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My DH thinks there are four of me living in our home.
DH is convinced there is a group of us (his wife and her imposters) living in our house. Do any of you have a partner/spouse/LO who suffers from "imposter syndrome" or Capgras Syndrome? I am new to the world of dementia/Alzheimer's. I don't even know if what my DH has is dementia or Alzheimer's. What I do know is that my…
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VENT: This is NOT a 24 hour diner
This is a very petty vent. I am over-reacting I know. My annoyance is real and I am going to feel it, until I am done feeling it. DH is up at 4:30 am. I get up at 5 and make him coffee. He wants his meds and I oblige. I make him oatmeal at 7 am. I fancy it up with cinnamon and cranberries. At 10:30 am he is hungry again. I…
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betrayal?
My wife of 41 years, Wanda, is in stage 6 ALZ. All of you know what this is like. In addition to the heartrending decisions involved, we know about the incontinence, the wandering, the stubbornness, the devastating silence from one who can no longer speak in complete sentences, the ache from watching a once vital person…
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New Evaluation Guide for DFA Communities
Dementia Friendly America is pleased to share the newly released Dementia-Friendly Community Evaluation Guide. The Evaluation Guide, developed with funding from AARP, is geared toward local dementia-friendly community leaders and partners to help evaluate the impact of their DFA efforts. Measuring common outcomes of…
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Tiny losses
Every day now there are tiny losses in my DH's memory. Yesterday we went to our favorite restaurant with our son, for Mother's Day. My DH ordered, and when the food came DH slid his order toward our son. "This is your order, Dad." "It is?" And he accepted it, and we went on. I also notice that when he enters the…
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A most difficult day
DH will soon be 91 and I am 81. He is moderate stage Alzheimer's and was diagnosed 5 yrs ago. 3 yrs ago had brain surgery for subdural hematomas. ( 24 Holes in his head for brain bleeds ) He has no short term memory. He had surgery today for basal cell cancer on his nose. That appt including travel was close to 6 hrs.When…
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He is gone(1)
My husband died February 1st. It’s been so hard. I miss him. I miss my vibrant, intelligent, beautiful sweet husband. I can’t believe he’s gone. I wanted to say how helpful this site has been for me. Thank you all for sharing your hearts on this forum. In January, hospice advised me to keep my husband in bed, as he was…
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Scarey new behavior
DH has started leaving the house when he gets upset or angry about something. It started on Easter Sunday when I said something that upset him and he got up and walked out the front door. I wrote about that in another post. When I caught up to him, he was about to cross a busy street. It took forty five minutes to get him…
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Perplexed
We are in year four of this dementia and I remain confused about the changes in DW behavior. The original diagnosis was MCI of the Alzheimer's type. It was done by a PP and a psychologist. This is about as much dx we are going to get for one , my DW doesn't feel that there is any problem. I too have taken over many of the…
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Almost Said Uncle
My DW has been dealing with losing for 5 years now. Only 61 she has very good muscle memory and anything related to primitive memory is strong most days. When the loop of fear or obsessions over facial features take over Nothing can distract or redirect. She has been on seroquel for the past 9 months and it helps but the…
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Disability lawyer recommendations New York
Hi - looking for personal recommendations for attorneys who have successfully handled long term disability insurance claims for clients with MCI/early onset who have had to give up work. Attorneys qualified in New York and practicing in New York City preferred. Many thanks
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Fun afternoon
I tried to give us a fun afternoon yesterday, without much success. Both of us have enjoyed interesting and fun automobiles our whole lives. We’ve been on various clubs and enjoyed outings and shows with our collector vehicles. Yesterday was a group drive of Triumphs and MGs sponsored by our Triumph group. We both were…
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WEF - CEOi - DAC Virtual Lausanne Dialogue
During our time together, you’ll hear from leaders in AD research, advocacy, policy and industry explore the socioeconomic impact of Alzheimer’s disease and new opportunities for the global community to stop this growing pandemic. Held on the eve of the World Health Assembly, this dialogue will shine a spotlight on why…
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Aricept(3)
My husband has been on Aricept for 5 years. His memory has all but gone so I was wondering if it was helping anymore. Well I forgot to put it in his pills for 5 days and he became very confused by day 5. I assumed he was starting a downhill slide until I realized he had not gotten his aricept. He has now had two doses and…
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not sure what happened
