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memory care to long-term care to home?
Hi All, My mom is in a SNF / Memory Care, which she entered early in the pandemic after community supports shut down and she lost her daycare / in-home aides etc. The loss of social supports caused a major break in her wellbeing. All in all, mom has done well there. She entered in mid-stage and is now early late stage --…
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A very good description of the stages of dementia
I saw this in a thread on the spouses forum. In a post with lots of great links. I wanted to highlight this particular one as it’s the best description of the various stages I’ve ever read. My only concerns about it are 1) my mom seems to be a mix of stages and 2) it states stage 5 is when the person can’t live alone. My…
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Guidance(1)
Does anyone know how to get better guidance on the big decisions like medical and type of care? I feel like everyone looks to me for a decision, when I am not truly qualified to make some of them. It seems like a combination of history, current assessment and my input would be the best method, but that doesn't seem to be…
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Ideas for Caregivers
I've been struggling to find appropriate care for my mother who lives with me. She is beginning have mobility issues so I need someone who can handle transfers as well as be knowledgeable in how to care for someone with Alzheimer's. Except when very tired, my mother will assist with transfers, mostly doing it on her own.…
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Final Stage(1)
After years of suffering with this awful disease, my mom has now passed away (age 90). I could not leave this forum without saying thank-you so much for always being here to listen, often advise, and always pass along great caregiving help! My mom's journey has been one filled with lots of struggles. I think I will always…
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Bible Verse to Lift You Up 4/27/22
STAY CONNECTED * John 15:5 New King James Version 5 “I am the vine, you are the branches. He who abides in Me, and I in him, bears much fruit; for without Me you can do nothing." * Time with Jesus in the a.m. keeps us positive and strong throughout the day. * "BE VIGILANT!" * Peter 5 :8 New King James Version " Be sober,…
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calming methods?
Hi, brand new here. My 80-year-old mother is in middle stage dementia and has been in a nursing home for six months. Every evening, and lately many mornings, she asks when she is going home, why is she there, how is she paying for this room, why is insurance paying for it, etc. She is afraid they will tell her she has to…
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CERAD-NB test
I haven’t found a clear explanation of the CERAD-NB test my wife took yesterday. Her score was 46, and I don’t know what that means. Can anyone share some info?
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Live-in Companion for Mom with MS Dementia
My mom is still high functioning but she really can't be left alone because she gets very disoriented and confused and won't prepare meals or take her medication. For safety and security we need 24/7 care or very close-at least during waking ours in her home. We need support but not necessarily from a certified nurse or…
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Good News At the Dentist
My sister had a routine dental cleaning about a month ago and was told she wasn't doing very well keeping her teeth clean. She has early signs of periodontal disease in a couple of areas of her mouth and the hygenist recommended a periodontal cleaning. She also recommended we add Listerine and a Waterpic to her dental…
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regression after diagnosis(1)
thank you for your input. no one mentioned vascular dementia - they went straight to alzheimers. I will look into an appt for UTI. He also has a VP brain shunt and I have an appt to check that. New sleeping medication stopped and has helped incontinence. Sleeping all the time is scary. Do I try to keep him awake?
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Has anyone tried CBD for Alzheimer's
Hello, I am new to this forum. My mother, 74 yrs old had an early onset of Alz. She also has Aphasia which makes it hard for her to communicate clearly. She has depression and hallucinations. She is taking Quetipin, Memantin, meds for hypertension and thyroid. I have heard that CBD apparently helps people with dementia by…
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Question on a Deficit Score
Hello. SO happy to find this group. My father has Lewey Body Dementia. 6 Months ago his deficit score was 30. We went back today and it was 11...... Could someone let me know what that means? Thank you!!
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How do you answer a spouse who has severe hallucinations?
She really believes that her relatives are here and staying in our house and then they go out and don't tell her. They also say "Lets all go to throve, out to dinner, etc and we'll meet at Mary's house."
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regression after diagnosis
My DH was diagnosed April 1 and since then he has shown more memory loss, incontinence and anger. Sleeps all the time and fluctuates from completely conversational to almost coma like. Has this happened to any one else?
