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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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How long to visit / What to do
Background context: My father has progressed quite rapidly in the past year. I only get second-hand reports from his doctors appointments but they contain the words "dementia", "Alzheimers" and "Parkinsons". Maybe it doesn't matter. He shuffles very slowly with a walker, and needs someone by his side telling him when to…
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A Brain Tumor & Dementia!
My first post & it will be a lengthy back story. Sorry but I am about to stroke out. My wonderful step father of 52 years passed in March of 2023 & then my Dad passed November 2023. In Jan. 2023 found out my Mother had a very large meningioma brain tumor. Only found because she would have what I call absence seizures. She…
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Was spitting food out, now vomiting
Is anyone dealing with their LO vomiting after eating? Just a short while ago he was spitting food out. Now he throws up after a few bites. He’s losing roughly 4 lbs per week and sleeping 18+ hrs per day. Is he nearing the end? I have a video dr appt tomorrow to get a referral to hospice. Any help or insight greatly…
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Long Term Care
On March 12 my DH was admitted to long term care and it was the hardest thing I've done. On the second day I was ready to bring him home. When I arrived at breakfast time, he was sitting with full glasses of juice and water, a cup of hot chocolate and a plate of food that he didn't know what to do with. I lost it. I called…
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One word.... guilt
We moved mom to Memory care 2 weeks ago. I have 2 brothers and we are all thankfully on the same page. But I am her daughter.... she is my friend. I have talked to her multiple times a day, coordinating who was showing up and holding my breath night after night worried she would walk out her door and get lost. But this…
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When I look back at what I WAS worried about…
I feel foolish. Our problems are slowly getting manageable as far as reigning in my DHs spending and not being able to manage our finances. The real troubles are here now and I just can’t do it. I “feel” so sick. I have amended my statement “I am so sick!” After trying to get help with my lupus and other health issues. I…
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I'm back in this group again
My dad lived with Alzheimer’s for years before he passed six years ago, and it was heartbreaking to watch. This community helped me through that time. I recently lost my mom as well—she didn’t have Alzheimer’s, but caregiving and life without my dad took a heavy toll on her in her final years. Now my best friend, in her…
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Actual caregiving tip...
My DH and i have entered a new stage and I need tips for two issues. He won't let me take off his t-shirt. Tried like always to take it off for the shower and he holds out his arms to stop me. Tried later to change it for a clean one and again, a no -go. Any ideas? He is willingly wearing Depends which is helpful since he…
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In person support for Alzheimers patient
Hi everyone, we have had a very difficult time even through the Alzheimer’s Association finding a support group that meets in person or online. We have been told that they are full and there is a waitlist, but have been n a waitlist for 6 months which is a long time with this disease and it’s very discouraging because I…
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Are digital memory boards helpful?
We have been considering purchasing a digital memory board for my parents. Mom is in LTC and Dad in AL. Mom’s memory is starting to fade. Dad has diagnosed ALZ. Thinking it would help with reminders of hair appointments, activities, share photos, etc. But it’s a good investment so wanted to see if anyone has found them to…
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Just sharing a touching moment of kindness
My husband’s bathroom only has a very deep large soaking tub that’s difficult for him to get in/out of. I had a contractor come by to give me an estimate for replacing the tub with a walk-in shower. My husband had taken my dog for a walk and came back with a “gift” for Melissa (contractor). He gave her a palm sized flat…
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Need resources to find occasional in-home care for LO?
My family and I want to hire a professional aide to stay with my mother periodically for a few hours at a time. This process is new to us and we don't know where to begin or what agencies to contact in the Colorado Springs area. We're beginning to have concerns about leaving her at home alone and need to begin our search…
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My Beautiful Husband Passed
I began participating in this forum in May of 2025 after my DH received his Early Onset Alzheimer’s diagnosis. I learned everything from this online forum and the in-person Alzheimer’s Association monthly support group. In October of 2025, my DH had a severe Ulcerative Colitis (UC) flare. In hindsight, I didn’t realize…
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Two Months
Two months ago on this day, my DW passed away peacefully at home. I am sitting on a plane, flying to New York City to see an opera with a friend. A respite trip I arranged when I thought my DW might make it longer into 2026. She didn't, but I'm going anyway. Stage 8 is interesting so far. I spent the first month planning…
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Lost my mother January 27, 2026
I was my mothers full- time caregiver for her last 10 years of her life with Alzheimer’s Having difficulties dealing with the grieving process and nobody seems to understand Thank you
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Weird tears
My grief is showing up in odd ways. I didn't cry at my mother's visitation. I didn't cry at holiday gatherings. I didn't cry at my own daughter's wedding, even though I know my mother would have loved to be there. I cry, sometimes hysterically, only for the weirdest reasons. I accidentally knocked over a plant she used to…
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Any support groups zoom for individuals
who have lost their spouse from Alzheimer’s, it’s been 3 1/2 months for me. Have found it difficult to locate support groups specially for those who have lost their spouses. Thanks.
