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I’m sad today
I know these are little things, but it makes me sad to see my DH declining. Yesterday he admitted that he was having trouble using his kindle, of which he’s had several over the last 15 yrs. or so. Then in the afternoon I found him eating raw cookie dough out of the freezer. I got angry and he was so embarrassed. He’s…
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Elder law answers
Researching Medicare or Medicaid? Google Wants to Help Google has announced changes to the search experience for users seeking information about Medicare and Medicaid eligibility and enrollment. Read More... No Will? You're Putting Your Kids at Risk As the recent death of Anne Heche shows us, not having a will can place a…
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It's good
Yesterday I visited dw and got home about 10am. And like everyone here I have a to do list. I had a large popular tree fall about a month ago. It was dead. It was along our creek and it fell across the fence so I had cut it out from the fence and put it back up. Our neighbors have cattle so I just did the right thing. Now…
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Frontal Alzheimer's disease
The geriatrician who saw my partner last week told me that he has frontal Alzheimer's disease. Not frontotemporal dementia but frontal Alzheimer. She sees it in his impulsiveness, the fact that he brings everything to him roughly, that he puts things in his mouth, that he screams... I feel like this is bad news because…
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What do I do next?(1)
DH has FTD. I tried to get both of us into an assisted living facility near our daughter so I would have some help. Yesterday I went back there for a second look at the apartment, took DH with me and he behaved so badly that they said he needed to be medicated and they wouldn’t be able to take him. DH has no doctor,…
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A trip to the ER
A tough day, after a not-great evening. Last night, DW required an hour-long clean-up after the most massive bowel movement accident we’ve ever experienced. A mess everywhere, and after getting her clean (fortunately, she did not resist—how we look for bright spots!), the bathroom needed a thorough cleaning and laundry…
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Medicare drug plans
My DH doesn’t not have a Medicare drug plan, I know we will have to pay a penalty to get one. Right now, he is only on Arecept. Does anyone know which drug plans are best as we get further into the disease and he will need other meds?
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One month in MC, just to update
Hi there, DH has been in memory care one month. He is adjusting pretty well. Everyone says hi to him, and he smiles and says hi back, though he will sometimes laugh and comment that "there are some screwballs here". He does not remember much these days, when I go see him if he's just finished lunch he will say he didn't…
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Hot showers and Bowel Incontinence
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Buggsroo miss you
Buggsroo hope you’re doing okay!
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Mini Rant
The details don't matter. Today I just had a series of things happen that actually had me holding my head in my hands and telling the wall "I can't *DO* this anymore". Of course I can, and I will, but....come on already.......it's just ridiculous that this is my life.
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Halioperidol in my toolkit
My HWD, despite being on Seroquel, is still prone to fits of agitation, especially regarding undergarments. Tonight I was dealing with him trailing urine soaked Depends goo all over the house, trying to get him to change into a fresh undergarment. He became violent,. I could not handle that along with cleanup, as I had the…
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Feelings in Head
I am not sure if I have asked here about this but my DH has a feeling in his head that he says feels full, which makes him struggle to even walk. The research doctor says that alzheimer's is not the cause of this but I don't know what else it could be. He has had many tests and has had this light headed feeling for…
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Medicare part B and aduhelm
From the NYT Because Aduhelm is administered in outpatient settings, the cost would be borne by Part B, not Part D, the prescription drug plan. Medicare officials factored in anticipated Aduhelm costs when the agency announced a 14.5 percent increase in the standard monthly Medicare Part B premium for 2022, to $170.10.…
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I saw the Doc's nurse this morning
The wife won't let me do anything, every thing is a battle unless it is food. Then I don't know if it is going in her or on the floor. If she doesn't throw it she will eat it later. She has a rash on groin and breast area and it turned into infection under breasts. Smelled awful bad. Sat night after I called 911 and they…
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Ok to sign legal documents?
