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Why so hard to get diagnosed?!?
:/ I am so infuriated as to why it is so hard to get doctors to take me seriously!! Why does being highly educated, very intelligent and a health professional make doctors think I am "just stressed out." I would not be ruining my career if I did not know that something is happening to my brain!!
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Looking for Support: MCI Diagnosis with Normal Test Results at 51
Hi everyone. I'm looking for others who might have gone through something similar. I'm 51 and recently received a diagnosis of mild cognitive impairment (MCI) after experiencing memory issues, headaches, and possibly some minor balance issues. Given that my mother has Alzheimer's (I'm her primary caregiver), this diagnosis…
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white matter detected on my brain...
Good evening peeps, I saw my neurologist today and they found some white matter on my MRI which he said could account for my falling, balance problems. He wants to see me back in 3 months after I have another PET scan. He also wants me to go to the Cleveland Clinic Lou Ruvo Center for Brain Health here in Las Vegas. He…
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Early Onset
Hi, I am 59 years old and was just diagnosed with early onset Alzheimer's. To say the least I am devastated. Lots and lots of ugly crying. I am trying to get my hands around all of this, so many things to do and so many questions? Has anyone ever been on a clinical trial? What was it like? I have started taking…
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No idea what to do next…
Hello, my name is Sandy and I am turning 51 years old this coming spring. I have not actually been diagnosed with early onset Alzheimer’s or dementia, but I am in need of help in knowing whether I should accept what my neurologist is telling me or if I should be more aggressive in figuring all this out on my own. A little…
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Searching for answers
Hi … my message is very long so please bear with me The following paragraph outlines my current health situation regarding memory and concentration issues. Before and After 2024: A Timeline Before 2024, for 7 years , I had consistent issues with memory, specifically: ● Difficulty memorizing names and faces. ● Forgetting…
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Dementia at 45
I was diagnosed with HIV associated dementia after having imaging done due to behavioral and cognitive issues, and long term HIV infection. The last five years have been difficult alone, self isolating, now seeing problems completing everyday tasks or just takes a lot longer. I can't even get into the bathroom to brush my…
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Newly diagnosed with Fahr’s Dementia
Hello all, I (59 female) am very happy to have found this group and hope to gain and give support. I was diagnosed with Fahr’s Dementia following a mental health crisis. My once stable anxiety and depression symptoms increased terribly which were accompanied by continued difficulty with my work (Speech Pathologist) and…
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Newly diagnosed with early onset Alzheimer's I'm 59
Im single and work fulltime. I live paycheck to paycheck. I'm in early/mild , kinda crossing over. I have no idea what to expect. Or any kind of timeline. I have debts and need some direction. There is no long/short term disability where I work. I expect a 2 week severance when they find out. How long will i be able to…
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Live womens groups in San Diego area?
Putting this out there to see if there are any early onset women in the San Diego area who would be interested in getting together occassionally. My wife, 65 years old, EO and early stage is interested in meeting other women for support and socialization.
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55 and have early/mild Alzheimer's
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Just got pet results
I’m freaking out because it appears to me that it’s saying I have ad. Now to wait for my appointment to go over my bloodwork and pet results in two weeks. Unfortunately my family has a strong history of early onset dementia, but still, 42 is the youngest in my family if it’s true. I’m hoping doing some research will help…
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Just Diagnosed with AD
Good Morning, New to this group. I was just diagnosed with AD (early stage). I am 60 and I still function at a high level. Because I can function at a high level, it is very difficult to accept this. My biggest fear is that of the unknown. How long am I going to be able function at this level? When will the debilitating…
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Did the SLUMS test....outcome....Dementia
Hello, I really don't feel like I belong here bc I don't know all the big test names that everyone else seems to know, but I'm scared and looking for ppl who understand. I've had a brain MRI that came back as normal, But I knew in my heart that something is majorly wrong with my memory, so I requested to have a cognitive…
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What is the best way to track cognitive changes?
