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How much information to share with DH?
My DH has been showing signs of cognitive decline for a while. We are beginning this journey to get a diagnosis, which (as you all are well aware) will include a lot of testing and doctor appointments. My husband has excellent coping skills, so it took a long time to convince his primary care doctor that there was an…
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Attorneys for Legal Guardianship/Custodianship - Normal Costs, Best Way to Locate?
My LO is in their 80s and has been diagnosed with moderate to severe Alzheimer's disease. I need to pursue emergency legal guardianship and custodianship for several reasons - mainly, because they have been hospitalized for over six weeks and we have mounting issues that I need to address. Our state (Massachusetts)…
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Suggestions for Activities?
My DH was diagnosed about 3 months ago with EOAD, at age 57. His biggest symptom is aphasia/difficulty communicating, as well as loss of executive functioning. He does not have significant memory loss. He has no problem doing ADL, and can still go on walks solo, etc. Our issue is that the aphasia and loss of executive…
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Turned down for Medicaid
With the help of an Elderlaw Attorney, I filed for Medicaid for my DH on August 19th here in Missouri. It had taken me several months to gather all the necessary information and was such a relief to finally have it filed. Since then, I have been paying the MC the amount the attorney said I would owe each month. Then a…
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While I wait
I’m working on trading in my anger at all those people who made this journey harder. I don’t want to hang on to the bitterness.
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Food ideas
My SO 46yo with EOA was a good eater. To the point that after eating a big meal and hour later he would be snacking on something. He was also a BIG Mt. Dew drinker. In the last month or so he hasn't drank any soda and has lost a bit of weight. However he also doesn't eat much like he used to. I know that his appetite will…
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Adult Children
We have 2 beautiful adult children 43 and 40. My DH has VD combined with very bad APHASIA. Our daughter lives near us so she is very familiar with the mental and physical decline but our son lives 1500kl away and is so involved with his work and family, our 2 young grandchildren. He doesn't have a lot of spare time for…
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Not diagnosed
My DH has not been diagnosed but is showing many symptoms. He is in denial and blames all his problems on me. It’s been a struggle the past year. I feel like a parent instead of a wife. His mouth can get pretty bad. It’s getting hard and frustrating.
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New to forum just diagnosed with Amnestic MCI due to Alzheimers
After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood work for Alzheimer’s bio markers (strongly positve for tau and amyloid) and now 2 positive Pet Scans I started Kisunla last…
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Do I s*ck at caregiving?
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Thought we were going to lose her
She was unresponsive this morning when I arrived at the MC. She stayed that way so I alerted family and friends. Hospice nurse said she is beginning to transition but she snapped back this afternoon a little.
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Dad now stating he needs a flight home
Hi all, So my LO has just realized we are in November and staying he needs me to get him a flight back home. He has been living with me for the last 4 months and he thinks he is visiting. I have been able to redirect/work around him asking when he will go home for the last 4 months. Now we are at he realizing it November…
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Daycare
I’ll be visiting a day program on Wednesday for my DH with stage 6. I have no idea if I’ll like it or if it will work out. It’s a PACE program & it’s an hour away which is really the part that makes it feel stressful. I’m just realizing that if it were local I’d jump at it. (So writing this post is already helping!) My two…
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Caught Between a Rock and a Hard Place
It has been extremely hard with my mom. When she is having a day where she is weak and feeling dizzy, she will ask to come to my house. Then, the next day, she is saying that she didn't need to be here, and she wants to go home. However, she is still weak and can't get around very well. I try to convince her to at least…
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Early onset at age 60
Hello, my husband was recently diagnosed with Early Onset Alzheimer's at age 60. We live in the Erie, PA area. The support groups in the area don't seem to fit our demographic. Although we do enjoy the company of folks older than us, some of the challenges we are facing are a lot different than if we were in our later…
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My brother
I just heard from his doctor's office. The doctor doesn't believe that my brother is impaired in any way and he won't do anything to restrict his driving. He seems to think that the MMSE that he administered supercedes the more thorough neuropsychological testing that was done in August. I'm done. There isn't a blasted…
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Neurologists recommendation
Any recommendations for a neurologist in North Central Florida (Jacksonville, Tampa, Orlando, Gainesville, etc) who is particularly good?
