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Aricept(3)
My husband has been on Aricept for 5 years. His memory has all but gone so I was wondering if it was helping anymore. Well I forgot to put it in his pills for 5 days and he became very confused by day 5. I assumed he was starting a downhill slide until I realized he had not gotten his aricept. He has now had two doses and…
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not sure what happened
We were having a great evening. My husband tries so hard to be "normal". We are going to a wedding next weekend and all of a sudden he wants to meet a cousin he never met and supposedly lives in the same town the wedding is in. We are in MA. The wedding is in NJ and so is the long lost cousin. We have been in NJ so many…
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Last night a beautiful thing happened
I had gone to bed alone again as my husband has been either sleeping in the guest room or on the couch the last few weeks. It was hot and I was having a hard time sleeping when around 12:30 I heard the bedroom door open and he came in. I asked if he would like to come to bed and he crawled in. He asked me if he could hold…
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Birthday party(2)
DW is 69 We will try to have a little party today. Just me and the daughters with her. She has no idea who we are but I did make key lime pie for her.She looks lovely as ever. I recall the 20th birthday party we had for her. Students in our coed Dorm. She was the smartest and everyone knew it. Rule was "only gag gifts" I…
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Comparisons Between Alzheimer's Treatments
It is hard to make exact comparisons between Alzheimer's treatments. Each starts with a different baseline, different numbers of participants, and different trial protocols. Nevertheless, one can somewhat glean what seems to largely stabilize the disease and what only slows it down a bit. Here are some numbers (note for…
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Burning down the house
Talk about every day is different for PWD’s. On Thursday, DW almost set the house on fire. I was away on the first business trip I’ve taken since Covid. Our aide told my DW that she would fix lunch shortly, but was first going to go downstairs and throw a load of laundry into the washing machine. When the aide came back…
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Behavioral and/or Dysexecutive variant of Alzheimer's
Recent visit to specialist neurologist with MRI reveals my SO has dysexecutive variation of typical Alzheimer''s, somewhat earlier onset, rather than frontotemporal dementia which we suspsected due to his progressively worsening behavior and social skills, frightening by the time we got him into a hospital for evaluation.…
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Don't put gasoline in plastic bags
If this is not a test for dementia I don't knows what is!!
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Waiting for the big call
Wife had an MRI today....now the wait for the results.
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Should I have “the talk” or not?
In a previous post, many of you gave me ideas to get my DH not to drive anymore, as this is what was mandated by his neurologist. This morning, we were getting ready to go to the lumberyard when my DH said, “If you’d let me drive I could just go by myself and you wouldn’t have to go, but you don’t want me to drive!!”…
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Covid vaccine reaction (new topic)
My relative, in her 50s, has had gastrointestinal side effects for the past two weeks. They began after her second Covid vaccination, I don't know which one. Her Covid test was negative. Has anyone heard of gastrointestinal reaction after Covid vaccination? She is under a doctor's care for this. Otherwise she is well, not…
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I Can’t Do It!
We just received a confirmed diagnosis from a neurologist on Friday, of AD. Primary dr diagnosed him a few months ago. My DH’s symptoms started with severe hallucinations that lasted for months, and now he’s on meds and they are lot better. I posted once before because they were so severe. Neurologist ruled out Lewy Body…
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urinates too often
My DH is stage 5/6. he pees all the time. hardly ever makes it to bathroom. up number of times at night. just dribbles sometimes, others full stream. He is more confused cause irregular sleep and I am not getting sleep by getting up with him all night long. day time is just as bad. He doesn't seem to know how to hold his…
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Is this how incontinence begins?
