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medical testing? Insurance?
I think I may have AlZ. I think I will wait until Jan for doing the testing, because I am afraid I will run up a lot of bills for testing. And my husband thinks he may quit his job, so I may have to find new insurance. Any suggestions regarding insurance. I am only 61, no other health problems except thyroid med. oh - and…
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I give up!
Not really. Well, sort of, kind of. The house is falling apart and the latest is both the upstairs and downstairs A/C units have stopped working. I'm hot, frustrated and tired. I had a crew come out two weeks ago to fix the upstairs unit and they were very nice etc. but never came back to work on the unit. Now, the…
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It's a shame that one can NO longer trust the government for our health
I can not understand why COVID has become so controversial and political. I use to trust them and now one is left fending for themselves. Drugs that work to help you are removed from place that could save live. PPeople who were our hero's 3 month ago have become our enemies and being fired from there jobs. PPeople who have…
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47yr old FTD and TERRIFIED
Hello. I'm new here. My name is Stacie. I'm 47 and was diagnosed FTD in 2017 following an injury sustained during routine brain surgery for VP Shunt placement in 2007. I noticed signs of declination in cognition then but for the most part symptoms were minor until the last year. Now, I am very embarrassed to admit that I…
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Korsakoff Syndrome(1)
My sister 64 has Korsakoff with major short term memory loss and selective loss of long term memory loss. Her judgement is not good but she has moments of clear reasoning. After hospitalization followed by rehab we moved her to an assisted living facility near me. I am her primary ‘life-line’ as she calls me and I visit 5…
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I just started reading this and so far it looks great.
I only got to page 39 since yesterday. https://www.alzint.org/u/World-Alzheimer-Report-2021.pdf
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My favorite folks in the world
https://www.youtube.com/watch?v=FeczfCOFZE8
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Father diagnosed with frontal lobe dementia
Hi Everyone, I am the daughter of a father recently diagnosed with frontal lobe dementia at age 67. I am really just starting to try and learn ways to cope with this all after the initial shock. Hence me joining this site and community Ever since my dad's diagnosis, and even before when I knew something was very wrong, I…
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I am glad to see them go after these companies.
So much more needs to be done to stop these companies. https://www.washingtonpost.com/health/prevagen-memory-loss-does-it-work/2021/09/10/53e5d3e8-f3a6-11eb-a49b-d96f2dac0942_story.html
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Resources for In-Home or other Day Care - EO - Minneapolis/St. Paul
Looking for resources to find day care for LO with EO who is not a senior. Could be in-home or at an adult program. Any advice?
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Memory Care for Early Onset
My wife is a healthy 69 year old with early onset dementia. I am looking for some kind of supervised assisted living that is not just full of 80 yr old patients. I have nothing against 80 yr olds, my mother is 92, but I don't think it would be beneficial for my wife. Any ideas?
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Transmissibility of some types of dementia?
IS there new research on this, I was wondering and found this from a publication. Individuals whose spouses were diagnosed with dementia had a six-fold greater risk of dementia, even after adjusting for other factors, than individuals whose spouses showed no signs of dementia. Husbands had a significantly higher risk of…
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Peer Voluneer group
What happened to the Peer Volunteer group? Seems like this message board was a lot more active when we were here!
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FTD diagnosis in the 50's: still working and kids at home
Hi... I'm looking for other folks out there whose partner or spouse has been diagnosed with (or has symptoms of) FTD. Primarily interested in connecting with people of the sandwich generation that might still have children at home, still work, and may have elderly parents to take care of.
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Memory Care Placement
My Jennifer(DW) has eoad and is at point were she needs every adl done for her. We have had 24hr hha through medicare and snt but for past 2 years they will not be able to get aides and the average stay is 2-3 months before they get a day off. I still have to work and even with the hha in the house taking off work 2-4 days…
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Parkinson's Drug Tied to Increased Hospitalizations, Death
https://www.medpagetoday.com/neurology/parkinsonsdisease/94081
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Do dementias always end up visible on a scan, or not?
