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PCA zAlzheimer's
Anyone on here have pca Alzheimer's? I'm not sure if that's the type I have, because it's real early. Just diagnosed the other day. But the occipital lobes is where all my plaques are at from the pet scan. Some vision problems already though. Ugh
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Coping
Hello Im 50 years old female and just found out I have Alzhiemers. My question is what are some ways to accept the diagnosis, cope and deal with it. I am highly depressed, worried and my anxiety is through the roof. Thanks!! Stacy
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I’m still aware when I have issues and it is scary.
I wear glasses. I only take them off to sleep and shower. Yesterday I came out of a store, got ready to drive home and noticed I didn’t have my glasses on. I couldn’t find them. I went back in store to see if I took them off at register for some reason. No. Went back out and saw them on the ground behind my car in parking…
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Don't ever trust your caregiver if they tell you are being placed somewhere temporarily
If was you I would not trust those words and put a contingency in place if you never want that to happen.
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Driving complacency with automated car safety equipment
While I have not been diagnosed with EO, I did notice small challenges, such as parking too far away from curb when parallel parking and needing to repark, or not remembering the street speed limit (was that 25 or 35 mph?) that I would have noticed when younger. I have considered getting a car with automated car safety…
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New to younger onset group
Hi 👋 I’m new here. I posted earlier, and here is a follow up question. I’m a 58 year old school counselor just dx with MCI. For those in the same situation, who did you and not tell the news to?
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Experience with Aduhelm or Leqembi
Good afternoon. I hope everyone is doing well and enjoying the Holiday season. I'm interested in hearing everyone's experience with aducanumab (Aduhelm) or lecanemab (Leqembi). If you were in a clinical trial or are currently receiving one of these treatments, could you share your experience here? Do you notice any…
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To the new members
How are you all doing? The holidays and the end of the year are here again. I hope everyone is spending time as they wish. I enjoy my own company, and relish quiet time. Merry Christmas and Happy New Year to all! Iris
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New to the group
Hi, my name is Kevin. I am 61and was diagnosed with ALZ last august. My family has been very supportive. I am finally telling my friends. They are great, but I still feel alone. Any suggestions?
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New to group
Hello, My wife age 56 was just diagnosed with early onset. This past several months I held her as we both cried and she stated 'I don't know what is happening to me' She is aware of her condition at this time which is very hard for her. Where is the best place for her to get support and connect with others in the same…
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Falling down
Hello, I am having issues with falling down stairs and going up the steps. I think I “see” the stairs but then I’m falling down and hurting myself.
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Feeling lost
Hi Everyone!! I am 52 years old and was diagnosed with MCI a year ago and started on Mementine almost a year ago. I had neuro psych testing, an MRI, EEG and 2 spinal taps. My doctor suspects EOA so he started me on Mementine. It has helped but just recently has started helping less. My doctor told me on my last visit thst…
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Tested but no diagnosis for significant memory deficits at 56 yrs old
Good morning. I have had two sessions of computer based testing at a neurology office as well as a three hour neurocognitive testing done at the behest of a neuro-psychologist. The neurology testing showed memory issues along with "executive functioning" abnormalities. The neurocongnitive testing primarily showed…
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NIH research participation
Hi has anyone done any participation in NIH (nationtional Institute health) for research? I have seen some about this and was curious if anyone has. I have done some at my hospital. I am hoping that if I can help with the research study that some day they will be able to find some cure in the future.
