-
Let's talk day programs
I'm putting together full-time care for DH when I return to work in August. Last year's plan was pieced together with lots of people, and DS was living home and helped. He'll be moving back to college in August. I've looked into the day programs around me, as suggested by many on this board. I live in a rural area, so…
-
Process for Admission
I have been visiting a lot with my kids and we will start the process of having wife admitted to Memory Care. Have a couple of homes in mind and will followup with them. However any tips on how, where or any suggestions would be appreciated. I guess this is ugly but no "I think" but real life or? This is already real and…
-
Can Someone Really Get Better?
I am wondering could the meds really be helping this much? DH has been on Aricept (10mgs) and Mamentine (28mgs) and got better as soon as he started taking them. Memamtine has been increased in dosage from 7mg to 28mgs, but he was good at 7mgs. I don’t manage his meds, he functions independently as well. How can someone go…
-
Websters!!
Just read a great quote in one of my grief books...thought I'd share. "If you're looking for sympathy, you'll find it between sh-- and syphilis in the dictionary" Whatever gets you thru the nite...LOL Michele
-
sweet and sad
My partner told me this morning that she wants to stay healthy so please to buy this new meat/chicken substitute (Incogmeato?) she saw on television. Bless her, it's so sweet but it also has absolutely no insight into her limitations. I feel like at eighty, with lymphoma, dementia, rheumatoid arthritis, and scoliosis, if…
-
Help, I'm sleep deprived.
For the last several months, DH has been waking me up several times during the night wanting to have sex. I tell him to go back to sleep but it isn't long before he is patting me and rubbing my arms and back and trying to get as close as possible. As soon as I get to sleep, he wakes me up again. It's frustrating and I end…
-
Red flags today
For the very first time today, my partner forgot that her sister died (six months ago). Really new and different, as we have rehashed the death pretty much every day since it happened. She woke up not feeling very good and has been off all day, so my antennae are up. Only thing different about yesterday was going to a…
-
Late stage 7(2)
Had lunch with DW yesterday at MC. No recognition or comprehensible speech. No smiles. I fed her finger sized fish sticks and a slurry of chocolate cake yogurt and blueberries. She loved the food. All food has to be put directly in her mouth. She can bite a fish stick and chew it up. She could not understand a suggestion…
-
A great Teepa Snow
https://www.youtube.com/watch?v=dmPQLf9IUNI
-
Eli Lily new drug
any info????? added from the Wall Street Journal; https://www.wsj.com/articles/why-theres-new-hope-for-alzheimers-patients-11624466924
-
from bad to worse
Two weeks ago, my DH's best friend died suddenly. We are both crushed. This was a friendship of 40+ years. Lunch together 3-5 times a week, daily phone calls. The guy who would do anything for us. My husband remains aware of his death, but continues to tell people the wrong thing when explaining the manner of death. I fear…
-
Discussion with my son
I was alone with my 15 years old son this evening. We discussed and his question was : How long can you keep going while working. I answered « I promised myself I would make it to the end of the year. » He replied « it will be too difficult, this week you have been 3 days out for your work. It was ok because I was at home…
-
They can use our help
Michael, Did you see Tamara’s email? Together, we have already accomplished some incredible things in 2021, but we need to hit our end-of-quarter fundraising goals to keep up this fight. Don't forget: RIGHT NOW is your chance to DOUBLE YOUR IMPACT. Any donation you make will be matched. We need to make sure that we have…
-
how to get DH INTO the shower
DH occasionally refuses to get into the shower. He seems afraid to actually get in there, not the showering process itself. It has a very small lip to step over. Any suggestions? Thanks in advance.