We are planning to sell our house and downsize. I was speaking with the real estate agent and told her of my husband‘s diagnosis of early ALZ. She has not been around her m much, and was asking if he was mentally competent to sign legal documents. He is pretty self-sufficient right now. Do I need to do anything in order to…
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2 months in advanced care
DH went from the hospital to an advanced care facility on July 11. I was hopeful he would be moved to the memory care unit, but it didn't, and I don't think it will happen. He is unable to stand or walk. He is completely incontinent, and his speech is just a jumble of words...word salad. Every so often he says something…
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MIL 87 Dementia Now Hitting/Slapping
HI Need to know how to deal with MIL 87 Dementia, HOH, for the first time slapped me on the back when I went to open the front door, her, she came from behind me so I did not see her do it and there were no witnesses. The Hospice Nurse was at the door and I went to let her in. I did not react at the time as I was working…
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DH in rehab
DH spent six days in the hospital with A Fib, congestive heart failure, UTI and pneumonia. Yesterday afternoon he was moved to a SNIF which happens to be where our daughter was an aid some 40 years ago when she was in nursing school. DH is very upset at being in the facility, says he is being held a prisoner and tried to…
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M1 again
The last time I remember you visiting your wife was on Sep. 2. Just wondering if you have been back since then, and if so, how did it go?
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Consults with VA Social Worker Consistently Discouraging
DH has been receiving in-patient treatment at the VA hospital Psych Unit for 3 1/2 weeks. The assessment from doctors and staff is that he has not exhibited any of the hallucinations, paranoia, or angry lashing out that drove me to have him admitted for inpatient psych eval and stabilization. I have no expert opinion to…
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Other medical issue
I don’t want to get too far ahead of the situation but I anticipate the medical community will be recommending tests and procedures. DW is well into stage 6 – needs regular assistance now with toileting. I have noticed her stool color is pale grey for the last couple of months. In 2019 a cat scan found incidental mass and…
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Things I do and don't miss
I miss her presence, her laugh, her sense of humor, her touch, her kisses and hugs. I miss the person she was, all the time. I miss being able to talk to her about anything, and getting wise and insightful feedback, and unconditional support. I miss her initiative, her vision, her energy. She made me better than I was. We…
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Should we move?
Looking for advice on whether to move to be near our children and grandchildren now that my husband has been diagnosed with ALZ. He is in the early stages. He drives, plays pickleball etc. but has many problems. He agreed to move but the process of looking for a new home 9 hours away from our home of 31 years is very…
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When to step in?
Trying to let my DH have as much independence for as long as possible. Two years since diagnosed with VD and beginning to see a decline, slow but steady. He no longer seems concerned about his hygiene. Has not been to dentist is 4 years, missing front teeth was supposed to get implants, has the posts but refuses to have…
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News after 3 weeks in the hospital
Yes, the repatriation was already 3 weeks ago… - week 1: tied to the bed, a lot of agitation. He grabs us and hurts us, doesn't eat, spits up... he can't speak. - week 2: still tied to the bed. Slightly less agitated. I start to succeed in making him eat and he has little quiet moments and makes little sentences. I asked…
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Finding Joy in all this.
First let me say this is gonna be a little bit of a rant, so if you don't want to hear me rant,feel free to stop here. I hear so many who have found a great place for their lo's! and i am truly happy for each one,isn't that what we all want, since placing my dw I have found that my choice hasn't been that! Covid limited my…
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Mr. Toad's calendar
More correctly, it's Kathleen's calendar put together by Mr. Toad. This woman was more than talented! While you may not have heard of Kathleen, her work can arguably be compared to that of Ansel Adams. That is really saying something. The pictures are breathtaking. If you haven't ordered one, I highly recommend that you…
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Tech question about this board
Does anyone else notice that being on this forum creates an unusual drain on your device’s battery? I use 2 different model tablets, and I can almost watch the battery level drain on both when I’m here. It doesn’t happen on other sites, at least not noticeably. Or maybe it’s just me or my devices?
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Dh has become so clingy
I am just so tired. We have a caregiver come in 2xs a week for 4 hours. She is very nice and tries to engage dh but he just watches tv and complains that he doesn’t have anything to do. He talks about wanting to do something but never does anything. He will watch me do all the outside work and say he feels better doing a…