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Those mean people
I have a living room camera and an Alexa echo device so all I need to do is an Echo Drop-in if I'm away for a little while. She doesn't have to worry about trying to answer a phone, I just speak to her directly through the echo. I can always tell something is up by the tone of her voice. She's been crying because…
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The long haul
We are all in this for the long haul.
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My first post from 6+ years ago
I'm just home from visiting DH, and in a reflective mood. Not a good, reflective mood. I looked up the date I joined here - 5/22/2016 - and realized that there are very few people who have been here longer than I have. Crushed comes to mind, and Gig Harbor has been here about as long as me. I remember saying, when I first…
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Recall Of Top Name Dry Shampoos
https://www.yahoo.com/finance/news/unilever-recalls-dry-shampoo-may-144236221.html
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Kicked out of house
My DH woke me up this morning with a flashlight shining in my eyes. He said it was time to get up. So, I put on a robe and came downstairs. He asked me what I was doing and why wasn’t I leaving. I said I would after breakfast. He told me I was psychotic and he would call the police if I didn’t leave as I had no right to be…
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Discouraged. Just a vent.
For a brief interval I thought we had made progress, I was able to visit twice a week, taking lunch, and we would have good visits lasting 60-90 minutes. She wasn't upset when I had to leave. But three weeks ago my 3 yo granddaughter gave me a bad cold from daycare (not covid), and I've been sick since then--just now…
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It's Time for Memory Care Placement and I'm Heartbroken
My DH and I just celebrated our 46th wedding anniversary. Love of my life! He is 73 years old and was diagnosed with AlZ in 2016 (and in hindsight I realize that he was exhibiting symptoms for a few years before that). He was in a very active day program for 1 1/2 years, and it was wonderful. When he began needing a little…
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Still struggling with a decision
So here we are at the end of October and my DH has been doing well at mc since June. He is very happy there but enjoys going out with me as well. The NP has managed to get rid of all voices and he has no memory of them. I have taken him to dinners, family functions and all behaviors are entirely appropriate. He helps staff…
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An update and a question
I wrote awhile back that I had hemorrhagic gastritis. Thankfully, that is getting better and I am able to add back in some foods the Dr. had told me to avoid. Unfortunately, the pain has not gone away. Last Thursday, I had a gallbladder ultrasound to see if the pain could be coming from there. The gallbladder looked fine…
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Can’t make a decision
It has been a while since I have posted. Since then, I had taken my dh home from memory care and he was doing fine for three months. He then started getting anxious and hearing voices. He told me and therapist that the voices were telling him to hurt himself and that the bad guys were coming to get him. Therapist added…
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What a weekend, and it's only Sunday
Started out Saturday morning with a phone call from our SIL that DH's mom had fallen again. They found her nude, face down in her living room with the bookcase on the ground as well. They took her to the hospital and found nothing was broken but she did have pneumonia and Covid. I asked my BIL to not say anything to DH…
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DEMENTIA DIVAS - TEASER TRAILER
https://www.saltboxtv.com/series/O717HuPro9Uq-dementia-divas-caregiving-in-the-arts
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Another off topic, but inspiring link
https://www.theguardian.com/lifeandstyle/2022/oct/22/the-dog-that-walks-like-a-human-and-other-precocious-pets-duck-cat-parrot
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If you're thinking of getting rid of your LOs stuff
We've all heard that we shouldn't make major decisions soon after losing a LO. That can also be said of making lesser decisions. About a month after my wife died, I decided it was time to get rid of a lot of her things. I had our girls come over, and take what they wanted, with the rest to go to Goodwill. My wife had maybe…
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WAY off topic, but really interesting.
Photo restoration by artificial intelligence. After you watch the first series, a box will pop up showing something along the lines of "Past beauties". That series is even more unbelievable. https://petapixel.com/2022/10/20/ai-photo-restoration-brings-victorian-portraits-to-life/
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Too Much Sleep?
