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Whispering(1)
For the most part, my wife is relatively easy to care for, but she has developed a few annoying habits. The one that is driving me insane is that, whenever she talks to me, she whispers so softly that I can hardly understand a word she says. She talks loud enough around other people, but always whispers to me. Telling her…
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Invalid Power of Attorney - Legal Name Incorrect
Help or advice needed: The person I care for drew up a durable POA via Legal Zoom prior to his dementia. At this point, however, he is no longer competent to sign documents, etc. so a friend who was assigned power of attorney is trying to invoke it. Problem: The POA document appointed his friend Tom, but Tom's legal name…
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A rant about some Memory Care facilities.. Nickel and diming...
The more I look into Memory Care facilities, the more I find that many are not transparent about their pricing "schemes." Several of the nicer Memory Care facilities that I have evaluated include a certain number of hours per month of "individual services" in the monthly rent. These services can include escorting your LO…
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Memory Care(6)
My grandmother (I call her Maw Maw) has moderate stage Alzheimer’s. She was officially diagnosed in June 2021. She is almost 89 and lives with my Grandpa who is 87. Until the last month or two she was relatively stable with a slow progression and he was able to handle everything. Starting late April/early May she started…
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Landline phone
My mom has had a home connect phone from Verizon for many years. It has worked well. She got to keep her landline number. The box she has is becoming obsolete at end of year. There is a replacement but see quite a few bad reviews on it. Does anyone on here have experience with the new white one from Verizon? There is…
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Tony Bennett and Alzheimer's
Last Sunday, CBS 60 minutes did a story about Tony Bennett's Alzheimer's and memory loss. The fascinating thing about the story is that, in spite of his severe short-term memory loss, his singing memory is still intact. If you missed it, you can watch it online at:…
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Seizure, TIA, or what? Neither. Our welcome to 6e
I finally got to type the Friday and early weekend update, but poof. My phone glitched and website didn’t save the nearly finished draft. So I will do the Cliff Notes version. * Minor grossness alert * I thought it was the end of the line on Friday. DH had some real agitation starting early in a.m. (3a to be exact) which…
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Rehab hospital back to AL
I doubt there is a standard answer to this, but to those other long-distance caregivers out there - looking for experiences ... The rehab is discharging mom a week earlier than the 3 weeks they said initially (next week). I can’t be there, and neither can the other relative who is 82. The AL mom’s stuff is in, no longer…
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Things with Ann are better, and thanks --
I posted a month or so a go about Ann, an elder sister who has Alzheimer's. Her two daughters have found a memory-care facility that Ann agreed to move into, and three days ago she moved in. I post this in order to thank everyone on the forum who offered advice -- good advice -- and also to wish that everyone dealing with…
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Update on the one year Residency/Occupancy Agreement
A quick update on the one year lease agreement for the Memory Care center that we are considering. I found out that any continuous care facilities located in this particular state that are licensed with the CCRC (Continuing Care Retirement Community) are required to have a one year Residency/Occupancy Agreement. I have…
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Sweet stories
Just thinking that with all of the horrific things we see and experience as caregivers it might be nice to share moments of joy here. Can you share a story of joy, happiness, laughter….? Today I moved a load of things into my mom’s MC apartment. As we got to her apartment just outside of her door there was an old man in a…
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Good article on Stages & more
https://betterhealthwhileaging.net/stages-of-alzheimers-dementia/
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LO doesn't know if she wants to live with us
Hello, I haven't been active on here the past week, but I thought of something I wanted to share. My LO gets agitated and will talk about she has to "get going...." Every single day she has somewhere to "get going" to, and this is usually our main topic for the whole day. She will say she needs to go "home" which isn't…
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You may be interested in this person.
