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Feedback on a Draft Manuscript on Caring for an adult child
I’m looking for feedback from caregivers in Alzconnected about my manuscript based on the years from 2017-24 when I cared for my daughter. She died from Alzheimer’s n 2024 at the age of 58. I thought members might be interested in reading about my experience managing my emotional highs and lows. All I ask is that readers…
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Moved mom in today and very afraid
Hello, first post here and hoping for some insight. My mom is late stage and spent 3 weeks in the hospital because it was not safe for her at home. She was moved to a facility today and they don't even have a memory care unit. We do not have money, so it is paid for with medicaid and it was the first bed available and we…
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I smell poop
Today started early because we had a dentist appointment an hour away. Dad was already up using the bathroom at 8am. So I explained that we need to get dressed and change diapers. I gather items to bring then look in to find Dad went back to bed. I wake him and say we'll be late. Now he switches into slower mode. When we…
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Managing the Late-Comers
I wonder if anyone else has experienced this and has a good way to manage it. As it goes, the cavalry has not come, except I've been super lucky to have one of my DW's sisters come give me a couple of respite days every couple of months, so it could definitely be worse. That said, now that I've updated folks with the info…
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Intimacy and guilt
My DH (probably late stage 4 or into stage 5?) makes comments and wants to be intimate alot! I on the otherhand have not wanted to for some time, just no desire. I feel guilty for not being intimate with him, but just can not bring myself to. DH has always had a higher drive than me. I keep thinking this will probably get…
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How to handle my frustrations
My husband has lost his short term memory. I get frustrated with being asked the same questions and topics. Need advice or tips. Thank you
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Major shift in sleep
Usually my Mom takes a long nap in the afternoon and falls asleep on the couch while we're watching tv by 7 or 8pm. The past week she's been napping morning and night, still waking for meals. She seems very confused with general conversation, inability to demonstrate any logic. She's been diagnosed with mixed vascular,…
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Caregivers network!
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Hospice Assessment in MC?
What is involved in an assessment for hospice care? Is there any reason NOT to have an assessment for a person around late stage 6? Does Medicare pay for hospice entirely? Yesterday my father fainted in MC and was sent to the ER. I was called at work and went to the hospital within an hour. Fortunately the ER doctor was a…
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Will my dh ever understand he has dementia?
Is there ever a time my husband will realize and accept that he has dementia? After at least 10 years of a slow decline, I’m just worn out from it, and incredulous that he’s still adamant he has no issues with memory. He screams that it’s ME who has the problem. To the outside world, he can seem pretty normal. And he’s not…
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Emotional Breakdown This Morning
I don’t know why I’m posting this, maybe just to acknowledge my emotions and share a positive. I’ve had contractors working on our home and property for 2 weeks. This morning they needed materials out of our garage. The garage is a train wreck. My husband’s son was going to help me clean it out but decided instead he’d…
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74 MCI/ALZ
Hello. I am grateful to be able to communicate with others in this forum. I received a confirmed diagnosis on Dec. 2, 2025. I am at an early stage, so I'm taking the time to do thorough research. My local neurologist has suggested Kisunla; I've been approved to start it. Kisunla was only recently approved in the EU and, as…
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Not Recognizing Family Members
Any advice would be appreciated. We are only 1 1/2 yrs into this (I think] still no diagnosis. My DH has been suffering with memory loss, trouble finding foods and difficulty recognizing objects. It come and goes, some days better than others. Yesterday at our grandson’s high school graduation party he didn’t know ho our…
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So Frustrating
This is one part of this terrible disease that just frustrates me so much. How can you have a great day with your LO in a great mood enjoying each other and all of a sudden they just start crying uncontrollably for no reason in my mind what may have caused the change.
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Facing the Emotional Side of Caregiving
This website has helped me deal with some of my feelings, and to be kind to myself when doing so. I hope it helps you, too! https://www.caregiver.org/resource/emotional-side-caregiving "If you don’t deal with ALL of your emotions, they can be like a two-year-old who wants your attention: they will keep tugging at you until…
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Is it time?
DH almost set the house on fire today by putting hot coals from the wood stove into a cardboard box & leaving it out on the deck. It must have been smoldering all day. We (adult kids & I) discovered this just a few minutes ago.