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how to pay for long term care/MC
Hello, My father has unspecified dementia-has never been officially diagnosed. Like others, he refused to go to an MD in fear of being "locked up" in a nursing home. Now he's in the hospital- which brings up future plans of LTC or MC when the time comes. However, my mother has no Medicaid, no long term care insurance, and…
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Broken Leg and Audio Monitor
My mother lives in her home of fifty years. She has care providers 24/7. We visit her on weekends and some evenings. Over a weekend when family was not at my mother's home, she broke her leg. None of the four care providers who were working over the course of the weekend have come forward with when it happened. It is…
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Transitioning?
My first post..took all of my courage to do this as I am sure that I am the stupidest person to ever inquire on this board. My sister (actually sister-in-law) but we are that close, moved so I could help her as she has no one else and I LOVE her so. She was diagnosed with Alzheimer's at the age of 68. I moved her into…
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AAC Devices for Primary Progressive Aphasia
Anyone have experience with an AAC device for an Alz patient with Primary Progressive Aphasia? I'm particularly interested in Lingraphica vs Tobii Dynavox. My sister's neurologist wants her to see a certain speech therapist. Unfortunately, my sister gets her health care through the VA and the VA is insistent she use the…
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Mom Failing
Hi everyone! First post, although I have been reading many. My mother has Dimentia. She had been doing fine (other than her short term memory being nonexistent). She went to the hospital on 3/17 when we noticed her right side of her face drooping. They did a cat scan to rule out a stroke. Diagnosed her with Bells Palsy and…
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Memory Care Placement
I am in the process of placing my DW in a memory care facility. It is a very difficult thing for me as we have been married for 50 years and always together. Having said that i am seeing another side to memory care places. After visiting three in my area and noting the people there that are in her stage, they seem much…
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Bible Verse to Lift You Up 4/21/22
GOD'S LOVINGKINDNESS AND SONG Psalm 42:5, 8 Amplified Bible “Why are you in despair, O my soul? And why have you become restless and disturbed within me? Hope in God and wait expectantly for Him, for I shall again praise Him For the help of His presence.” “Yet the Lord will command His lovingkindness in the daytime, And in…
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Folks we were all bamboozled by government again.
https://gbdeclaration.org/
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Not Accepted into Hospice
Hi, So, my dad, who last week, couldn't move in bed, was NOT accepted into hospice. He was too well today? I really don't understand and I am very upset and aggravated. I have been anguishing over this since last week. Don't the hospice people understand that with Alzheimer's one day can be good and the next bad? I think…
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Newbie Here(4)
My fantastic MIL has just been diagnosed. She lives around 300 feet from us and I want to support her as much as I can. Is there a beginner's kit or list of things I (or she?) should do or have right away? Sorry if this is a silly question but I am kind of learning and researching in real time here if you know what I mean.…
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I'm new- Grieving while they are still right there
My sister, my best friend, went in a two week period from being a full-time hospice social worker to having major memory issues, delusions and very active hallucinations. She tried a new anti-depressant, but the doctors said it couldn't have been the drug that caused it- personally I don't see how it couldn't be. They…
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Alone(3)
I am so thankful for this forum and group. It is a lonely journey, except for the care and compassion found here. As of now, my dad is doing okay, not liking to talk, but he is aware and helpful to his wife when asked to do something. Can seem engaging when visitors come. Good for both parents really, other wise they…
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Bible Verse to Lift You Up 4/22/22
WAITING * Lamentations 3:25 Amplified Bible "The Lord is good to those who wait [confidently] for Him, To those who seek Him [on the authority of God’s word," * PRAYER for all of us: Dear Lord, today I wait for Your help. I will not worry. I know You are faithful. Amen. * Today, I am waiting for the Lord's help and…
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Escaped Light Memory Care Unit, Moved to MC, trying to escape there
My mom is 86 but physically healthy outside the dementia/Alz. She hated the light memory care unit from day one. This week she succeeding in escaping. (so much for locked units) The police found her unharmed, but the facility said she had to go to the regular memory care unit across the street. So, she hates that too,…
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Asking a home heath worker to mask indoors?
Is it too much to ask? We’re just at the point of finding some in-home help. Mom is 79 and was diagnosed 2 years ago. Along with Alzheimer’s, she is also nearly blind due to loss of peripheral vision and very frail due to rheumatoid arthritis and COPD. She’s lost a lot of weight over the past 5+ (nearly half her body…