-
What a week(1)
Wow it’s always something every week. This week we got the probably AD diagnosis on the phone since the neuropsychological testing. Today before he went golfing he said he’s been dizzy and unbalanced. I told him to stay home if he didn’t feel like it. Then he decided to go. Hate for that to stop as it is social. Since we…
-
AADvac1 for Alzheimer’s
Has anyone heard about this treatment for Alzheimer’s? Is it available in USA? Any feedback would be helpful. Thanks
-
I feel so lost
Hello..I am new here. We’ve had a diagnosis for over a year of Frontal Temporal Dementia but we are 3 years into the process. It took 2 years to get a diagnosis and I thought I was handling things but as his symptoms continue, turns out I’m not doing as well as I thought. My best friend, the person I would turn to when I…
-
Elder law in Naperville area
My husband was recently diagnosed with younger onset alz. He is 60 I am looking for an elder law lawyer in or near Naperville IL to help with financial planning and I believe we have to adjust our power of attorney as well. Any suggestions would be great. Thanks
-
Cable account in LWDs name. How do we change that?
Hi All, I'm posting for my father (I'm a secondary caregiver and daughter). My father is trying to get access to the cable account (Xfinity) but it's in my Mom's name (and she's the LWD, mod-stage ALZ). Mom rarely recognizes Dad anymore, so most things like this are met with suspicion and contention. I was going to call…
-
Terrible week - its gotta get better
I just shared this in a different thread. "Long story involving lockouts (me, in the garage/him barricading door), attempted 'carjacking' by DH, and a wandering episode (complete with police rescue)." This has been a week like no other for us, so far: I don't know if its another UTI but its been crazy around here. My LO is…
-
Question Re:incontinence
I realize that incontinence is extremely likely as dementia progresses. My DH is not there yet but his bathroom habits have started to change. He flushes the toilet many times while urinating and/or having a bowel movement. When I casually mentioned this he said that he is worried about overflowing/plugging the toilet. I…
-
So True
-
Guy cooking -simple blueberry pie.
Woke up feeling very discouraged so I am using pie therapy. I am making both a blueberry and a turkey pot pie. I have developed a simple reliable blueberry pie recipe You need 1) Frozen pie shell (deep dish) 2) Refrigerator pie crust (this is flat and comes in a roll) 3) can of blueberry pie filling 4) Pint of fresh or…
-
Just need to talk to my friends (148)
Hi, Thought it was time to begin #148 since we've gotten to page 5 and posts might be beginning to disappear. It's been raining, heavily, here since before 4. That's when thunder awakened me. So, that's over four hours. We're under a flash flood watch and roads west of here are closed. I can only imagine what the county…
-
Who determines when 24-hour supervision is necessary?
This may be a double-edged sword. My husband sleeps much of the day and does not get into trouble. When he is awake, he does not attempt to cook, does not wander, basically does not get into trouble. But he does leave the front door wide open, let pets out, leaves the tap running, leaves the fridge open, etc. I get away…
-
What should I say?
My DH has been in a Long Term Care facility for about 30 days, he spent about two weeks prior in the hospital. He is feeling that I put him there since I am the one who took him to the emergency room. Whenever I call to try to talk to him he insist on knowing "when are you coming to get me?" I am not sure how I should…
-
As a caregiver, what time of day seems to be most challenging
There had been a delay in the post hospital discharge home health care. I hope the issue is resolved soon. I wonder if its because the discharge was from a psych hospital and not say, a post surgery discharge from a medical hospital. The things I currently need help with are not DH's mental state, they are general physical…
-
My husband doesn’t want to get rid of the guns in the house.
Have been to this site off and on these past few years. Very seldom post but just reading the questions and replies have been most helpful. My husband has dementia consistent with Alzheimer. His last visit with senior health six months ago he tested 19/30 on the MoCA test. Not sure what stage he is in but I’m thinking he…
-
I’m learning.....one thing at a time.
My bride of 46 years gets restless and keeps moving from her chair to her rollator every few minutes. This has been going on for quite some time. She has no explanation for it when I ask. This evening I got upset (not vocally) because I was watching a tv show I was really interested in and DW needed a foot massage. How…
-
Hope(1)
I am suppose to take wife to airport to meet our son and return to South Carolina. She is already balking. This crap started in 2012 and this will be my first respit of more than a few hours. She is suppose to be there for a week. I am betting 3 days and hoping for two weeks.