Lori La Bey has many great resources for all folks related to dementia. Please feel free to share. The Video is live now https://youtu.be/RMwUpWzvbsg Here is the link to the event on Dementia Map…
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Hard getting used to my mom being mean!
ve had a few days of my mom saying hurtful things. I know it’s not her talking, but it’s just so out of character and I can’t get used to it. I mostly bite my tongue. She seems to forget about what she says and goes on as if nothing has happened. I have a difficult time letting it go. Does it get easier? Cause I don’t know…
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Hospitalized dad update
Dad's been home for about half a week now after a stroke. He's basically back at his normal but the doctors are concerned about arrhythmia and sleep apnea. As much as he bugs me, I'm so glad he's home and finally getting his health back in order.I got in contact with a CELA law firm and we discussed my situation and…
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Moved in - Sundown syndrome
Hello. New member and looking for some advice. My mother will be 81 this year and was diagnosed with Alzheimer's in 2017. For the last few years, I've lived nearby and gone to her apartment to check in, make meals, meds, shopping, etc. I was over several times a day as needed, all while fixing up my temporary home so I can…
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Weight Loss(2)
My ADLO has been losing weight - especially as her disease progresses. Most days, she eats like a bird...picking at her food. Her desire for sugar (aka ice cream) remains consistent. We have talked about her nutrition, but obviously this is difficult information for her to retain. I have tried preparing her meals and…
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Ques. on getting a diagnosis
One of the things I've been struggling with is the lack of a diagnosis. I had my mom into a neurologist 2 times last year and they were just beginning to diagnosis her with Parkinson's. I believe she has Lewy Body Dementia. I am new here and posted recently about the dysfunction in my family and that my mother sees me as…
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Financial abandonment hates me vicious spouse
My spouse of 40 years hates me And. Is being coached by a son that just showed u- after 40 years and a caregiver. He has decided that I a, stealing from him; and that he is not going to support me financially and has closed all the joint accounts and left me with nothing. Every Sunday is the worse. He does something more…
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Getting her to go to the DR???
So I super appreciate the support on here! More than I can say! Just seeing that we're not the only ones helps tremendously! So the reason for this post is because we tried "tricking" my Gramma into going to the Dr. Needless to say it didn't work. What else can we do???!!! She really needs to be seen. Thank you in advance!!
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Hoarding and moving
Hi! I am new to this thing. My boyfriend and I moved in his grandma, 92, last year. I see her progressively getting worst with memory issues, taking showers, changing clothes, and hoarding. We are suppose to be moving and her room is cluttered with trash and clothes etc. We already got rid of somethings during the initial…
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Strokes and not the nice kind
Just posting bc there is no one else to talk to about it. Mom was doing ok in assisted living, though totally not getting why she was there- no inkling that I have spent 14 months of my life caring for her and no way can she function independently anymore, but I had to go back to my own family, job and home in another…
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Caregiver/alcoholic
I have been in recovery from alcoholism for 23 years and caregiver for 3 years. But stress from caregiveing is about to break me. Any thoughts out there?
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Mom doesn’t want to be alone but refusing care givers
My mom has moderate dementia and recently had to leave her community, her home and her friends due to need for more care. She is physically very able and young (74), but has become very depressed and is dealing with a lot of grief. We are adjusting her meds, she will be seeing a psychologist, and has a planned move to…
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Mom can't remember she agreed to move to AL
Hi Everyone. You all are so helpful and reassuring, and I'm hoping some of you can help me with this. My mom has VD, and it's basically her short term memory that's pretty non-existent. She reluctantly agreed to move to AL and now moving day is coming up. I have to remind her everyday that this is happening and we go over…
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Turmoil of Decision
I am not sure if writing this will help or make give me more turmoil. My mother is stage 7a dementia - she still has good days. Her feet are swelling, she had edema. Her legs are seeping water. She has heart issues, kidney issues. She is cold all the time. The lasix are causing her blood pressure to drop, so they have…
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Dementia Spouse Hates Me
My relationship with my husband has gone down hill since he got diagnosed with cognitive impairment. He is extremely unhappy and anxious to the point where he developed BFRB in the last 16 months. This weekend I saw that he was googling "I hate my wife". He has little support than me and friends that I have made and…
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hubby can't sleep been almost three days
hospice told me to start lorazapam and haldol each every four hours not working. He looks sooo very tired. He is hallucinating badly. Sees people that are not here, thinks he is in a hospital, is picking at his skin. His speech is somewhat garbled. This happened a few weeks ago they ended up giving him morphine it finally…
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Refusing to eat and sleeping all day.
Hello everyone, It's my first time here. I am feeling frustrated. My grandfather is refusing to eat and sleeps all day. I know as dementia progresses it will only get worse. Wondering if there is any way to get him to eat and stay awake. I've been sneaking in boost in his coffee, but he's still losing weight and getting…