Or it's the connections that no longer work but everything stays in place? Can you help me understand which types of dementia are visible on scans and which ones aren't? It puzzles me.
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Alzheimer's- don't catch it!
Hi, I'm Tom and how are you!
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Free Brain Donation
I have been trying to add another version of this on the AA site but the file is too large. So for now this will have to do. I reached out to AA and so far not much help. This is very important for all? If AA is successful, you will see the better one. One of the best ways to advance research toward finding answers about…
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I heard from Alz+
Alz+ let me know she is okay and accepting things. She is still staying at her ex-husband's home. She is still grieving her dog Betty. She and her daughter have an appointment with a new doctor next week. I wished her well and let her know that all who posted care a lot for her and we would welcome her back whenever she…
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AAN ISSUES ETHICAL GUIDANCE FOR DEMENTIA DIAGNOSIS AND CARE
That is great to see that they change the way they think about driving. I wish they did better about dying but they did improve it a hair. Press Release EMBARGOED FOR RELEASE UNTIL 4 PM ET, July 12, 2021 AAN ISSUES ETHICAL GUIDANCE FOR DEMENTIA DIAGNOSIS AND CARE MINNEAPOLIS – The American Academy of Neurology (AAN), the…
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Self care during difficult times
My FIL with dementia died this past weekend. The sudden change in daily activity has been jarring. However, I'm doing new things related to arrangements and tasks to wrap up affairs, etc. Brain fog isn't too bad, though it has increased since this weekend. I am more weary and much less focused than usual. Sleep has been…
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Elder law in Naperville area
My husband was recently diagnosed with younger onset alz. We need an elder care lawyer in the Naperville or surrounding area to help us do some financial planning. Any suggestions would be helpful thanks.
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4/1/20 Stress Bldg Strategy Amazing
I just read and printed and began doing this and it is amazing to ease tension. Go to News You Can Use at the bottom , click it and begin, I have it hanging on the wall and it is the best find ever. Just sit in a chair and enjoy Progressive Muscle Relaxation. Thanks!
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Looking for personal stories of diagnosed persons living with joy
We received my husband's AD diagnosis in December after a previous MCI diagnosis. The neuropsychologist that did the testing was very helpful and gave us his best estimate timeline saying we should not see significant decline for the next two years. I want to make the most of whatever time we have; we are financially…
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MCI-- Getting exam for future comparison
I received the dx (diagnosis) of Mild Cognitive Impairment after an MRI of my brain showed significant shrinkage for my age. The neurologist believed it was the reason for my cognitive impairment and increased falling from a standing position. The neuropsychiatrist confirmed that dx, but without extensive cognitive…
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New to Community(1)
Hello community, My father has been diagnosed with early onset Alzheimers. As you all may relate to, times get rough. I live with my father and 2 other family members with a brother who has recently moved out. At the age of 23, I have a lot going on - with a full time job and hobbies. I love my father and would do anything…
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mother in law and I struggling to live together
Hi everyone, I wanted to make a post today to see if anyone has any tips for living with a mother in law (MIL) with early onset alzheimer's which has quite recently progressed. Covid restrictions have taken away her day centre activities and she seems to be really struggling. The family are helping her to access social…
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SSA -- Having a payee means I'm not authorized on my account
I did not realize that having my spouse listed as the payee for my benefits also meant that I was not authorized to do simple things, such as change my mailing address. It isn't as if I I would get checks mailed to me... that is done automatically to an account I have no access too. A requirement for SSDI when it was…
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Dad is 63 and moved him into memory care and he is not adjusting
Hello! Needed a place to make me feel normal so trying this out. I moved my dad into a memory care facility on Friday. He is 63 with early onset. It has progressed fast but not fast enough to weight down his love for outdoor activities. Even when he realized he couldn't do a lot of things he would tell me well I can still…