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J&J vaccine
J&J vaccine is being investigated regarding blood clot complications in a small number of recipients. There is a condition called antiphospholipid syndrome aka Hughes Syndrome, that causes mini clots and spontaneous miscarriages. It is very rare. I have this condition. My hypothesis is that some women with this…
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Advice Wanted
Hello, My dad was diagnosed with vascular dementia in late 2018. He and my mom live in LA while my sister and I live in NC. He can only be left alone now for no more than 1.5hours, is no longer allowed to cook (he’s almost burned the house down) and can no longer drive. My mom is still working so he does have a sitter with…
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Got first of two vaccine shots yesterday
We have been waiting a long time for appointments to be available in my rural town. I learned that a city in my county a couple hours away had same day appointments available. I made an appointment for Friday morning, got my shot, and got home within 6 hours. Exhausting day. But it was worth it. There are still no…
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New Approaches to Long-Term Care Access for Middle-Income Households
It’s expected that 15% of baby boomers will spend over $250,000 in long-term care costs. Milken Institute outlines how the public and private sectors can expand LTC access. https://bit.ly/3mq9LXZ
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Better Brain Health through Equity: Addressing Health and Economic Disparities in Dementia for Afric
1. As our country ages and diversifies, we must support and promote healthy longevity and health equity. A new @MilkenInstitute report recommends 5 ways to build better brain health and reduce disparities: https://bit.ly/2PaKTHF 2. We have the power to advance and support equity in dementia care by delivering collaborative…
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Australia National Dementia Helpline
Description The National Dementia Helpline is an Australia-wide telephone information and support service for people with dementia, their carers, families and friends. Health professionals and service providers, community organisations and people concerned about memory loss can also contact the helpline. Services provided…
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New Brain Guide
UsAgainstAlzheimer’s has recently launched BrainGuide, a first-of-its-kind platform that empowers people with knowledge and resources to take the best next steps in managing their own or a loved one’s brain health. With more than 60 percent of Alzheimer’s cases in people over 65 years old going unrecognized, there is an…
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Friend Still Asking Why Me
How do I get my friend to get past the stage of WHY ME? I'm tell him every day he has so much to offer this disease doesn't define who he is. Things that once came easy for him is a struggle and he gets frustrated and angry. How do we get past this?
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Meghan Markle, suicidal ideation and stigma
Her interview struck a nerve with me because I can identify with her. When she broke down and admitted she needed help, she went to HR but was told she couldn't be helped because she wasn't a paid employee. I had a similar experience. Years ago, when I was told I had dementia, I called a suicide hotline, because I was…
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I lost my COVID weight
I gained a lot of weight after the lockdowns; fortunately I have been able to lose it. I heard on the radio this morning that people have gained 30-40 lbs on average! This is terrible! As if COVID were not bad enough. Also, I took my second COVID vaccination today. After two more weeks, I'll be out of COVID jail. Iris
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First Post - My husband may have dementia and I am terrified
Hello All, My husband is only 61 and after several months of arguments about me having told him something and him insisting that I didn't we finally had a breakthrough of sorts. I have a special needs daughter that we had to delay taking out to dinner for her birthday due to COVID but we were finally able to do it last…
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I got my first Covid-19 vaccine!
I'd been trying for over a month, since mid January, to get the vaccine. I even emailed my city councilman. I finally got an appointment for the next day at CVS. I filled out questions online. The shot was barely perceptible. I have had no reaction after 48 hours. I already have an appointment in four weeks for the second…
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Using Poetry as an Outlet
Hello everyone. My amazing momma is writing a series about using poetry as an outlet for people who have someone close to them that have Alzheimer's Disease or Dementia. If you're interested in this idea or reading poetry about this difficult topic here's the link to the article:…
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Instagram support page
Hello my name is Eleanor. My dad was diagnosed with early onset Alzheimer’s when he was 56 years old. I was 15 years old at the time and struggled to come to terms with it all. I have set up an Instagram page called early_onset_alzheimers_support for any families who are currently struggling to come to terms with it all…
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Free On-Line Activities
Does anyone know of any free on-line activities that people with EOA can join? Things to do to keep your mind sharp and focused? Thank you.
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IRIS(9)
Hi Iris, I do not do Connections, but I have sent an invite to you. Reason: I saw where you mentioned difficulty obtaining your COVID Vaccination appt. despite well filling the criteria in our area. I have some information that may be helpful for success. If you have managed to find a location and have an appt., that is…
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Benefit of therapist or Psychologist for husband
My 65 year old husband was diagnosed with younger onset about 3 years ago, as things are getting progressively worse I’m thinking it would be helpful for him to talk to someone like a therapist to help him deal with what’s happening, I’m not sure if he would even agree to it but I would like to hear others thoughts and…
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Another one of my Podcast.
This was tapped over 6 months ago but just came out today. I even for got about it. https://www.spreaker.com/user/8098964/episode-7-michael-ellenbogen