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New here. Stressed to max
I've much to say but have spent more time reading the forum more than anything thus far. I hate for this to be my first post but I feel like I have to start somewhere. I'm getting desperate.
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TV watching and change in sleep patterns
My single mother, 74 yrs old, was recently diagnosed a year ago with Mild Cognitive impairment and lives alone with her cat in a townhouse condo about 45 minutes away from me. She LOVES watching her netflix movies and shows for hours on end (The same show over and over again) and I've noticed it's starting to affect her…
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Bible Verse to Lift You Up 6/22/22
ASK WITH FAITH GOD THOUGHT: James 1:6 NIV “But when you ask, you must believe and not doubt, because the one who doubts is like a wave of the sea, blown and tossed by the wind. “ VICTORY THOUGHT: I must have faith God will answer my prayers, or I will be like a leaf tossed in the wind. POWER PRAYER: Spirit of Holiness,…
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Selling her car!!!
After months of discussion, we are finally selling my EOLO's car!!! She hasn't been able to drive for months - dr instructions. We have had several conversations, quotes and finally agreement. She is sad as this is a major milestone in her life. But she has agreed!! I am truly estatic to this progress! Baby steps....
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The Big Family Meeting
We held our first "in-person" family meeting this last Saturday. My EO/LO has been involved with the planning of this meeting for the last couple of weeks. Unfortunately, on the day, she thought we were just having a BBQ. Needless to say, when we discussed, as a family, her current diagnosis and situation, she was…
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Frustrated(12)
I have two LOs with dementia. My mother, she’s at the beginning of stage seven. My older sis, she is early to middle stage. Sis has one estranged daughter, and is a widower. She has been our mothers companion for about eight years. Sis fell last Nov, broke her hip. Before that, she had been diagnosed with puesdo-dementia -…
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Sleep Problems more info
I am the caregiver along with my sister for our 101 year old father. His dementia has gotten worse since a recent 3 week hospital stay. He is home now but dependent on my sister and me for everything, He is obsessed with going to the bathroom multiple times a day, most of the times he doesn't go at all. Since he needs help…
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Change after covid
Mom is in hospice and close to end stage. She’s vaccinated so when she got Covid two weeks ago, she had few symptoms and is now dealing mostly with fatigue and dehydration. We are working on both and she is getting back to where she was before the virus. However, tonight she had some improved cognitive ability that…
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Thank You ALZ Connected from Can't Give Up
I've been in this fight for almost a decade, and in ONE day, I got more help and understanding and advice...than I've had throughout this entire time. I was a fool to believe this sickness wouldn't progress further. I was a fool to think I could handle it on my own. Like the tide, it keeps coming. But at least I have all…
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New here & SO tired!
Hello, I'm new here. I've been taking care of my mother with dementia for quite a while now. For a few years it has slowly progressed. The other day she forgot how to wash her hands. I work at an office 40 hours a week and I have security cameras all over the house so I can keep an eye on her. We also have a roommate that…
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Mom passed away(2)
Hi Everyone, Wanted to let you all know that on Thurs my sweet little mom finally got her dearest wish - to be with the Lord. I'd noticed her declining quite a bit in the last month, and had posted recently about these sort of exhausted collapses that I didn't understand. She lives/d in our home, and there were some pretty…
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Roller Coaster Ride - Update on Dad
Since the broken hip, he has taking hit after hit after hit. The cdiff diagnosis in which they admitted him and then turned right around and sent him home three days later swollen like a balloon, breathing was horrible, not really being able to take down liquids or soft foods. Knew he was not ready to be discharged and…
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Hand wringing and clutching hands together
Suggestions for this behavior?
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Father's Day wishes
Wishing all you amazing caregiver fathers and father figures a good day. Also sending hugs to those for whom this is the first heavenly or MC Father’s day for your LO. May you find some happy moments today. Thinking of you.
