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When to visit MC
Hi,This post is really about my own self and fear/anxiety about the future. My mom is at stage 6b and we are of course not sure when she will need to move into MC, but we are thinking we should have things somewhat planned as far as next steps so we are ready when needed. The thought of visiting a MC gives me anxiety. I’m…
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Still no diagnosis...
Hi everyone. After several years dealing with my dad's memory problems and delusions, that someone is going into his room and stealing all sorts of things, we were finally able to get him back to the neurologist. My dad agreed to do the CT scan and the EEG this past week. Friday morning we went back for the results and all…
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my mom in stage 6 for past 6 years.
my mother was diagnosed in late 2014 with alz disease. she is still in her home and i am her primary caregiver and live at her home although i have another home out of NY state. we have home health aides 7 days a week and my 3 sisters are also big helps. my father died prior to her diagnosis. she went to stage 6 quickly…
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using THC for dementia
hey I am new to this site...my mom is 83 with dementia and tons of anxiety and aggression when she isn't medicated on Xanax and seroquil which both make her dizzy as well as the many other side effects of such heavy drugs...I would love to use THC gummies during the day and wondering if anyone else has done so? any input…
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UTI WILDNESS
hey GUYS... my MOM started acting strange (-r than usual!) the past few days... she was sleeping MUCH MORE... and her eating was LESS... then, she started to seem off-balance and her (generally good!) walking suffered... this scared me... i brought her to her PRIMARY CARE physician... she checked her out... she was happy…
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ABC123
Was thinking about you and that move coming up. I hope you are not too stressed out or pulling your hair out. I think closings can be stressful so your in my prayers
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Sippy cup for ALZ
My mom can no longer hold a cup or glass to take a drink. She tries to hold it but invariably drops or spills it then no longer wants to drink. She has severe arthritis and the manual dexterity in her hands is gone. Would some sort of sippy cup work? She claims she doesn't like to drink from straws. Any recommendations for…
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memory care to long-term care to home?
Hi All, My mom is in a SNF / Memory Care, which she entered early in the pandemic after community supports shut down and she lost her daycare / in-home aides etc. The loss of social supports caused a major break in her wellbeing. All in all, mom has done well there. She entered in mid-stage and is now early late stage --…
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A very good description of the stages of dementia
I saw this in a thread on the spouses forum. In a post with lots of great links. I wanted to highlight this particular one as it’s the best description of the various stages I’ve ever read. My only concerns about it are 1) my mom seems to be a mix of stages and 2) it states stage 5 is when the person can’t live alone. My…
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Guidance(1)
Does anyone know how to get better guidance on the big decisions like medical and type of care? I feel like everyone looks to me for a decision, when I am not truly qualified to make some of them. It seems like a combination of history, current assessment and my input would be the best method, but that doesn't seem to be…
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Ideas for Caregivers
I've been struggling to find appropriate care for my mother who lives with me. She is beginning have mobility issues so I need someone who can handle transfers as well as be knowledgeable in how to care for someone with Alzheimer's. Except when very tired, my mother will assist with transfers, mostly doing it on her own.…
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Final Stage(1)
After years of suffering with this awful disease, my mom has now passed away (age 90). I could not leave this forum without saying thank-you so much for always being here to listen, often advise, and always pass along great caregiving help! My mom's journey has been one filled with lots of struggles. I think I will always…
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Bible Verse to Lift You Up 4/27/22
STAY CONNECTED * John 15:5 New King James Version 5 “I am the vine, you are the branches. He who abides in Me, and I in him, bears much fruit; for without Me you can do nothing." * Time with Jesus in the a.m. keeps us positive and strong throughout the day. * "BE VIGILANT!" * Peter 5 :8 New King James Version " Be sober,…
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calming methods?
Hi, brand new here. My 80-year-old mother is in middle stage dementia and has been in a nursing home for six months. Every evening, and lately many mornings, she asks when she is going home, why is she there, how is she paying for this room, why is insurance paying for it, etc. She is afraid they will tell her she has to…
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CERAD-NB test
I haven’t found a clear explanation of the CERAD-NB test my wife took yesterday. Her score was 46, and I don’t know what that means. Can anyone share some info?