However, even though we ask my DH if he needs to urinate, he'll deny it. Then in a minute he gets up to head to the bathroom and never makes it on time. We are changing his jeans and underwear a time or two every day. I spoke to the neurologist yesterday about his escalating dementia symptoms and he removed Depokote from…
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Seeking advice(1)
I'd like some advice and insight from those in the medical field, survivors or those who've cared for persons in chemotherapy. My wife is stage six and of course requires 24/7 care. I am midway through what appears likely to be a diagnosis of esophageal cancer. Today I have a CT scan. A PET scan is to be scheduled, then a…
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dementia long haul
I am struck by how many people in DW's facility have been in stage 7 for years. DW was on hospice over two years ago. By then she had lost all recognition of me, all intelligible speech, could not feed herself etc. The only decline I can see over the past year is a loss of smiling and an inability to respond to any spoken…
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Pushes my buttons
Thank you all for your helpful information that you provide on this forum. I have tried to follow your good advice like not over reacting to some of the outlandish statements that come out of my DH's mouth. I have also stopped getting upset and angry about things that been lost or are missing, sort of. My husband had his…
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Building Workforce Capacity to Improve Detection and Diagnosis of Dementia
https://milkeninstitute.org/reports/building-dementia-workforce
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Not sure this is significant
My sister has EOAD and in long term care facility. My niece, her daughter is getting married soon. I'm struggling with whether I can go to her wedding because my brother-in-law is going to my niece's wedding with his girlfriend, while my sister is still alive. Am I making too much of this? Thank you for any advice.
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What do you look for when you are researching facilities for when you can no longer care for your DH
My DH's Alzheimer's is progressing to the point that I have decided to start looking for a facility for him when he no longer knows who I am. I don't want to make the decision under duress. I want to make it when I have had time to check out the different facilities in our area.
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Having a really hard time
16 years ago my DH took a heart attack and it took EMT's 7 minutes and 3 attempts at shocking his heart to get my DH breathing on his own. At the time neurologist said short term memory loss, Since he needed double bypass, I just let the short term memory loss go. I was worried about bypass. Thought memory would come back,…
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DH obsessively complaining about not driving
My spouse was told he MUST NOT drive 4 months ago by both his psychologist and neuro-psych doctors. His pickup truck is now in the custody of our son. We have a small car that he has always regarded as mine, which provides transport wherever and whenever he wants/needs to go somewhere. He has complained bitterly about the…
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How to post a link to an internet web site:
To post a link to an internet web site you have to copy and paste TWICE. 1. Copy the link. (at the top in the 'search field'. 2. Paste it into a word processing application, like Microsoft Word, or others. 3. Hit return (enter) after you paste the link into word processing, and the link will show up in underlined blue,…
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Any suggestions for thermostat wars?
Goodness this is annoying. My partner is cold ALL of the time, and she's always goosing the thermostat up on heat, while I'm suffocating and goosing it back down on cool Unfortunately the separate rooms do not have separate controls. I know this is common, but it's another thing that keeps us in separate parts of the…
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A win and a loss
Late this afternoon, when I might anticipate DW asking if I know where her husband is, she turned to me and said, “I really like being your wife.” I smiled at her and told her she really does it well, and I like being her husband. Soon after, the dog walked in. DW said, “Who’s that?” I told her it’s Emma, our dog. She…
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No Mother's Day break!
So.....Mother's Day.....Ha! Obviously there was no card, no gift, no special breakfast in bed, but I was hoping for a good day. Just a day without having to watch every word I say and everything I do. But no such luck. Everybody is always saying don't forget to take care of yourself, how is that even a possible thought…
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Happy Mother’s Day(1)
I would like to wish a Very Happy Mother’s Day to all the Moms in our community. Also, a nod to the guys who have taken on this role along their journey.
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End is near
Hello all. It has been a little while, as life has been very busy. DW has declined extremely fast in past 3 weeks. Past week alone has been the worst hell of my life. She no longer recognizes me as even someone familiar. She is constantly yelling the same phrases weather someone is in the room or not. If I go in the room…
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Celebrating mother's day
I took lunch to DW and her caretakers had gone all out to dress her up for mothers day . She was wearing her flowered dress from Hawaii, earrings and a neck pendant. DW ate the chocolate cake I brought and we got some photos. but there was not the slightest flicker of recognition. I filmed her walking for our daughters.…
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Happy Mother's Day(3)
Happy Mother's Day to all the mom's here! I hope you have a nice day.