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New here
Today broke me down. Nothing about today so out of the ordinary but it’s been a slow build. My mom hasn’t officially been diagnosed yet but her short term memory is going. She lives with a friend and I take her to all of her appointments, manage her finances, set up her meds, communicate with all the doctors, wash and…
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Having NO LUCK getting mom an appt with a Neurologist
I am in South Carolina, just south of Charlotte, so not in a rural area or anything like that. I have been attempting to get my mom AN APPOINTMENT with a neurologist for OVER A YEAR, I've had her primary care doctor send in referrals to every neurologist in a 20 mile radius and I've called them myself, only to leave voice…
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67 year old wife trance-like state
For hours at a time on most days it is easy to believe that she has nothing more than minor memory issues. But as if she has a split personality, she will become very distant and seems depressed and goes into a trance-like state. This can last 2 to 3 hours and then she comes out of the trance. This issue began around…
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delusions
I am wondering what peoples experiences have been with delusions. Do you think there is some bases in reality for where they come from or are they just random. In my case when my wife was younger her parents went through a very mess divorce because of an affair and my wife had an affair with an old boyfriend. Now she…
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Living with two slowly declining parents
I am new to the discussion here. I am currently living with my parents. They are both slowly showing signs of dementia and I am having to take more control of their healthcare and finances. My dad has zero short term memory and constantly repeats questions that I answered for him five seconds ago. My mother has lost alot…
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How do I respond to her confusion?
What is the best way to handle when your early onset spouse is saying for the first time over and over again she doesn't know who I am? Brought out pictures but she doesn't remember me. I need advice on how to respond in this situation.
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Milestones
Today is my DH's and my 50th wedding anniversary. He's been in MC only a week. I visited him this morning and celebrated with a card and chocolate covered donuts. He still knows me most of the time and can say "I love you." I guess that is our celebration.
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Sleep, sleep, sleep.
Hi y"all, My DW is early/mid stage three, we have been married 56 years. She was diagnosed two and a half years ago, now in mid stage 3, by my assessment. She is very affectionate and appreciative of my efforts in caring for her needs. She is now sleeping at least 14 hours a day. Her mother was on a similar path when she…
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Alzheimer's Progression is not Linear...
So anticipating what might be needed or how to respond/care is so difficult. My husband has been diagnosed since 5/2023 with Alzheimer's which was certainly happening well before that. In all the research, and support groups, and meetings, and readings, and doctor's visits, and clinical trials, I've been navigating dizzily…
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Six Months Since Moving
It has been six months since we moved two states from our hometown of 72 years to be near our daughter. DH has ALZ. I am still profoundly homesick! I miss everything I left behind, my older brother, our friends, our doctors, our dentist, all our familiar places and routine. We are going back this week to visit my brother.…
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Newly diagnosed with early onset Alzheimer's I'm 59
Im single and work fulltime. I live paycheck to paycheck. I'm in early/mild , kinda crossing over. I have no idea what to expect. Or any kind of timeline. I have debts and need some direction. There is no long/short term disability where I work. I expect a 2 week severance when they find out. How long will i be able to…
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Memory care
These last few days may have been the saddest of my life. Our kids and I moved my DH to memory care on Tuesday. DH has been mostly calm but with anxiety and confusion in the mix. I am grateful he wasn't combative or accusatory towards me or the children. Now I am saddened and filled with a deep sense of loss I have never…
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Live womens groups in San Diego area?
Putting this out there to see if there are any early onset women in the San Diego area who would be interested in getting together occassionally. My wife, 65 years old, EO and early stage is interested in meeting other women for support and socialization.