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Quote for today…..
My life is a fairy tale but I now know the author was German.
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How many caregivers are keeping their spouses at home until the nightmare ends?
I’m absolutely determined to see my DH through this nightmare. I am determined to keep him home until the end. Are there others out there that are doing this and have you managed to keep your sanity through it? My husband is in stage late 4/early 5. He’s always been extremely calm, kind, gentle, helpful, loving. I just…
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Bible Verse to Lift You Up 2/2/25
LOVE John 3:16 NIV For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life. John 14:16 And I will ask the Father, and he will give you another advocate to help you and be with you forever— James 1:5 If any of you lacks wisdom, you should ask God, who…
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Bible Verse to Lift You Up 2/2/25
LOVE John 3:16 NIV For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life. John 14:16 And I will ask the Father, and he will give you another advocate to help you and be with you forever— James 1:5 If any of you lacks wisdom, you should ask God, who…
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Drivers License / State ID
Hello - My Mom's drivers license is expiring next month. She currently is in Assisted Living with moderate symptoms. She is under Hospice care and Broda chair bound so there is no way I can get her to renew the license or really change it to a state ID. Does she need a State ID? I checked and the only thing I can find is…
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Does your spouse resent that you put him/her into Memory Care?
How common is it that a person entered into Memory Care against their will resents and refuses to let their spouse to visit them? My concern is that she no longer wants to see me after I put her in memory care. Background: My DW has a moderate to advanced level of Dementia. She is in denial there is a problem. She already…
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How can I stop his lectures...he is driving me crazy!
My HWD has always gone on and on about things and lectured for hours if he could get away with it…people would actually ask me if he has an 'off button'. Now, with alz, he is unbearable. After 2 relatively normal days…no major meltdowns anyway…he has had 2 days of constant ranting, raving and lecturing…for 5 and 6 hrs at a…
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Vascular Dementia
Hello everyone, Im new in this group and i just find out about my father that he is diagnose with Vascular Dementia and this is new in our family. Since i decide to be his caregiving for him i would like to know more what support i need! He is 77 years old .
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Familial AD
Hi everyone. I am new to this group and am in shock. I recently learned that my father and grandfather both died of EOA. I was adopted so I did not know this history until recently. They both started symptoms in mid 60s and died at 69 and 70. I am devastated, terrified, depressed, lost. I have been reading everything I can…
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Long term concerns
Is anyone else in the US watching news stories and getting more and more concerned about the state of affairs outside of your situation that affect your situation? All this talk about Medicare and Medicade cuts, stock market dumps, getting rid of the FDIC, etc. It’s already stressful to be a caregiver. We already worry…
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Day 10
Day 10. Doing laundry. I tried to sort the clothes and came to the black sweater I wore to the visitation and funeral. I can still smell the scents of the people who hugged me and showed me such love. I held it close and cried like a baby. Then I carefully folded it and put it away unwashed. It seems that now that the…
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Should I take DH to out of state wedding?
Our grandson’s wedding is planned for late March out of state and I’m struggling with whether or not to attempt the trip. Our choice is a 5 hour drive or flying (direct, non-stop). DH is wheelchair bound, incontinent and has major balance issues. He’s in moderate (maybe late stage 5) range. He recognizes family members, is…
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Hold it all in and Boom along comes red licorice
It was the red licorice fight. My DH ate all of my red licorice. So rude! Not just any red licorice, but the bag my son gave me for Christmas. It was a leftover childhood memory of his to relive. I was shocked it was gone, and more so, i felt disrespected. A string had been crossed. “I couldn’t control myself,” my DH…
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Long-distance Caregiver for mother with AZ
Hello, my 80-year-old mother seems to be declining more rapidly this year (she was diagnosed in 2020 wit AZ). She lives in NYC and I moved to Boston,MA, in July from Los Angeles, CA, partly to be closer to her to make caregiving easier. She is very challenging, however, and I often feel lost as to what she needs because…
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Accusations - how to handle
Hi all, I’m new to this forum. I read many posts from others and felt this is a safe place to ask my question. My Mom is beginning stage dementia and has been accusing me of something. Everyone in our family knows it isn’t true and so do all of her friends. My question is - what do I do when she accuses me? I’m not a liar,…
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Reading comments
I can’t seem to see people’s full messages? It doesn’t open, how do I see a full message what people have written please?
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Need advice about my mom with Dementia
Hi, my mom is 74 years old and has moderately severe multi infarct dementia. She lives alone with her two little dogs. In the past few months, she has declined and I fear she is not safe to live by herself anymore, but, she is also verbally aggressive and mean. She has told me she will not go to an "old folks" home. I have…
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They give her the phone daily!
My MIL has alz and moved into a MC facility a few months ago. It was a rough start with her getting acclimated there. She had an issue w/ her meds and became rather violent w/ staff. She was also constantly packing her things and going into others' rooms taking things. It's gotten better. I think they figured out her meds…
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Best medication to help symptoms?
Learning from someone else's experience is invaluable. Just curious what is the best medication and what benefits did you see? Thanks Again!
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Why do i feel the need to be right?
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When to make the move to AL or MC?
My mother is 82 and in the mid stage of Alzheimers disease, losing everything, can't find anything, squirreling away anything of value because she thinks that someone is stealing from her, only eating one meal a day (because she is not hungry and doesn't want to gain weight), getting confused with paying bills, missing…
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Hi .. I’m new to the Discussion part
I am the caregiver for my husband. He has been diagnosed with likely Vascular Dementia and some Alzheimer’s plaques also. We did participate in a Clinical Trial for Eli Lily’s newest plaque destroying drug til it was discovered that he had more than moderate (not quite to extensive, but close) White Matter Disease. He was…
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Hungry!
For the past few weeks, DH has been hungry. All. The. Time. After he finishes a meal, he’s asking what else can he have. He’s wanting to snack incessantly, even in the middle of the night if he wakes up to use the bathroom. In 2024, he lost a lot of boatload of weight not wanting to eat. Now he’s gained 10 lbs since the…
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Way to long and now he is gone
Hello all, it has been way to long since I have posted or even been on this site. It was just too hard. I enrolled my DH into hospice the end of Sept. basically because of dramatic weight loss. He went from 175lbs in April to 145lbs in Sept. They have a hospice respice center with 10 beds where you loved ones can go for 5…
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Easy ways to help loved ones understand
My husband has Alzheimer’s. How do you tell a loved one with Alzheimer’s that family members of theirs have died a long time ago. Do you lie and change the subject? Do you tell the truth? I really need some help with this thank you.
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How to diagnose Dementia vs Alzheimers?
What are the steps to take when you start noticing memory, confusion, fear, sleeplessness etc. Thanks so much!
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My Mother has Passed and I Want to Say Thank You
Hello, I have never posted on here before, but I have been reading posts since October when my mother with ALZ fell and broke her hip (at probably stage 5/6, at the time…though my brother and I did not know that), which moved her out of my brother's home and into MC. Our mother was a phenomenal woman and our best friend…
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hello I am new to the group
I am asking for help for anyone who would know how I could go about this. My husband has been diagnosed for 6 years but was in a fog for 3 years before that before we go the diagnosis. He is moderate to severe state, cannot drive, dress himself, walks with walker and not good at that, has trouble with speech. He was a…
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Medicare and Leqembi
Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…
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Touring memory care - Plan B
I visited two memory care places and it is difficult for me to think about placing my DH. Both places stressed that no one is ever ready to place their love one. Just don’t wait too long before he has declined to the point where he will not be accepted. Not sure what stage that would be. My.DH can still care for himself,…