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Recent Alzheimer’s diagnosis
Good morning, my mother was diagnosed with Alzheimer’s just last week. She lived alone up until her diagnosis and her doctor suggests assisted living for her. I would like to take care of my mom instead of a facility option but the problem is I work full time and would have to give up my job to take care of her. Is there…
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Questions Frontal Temporal deficits
Where do I begin?...My mom has been having trouble since beginning of this year...multiple ER visits...for different things..she's been told she's full of bowels ( figured that one out)...March 12 Went to Er for uncontrollable shaking, ( ER night mare that night)...she bottomed out when they drew blood/ start iv...(…
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Dad was just put in memory care - Questions
Hello, I love my parents very, very much. So happy to find this resource. I am looking for a zoom call as well for support. A few days ago we put our Dad (93) in memory care. He has VD. I have never been told the stage. I would say based on a few YouTube videos he is moderate or borderline severe. When we visit him he…
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Skyrocketing cost of home health - How are you all coping?
Hello ALZ Connected, My LO has ALZ and she is about stage 5. She walks with her canes, reads her newspapers, knows who I am, is not aggressive anymore, and is overall happy and quiet. This is so unless there's a home health aide at the house and then all (stuff) breaks loose. For this reason I gave up on home health aides…
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Burnout(2)
What happens if a family has been caregiver for so long they are experiencing severe burnout but cannot afford nursing home and no programs are available. Does the state get involved or does the family just spontaneously combust? There are no daycare programs the elder can do, no services available and only one friend who…
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Reading a clock
My LO is in stage 7a per hospice. Yet she can look at a watch and still tell time. Is this normal?
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Dad doesn't seem to get it - vent
Some days my dad seems to understand that my mom has Alzheimer's, some days I just stare at him with a "what the hell" look as he interacts with her. He takes defensive tones while speaking with her or gets upset when she says she can't hear or understand what he said. He plays loud music late at night whenever it's time…
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No idea what to do
My parents moved to another state (10+ hour drive) in 2013. I believe my mom (nearing 80) began showing early symptoms of dementia around 2017, which I noticed during a visit. Of course that's all hindsight now. She stopped cooking and had always been the "cook" in the household, but was always dealing with knee pain that…
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Exelon patches(1)
Hi there, this is my first time posting. My 79 year old Mom was diagnosed with mixed dementia 4 years ago. It took a while to diagnose her because she started having initial symptoms after we lost my sister to brain cancer. Thought the memory issues were grief related. Over the course of the last 5 years, as she has slowly…
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Advice(4)
Hi. I'm trying to learn how to navigate my mom's dementia as it's suddenly gotten worse. We both see the same primary care physician. I'm allowed to make appointments and do things on her behalf if she's unable. However, is it allowable for me to have a doc's appointment to discuss my mom and the stress it's causing me…
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That was quick. DH is back in hospice
Different provider. Evaluated DH and enrolled him. They know he was just discharged from another hospice co but that had no bearing on their assessment. Felt that what they observed plus the Drs reco and DH’s recent history qualified him, no question. I almost cancelled the appointment as I’m really tired right now. But…
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She thinks she has no clothes
Mom is in mid stage of dementia. She is constantly telling me she has no clothes. I assure her she does and they are in her dressers. She tells me there is no dressers in her room. II tell her where they are and she goes in and is delighted when she finds them. She never gets her own clothes I get them for her but she's…
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Contacting estranged son for LO
My LO was in a fit of agitation earlier and took a set of her old index cards and asked me to read them to her. The first was a list of helpful sites and the second was her eldest son's name and phone number. He has been estranged from the family for reasons I won't go into right now. After I read that out, she excitedly…
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Advice for disagreement on care
Looking for advice on my current situation. My mom lives by herself in a two bedroom apartment. I have her stay with me when I can but my sibling and his spouse live close by and visit her twice a day for a little while but I can’t verify. My mom is diagnosed with mild to moderate dementia. She has a fast score of 5/6 and…
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Need Your Help - Bidet Seats
Goodness; the topic of bidet seats has become a quest. Three very elderly amazing aunts who are sisters in three different states have got onto the topic and are asking me for information about how to choose a bidet seat of which I have no knowledge. They all want such a seat and must choose well as it is a major purchase…
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Reclining chair that she can use easily and safely unaided
I want to find an appropriate reclining chair for my wife, Barbara. It should have a firmly padded seat that she can stand up from using her own strength and should recline under her control (powered or not). While compressed by her weight, the seat's top should be about 20 inches off the floor (preferably adjustable). She…