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Memory Care Placement
My Jennifer(DW) has eoad and is at point were she needs every adl done for her. We have had 24hr hha through medicare and snt but for past 2 years they will not be able to get aides and the average stay is 2-3 months before they get a day off. I still have to work and even with the hha in the house taking off work 2-4 days…
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Parkinson's Drug Tied to Increased Hospitalizations, Death
https://www.medpagetoday.com/neurology/parkinsonsdisease/94081
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Do dementias always end up visible on a scan, or not?
Or it's the connections that no longer work but everything stays in place? Can you help me understand which types of dementia are visible on scans and which ones aren't? It puzzles me.
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Alzheimer's- don't catch it!
Hi, I'm Tom and how are you!
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Free Brain Donation
I have been trying to add another version of this on the AA site but the file is too large. So for now this will have to do. I reached out to AA and so far not much help. This is very important for all? If AA is successful, you will see the better one. One of the best ways to advance research toward finding answers about…
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I heard from Alz+
Alz+ let me know she is okay and accepting things. She is still staying at her ex-husband's home. She is still grieving her dog Betty. She and her daughter have an appointment with a new doctor next week. I wished her well and let her know that all who posted care a lot for her and we would welcome her back whenever she…
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AAN ISSUES ETHICAL GUIDANCE FOR DEMENTIA DIAGNOSIS AND CARE
That is great to see that they change the way they think about driving. I wish they did better about dying but they did improve it a hair. Press Release EMBARGOED FOR RELEASE UNTIL 4 PM ET, July 12, 2021 AAN ISSUES ETHICAL GUIDANCE FOR DEMENTIA DIAGNOSIS AND CARE MINNEAPOLIS – The American Academy of Neurology (AAN), the…
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Self care during difficult times
My FIL with dementia died this past weekend. The sudden change in daily activity has been jarring. However, I'm doing new things related to arrangements and tasks to wrap up affairs, etc. Brain fog isn't too bad, though it has increased since this weekend. I am more weary and much less focused than usual. Sleep has been…
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Elder law in Naperville area
My husband was recently diagnosed with younger onset alz. We need an elder care lawyer in the Naperville or surrounding area to help us do some financial planning. Any suggestions would be helpful thanks.
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4/1/20 Stress Bldg Strategy Amazing
I just read and printed and began doing this and it is amazing to ease tension. Go to News You Can Use at the bottom , click it and begin, I have it hanging on the wall and it is the best find ever. Just sit in a chair and enjoy Progressive Muscle Relaxation. Thanks!
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Looking for personal stories of diagnosed persons living with joy
We received my husband's AD diagnosis in December after a previous MCI diagnosis. The neuropsychologist that did the testing was very helpful and gave us his best estimate timeline saying we should not see significant decline for the next two years. I want to make the most of whatever time we have; we are financially…
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MCI-- Getting exam for future comparison
I received the dx (diagnosis) of Mild Cognitive Impairment after an MRI of my brain showed significant shrinkage for my age. The neurologist believed it was the reason for my cognitive impairment and increased falling from a standing position. The neuropsychiatrist confirmed that dx, but without extensive cognitive…
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New to Community(1)
Hello community, My father has been diagnosed with early onset Alzheimers. As you all may relate to, times get rough. I live with my father and 2 other family members with a brother who has recently moved out. At the age of 23, I have a lot going on - with a full time job and hobbies. I love my father and would do anything…
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mother in law and I struggling to live together
Hi everyone, I wanted to make a post today to see if anyone has any tips for living with a mother in law (MIL) with early onset alzheimer's which has quite recently progressed. Covid restrictions have taken away her day centre activities and she seems to be really struggling. The family are helping her to access social…
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SSA -- Having a payee means I'm not authorized on my account
I did not realize that having my spouse listed as the payee for my benefits also meant that I was not authorized to do simple things, such as change my mailing address. It isn't as if I I would get checks mailed to me... that is done automatically to an account I have no access too. A requirement for SSDI when it was…