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Regrets
As care givers for our loved one, our path was long, the struggle to provide care hard and overwhelming, but we did it as best we could. But now, as the dust of my loss begins to settle a little, my reflections and memories of our last few years flood over me. At times it just brings me to me knees, the tears flow…
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Repeated Falls: Tell it to Me Straight
My Dad with advanced dementia is in MC and has been having repeated falls, mostly in the night. After two separate week long stays at the hospital, followed by 3 weeks of skilled nursing, we brought in hospice services. He has declined quite rapidly. Last night he fell twice, both times hitting his head. He is on meds for…
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Caring for my mom from afar
It was suggested that I post over here as the "Caring Long Distance" forum doesn't get as many views. I edited this from the original post with some more detail ... My mom has Alzheimer's which appears to be at stage 4. She lives with my Dad out of state and I'm about an hour away while my brother is closer to 2 hours. My…
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How to get my DW to eat when she's hungry but won't.
I have noticed that my DW get's cranky when she's hungry. I ask her what she would like to eat and she says she doesn't want anything. I know she's hungry but refuses to eat. I ask her about all her favorite foods with no luck. It's just frustrating, because if she does actually eat something, she is in her happy place.
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What stage is this.
I wonder if DH is further along in this journey than I suspect. He has had one episode of a delusion. He swore someone was knocking on our door in the middle of the night. We have a ring camera, so I knew this didn't happen. Could have been a vivid dream but he became angry with me when I said it didn't happen. I know in…
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Delusions
My DW just tried calling her dead Father and when the recording said this number is no longer in service she began rapid firing the "why" questions to me. I couldn't think fast enough so I just said I had to go to the bathroom and will be right back. I needed a little time to get my thoughts together. After returning she…
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New member, helping my parents
My mom has Alzheimer's - stage 4 or possibly stage 5 (somewhere in between?) - clearly at the stage where she needs extra help but is incredibly resistant to accepting any help outside of family. She will basically scream about how accepting help will make her decline faster… etc (she was an RN for years and has experience…
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Move to MC unit closer to family?
My widowed 92 year old MIL has been living in a MC facility in her small hometown for the last 3 years. She gets excellent care and has adjusted well. BUT it is over an hour and a half from her two closest children. There is only one friend who still comes to visit her there on a regular basis. We are considering moving…
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Nursing facility. Does anyone have advice on mom’s boyfriend who constantly stirs the pot.
I am my mom’s HPOA/DPOA. She has a boyfriend she lived with for 28 years. Since she was placed in a nursing facility 6 months ago after a fall he is constantly stirring the pot. Today she told me she’s getting a petition signed to say she doesn’t have dementia and “it’s a secret”. She has Parkinson’s and related dementia.…
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Needing direction
Hello, My mom was diagnosed with Alzheimers with possible vascular dementia as well. We can't get into a neurologist until July. Is that typical? Are there things a neurologist can do that a GP can't or won't? Thanks for any insight.
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How do I take away responsibilities?
I am the person responsible for my sister who has frontal temporal dementia. She has 24/7 care in her home and has been paying her own bills and everyday items. I have been overseeing her accounts to make sure that she doesn't overspend, but now we are at the point where we she can no longer be responsible. This has been a…
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Will not sit
My DH refuses to sit on command. This has become a major issue as he will not sit on the toilet and BMs are regularly on the floor. I have listened to Teepa Snow's videos about assisting to sit and nothing is working. I am at a loss as to how to get him to understand and follow the direction of "Sit". Of note, he is is…