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Experience with Aduhelm or Leqembi
Good afternoon. I hope everyone is doing well and enjoying the Holiday season. I'm interested in hearing everyone's experience with aducanumab (Aduhelm) or lecanemab (Leqembi). If you were in a clinical trial or are currently receiving one of these treatments, could you share your experience here? Do you notice any…
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To the new members
How are you all doing? The holidays and the end of the year are here again. I hope everyone is spending time as they wish. I enjoy my own company, and relish quiet time. Merry Christmas and Happy New Year to all! Iris
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New to the group
Hi, my name is Kevin. I am 61and was diagnosed with ALZ last august. My family has been very supportive. I am finally telling my friends. They are great, but I still feel alone. Any suggestions?
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New to group
Hello, My wife age 56 was just diagnosed with early onset. This past several months I held her as we both cried and she stated 'I don't know what is happening to me' She is aware of her condition at this time which is very hard for her. Where is the best place for her to get support and connect with others in the same…
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Falling down
Hello, I am having issues with falling down stairs and going up the steps. I think I “see” the stairs but then I’m falling down and hurting myself.
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Feeling lost
Hi Everyone!! I am 52 years old and was diagnosed with MCI a year ago and started on Mementine almost a year ago. I had neuro psych testing, an MRI, EEG and 2 spinal taps. My doctor suspects EOA so he started me on Mementine. It has helped but just recently has started helping less. My doctor told me on my last visit thst…
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Tested but no diagnosis for significant memory deficits at 56 yrs old
Good morning. I have had two sessions of computer based testing at a neurology office as well as a three hour neurocognitive testing done at the behest of a neuro-psychologist. The neurology testing showed memory issues along with "executive functioning" abnormalities. The neurocongnitive testing primarily showed…
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NIH research participation
Hi has anyone done any participation in NIH (nationtional Institute health) for research? I have seen some about this and was curious if anyone has. I have done some at my hospital. I am hoping that if I can help with the research study that some day they will be able to find some cure in the future.
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Having hallucinations
Hello, I was wondering if anyone is or has hallucinations? I have been getting them more and more lately. They feel so real and it takes me a bit to realize that they are not real. I’m not sure what to do. I don’t want to hurt myself nor do these hallucinations suggest anything like that. I’m on aricept 10mg. Is this a…
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Hello-New Member
I was diagnosed with EO Dementia in July of 2021 at 60 however, they think I had it as far back as age 50. I will be 62 in April. I am married and I live in Hiawatha, IA. My husband and I are both retired. Together we have a melded family-we have 6 grown children and a total of twelve grandchildren. I am interested in…
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New member
Hello. I'm brand new to this area. Just diagnosed with EOAD yesterday. I had a stroke in Feb 2022, so I thought I had vascular dementia, but CT and Pet scans and other tests and med hx and whatever the docs do say EOAD. My 58th birthday was last week. I'm grappling over giving up driving. My wife and I live in the country,…
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Neuropysch tests
Hello, I was curious about how often do you have/get a neuropsych test done? I had one done a year ago and now I need to have another one in a couple of months. I am not a big fan of these which stresses me out. This one is going to be 4 hours long. Does this show changes from the others?
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OT: Bob Barker tribute
Bob Barker of "The Price is Right" fame will be honored tonight with a prime-time tribute special. It will show at 8 pm Eastern time and Pacific time. It will repeat on Monday morning, Labor Day.