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Live-in Companion for Mom with MS Dementia
My mom is still high functioning but she really can't be left alone because she gets very disoriented and confused and won't prepare meals or take her medication. For safety and security we need 24/7 care or very close-at least during waking ours in her home. We need support but not necessarily from a certified nurse or…
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Good News At the Dentist
My sister had a routine dental cleaning about a month ago and was told she wasn't doing very well keeping her teeth clean. She has early signs of periodontal disease in a couple of areas of her mouth and the hygenist recommended a periodontal cleaning. She also recommended we add Listerine and a Waterpic to her dental…
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regression after diagnosis(1)
thank you for your input. no one mentioned vascular dementia - they went straight to alzheimers. I will look into an appt for UTI. He also has a VP brain shunt and I have an appt to check that. New sleeping medication stopped and has helped incontinence. Sleeping all the time is scary. Do I try to keep him awake?
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Has anyone tried CBD for Alzheimer's
Hello, I am new to this forum. My mother, 74 yrs old had an early onset of Alz. She also has Aphasia which makes it hard for her to communicate clearly. She has depression and hallucinations. She is taking Quetipin, Memantin, meds for hypertension and thyroid. I have heard that CBD apparently helps people with dementia by…
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Question on a Deficit Score
Hello. SO happy to find this group. My father has Lewey Body Dementia. 6 Months ago his deficit score was 30. We went back today and it was 11...... Could someone let me know what that means? Thank you!!
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How do you answer a spouse who has severe hallucinations?
She really believes that her relatives are here and staying in our house and then they go out and don't tell her. They also say "Lets all go to throve, out to dinner, etc and we'll meet at Mary's house."
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regression after diagnosis
My DH was diagnosed April 1 and since then he has shown more memory loss, incontinence and anger. Sleeps all the time and fluctuates from completely conversational to almost coma like. Has this happened to any one else?
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how to pay for long term care/MC
Hello, My father has unspecified dementia-has never been officially diagnosed. Like others, he refused to go to an MD in fear of being "locked up" in a nursing home. Now he's in the hospital- which brings up future plans of LTC or MC when the time comes. However, my mother has no Medicaid, no long term care insurance, and…
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Broken Leg and Audio Monitor
My mother lives in her home of fifty years. She has care providers 24/7. We visit her on weekends and some evenings. Over a weekend when family was not at my mother's home, she broke her leg. None of the four care providers who were working over the course of the weekend have come forward with when it happened. It is…
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Transitioning?
My first post..took all of my courage to do this as I am sure that I am the stupidest person to ever inquire on this board. My sister (actually sister-in-law) but we are that close, moved so I could help her as she has no one else and I LOVE her so. She was diagnosed with Alzheimer's at the age of 68. I moved her into…
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AAC Devices for Primary Progressive Aphasia
Anyone have experience with an AAC device for an Alz patient with Primary Progressive Aphasia? I'm particularly interested in Lingraphica vs Tobii Dynavox. My sister's neurologist wants her to see a certain speech therapist. Unfortunately, my sister gets her health care through the VA and the VA is insistent she use the…
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Mom Failing
Hi everyone! First post, although I have been reading many. My mother has Dimentia. She had been doing fine (other than her short term memory being nonexistent). She went to the hospital on 3/17 when we noticed her right side of her face drooping. They did a cat scan to rule out a stroke. Diagnosed her with Bells Palsy and…
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Memory Care Placement
I am in the process of placing my DW in a memory care facility. It is a very difficult thing for me as we have been married for 50 years and always together. Having said that i am seeing another side to memory care places. After visiting three in my area and noting the people there that are in her stage, they seem much…
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Bible Verse to Lift You Up 4/21/22
GOD'S LOVINGKINDNESS AND SONG Psalm 42:5, 8 Amplified Bible “Why are you in despair, O my soul? And why have you become restless and disturbed within me? Hope in God and wait expectantly for Him, for I shall again praise Him For the help of His presence.” “Yet the Lord will command His lovingkindness in the daytime, And in…
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Folks we were all bamboozled by government again.
https://gbdeclaration.org/