-
Last night was a good night
We rarely watch a movie. Last night I was checking out Netflix, and saw that they had K-9 available. We saw the movie before, but decided to watch it again. That resulted in nothing short of an enjoyable evening. She seemed to follow the whole movie. Sometimes I think she is in stage 6, but I didn't think stage 6 patients…
-
Dark Cloud over me today
Any tips on how to change the sadness of the day. When I awoke I didn't know where I was, then all the memories flooded back. What can I do to not feel so sad and defeated. What a cruel, cruel disease for all of us. I feel so helpless and hopeless today.
-
Replace every window? Need homeowner advice, perspective.
Has anyone ever heard of this; every window in a house being replaced? The insurance company and two other companies evaluated our windows and all agreed that every window needs replaced due to hail damage. They've been excellent quality windows. The frames are dented from hail. But every single window to be completely…
-
Newbees: Identifying is this dementia?
Wish I’d known of Teepa Snow’s dementia expertise earlier. My husband had the beginning stages of dementia since at least 2007. Teepa has many educational videos on YouTube to assist caregivers dealing with the challenging behaviors of their affected loved ones. This video addresses caregivers stress level straight out of…
-
How do I tell her? What do I tell her?
I have decided that I am going to take my vaccinated body on a trip to Florida to see my sister and nephew, and my brother-in-law and his wife, in Florida and South Carolina. They have all been vaccinated as well. This would be my first travel since COVID. It will also be the first vacation when I will not bring my DW. She…
-
Elder care attorneys
Does anyone have experience with elder law attorneys in Virginia, specifically the Hampton Roads area in southeastern Virginia? I found only one online, a pretty big firm that advertises for elder law that’s about 40 miles away. Any suggestions on what questions I should ask or expect to be asked and documents to collect…
-
NYT Piece on Recruiting for Lilly Study
This may be behind a paywall for some. They Have Alzheimer’s. This Clinical Trial May Be a Last Hope. - The New York Times (nytimes.com)
-
My husband has dental appointment
He went for a teeth cleaning and the dentist found 2 cavities and we have appointment for filling and another cleaning. I am concerned how he’ll react to drill. The cleaning 6 months ago went fairly well but he did have trouble with the water they shoot into your mouth. He is 80 and my best guess is late middle stage.…
-
Things were going good until....
Well things were going well until about 3:30 this morning.. My DH woke up confused, but it was later on in the morning before he started getting aggressive! I can't stand this!! I will be honest I am a crier... I want so much to be calm and I try really hard to be calm in this type of setting, but when he wants to put his…
-
Alzheimer’s Association offering respite care grants to Tri-County residents in need
Do you ever wonder why these idiots don’t post it here? The Alzheimer’s Association California Central Coast Chapter is offering financial assistance to Santa Barbara, San Luis Obispo and Ventura County caregivers in need of respite care for their loved ones with Alzheimer’s disease or other forms of dementia.…
-
Caricatures
I've noticed for some time that my partner has been making some pretty direct descriptions about people. At first when he was talking to me, now he's starting to say such things to everyone else. Yesterday, a friend tells him about another friend. He replies "she's nice but she's ugly"... plus it's not true, she's quite…
-
VENT: On a crappy morning (like today)....
My home fragrance is ever changing from strong smelling poop to PineSol. So far today, the fragrance has gone from poop to PineSol, then poop to PineSol, then poop to PineSol. Its just barely 10 am. Where does all the poop come from?! DH is having hemorrhoid issues again. He is in great pain. I have messaged both the PCP…
-
How Google Could Help People Living with Dementia
https://www.differentbrains.org/how-google-could-help-people-living-with-dementia/
-
Safety Suggestions if a PWD Is aggressive
This post includes several lessons I learned regarding safety. Please don't wait for a crisis to implement safety practices. After DH was diagnosed, he became aggressive, threatening and verbally abusive on more than one occasion. It was very scary; I was shocked the first time it happened and probably didn't think very…
-
Is this dementia ?
My senior husband who has been having memory issues lately has been putting the ice cream in the fridge instead of the freezer. Ice cream is all melted! Any one else’s loved one doing this? How annoying!
