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No diagnosis yet...worried.
Hello everyone, I am posting again to this wonderful community that helped me through my mom's Dementia until she died about 5 an a half years ago. Now I am noticing some things about myself that is worrying me. I find myself being much more forgetful. Now I've always been a little forgetful, but I was always able to find…
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Assisted living with memory care(1)
Hi all, can we discuss the options available to start preparing for looking for ALwith MC for Early Onset AD person? My wife is 57, the disease is slowly progressing. She's on disability and will get Medicare in April of this year. I still work, will be 65 this year, what options are available out there? Any financial help…
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2023 National Research Summit on Care, Services, and Supports for Persons Living with Dementia and T
The National Institute on Aging (NIA) will host the third triennial National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers/Care Partners on March 20-22, 2023. The Summit will build on the progress of the previous Summits to review research progress, highlight innovative and…
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Young onset Alzheimer’s
My husband 59 yrs old got diagnosed with EOA 2 yrs back, I do see a slow decline in him. I’m in NJ.. any resources available here to keep him and busy and caregiving help. I’m lost and depressed.
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I’m still so frustrated
I find myself still getting really frustrated with my husband who is only 46 and has dementia. I think I’m just mad in general. I have a 14 year old at home and now it seems as though I have two kids and no husband. But I feel so guilty for feeling this way.
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I am back
Hi Iris, just came back from a cruise on the new Panama canal. While it was great I stayed in my room most of the time. Not the old me. That made me decide to cancel another cruise planned for next March. I just like being home. I did like the day trips that are structured. I have one more cruise planed this year an that…
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If I get dementia
My wife’s sister posted this on Face Book and I wanted to share it. If I get dementia, I’d like my family to hang this wish list up on the wall where I live. I want them to remember these things. 1. If I get dementia, I want my friends and family to embrace my reality. 2. If I think my spouse is still alive, or if I think…
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Refusing Food, Drink, and Medications
Hi everyone! My mom has had EO dementia for about 10 years now and it is progressively declining. She suffers from severe paranoia. Over the last few weeks, she refused to take medication to helps with the hallucinations and anxiety and now also refuses to eat or drink. We are going on Day 5 with no medication, no food, or…
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recent mild cognitive imparement diagnosis
Greetings, I am a 57 year old divorced father of 2 (16 and 12) and have recently diagnosed with mild cognitive impairment (MCI). This diagnosis occurred after several years of issues and since January of this year, had become much worse. I am looking for assistance to get into some of the trial or how to get a better…
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45 y/o with Early Onset
Hey all, new to this. Diagnosed at 43. Still trying to figure out what to do with my days. I can’t drive anymore and I am unable to work. I don’t really live in a big “walkable” town. I’m used to being around people and not being around anyone all day is mind numbing. Any suggestions? I can’t seem to learn how to do new…
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Inexpensive home camera to watch LO with Iphone when I'm at work?
My wife has EO and is home alone 2 days per week while I work. I would like to set up cameras in the living room and kitchen to check in on her with my Iphone. Can anyone recommend an inexpensive set up that I can use with my Iphone to get real time decent quality video?
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The Global Council on Brain Health (GCBH) examined the impact of delirium
https://www.aarp.org/content/dam/aarp/health/brain_health/2020/03/gcbh-delirium-report-english.doi.10.26419-2Fpia.00101.001.pdf
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Elder Attorney vs Advanced Directive?
My DW has EO at 52. I would like to make sure things are in order while she is still able to. She is willing to sign an Advanced Directive with a notary public that I got from her primary doctor. Is that the same thing as what an Elder Attorney would do to give me power of attorney? I'm very happy that there is so much…
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Planning with parent with early onset
Apologies for cross-posting. My (28f) mother (54) was recently diagnosed with early onset Alzheimer’s. My father, siblings, and I already know her wishes for end of life care, but I want to have a discussion with my parents and siblings about what my mom envisions for her life over the next 5-10 years. We obviously don’t…
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'Our Body is thy temple' 'is now airing
Exciting news. Our new series 'Our Body is thy temple' 'is now airing on Glewed.TV. We have been shooting this series around the country over the last year and we take a deep dive into the disparities in the black community and their health and the role the black church can play. We feature such conditions as diabetes,…
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Assisted living with memory care
I’m going to visit a assisted living home with memory care unit next week. I’m being recommended by my doctor to start plan for future whatever I can. Someday I probably will need assisted living and this I can get help with my digestive problems. But I can still get around with my walker so I can stay at home.