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Diagnosis Process
Hello, I haven't been diagnosed with anything yet, but I am sure I have something. Can anyone tell me what the diagnosis process will be like? My initial consult won't be until October 25th and I am wondering what tests I will go through on that date and any follow-ups after that. Thank you in advance, Jim
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@jeaamom4
Welcome to our online support group, jeaamom4. I'm glad you found this site because you can learn quite a lot to help yourself. I myself have Sjogren's Syndrome along with systemic lupus and I also have a diagnosis of cognitive impairment not otherwise specified. "Not otherwise specified" means that the cognitive…
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@DrMichaelISG
Mike, you posted videos about dementia and I said they did not address my experience. Here is my experience. In the beginning, I felt as though I had a hangover, although I had had no alcohol. My brain was "fuzzy". Now, after all of the treatment I have done for myself, I don't have any fuzziness. Nowadays, I feel alert,…
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Improved Diet/Exercise
Does anyone have any success stories to report on improving their diet and increasing their exercise after their diagnoses? (I will define success as weight loss, improved mood etc) Does anyone have any recommendations on MIND diet resources--recipes, blogs, websites, etc? Finally, has anyone used the resources of a…
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Where can I find LEQEMBI
Hello everyone. I new to here and I am taking care of my mother that was diagnosed with AD. I live in USA-CA, however my mother lives in Brazil. She is in the early states of AD and her doctor said that LEQEMBI would be a good treatment option for her, however it is not available in Brazil. I would like to know if anyone…
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A Newcomer
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My First Brave Step
Hello Everyone, I'm James and I'm 62 years old.... I'm taking the time to better learn more AZ/Dementia. My mom recently passed (Feb 23) and she was diagnosed as having dementia. I'm concerned that I'm starting to experience some early symptoms. Thank you all for being here and your willingness to share.
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New and wondering what MCI as a precurser means
Hello - I’ve lived with autoimmune issues, celiac disease, and a series of traumatic brain injuries that resulted in vertigo, tinnitus, and auditory and visual intolerances for 20 some years. Two years ago I had to stop working due to speech and memory issues that became painfully noticeable to colleagues, to my…
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41 with MCI and very conscience of the changes
I have taken a neuropsych test 6 hours and brain mapping. I notice the changes drastically. I'm not the same person that I used to be. I don't like the new me and have a lot of regret for how I've spent my time and how I will spend what is left. I'm scared and severely depressed. I feel invisible to those around me. Mo one…
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Relearning everything
I am 65 and was diagnosed 5 years ago. I feel I am doing well. My husband helps me with meds, bills, and watching the grandchildren, and whatever I need help with. So I discovered this site via an email I received. I signed up and it said I am already signed up, I don’t remember doing that! This isn’t the first time I’ve…
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Medicare Change: Will Now Pay For Drugs Having FDA Approval
Medicare will now pay for drugs that have FDA approval including newly approved drugs for dementia. MDs will have to report patient response: https://www.aol.com/news/medicare-plans-pay-alzheimers-drugs-203839696.html J.
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New here- very worried about genetic link
Hello I am new to this forum, this topic and this new life with my mom. I only have a few minutes to write since I have young children so I will try and be brief! After years of wondering about my mom's cognitive decline she is finally being seen by Mayo. Her brain scan and spinal are next month. We have tried to talk to…
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GROUP HOMES
I am 55 with EO and i am still working for now and I have applied for disability retirement through my work. I was wondering if there are any group homes for someone like me to live. I don't think my DW is being able to handle the changes that are going on with me especially my agitation. I live in Lancaster county…
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Alzheimer’s anger
I need help dealing with my husband who has early onset Alzheimer’s. I don’t know how to deal with his anger.He blames me for his drivers license being revoked, blames me for not wanting to buy another house… his cognitive score is 11/30 currently. I am so depressed and don’t know how to handle this. Does anyone else have…
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The Alzheimers Association site has become just to complicated for me and I am really thinking
The Alzheimers Association site has become just to complicated for me and I am really thinking of giving up. I have asked for help from moderators and they just ignore you. That don car one bit about those with dementia and the caregivers. This change was a disaster and they are maying changes by the seat of their paints.…
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Newbie(1)
Hello, I was diagnosed with EOA last October 2021. I had suffered a heart attack/SCAD(spontaneous coronary artery dissection) a couple weeks before that. I then suffered from strokes and brain aneurysm. My former doctor disagreed with the diagnosis and suggested it was an autoimmune disease or functional disorder so she…
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Alzheimer Law Allows Younger Patients to Gain Eligibility for Grants, Programs
https://www.pharmacytimes.com/view/alzheimer-law-allows-younger-patients-to-gain-eligibility-for-grants-programs