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Helping ease worries during episodes
I am a caregiver to my nana. She’s struggling and so am I. I’m 23 and I have two young kids that I take care of as well. Most days she’s fine with me. We laugh and have fun but lately she’s been angry. Always worried that I’m putting poison in her food and water. Worried that I’m not taking care of her. It hurts. I bathe…
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Checking in from the twilight zone
Forum mates, I have not been able to gather my thoughts to share a couple of updates from our weekend adventures. Another close call which DH (and I) have survived. I will post about it later as it helps to share the learning, may help someone else, and often someone here has additional advice which is priceless. In the…
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Newly diagnosed mom won’t speak to me
Hello! My mom was ‘diagnosed’ in April - I’m Canadian, and because of covid the wait times to get her in to a specialist are extremely long. My family doctor is 95% it’s Alzheimer’s, so I’m going forward with that. She has not been told that she has Alzheimer’s, just that she has some cognitive impairments. (By our family…
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Toilet Behavior
My Mother has Dementia, and we are having trouble with her throwing things in the toilet. We have had to pull the commode several times to clear items out. We have locked all her belongings in her closet to prevent her from trying to flush them. If we leave a full role of toilet paper in the bathroom she will use the whole…
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4th move in a year
My 87 year old mom was placed in MC last June by her husband who could no longer care for her. That lasted 4 months. The facility was brand new and beautiful but the care was horrible. Short staffed, incorrect med. given, multiple falls with transports to ER/cat scans. So in October she was moved to a residential care…
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Night time problems
My father starts yelling, shouting, talking shortly after he goes to bed EVERY night. He is a different person once he goes to bed. I talk to him when he starts to get loud but it doesn't help. He is another person after he goes to bed. Talks in a different halting voice, makes no sense, says YEAH, YEAH, YEAH alot. Gets…
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Should we move in with my parents?
Hello caregivers! I'm a secondary caregiver to my mother who has moderate dementia. My father is her primary caretaker (he is in relatively good health), but Mom rarely knows who he is and gives him quite a bit of grief because of it. I live only 15 min away and help out near daily. Part of me thinks that if my husband and…
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Between a rock and a hard place(3)
I am taking care of my dad with dementia all by myself, and he is getting worse and worse. He will not let me out of his sight, he shadows me constantly, and he backs me up into corners. He will not sleep or let me sleep. I really need to put him in a nursing home, but I depend on him for a home and income. I cannot work…
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Can't give up
She's my mom. And its getting worse. And its all in her head. No matter how many thousands of times during the day, I tell her what's really happening... absolutely nothing. And to please relax. She has this drama in her head, first its "Where are the children?" I ask for names and she can't give them to me. "They're…
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Do they really adjust to MC?
It’s only the second night for my mom in MC. The move day went beautifully. Today was really hard. Mom is mad. Said we set all this up behind her back. She goes back and forth thinking she is in her old apartment then realizing she isn’t and is in a MC facility. She was ok. then anxious. Then sad. She called me tonight and…
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Too many visitors!! Vent
Just needed to get something off my chest about the afternoon at home. So just before my family and I were going to church, my aunt texted my dad that she and two of my uncles (mom's siblings) were going to be stopping by around 2 to visit with my dad after him being in the hospital this past week and to see mom. They came…
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Selling mom's house....feeling guilty
I moved my mom from NY to SC to live with me in September 2021. In NY she wrecked her car at 1am which caused this move. Since living with me she has improved, but has been diagnosed with moderate Alzheimer's. I decided to sell her home in NY as we haven't been there since I moved her down. She doesn't want to or know that…
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Obsessive Episodes
My FIL (cared for by my MIL), had another concerning episode today. He continues to say he wants to go home (even though he is at home). He went to the garage, got in the car (he only has a fake set of keys), and said he was leaving. Although he could not leave, he began to threaten my MIL verbally. As he tends to respond…
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Very dysfunctional family with no support
Hello, I am new to the group and have a very difficult situation. I have spent the day reading posts and am glad to see some commonalities with others. No official diagnosis but my mother hits almost every symptom. Very likely Parkinson's with Lewy Body dementia. My parents are very dysfunctional with a horrible marriage.…
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abc123(1)
Dear abc123, We are thinking about you. Sending good thoughts and prayers for your health and strength. Let us know how you are when you get a chance. This thread is from some of your friends on the other forum too https://www.alzconnected.org/discussion.aspx?g=posts&t=2147561260
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Memory Care facility has a one year lease agreement
Hi All, After some pretty extensive interviewing and touring of Memory Care facilities, we have found one that is a great fit. The one potential hurdle is that they require a one year lease agreement for the first year and after year one, the rental goes month to month. The facility has a great reputation, reviews,…
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Hospitalization, trying to not panic...
