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New Approaches to Long-Term Care Access for Middle-Income Households
Today, Milken Institute released, "New Approaches to Long-Term Care Access for Middle-Income Households," outlining how the public and private sectors can expand LTC access for middle-income Americans. https://bit.ly/3mq9LXZ
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Did she actually say that?
My wife absolutely knows that we have two dogs (or one dog and one cat). Of course we don't. Since she always wants to see the "other dog", I just tell her we only have one. Yesterday we were by the patio doors that lead to the back yard. Our dog, Gracie, was in the yard. My wife saw her and asked where the other dog was.…
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45th Wedding anniversary
On Saturday April 10th we will be married 45 years. I was 19 and DH was 21 when we were married. So now I am 64 and he is 66. I plan on spending as much of the day with him as I can. He is in early stage 7. He doesn't walk, talk or help with any ADL's. I was hoping to have a picnic with him outside of the MC facility. It…
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Better Brain Health through Equity: Addressing Health and Economic Disparities in Dementia for Afric
1. As our country ages and diversifies, we must support and promote healthy longevity and health equity. A new @MilkenInstitute report recommends 5 ways to build better brain health and reduce disparities: https://bit.ly/2PaKTHF 2. We have the power to advance and support equity in dementia care by delivering collaborative…
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Jack Hanna Diagnosed With Dementia
The very sweet and kindly Jack Hanna has been diagnosed with dementia: https://www.nytimes.com/2021/04/08/us/jack-hanna-dementia.html J.
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Need someone who is or was in the medical field.
I need to connect with someone privately who is or was in the medical field. I have information that I believe can help many here if I put it in the right hands but I need the person needs to be able to share bits and piece of what I have learned. I would prefer JoeC. But she always turns me down so anyone who really wants…
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Lewy Body Dementia(1)
For any spouses who are caring for Lewy patients or Parkinson's Dementia, please check out the online forum https://groups.io/g/LBDCaringSpouses
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What Stage?
Good morning, My partner was diagnosed with Vascular Dementia this past summer. He was born a triplet and one of his triplet sisters died from complications of Alzheimer's. I noticed changes beginning about 2 and half years ago. He got lost driving to a few of his appointments last year. He was unstable on his feet and…
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Untimely timely: pimavanserin
I had just mentioned pimavanserin [Nuplazid] earlier today on another post for the potential use against psychosis in some forms of dementia, but had not seen the most recent news. FDA Rejects Nuplazid to Treat Dementia-related Psychosis These included the lack of significant benefits in some dementia forms and the small…
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Feel so alone
Today started out so good. I made a nice Easter brunch for DH and me. Then a Zoom call with my family 700 miles away. I never had children so seeing and speaking with my brother, SIL and two adult nieces and their kids should have made my day. It was just a reminder of how alone I will be after DH is gone. He can hardly…
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DH Denial
Background: we are 3 years in; just had 2nd neuro psych eval 3 weeks ago and met with neurologist yesterday to go over results (which of course I already had). DH despises her. Said he was never going back. Told her to never say the word Alzheimer and dementia to him again. It's the elephant in our home. I still work and…
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Questions About Elder Care Attorneys
I'm exhausted from not sleeping at night because I contacted an elder care attorney and they now want almost $9,000.00 to arrange things like Medicaid application, getting the house/cars/etc. into only my name. We already both had our Power of Attorneys, Wills and Five Wishes taken care of. My question is this - is this a…
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Easter Dinner almost turned into a disaster
Celebrating anything with Alzheimer's is hard. Easter was no exception. DH wouldn't get out of bed to get ready for church service. I was wearing myself out going up and down the stairs to remind him to get up and shower. Finally, our daughter, who is visiting talked to him and he did get up. By that time it was almost…
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one more little loss
We went to the dentist today for the first time in a year (oh, the things we take for granted) and I was worried that she might have trouble, but she did okay--not too much history to give. But, on the way home, we stopped at Subway for takeout--also for the first time in a year--and she had forgotten how to order. Just…
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Ich habe mich verloren
"Ich habe mich verloren." "I have lost myself "was the routine reply of Auguste Deter, Dr. Alois Alzheimer's first case of what became known as Alzheimer's disease. This first described case of Alzheimr's is incredibly painfully similar to the experience of people here.…
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Swallowing/choking
DH has Lewy Body. Has anyone else's LO developed swallowing issues? First time experience this morning while eating a banana. Difficulty swallowing and almost choking.
