. I hate for this to be my first post but I feel like I have to start somewhere. I'm getting desperate.
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TV watching and change in sleep patterns
My single mother, 74 yrs old, was recently diagnosed a year ago with Mild Cognitive impairment and lives alone with her cat in a townhouse condo about 45 minutes away from me. She LOVES watching her netflix movies and shows for hours on end (The same show over and over again) and I've noticed it's starting to affect her…
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Bible Verse to Lift You Up 6/22/22
ASK WITH FAITH GOD THOUGHT: James 1:6 NIV “But when you ask, you must believe and not doubt, because the one who doubts is like a wave of the sea, blown and tossed by the wind. “ VICTORY THOUGHT: I must have faith God will answer my prayers, or I will be like a leaf tossed in the wind. POWER PRAYER: Spirit of Holiness,…
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Selling her car!!!
After months of discussion, we are finally selling my EOLO's car!!! She hasn't been able to drive for months - dr instructions. We have had several conversations, quotes and finally agreement. She is sad as this is a major milestone in her life. But she has agreed!! I am truly estatic to this progress! Baby steps....
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The Big Family Meeting
We held our first "in-person" family meeting this last Saturday. My EO/LO has been involved with the planning of this meeting for the last couple of weeks. Unfortunately, on the day, she thought we were just having a BBQ. Needless to say, when we discussed, as a family, her current diagnosis and situation, she was…
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Frustrated(12)
I have two LOs with dementia. My mother, she’s at the beginning of stage seven. My older sis, she is early to middle stage. Sis has one estranged daughter, and is a widower. She has been our mothers companion for about eight years. Sis fell last Nov, broke her hip. Before that, she had been diagnosed with puesdo-dementia -…
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Sleep Problems more info
I am the caregiver along with my sister for our 101 year old father. His dementia has gotten worse since a recent 3 week hospital stay. He is home now but dependent on my sister and me for everything, He is obsessed with going to the bathroom multiple times a day, most of the times he doesn't go at all. Since he needs help…
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Change after covid
Mom is in hospice and close to end stage. She’s vaccinated so when she got Covid two weeks ago, she had few symptoms and is now dealing mostly with fatigue and dehydration. We are working on both and she is getting back to where she was before the virus. However, tonight she had some improved cognitive ability that…
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Thank You ALZ Connected from Can't Give Up
I've been in this fight for almost a decade, and in ONE day, I got more help and understanding and advice...than I've had throughout this entire time. I was a fool to believe this sickness wouldn't progress further. I was a fool to think I could handle it on my own. Like the tide, it keeps coming. But at least I have all…
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New here & SO tired!
Hello, I'm new here. I've been taking care of my mother with dementia for quite a while now. For a few years it has slowly progressed. The other day she forgot how to wash her hands. I work at an office 40 hours a week and I have security cameras all over the house so I can keep an eye on her. We also have a roommate that…
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Mom passed away(2)
Hi Everyone, Wanted to let you all know that on Thurs my sweet little mom finally got her dearest wish - to be with the Lord. I'd noticed her declining quite a bit in the last month, and had posted recently about these sort of exhausted collapses that I didn't understand. She lives/d in our home, and there were some pretty…
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Roller Coaster Ride - Update on Dad
Since the broken hip, he has taking hit after hit after hit. The cdiff diagnosis in which they admitted him and then turned right around and sent him home three days later swollen like a balloon, breathing was horrible, not really being able to take down liquids or soft foods. Knew he was not ready to be discharged and…
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Hand wringing and clutching hands together
Suggestions for this behavior?
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Father's Day wishes
Wishing all you amazing caregiver fathers and father figures a good day. Also sending hugs to those for whom this is the first heavenly or MC Father’s day for your LO. May you find some happy moments today. Thinking of you.
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Recent Alzheimer’s diagnosis
Good morning, my mother was diagnosed with Alzheimer’s just last week. She lived alone up until her diagnosis and her doctor suggests assisted living for her. I would like to take care of my mom instead of a facility option but the problem is I work full time and would have to give up my job to take care of her. Is there…
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Questions Frontal Temporal deficits
Where do I begin?...My mom has been having trouble since beginning of this year...multiple ER visits...for different things..she's been told she's full of bowels ( figured that one out)...March 12 Went to Er for uncontrollable shaking, ( ER night mare that night)...she bottomed out when they drew blood/ start iv...(…
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Dad was just put in memory care - Questions
Hello, I love my parents very, very much. So happy to find this resource. I am looking for a zoom call as well for support. A few days ago we put our Dad (93) in memory care. He has VD. I have never been told the stage. I would say based on a few YouTube videos he is moderate or borderline severe. When we visit him he…
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Skyrocketing cost of home health - How are you all coping?
Hello ALZ Connected, My LO has ALZ and she is about stage 5. She walks with her canes, reads her newspapers, knows who I am, is not aggressive anymore, and is overall happy and quiet. This is so unless there's a home health aide at the house and then all (stuff) breaks loose. For this reason I gave up on home health aides…
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Burnout(2)
What happens if a family has been caregiver for so long they are experiencing severe burnout but cannot afford nursing home and no programs are available. Does the state get involved or does the family just spontaneously combust? There are no daycare programs the elder can do, no services available and only one friend who…