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Planning for a future in assisted living with memory care
Hi everyone! My doctor and specialist are saying I should make plans now while I still can. I see there might be a time when I will need to be in a home, I really hope not too soon. I had a tour of a nice assisted living room and memory care. I can have my own room, 3 meals a day and I can do crafts and groups activities.
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FYI(5)
https://www.nia.nih.gov/sites/default/files/2022-11/2022_nih_progress_report_ad-adrd_research_1.pdf
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Anger with discussion of memory loss
Mom has young onset dementia, and is very adamant that there is nothing wrong with her. So having a discussion with the MD about her anxiety from the dementia is going to be very difficult in a couple of weeks. How do you all handle that?? If I even mention how her memory is worsening to the doctor, she is instantly mad at…
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Transportation Solutions
My mom is 56 and has early onset, I recently told her she wouldn’t be allowed to drive. It was probably the most traumatizing conversation I ever had. She flipped out, had multiple tantrums and breakdowns, said she would rather be dead, etc etc. . However now we are in a position where we do not have a means for her to get…
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Online Support Group for male caregivers of early onset wife
This is a monthly online support group specifically for male spouses caring for their early onset dementia wife. The support group is operated through Lorenzo’s House and is called The Light Lounge. The Light Lounge is a virtual space where male caregiver spouses of a loved one diagnosed with younger-onset Alzheimer’s or…
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How Long till Death?
I know this sounds like a morbid question. My sister is 57 and has reached the 7th level of the disease. She has Bensons syndrome, which is extremely rare and it has taken her eyesight. She lost 35 Pounds over the past year, and the Dr's are saying that it is linear and we should expect her to lose the same or more in the…
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Not sure where I fit
Hi, I posted here months ago but I deleted it as I wasn't sure it was appropriate. I'm in my 50's and I feel there are probably changes in my brain but I don't know how to proceed and wondered if anyone could guide me. Here's what I've got going on: 1) family history of AD (older onset) 2) subjective cognitive decline over…
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2022 National Alzheimer's Summit Alzheimer’s Prevention, Detection, and Treatment The Power of Us
Please donate to this great organization. They are the ones bring much of the change you see today. https://www.usa2summit.org/?sourceid=1073707&emci=9da55103-2a47-ed11-b495-002248258d38&emdi=cb12a20e-e148-ed11-b495-002248258d38&ceid=5966765
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Where To Get Alzheimer’s Blood Tests: A 2022 Update
https://www.beingpatient.com/where-can-i-get-an-alzheimers-blood-test/
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Maybe I have finally figured this disease out
I have been trying to figure out Alzheimer's disease for nearly twenty years. It comes down to this very simple observation: "The inflammatory mediator peroxynitrite, when generated in excess, may damage cells by oxidizing and nitrating cellular components. Defense against this reactive species may be at the level of…
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Younger onset
Hello amazing people, my dear friend has been recently diagnosed with Alzheimer at 51.
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I believe I passed the road test.
Today I completed the last item on my bucket list. What an amazing day. Pictures https://164boatyardroad.imgbb.com/ Video https://www.youtube.com/watch?v=BQAJx7g-sk8 Now I need to find something new to do.
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Just diagnosed at 47 yrs old
Desperately seeking clarity in this ocean of information to know what I need to do to safeguard my family. It's been a couple of months and I'm waiting for my next appointment to another neurologist at WF. I have been able to tell most of my family as the reality is sinking in. I have been a part of this site for several…
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Echolalia
I just recently learned the term and it is what my husband does. Not constantly but often enough that it can get annoying. He will randomly repeat what is on the radio, what other people in the room say, etc. He seems unaware that he does it. It is done almost immediately after he hears something and unmitigated. We don't…