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Dad is 63 and moved him into memory care and he is not adjusting
Hello! Needed a place to make me feel normal so trying this out. I moved my dad into a memory care facility on Friday. He is 63 with early onset. It has progressed fast but not fast enough to weight down his love for outdoor activities. Even when he realized he couldn't do a lot of things he would tell me well I can still…
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Largescale brain epigenetics study provides new insights into dementia
https://www.eurekalert.org/pub_releases/2021-06/uoe-lbe060921.php
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Transition to Memory Care Unit
Would anyone be willing to share their experience of putting there LO into a memory care unit? My sister has early onset Alzheimer's (she's 55). After 1 1/2 hour years between my mom (who is 80) and myself taking care of her, we've become burnt out. Today marks the week number 3 that she's been in a memory care unit. I…
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The National Alliance for Caregiving Calls on White House to Prioritize Family Caregivers When Devel
https://finance.yahoo.com/news/national-alliance-caregiving-calls-white-120000644.html
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Alzheimer’s Foundation of America unveils “The Apartment,” full-scale model dementia-friendly reside
Alzheimer’s Foundation of America unveils “The Apartment,” full-scale model dementia-friendly residence (Alzheimer's Foundation of America (custom credit) | Alzheimer's Foundation of America) By KOLD News 13 Staff Published: May. 22, 2021 at 12:50 AM EDT|Updated: 8 hours ago TUCSON, Ariz. (KOLD News 13) - The Alzheimer’s…
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Recommendations for disability lawyers
Hi - looking for personal recommendations for attorneys who have successfully handled long term disability insurance claims for clients with MCI/early onset who have had to give up work. Many thanks
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Elder Abuse in People Living with Dementia: Considerations for Prevention, Detection and Interventio
On June 23, 2021 from 2-3 p.m. ET, please join the National Alzheimer’s and Dementia Resource Center for the webinar, Elder Abuse in People Living with Dementia: Considerations for Prevention, Detection and Intervention. A description of the webinar and registration information follows. Elder mistreatment is a common…
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New Evaluation Guide for DFA Communities
Dementia Friendly America is pleased to share the newly released Dementia-Friendly Community Evaluation Guide. The Evaluation Guide, developed with funding from AARP, is geared toward local dementia-friendly community leaders and partners to help evaluate the impact of their DFA efforts. Measuring common outcomes of…
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For LindaBrew
Linda, I started a thread for you. There is a website that discusses suggestions for work accommodations for various conditions. You can look this over. www.askjan.org But I would suggest that you not disclose a diagnosis to your employer until you have further information and can make plans. This is because employers may…
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WEF - CEOi - DAC Virtual Lausanne Dialogue
During our time together, you’ll hear from leaders in AD research, advocacy, policy and industry explore the socioeconomic impact of Alzheimer’s disease and new opportunities for the global community to stop this growing pandemic. Held on the eve of the World Health Assembly, this dialogue will shine a spotlight on why…
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Building Workforce Capacity to Improve Detection and Diagnosis of Dementia
https://milkeninstitute.org/reports/building-dementia-workforce
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MCI Sundowning?
The past several late afternoons and evenings have found me with no patience to read, play my brain games, listen to the TV, or do anything. I am a bit restless and the only activity that calms me is to lie with my eyes closed and listen to classical music. I cannot focus on anything requiring cognitive work for more than…
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How Google Could Help People Living with Dementia
https://www.differentbrains.org/how-google-could-help-people-living-with-dementia/
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Mild Frontotemporal Dementia at 57
We just received news that my 57 year old mom has dementia. They are not able to narrow down which one (Posterior Cortical Atrophy, Atypical Alzheimer's or FTD-this is what they think). I wanted to reach out to see if anyone had any advice or anything that have done that has helped. I have read about their diets and things…
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Retired service dog is 13 tomorrow. Happy Birthday, girl!
A happy thing for me: the service dog who was my partner for 10 plus years will turn 13 yrs old tomorrow, April 15. She was the best partner and enabled me function and engage in society. I trained her myself with assistance from professionals and experienced handlers. It took two years. I will not be modest about her…