We were having a great evening. My husband tries so hard to be "normal". We are going to a wedding next weekend and all of a sudden he wants to meet a cousin he never met and supposedly lives in the same town the wedding is in. We are in MA. The wedding is in NJ and so is the long lost cousin. We have been in NJ so many…
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Last night a beautiful thing happened
I had gone to bed alone again as my husband has been either sleeping in the guest room or on the couch the last few weeks. It was hot and I was having a hard time sleeping when around 12:30 I heard the bedroom door open and he came in. I asked if he would like to come to bed and he crawled in. He asked me if he could hold…
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Birthday party(2)
DW is 69 We will try to have a little party today. Just me and the daughters with her. She has no idea who we are but I did make key lime pie for her.She looks lovely as ever. I recall the 20th birthday party we had for her. Students in our coed Dorm. She was the smartest and everyone knew it. Rule was "only gag gifts" I…
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Comparisons Between Alzheimer's Treatments
It is hard to make exact comparisons between Alzheimer's treatments. Each starts with a different baseline, different numbers of participants, and different trial protocols. Nevertheless, one can somewhat glean what seems to largely stabilize the disease and what only slows it down a bit. Here are some numbers (note for…
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Burning down the house
Talk about every day is different for PWD’s. On Thursday, DW almost set the house on fire. I was away on the first business trip I’ve taken since Covid. Our aide told my DW that she would fix lunch shortly, but was first going to go downstairs and throw a load of laundry into the washing machine. When the aide came back…
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Behavioral and/or Dysexecutive variant of Alzheimer's
Recent visit to specialist neurologist with MRI reveals my SO has dysexecutive variation of typical Alzheimer''s, somewhat earlier onset, rather than frontotemporal dementia which we suspsected due to his progressively worsening behavior and social skills, frightening by the time we got him into a hospital for evaluation.…
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Don't put gasoline in plastic bags
If this is not a test for dementia I don't knows what is!!
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Waiting for the big call
Wife had an MRI today....now the wait for the results.
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Should I have “the talk” or not?
In a previous post, many of you gave me ideas to get my DH not to drive anymore, as this is what was mandated by his neurologist. This morning, we were getting ready to go to the lumberyard when my DH said, “If you’d let me drive I could just go by myself and you wouldn’t have to go, but you don’t want me to drive!!”…
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Covid vaccine reaction (new topic)
My relative, in her 50s, has had gastrointestinal side effects for the past two weeks. They began after her second Covid vaccination, I don't know which one. Her Covid test was negative. Has anyone heard of gastrointestinal reaction after Covid vaccination? She is under a doctor's care for this. Otherwise she is well, not…
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I Can’t Do It!
We just received a confirmed diagnosis from a neurologist on Friday, of AD. Primary dr diagnosed him a few months ago. My DH’s symptoms started with severe hallucinations that lasted for months, and now he’s on meds and they are lot better. I posted once before because they were so severe. Neurologist ruled out Lewy Body…
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urinates too often
My DH is stage 5/6. he pees all the time. hardly ever makes it to bathroom. up number of times at night. just dribbles sometimes, others full stream. He is more confused cause irregular sleep and I am not getting sleep by getting up with him all night long. day time is just as bad. He doesn't seem to know how to hold his…
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Is this how incontinence begins?
However, even though we ask my DH if he needs to urinate, he'll deny it. Then in a minute he gets up to head to the bathroom and never makes it on time. We are changing his jeans and underwear a time or two every day. I spoke to the neurologist yesterday about his escalating dementia symptoms and he removed Depokote from…
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Seeking advice(1)
I'd like some advice and insight from those in the medical field, survivors or those who've cared for persons in chemotherapy. My wife is stage six and of course requires 24/7 care. I am midway through what appears likely to be a diagnosis of esophageal cancer. Today I have a CT scan. A PET scan is to be scheduled, then a…
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dementia long haul
I am struck by how many people in DW's facility have been in stage 7 for years. DW was on hospice over two years ago. By then she had lost all recognition of me, all intelligible speech, could not feed herself etc. The only decline I can see over the past year is a loss of smiling and an inability to respond to any spoken…
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Pushes my buttons
Thank you all for your helpful information that you provide on this forum. I have tried to follow your good advice like not over reacting to some of the outlandish statements that come out of my DH's mouth. I have also stopped getting upset and angry about things that been lost or are missing, sort of. My husband had his…