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Concerns for our friends on the east coast
Hoping they all make it through Ian without too much to overcome.
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Lasix - yes or no for dementia.?..
My husband is stage 5 currently and is type 1 diabetic for 52 years. He was diagnosed with stage 3 kidney disease a year ago and improved greatly on low salt diet. The doctor prescribed lasix but his legs haven’t really swollen until just recently so I have t used it until now. And as to be expected it caused repeated…
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Could this be true -Just got in my email
This message is sent to all Alzheimer's Association and Alzheimer's Impact Movement board members, all Alzheimer's Association staff, and volunteers and supporters of AIM and the Alzheimer's Association. We have an exciting major development about the potential for a new treatment for Alzheimer’s disease, and we wanted to…
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My dear wife passed at 10:05 this morning
Hi everybody, Jan's suffering is over and I am so glad. I'm going to miss her dearly. I would like to thank each and everyone of you that kept us in your prayers and thoughts. All the advice given which I wish I would have followed at the start. For you newcomers to this forum, the advice given is by people that have gone…
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Heat and cold regulation
My husband is downstairs huddled under a blanket in front of a space heater blasting out heat. The funny thing is... I turned up the a/c because the house is heating up and stuffy after a warm day. I have the ceiling fan turned on upstairs in my study and in the bedroom to mitigate the stuffiness. The room he is in is wide…
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I heard this song yesterday
I will trust you Lord by the McKameys My drive to go to see my dw in mc is about 40 minutes so I have a christain radio station I listen to. My walk with Jesus started about 20 years ago and this station means a lot to so many people myself included. Long story short My level of trust in God has carried me this far and…
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Clogged toilet and Boost
Trying to come up with words that aren’t gross sounding. Has anyone experienced a change in bowel movements after drinking Boost for a few weeks? My DH continually clogs the toilet after BMs and I initially thought it was from too much toilet paper because he folds it creating a bigger mass than just bunched up toilet…
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6 Weeks in VA Psych Unit - No Progress
I am beyond frustrated and more than a little angry. DH has been in the Psych unit of the VA hospital for 6 weeks without any significant improvement in his anger, agitation, and lashing out. The first 4 weeks, they merely continued to give the same dosage of Quetiapine (Seroquel) that I had given him at home for almost a…
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Tips Please!! for Dealing with Capgras syndrome
My husband has been going back and forth between me being his wife and another lady he does not like very much. I can’t pinpoint a trigger. I have read about Capgras and talked with the Hotline. He’s gotten to the point of accusing the “other lady” (me) of stealing his wife’s purse and wallet, using her computer and…
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Grief Counseling
To those who have recently lost a LO; I'd like to add my 2 cents worth of suggestions regarding grief counseling: 1. Wait a month. I think it took me that long to be able to even say DH's name out loud without crying. 2. Make sure you are a 'fit' for this support group in advance. The hospice SW recommended a zoom support…
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DH Passed
I am sad to say that DH passed away on Sept 21, 2022. He declined very rapidly after his last episode and was gone a month later. I did get in to see him on the 20th and sat with him on the 21st. I am angry at the legal system as they charged a man with assault and he didn't know what was going on. He didn't know what he'd…
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Spouse keeps asking for his younger wife/girlfriend
My 75 year old husband keeps asking me over and over if he can take the car and go see me. We have been married for 54 years. He knows exactly the location of the house where I grew up and dated him but its in another state over 2500 miles away. I keep telling him I am right here. That doesn't work! Many times he thinks I…
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Rational Comments interspersed with hallucinations
DH has been in SNF rehab since 9/11. I visit from about noon to 3:30 or 4:00 daily. He gets very confused when I go home. He understands I am going home to feed the cat and dog, but thinks I am also going to take him home to the house he grew up in in New Jersey. He has been in California for 64 years and in the same house…
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Neurologist appointment
We had our appointment with the neurologist last week. I took some of your advice and told him we were going to a Medicare well check that we have to start doing every year. The appointment lasted about two hours and my DH was given the full scope of tests. He did pretty good on some (name as many animals as you can in 30…
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For Hoot619 billing
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Stopping by to update situation
Hi, I've been around quite a while, although previously more active on the caregiver's forum. I wanted to reintroduce myself and describe the current situation. Most of the information regarding my spouse is in my profile, so I won't repeat it here. The progression has been rather slow, and step-wise in nature. There are…
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DH wants a divorce
My DH is pretty early on but on a number of occasions (particularly on my day off) he doesn’t know we are married and when I explain we are he wants a divorce. He wants to know who has the deed to the house (he signed it over to me but doesn’t remember). Today I played along and said I would find a lawyer and he should…
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I was dumbfounded by what DH’s aide said-what do you think
A few months back my DH’s aide said she couldn’t see how I could do what I do. I was taken back because she is only here 12 hours a week while I am here 24/7. She is half my age. Apparently 4 hours, 3 days a week is a struggle. I have just been keeping on keeping on. My husband is one of those that must be on the go…
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things seem to be going downhill
DH is in an enhanced care facility. Price is crazy but he needs to be there. He's unable to walk. He is getting more and more agitated. Hospice reminded the nurse yesterday he needs to get his meds on a regular basis before he gets agitated. Yesterday he was so mad at me he said he hated me. He is still thinking I have…
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What if LO doesn't want to be placed in MCF?