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Unsure of what to do next
Lately I am feeling like I am going a little crazy. I feel desperate to know if I can continue caring for DH at home. Seems every week I feel different. Basically I mostly feel that I cannot care for him in our home. DH is a veteran and I just cant figure out how to get Aide and Attendence to help pay for care, in the home…
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Australia National Dementia Helpline
Description The National Dementia Helpline is an Australia-wide telephone information and support service for people with dementia, their carers, families and friends. Health professionals and service providers, community organisations and people concerned about memory loss can also contact the helpline. Services provided…
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bathroom mats
there was a question on bathmats...I googled and could not find any non-slip that did not have a review saying that it slipped....suggestions?
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Blubbering
My husband has Lewy Body dementia. He gets teary eyed, blubbery, at anything. At a song on radio, at a collision in a Nascar race on tv, at someone saying hw good their cake was . Anything! Is anyone else experiencing this with their loved one? It can be embarrassing when out in public.
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Happy Easter!
Just wanted to wish all on the forum a happy Easter and express my gratefulness to such a kind and caring community. DH and I are going to attend church this morning. Not sure how it will go but I miss being in church and it seems like a good day to try it.
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One box of Kleenex later...
Tonight he said “I am glad I still remember you.” I cannot stop crying. I do not care if he smells like a homeless person, pisses all over the floor or leaves the water running. He has shown me more love than anyone and brought joy and fun to my life. It is breaking my heart that he knows how this disease is pushing us…
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Blues for Saturday
We all know that with our LO’s there are good days and not so good days, and indeed within any given day good moments and not so good moments. Today was a not so good day, with my DW’s anxiety apparently ratcheted up. This morning, I left her in the kitchen for a few moments while I took care of a couple of things…
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To The Child In All Of Us - Happy Easter!
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visual anosognosia?
Iris mentioned this the other day, and it gave me a name for something I'm seeing a lot right now: namely that my partner can't identify things that are right on front of her face. Including the cats, and this morning, the huge can of Coffeemate that was sitting by the coffee maker. There's a lot of "Honey, I can't find…
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Tired of being the bad guy
Arrgggh. DH just hung up on me. I am at work and he is at home. He wanted to know where the keys to his van are. I told him I have them and said to him "You should not be driving." He said he is just as good a driver as I am, to which I replied that,Yes, you used to be. He then said "have a nice day." and hung up. I swear…
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What Do You Do When They Want to Leave?
Every single day, my husband wants to leave and he wants to go back to the little western Kansas town where he was born and grew up. He's 82. It's all he'll talk about from daylight to dark, no matter how many subjects we try to distract him with. He doesn't believe that this is our house and insists we get in the car and…
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The light was on for a minute....
She had a brief episode of clarity this afternoon after not recognizing two good friends on the phone. She,asked me if she was getting worse (yes), if other people knew ( oh yes), and whether this was a fatal disease. She cried, and said she was scared. We talked about living in the moment. I told her I would never…
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Night Games
New experience and not every night. Anywhere from 2:30 to 4 AM, my DH wakes and reaches over to the night stand to put on his glasses. I wake, too, asking him to take them off as it's time to sleep. Last night was the worst. He said "No I won't". I told him it was time to sleep and he didn't need them. He said, "these are…
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Funriture, MIL and dinner
I know, I know, I've read about it many times that it is best to not argue with your spouse who is suffering from this disease because you can never win, but every now and then my DH hits a trigger in me that pushes me too far. The other morning he informed me that he told his mother that she could have all of our living…