-
End Stage - Rapid Decline - Early Onset
Just wanted to "talk" to others and provide an update for others out there wondering how it looks as things progress. I feel like there is not a lot of information specific to disease progression for early onset. At Christmas, my 56 year old DH was able to go out to dinner and feed himself. Today he is at home on hospice,…
-
Oklahoma bill passed
“Residents in our long-term or assisted-living facilities are too often prescribed antipsychotic drugs with sometimes devastating effects,” West said. “This law will protect these residents by helping to better monitor for adverse effects and ensuring the families of residents remain fully informed of the treatments being…
-
Yesterday was almost too much to cope with.
The day was over the top. It’s the next day and I still feel shellshocked. The electrician got here at 9:30 to fix the light in the upstairs bathroom. DH treated him with disdain and later griped at him for dragging mud into of the house and getting it on the carpet and on the bathroom floor. There was no mud on the carpet…
-
Fair pay for family member?
It's possible I might have to go in for surgery, although that still is to be determined. We have a family member who might be interested in staying at out house with my wife if I need her to. We have not approached her yet, but I was wondering what you thought would be fair compensation. It will be 24 hours per day, but…
-
Just need to talk to my friends (144)
.Morning, Was a bit late in starting a new part of our thread - we got up over 7,000 readings. We are a talkative bunch and I so enjoy learning about what everyone's doing. Iris - we have one water tank in the corral, near the barn and two in the what used to be a garden, south of the house, near where we feed the girls…
-
What DH can do to help caregiver in an emergency
A benefit of COVID has been that my adult daughter has been able to work remotely and has been living with us since last August to help with her Dad, my DH, and also to stay away from a not-so-COVID safe roommate so doesn't accidentally transmit something to us. She will be transitioning back to her apartment and be with…
-
DW in Memory Care
As some of you may remember after spending 5 weeks at a Behavioral Health facility my DW went directly to a Memory Care facility. She is doing well there. The rages and aggression has been controlled. She no longer knows who I am. That had started before the psych evaluation. She continues to talk in word salad and…
-
Covid 19 numbers still awful
In the Euphoria over vaccines some folks do not realize just how persistent and nasty this disease really is. In the last 28 days we have had 26,017 deaths If you go back 21 days and look at known infections over the prior 28 days it is 1,715,290 26,017/1,715,290 yields a Known infection fatality ratio (KIFR) of 1.5% In…
-
Act of rage
I need words of wisdom to help me do the right thing. My DH husband recently threw his Kindle in and act of rage and broke it. I'm so tempted not to replace it. Suffer the consequences. But I know that's not fair. I suppose I'm trying to get back at him for all the rage-before and after dementia. He has never touched me…
-
what stage...?
Can anyone pin down what stage is characterized by my DW's current symptoms*: - sundowning - compulsive/repetitive organizing of clothing, mail, labels, catalogs, over and over, too many categories to list - refusal to wear Depends despite incontinence; she will take them off and not put anything on...will use pads, but…
-
You Just Have to Laugh
DH lost his mom about 5 years ago. Today he was feeling sad about it. DH "I never thought she'd go away." Me "I know, I feel the same way about my mom." (My mom's still alive) DH "Whose your mom?" Me "Janet" DH "She is? When did that happen?" Me "About the same time I was born." It just made me giggle.
-
We need a thread for jokes
The Pope is handing out miracles to kids in Liverpool. Billy walks up on stage, and asks if the Pope can help him with his hearing. The Pope assured Billy that he could. He put his hands over Billy's ears, then said a few prayers. He removed his hands, and asked Billy how his hearing is now. Billy said he didn't know…
-
Day Care programs
Is anyone seeing day care programs for alz patients beginning to open up to in person programs? My wife has been asking about some sort of classes or socializing events that she can go to, but everything in my area is still virtual. My wife has no interest in virtual classes or visits. I've checked with our local Alz…
-
Trigger Warning: Mom with Alz & Suicidal Ideation
This topic contains information regarding mental health issues that may be triggering to some people. Please think deeply about how reading this may make you feel, and back out of this screen if you deem the topic as emotionally or physically triggering. If you do read it and feel triggered, please seek help immediately by…
-
Excess alzheimers deaths during pandemic
In 2020 In addition to the 345,323 deaths from COVID-19 itself, there were 133,382 deaths attributable to Alzheimer's disease in 2020, compared to 121,499 deaths from AD in 2019, and 122,019 in 2018. At 9.7 percent, this represents a far larger year-on-year increase than in the years between 2015 and 2019. Researchers are…