I have asked my neurologist how I could get a neuropsychological assessment for the MCI that was picked up in a screening. They still have not found a cause. Is this the best way to track cognitive changes to get one of these assessments and have it redone periodically? If so, how often? Or is another method better? I…
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Moderate Sedation with MCI
I’m 51 and scored in the MCI range on a recent cognitive screening when I told a neurologist I felt like I had memory issues. The cause is still being determined. Initial blood tests show it’s likely not Alzheimer’s, though I still have an MRI and sleep eeg. That said, my mother has Alzheimer’s, as likely my paternal…
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Mild Cognitive Impairment
Hi, my name is Barb (61 yo), and I am trying to find out more about Early onset Alzheimer’s. I completed Neuropsych testing two years ago and was diagnosed with Mild Cognitive Impairment. I feel like I am struggling more so I had the testing redone. I have not heard the results yet, but I know my scores went down. I had a…
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Is there any hope?
I am turning 50 at the end of the month, I just got the PET scan done and it says I have AD. I have 4 adult kids and 2 grandbabies that are under 2. Is there any pill I can take?
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Picturing of someone I have seen before and not being that person
Hello, I went to the doctor’s today. I pictured what the doctor looked since I have seen him before. Well, it was another face and not the right person. This has been happening more often. For another recent example, I walked into a coffee shop and I notice this man and I think he is one of my sons. My daughter and I…
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Early onset dementia webinar
From Michael Ellenbogen: On September 16, 2024, from 2:00-3:00 p.m. ET, the National Alzheimer’s and Dementia Resource Center will host the webinar, The Experience of Younger Onset Alzheimer’s Disease and the Importance of Community Support. A description of the webinar and registration information follows. Living with…
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Omaha area
Hello all! I am looking for people/groups in the Omaha area for those who have been diagnosed at an early age (50’s). I have called around but no results. Just thought I’d through it out here and see!
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Leqembi
Is anyone using Leqembi and what is your experience?
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Raw plant based possible remedy
Grand rising family!I wanted to ask a quick question?I was told that raw plant based diet could help reverse the early onset Alzheimer's and wanted to know if anyone else have heard this same information or heard of anyone who has reversed it using this method
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Having surgery.
Hello all, I plan on having surgery soon and I have been told that i could progress because of this. I guess it will be a “twilight” type of sedation. So, not sure if anyone has ever gone through and felt off after?
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ANOSOGNOSIA, MCI diagnosis in Jan 2024, probably mixed vascular dementia
Hi everyone. I am new here and this is my first post. I have been working to get a specific diagnosis but at this point don't really care. I know what I see, live and deal with and it is definitely mixed dementia probably vascular in nature (MRI showed strokes) with Anosognosia (God please help me with this one). I also…
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My fiance has early onset Alzheimers. He is 57.
Hello, My fiance was diagnosed with early alzheimers when he was 54. It has progressed since then. He is now 57 and his speech is not good and gets confused a lot. I don't feel the medication he is slowing it down. He is on galantamine and mentanine. Any suggestions would be helpful. Angela
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Struggling at work
Hi, I have not been diagnosed with EO but have a lot of symptoms. (I am 61) I had neuropsych testing 2 years ago and was diagnosed with Mild Cognitive Impairment. I feel like things are getting worse so I scheduled a second neuropsych evaluation in August. Has anyone here gone from MCI to Dementia? Has anyone been…
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I'm newly diagnosed and scared
Hello, I am not new to this site as I was a caregiver to my mom who had dementia. She died in June of 2017, and now I have just been diagnosed with early onset. I'm only 51 and I'm scared because I've seen first-hand what dementia does to a person and to their family and I am just terrified. It's hard to talk to my family…
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EO at 50
Hi All Two years ago I was diagnosed with EO. I am now 52 years old and really battling with this. I just can't accept the fact that this has happened to me. The frustration and anger is all encompassing. My wife has been the most supportive, but I can't stop feeling the guilt and shame of what this disease has robbed me…
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Looking for care help for EO Alz Canton, GA
*** closed... thank you *** Hello. I am looking for someone to help my brother-in-law care for my sister. She is 61 with beginning late stage Early Onset Alzheimers. They live in the Woodstock/Canton area. What is the best way to find someone that knows what they are doing? He has interviewed so many that don't quite get…