My dad fell this morning and wasn't right. They took him away in an ambulance for the hospital and my sister is going there now. Mom (pwd) was getting upset about it but I think I calmed her down for now and she's good. She's got some giggles and cuddles. We've tried contacting his work but only have his coworkers numbers…
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Facility in Phoenix recommendation
We are looking for an assisted living facility for my mom. She has early Alzheimer’s as a result of three brain surgeries from cancer. Currently we have 24x7 care at her home from a combination of hired care givers and my sister. She needs help getting up, but can make her way around with a cane. She needs help dressing…
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Mother Attending Wedding
Hello, I wanted to reach out on here to get this communities thoughts. My mother was diagnosed with early onset Alzhiemers when she was ~60 years old. She was recently moved into an assisted living home specializing in memory loss. She moved in March 2020. I am 28 years old and have a wedding coming up in February 2021. We…
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Health Changes
So my LOs health is changing. She has bad knees, which make it hard for her to stand. She is losing strength too. She’s been in assisted living since last December, I’ve brought her home a few times since she moved into the facility - for family get together or cook outs. She uses a transport wheelchair while at my house.…
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Child of Patient vs. Spouse of Patient
I'm very glad this forum is here. Here is my situation: My mother is 78, in the middle stages of dementia. It is difficult for her to complete a sentence, and her short term memory is basically non-existent. Her husband (my step father) suffered a major stroke a few years ago and lost the use of his right side. They live…
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Bible Verse to Lift You Up 6/25/22
UNION WITH JESUS * John 15:5 AMP "I am the Vine; you are the branches. The one who remains in Me and I in him bears much fruit, for [otherwise] apart from Me [that is, cut off from vital union with Me] you can do nothing." me: Prayer, worship, praise and meditation on Jesus' Words are what we need to stay in union with…
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Hospice won't accept non-Alzheimer's dementia patients?
Has anyone encountered a hospice program that will not accept non-Alzheimer's dementia patients covered by Medicare? One of our local hospice programs evaluated my wife (who has vascular dementia) but would not accept her because - according to them - "Medicare will not cover hospice care for dementia patients unless they…
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Thank you all for the support for MC move day
We did it! Thank you all so much for the support along the way. May Flowers especially you. Yesterday I started the story. Told mom that when the apartment next door to hers was being worked on they messed up something with the plumbing and the water would be cut off today. We would have to make a temporary move, but it…
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New Caregiver(3)
Good morning. I am new to being a caregiver for my 80 year old father. He was diagnosed with dementia in 2015. My mom took excellent care of him until her death 9 weeks ago. Since that time, my dad has been moved into my home. He has accused me of kidnapping him. Everyday he asks where my mom is, what time is she picking…
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Days to the move
I will be moving my mom in just 3 days. I will tell her about the move the day before. I wake up rehearsing what I will say. I fall asleep rehearsing what I will say. All while imagining her response. She presents very well and is very verbal and able to tell you how she is feeling so this scares me. I hate to see her…
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Happy Father's Day
Sending warmest wishes for a Happy Father's Day to all fathers and all those who have served as father's to children . . . you have given much to children's futures with one of the two most important figures in a child's life . . . (the other being Mother.) J.
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Looking for Dad, redirect
Good morning. Just wanted to pop in since I was up. I "caught" mom out in the hall looking for dad. Monday he had a stroke and was hospitalized and against better judgement my older sister took her to see him Tuesday. He's doing great now and they're looking to see about discharge. Mom thought he was dead. This wasn't the…
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charitable donations
Is the Alzheimer's Association a good place to send donations or do those that run it take alot in salaries? My DH is 92 and has AD and for future reference I want to know when he passes if I should list the Association as a choice for friends and family to send donations in his name.
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Should we try harder to move Mom?
I am new to this group. this is kind of long as I provide background. The question I want to ask is “should we be trying harder to relocate Mom? Would she benefit from a move?” Mom is 85, and was diagnosed with AD 4 or 5 years ago. Symptoms came on suddenly associated with a UTI. She did OK at home with Dad for a couple…