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Having hallucinations
Hello, I was wondering if anyone is or has hallucinations? I have been getting them more and more lately. They feel so real and it takes me a bit to realize that they are not real. I’m not sure what to do. I don’t want to hurt myself nor do these hallucinations suggest anything like that. I’m on aricept 10mg. Is this a…
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Hello-New Member
I was diagnosed with EO Dementia in July of 2021 at 60 however, they think I had it as far back as age 50. I will be 62 in April. I am married and I live in Hiawatha, IA. My husband and I are both retired. Together we have a melded family-we have 6 grown children and a total of twelve grandchildren. I am interested in…
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New member
Hello. I'm brand new to this area. Just diagnosed with EOAD yesterday. I had a stroke in Feb 2022, so I thought I had vascular dementia, but CT and Pet scans and other tests and med hx and whatever the docs do say EOAD. My 58th birthday was last week. I'm grappling over giving up driving. My wife and I live in the country,…
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Neuropysch tests
Hello, I was curious about how often do you have/get a neuropsych test done? I had one done a year ago and now I need to have another one in a couple of months. I am not a big fan of these which stresses me out. This one is going to be 4 hours long. Does this show changes from the others?
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OT: Bob Barker tribute
Bob Barker of "The Price is Right" fame will be honored tonight with a prime-time tribute special. It will show at 8 pm Eastern time and Pacific time. It will repeat on Monday morning, Labor Day.
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Diagnosis Process
Hello, I haven't been diagnosed with anything yet, but I am sure I have something. Can anyone tell me what the diagnosis process will be like? My initial consult won't be until October 25th and I am wondering what tests I will go through on that date and any follow-ups after that. Thank you in advance, Jim
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@jeaamom4
Welcome to our online support group, jeaamom4. I'm glad you found this site because you can learn quite a lot to help yourself. I myself have Sjogren's Syndrome along with systemic lupus and I also have a diagnosis of cognitive impairment not otherwise specified. "Not otherwise specified" means that the cognitive…
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@DrMichaelISG
Mike, you posted videos about dementia and I said they did not address my experience. Here is my experience. In the beginning, I felt as though I had a hangover, although I had had no alcohol. My brain was "fuzzy". Now, after all of the treatment I have done for myself, I don't have any fuzziness. Nowadays, I feel alert,…
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Improved Diet/Exercise
Does anyone have any success stories to report on improving their diet and increasing their exercise after their diagnoses? (I will define success as weight loss, improved mood etc) Does anyone have any recommendations on MIND diet resources--recipes, blogs, websites, etc? Finally, has anyone used the resources of a…
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Where can I find LEQEMBI
Hello everyone. I new to here and I am taking care of my mother that was diagnosed with AD. I live in USA-CA, however my mother lives in Brazil. She is in the early states of AD and her doctor said that LEQEMBI would be a good treatment option for her, however it is not available in Brazil. I would like to know if anyone…
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A Newcomer
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My First Brave Step
Hello Everyone, I'm James and I'm 62 years old.... I'm taking the time to better learn more AZ/Dementia. My mom recently passed (Feb 23) and she was diagnosed as having dementia. I'm concerned that I'm starting to experience some early symptoms. Thank you all for being here and your willingness to share.
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New and wondering what MCI as a precurser means
Hello - I’ve lived with autoimmune issues, celiac disease, and a series of traumatic brain injuries that resulted in vertigo, tinnitus, and auditory and visual intolerances for 20 some years. Two years ago I had to stop working due to speech and memory issues that became painfully noticeable to colleagues, to my…
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41 with MCI and very conscience of the changes
I have taken a neuropsych test 6 hours and brain mapping. I notice the changes drastically. I'm not the same person that I used to be. I don't like the new me and have a lot of regret for how I've spent my time and how I will spend what is left. I'm scared and severely depressed. I feel invisible to those around me. Mo one…
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Relearning everything
I am 65 and was diagnosed 5 years ago. I feel I am doing well. My husband helps me with meds, bills, and watching the grandchildren, and whatever I need help with. So I discovered this site via an email I received. I signed up and it said I am already signed up, I don’t remember doing that! This isn’t the first time I’ve…
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Medicare Change: Will Now Pay For Drugs Having FDA Approval
Medicare will now pay for drugs that have FDA approval including newly approved drugs for dementia. MDs will have to report patient response: https://www.aol.com/news/medicare-plans-pay-alzheimers-drugs-203839696.html J.