-
95% clarity for the past 6 days for mom after 5 years of steady decline.
We are truly at a loss with what to do next. Mom has been on a steady decline for the past 5 years after diagnosis of dementia. She is pretty high functioning in regards to self care, however; cannot cook, clean, pay bills, keep appointments/make appointments, etc. My brother is living with her and is at wits end with what…
-
Estranged mother with dementia
My mother was very difficult for many years. She is affected by an alcoholic family, unresolved trauma, and possibly a personality disorder, and was very hard on me, including repeated specific patterns of harm over time. A few years ago, it was clear to her that she was becoming demented, and being in the healthcare…
-
Second guessing(1)
I’ve posted before about my 79 year old mom with ALZ. I would put my mom at a stage 5. She had a knee replacement about 6 weeks ago. I have POA. She’s a widow and lived alone in a condo building. After the surgery, my sister and I got her into MC. We told her it was for PT. Then after a while, she was done with PT and…
-
Please help me with where to start?
I live with my elderly mother who is exhibiting some troubling symptoms. She has been chronically ill and in and out of hospitals and rehabs for the last few years. Most of her medical issues are pretty much under control but lately she has been having what I guess you would call delusions (I have never been 100% clear…
-
Feeling lost(4)
I have been reading everyone's post for a few days now and have finally gained the strength to write my own . For the last year my family has notice some memory issues with my mother, my best friend. At first we thought it was just signs of aging since it did not drastically impact her daily life and she is 75 yrs. old. On…
-
Advice for MCI and anosognosia
Hello everyone. I wrote the board a month ago and the advice has been so helpful. I've done more research and am working on moving down to my LO, getting an elder care attorney, and POA. But, my question now is how do you go about making lifestyle, particularly financial, changes for a LO who doesn't have the awareness of…
-
Question re reading strategies
My husband who has been diagnosed with Lewy Body & Mixed Dementia in 2020, but I believe has had the dementia even 7-10 years prior, does the following to a book that he reads. When asked what he was reading about, he can't really accurately say, but is good in making up a story. Look at what he does to page of a book he…
-
When consider moving to medicalized home?
Hello to all, My mom has Alzheimer. She’s stage 5 going into 6 for those who know about the levels. I have 3 care givers at her home who shift and take care of her, alongside my sister and I who manage every day and shift twice a week. My mom is still pretty healthy (though declining as her brain says no to everything) as…
-
Wants to go home - won't be redirected
Dad is in an SNF after a stroke last November broke his hip, weakened his right side, and affected his cognition. I had hoped he could recover enough to come home, but he refused to do PT or OT after a couple of months, and his cognition has continued to decline (he usually thinks he's still in college or the army). He's…
-
What gives you a headache?
I swear at least every other day I get a pounding headache from all the drama and yelling that my son with EO has daily. Today: "You just fricasseed my brain!" Repeat 20 - 40 times. Not exaggerating. Loudly. Poor son just got shaved and a great shower from an extraordinary and patient caregiver. Life with Alzheimer's. Boy,…
-
Losing my grandfather
My 18 year old granddaughter is struggling as she is losing her Best Friend , her grandfather, to Alzheimer’s. If I could direct her to a forum that includes this type of relationship it may help her to cope with his final stages.
-
How to Encourage LO w/Alzheimer's to Socialize?
My mom was just diagnosed with the early stages of Alzheimer's and the doctor recommended that she get more intellectual stimulation from interacting with friends and peers - but unfortunately, my mom has been increasingly withdrawing from seeing people other than her immediate family members. After her diagnosis, we had…
-
Dad's Paranoia
I haven't been here in some time. My dad has gotten better physically, but continues his decline cognitively. He has been started on Serequel by the doctor because of his aggressive behavior. It has helped, but paranoia has been a new symptom. He calls me and tells me that I have stolen his money. That is upsetting, but he…
-
Support Groups for Family Members?
Does anyone know of any virtual support groups that have been helpful for them? My father has late stage Alzheimers and is now in a memory care center for about a month now. Struggling with a lot of it so I’m looking to see if there’s any support groups that have been helpful? Thanks!