My wife sleeps a lot at night. 11 to 12 hours is normal. Sometimes it is more. She rouses up now and then but otherwise she is sleeping. She does not take naps during the day which I'm happy about. She was diagnosed with mixed dementia so there aren't any stages that I can point to. We just have to see what happens next.…
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Online Support Group for male caregivers of early onset wife
This is a monthly online support group specifically for male spouses caring for their early onset dementia wife. The support group is operated through Lorenzo’s House and is called The Light Lounge. The Light Lounge is a virtual space where male caregiver spouses of a loved one diagnosed with younger-onset Alzheimer’s or…
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Just need to talk to my friends (180)
Need to get 180 started. Rick, welcome and please repost
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I hope this lasts
The meds my DW is on have her in a great mental space. She no longer gets extremely angry, she can get upset for a bit a but it goes away fast. She no longer hallucinates, she may see something now and again but knows it isn't real. She sleeps all night. I have been taking her to work and to golf and she is very…
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DH gets upset when I attend caregiver trainings/support groups
My DH gets upset when I attend a caregivers support group online. He has no insight that his memory is affected and therefore gets upset that I am attending these meetings. I can hide my attendance at these groups, but it's hard to step away with out him knowing and asking where I'm going for an hour and 1/2. It also feels…
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early to mid
My DH was diagnosed last year with EOS alzheimers and I have seen more memory loss and mor difficulty holding a conversation. He is still able to eat, dress, shower and have a daily routine. His nights involve getting up to go to the bathroom, get a cookie and check on the dogs. He has hallucinations early in the night…
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I'm doing better
Since Jan has past things around here are gradually getting a little better. Still have periods of remorse that I could have done better, but at the time I did the best I could. My feelings for her now are a lot better now . The last 3 months were something else. The love for her is like it was before this darn* disease…
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Help!! Need Tips for Getting Caregiver In The Door!!!
Home health agency finally found the part time caregiver I need in the afternoon. Problem is, DH won't let her in the door and can be downright mean and nasty to her. If he's outside, he 'might' let her go in. [But once in, he usually goes on a rant about an hour in, that she needs to leave or he will call the police but…
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What not to say when touring
I’m just beginning to look at memory care. Is there anything about DH behaviors I should not say?
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Looping
i found out the name for the continuous questions that my husband torments erm asks me everyday. It is called looping, I looked it up online and it gave me some information. Apparently the dementia sufferer feels lost and insecure so they loop or say the same thing over and over. I called it the dripping tap syndrome…
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Stuff happens
I am with my dw every morning for several hours and watch her take her meds everyday. This morning there was an extra pill and I mentioned it, the nurse said let me check and sure enough dw would have gotten a double dose of one med. I am thankful she was so willing to check and I am not mad at all. But it is good to be…
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Wake up call
I’m back.My husband has now added another form of torture to my daily life, every morning at around 6:am he opens my bedroom door and asks when I will be joining him downstairs. I tell him in a few hours which probably the wrong answer. Five minutes later, it happens again. I desperately want to stay in my room curled up…
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Indoor camera
I'm looking for an indoor camera and wonder if anyone can recommend one. My DH gets up in the middle of the night. I'm not sure how often.iwe sleep in separate rooms. I know he gets up cuz he lets the cat in. I thought a camera might tell me more. I would need one I can check with my smart phone. I don't want any Alexa. I…
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After Surgery
My DH had his hernia surgery last Friday and everything went well. The hospital he had to go to was way out in the boonies of NM. We had to be there at 6:30am and due to Covid restrictions no one can wait inside the hospital so I had to go sit in my vehicle in 9 degree weather. I did find a Starbucks about 5 miles away and…
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Confusion(2)
Yesterday was a day I hope I never have to repeat but I know I will. My DH woke up from napping in his chair, tried to get up and fell right on to his knees. I was sitting on the couch and did not see exactly what happened but he was on the ground. I tried to get him up and that was a chore, 200 lbs. Got him on the couch…