DH just blurted, "Don't send me away." I don't know if he's psychic or simply peeked over my shoulder and saw that I was researching MCFs on my laptop. Then it dawned on me that while I was focused on planning ahead for placement, it hasn't occurred to me that he may resist and fight it tooth-n-nail. While the emotional…
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Dancing With the Dark
I heard this and thought of all of us. https://youtu.be/HsGNmEniIe0 It was a hot link when I copied it. Just cut and paste into browser. Dave
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They are planning on sending her home
I just got a call from Northwoods saying that the hospital is sending her home. They wanted Northwoods to help me at home. She told the hospital there wasn't anything they could do. They have been out in the past helping her but quit when DW refused to help. She let the hospital people know what I'm going thru. She knows I…
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She doesn't deserve this.
I came here to post a long virtual rant but I'm just too tired. After a good week 2 weeks ago where my wife and I rented a condo at the shore just to watch the water, this past week has been so hard culminating in a major breakdown for her this evening. All I can say is "She doesn't deserve this". I know no one else does…
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If I could end it all for her
I would do it, laying in the bed and slowly coming to her end of life. I wish and pray that it would end quicker for her. The kids are hurting and so am I. I guess its grief that I am going thru. Usually reading this forum helps me a lot. Today not so much it just that I miss her so darn* much , the last 3-4 months have…
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Painfully Beautiful Music - If I Could Be With You Now.
It touches my heart deeply and says so much . . . https://www.youtube.com/watch?v=LMpwWSFEvEY J.
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Florida Dept. Of Elder Affairs Survey
Please see this link to a survey of caregivers by the Florida Dept. Of Elder Affairs, for those who live in Florida. https://app.smartsheet.com/b/form/5b2b041b2d1244f68dc138f9da85c6f5?fbclid=IwAR2NanJHMMNdSErh-kMKUiRiQreKkYuYYvUK8iuJ2XWY39BSvIKbqfwehGU
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New Developments in Alzheimer’s Disease Research
https://curealz.org/news-and-events/new-developments-in-alzheimers-disease-research/
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Yesterday's Placement Went Well
Thanks to all for support in other recent posts! Yesterday started with a combined sense of determination and dread. The butterflies in my stomach were hard to contain. DW's placement could not have gone any better! Her older sister accompanied us for support.We started the day by walking our dog (poor guy was about to…
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Dizzy Spells
DH with VD has been having dizzy spells several days during the past few weeks . They occur when he is sitting and at random times! He had an MRI today and neurologist said there has been little to no change since his last 2 years ago and is not sure what is causing his symptom. He is on medication for diabetes , but the…
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Researching MC Facilities
My DH's condition seems to progress/decline rapidly, and his mood and/or lucidity is fluctuating every few hours instead of every other day (Jekyll and Hyde syndrome). Although he can still manage self hygiene, he is starting to forget the necessary steps. With LBD, it's too unpredictable when his condition will take…