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How to deal with denial
My DH is probably in stage 5 or 6 Alzheimer's. Ever since the diagnosis was made (about 4 years ago) he has adamantly denied that there is anything wrong with him. He now freely admits that his memory is not good, but if I say or do anything that makes him aware that I am "caregiving" he says that I am treating him as if…
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POLST Form - Physician Orders for Life-Sustaining Treatment Form - overwhelming
My LO is very, very elderly. She was recently hospitalized and had surgery. We had to make a lot of decisions fast and under pressure in the ER. But luckily it all went as well as could be hoped. She is definitely more fragile than she was before the whole thing but she is doing well. Her physician's practice is all…
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Asking Permissions
My MIL is starting to ask me permission in her own home, can I have coffee? Can I close the curtains, can I do this etc? Is this a stage? Am I doing to much?
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Life is getting harder...
Life is getting harder and DH isn't as far along as many of yours. I should have known better but we went to Costco together today. DH uses a scooter cart and follows me. Today was just so much harder. He had to use the restroom and barely made it through checkout but he made it. I took groceries to the car and then picked…
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From the NYT: A Different Type of Dementia Is Changing What’s Known About Cognitive Decline
https://www.nytimes.com/2025/11/28/health/late-dementia-alzheimers.html?unlocked_article_code=1.5E8.jeiC.EuBZiHfxb5a8&smid=url-share An article about LATE, a recently recognized form of dementia.
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Scientists catching up to the value of rosemary
I first began using rosemary essential oil with my mother in 2007 (she passed away from a heart attack in 2012). She became more alert, could recognize objects, could remember her name again, became somewhat more lucid, had a little bit of short-term memory, and was calmer. I have been advocating for the use of essential…
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Looking for Resources in Maryland
Hi there! I am seeking guidance to assit my MOL with my FOL's dementia diagnosis. He is going to adult day care three day per week, but still car tasks at home are getting overly challenging. Here are some of the main issues we are working with: -sundowning (lots of frustration throughout the day) -insomonia -inability to…
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Mother living with me has Dementia
Hello Everyone, I recently had my mom come live with me, her choice. She was living by herself up until last Oct. Fell Broke her hip, end up in rehab for 2 months for thearpy. When she was in there my brother sought out Gaurdianship over her. Needless to say when she found out she was mad. She wanted to go back home, but…
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My mother won't see a doctor and she is not okay
My mom has always been incredibly independent and strong. She is 82 now and the last couple years she has steadily declined and has every last symptom of dementia or Alzheimer's. I live 4 hours away and my sister is close to her and keeps me updated ( I'm in the process of trying to move closer). Mom refuses to see a…
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Best friend
I understand what you’re going 33-year-old I am 52 and 1/2 to 3 hours away. My mom and I all the time on the phone and for like the last two years my husband and I have decline in conversation then she fell and was in the hospital and I went up to visit her and stayed at her house and saw the disarray of the house and that…
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Need help with confirming stages
Good Evening, I just went to my MIL's doctor who confirmed her for moderate onset Alzheimers with agitation. But when I questioned him about what stage shes at he just kind of shrugged his shoulders. How can I find out what stage she is in? Do we need to go to a neurologist to confirm this? This just started last month so…
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Unprepared
With every decline, I feel so unprepared. I know what is coming, and yet each decline surprises me and breaks my heart. DH was accepted for hospice at home in September. I didn’t think he would qualify because he was still speaking and eating, not losing weight, able to swallow. But he was non-ambulatory. Yesterday he was…
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Worn out and stressed out
Hello all. I’m currently dealing with an 87 year old father with dementia. He has fallen at home about 15 times this year, and ended up breaking his hip in July. I moved him into assisted living as I didn’t feel he was safe to be alone at home. He was a smoker and the last time I was there I watched him not pay attention…
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Hi! I'm new here... I'm a granddaughter taking care of a grandfather with LBD
Hi. I'm new here. I'm a granddaughter caring for a grandfather with lewy body dementia. I talked to a lady at AA WNY chapter and she suggested I try some support groups. A little back story about my journey so far... My grandfather is 94 and over the last 2 years has started having symptoms of LBD. He accuses almost…