-
A very resistant FIL - clearly dementia but refusing to sign a POA, see doctor, etc
Hey all, hope you’re keeping well. I made a post about being new to this situation recently and was super helpful and supportive. I was looking for some more advice if possible! We are in the UK if that helps. My bf is looking after his dad at the mo who clearly has dementia. He wanders and gets lost in his two bed flat,…
-
Home Health Care vs Hospice
So we’re faced with the daunting real possibility that hospice is going to discharge mom in a couple of weeks. She’s in “the yellow zone” meaning she’s stable and they probably can’t do more for her than I can, so they say. I just pulled the trigger on the hospital bed a week or so ago and still getting used to it. Oh…
-
Rehab in late stage
My dad has been in memory care for about four years. The past month has been a roller coaster of increased decline and emotions, with me coming to grips that I have been in denial about just how advanced he is. Last week we saw a dramatic plunge: unable to wake, unintelligible conversation, increase in hallucinations,…
-
Chronic headache after Covid vaccine
DW has had a headache all day, every day since her first Covid shot over a year ago. Has anyone else heard of this?
-
Arm sleeves
Hi All! Any suggestions for arm sleeves to protect mom from scratching herself? The sleeves the facility uses keep slipping down. She has a bad tear right now. Her dementia is too far gone to reason with her to stop scratching. I've looked at couple on line. Thanks for your help.
-
Wants to move to another facility and communication
My mom is 89 years old and was diagnosed with age-related dementia several years ago. Because of declining cognitive and mobility issues (several and frequent falls some of which resulted in ER visits), we have had to move her for her safety from her independent living apartment to AL to the MC unit at her life-care…
-
My experience with Covid
I am an older woman, over age 70, with systemic lupus, allergies and asthma, and a few other chronic illnesses. I successfully protected myself from Covid over these past two years until this past week. I attended a house party on Saturday, and on Tuesday I noticed runny nose and sneezing. Since I have allergies I was not…
-
Music player
Last year when we moved my FIL to MC, I bought a dementia-friendly music player (one huge “ON/OFF” button) and put all his CDs on it. Around 1000 songs I think, songs from the 40s, 50s, hymns, Statler brothers, etc. So these were songs he knew well, pre-dementia. The player can hold 3000 songs or such. He was able to work…
-
Vertigo?
When she is positioned on her side she thinks she is falling. It's so sad I don't know what to do. She calls out "help me please help me" and calling out for her mommy, dad and her husband, my father. No amount of reasoning or assurance she is okay doesn't help. She gets a death grip on the rail on the bed and won't be…
-
Transfer to Memory Care
My DH has been in the hospital for almost 2 weeks after fracturing his ankle in 2 places. He is almost finished with in hospital rehab and will go to Memory Care in the bldg next to our independent living apartment. I knew this would happen one day and I am a mixture of relief and anxiety as I have taken care of him for 4…
-
Adult Day Care for ALZ bad idea?
Hello ALZ Connected, LO is at stage 5 and lives in my home. Other siblings can't/don't want to take on any caregiving duties at all. LO does not respond well at all to home health aides so I use them as needed now, maybe 1 or 2 days a month. LO is 90 and is overall happy and in good health, no major issues outside of…
-
Alzheimer sister lives out of state
I am the youngest of 7 siblings. My 79 year-old sisters currently lives in an assisted living facility in Los Angeles. She has been there more than one year. I live in Florida and have a hard time staying in touch with her. She has lost her cell phone twice. She has one daughter that lives nearby and two other sisters who…
-
Are you entitled to benefits you don't know about?
https://benefitscheckup.org/#/
-
Weeping Edema
Well this is new and different. Didn’t know this was even a thing. Moms legs, mainly calves, have been retaining water for quite some time. Elevating hasn’t seemed to help at all ever. Yesterday I couldn’t figure out what was going on with this small hole that water would rush out of if I got near it. Otherwise it just…
-
First doctor visit
I am a 35 year friend of my LO. She has given me permission to speak on her behalf to doctors. Tomorrow, she, her husband (who may also be having memory problems) have the first doctor appointment to address her loss of memory, anxiety, and “foggy days”; I will be there as advocate. There are a number of factors that…
-
Dental Awareness
There was a "ghost" post recently that talked about dental and it reminded me to post a caution based on DH recent experience. A couple years ago when DH was early into stage 5 he kept asking when his dental appointment was. He never said he had a bad tooth but when the appointment came it turned out that he had a wisdom…