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New to All of This
Hello, I am a 30 year old female daughter of a mother who was diagnosed with Alzheimer's on 12/20/24. I have known something was wrong and have been fighting for this diagnosis for over a year and now she is already in the moderate/middle stage of Alzheimers. This entire world is new to me and I just gave up my career…
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Rapid Mental Decline in My 65-Year-Old Mother: Desperate for Diagnosis and Long-Term Care Solutions
Hello, I’m looking for guidance about how to get help for my mother, who has experienced rapid mental deterioration over the past year with a cycle of repeated hospitalizations and psychiatric decompensation at home. The situation is placing an unsustainable level of strain on my mother, father and the rest of our family.…
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Alzheimer’s and radiation
so my 63 yo husband who was diagnosed with early onset 1 year ago also had radiation and chemotherapy 4 years ago for tonsil cancer. I’ve been reading that the radiation could have something to do with his Alzheimer’s….anyone else know about this?
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Spending regularly
Hello all, My husband was diagnosed two years ago with cognitive impairment, most likely Alzheimers. We have had some rough periods of time involving obsessions which have passed mostly. We moved to a very small house to help us afford to live as we don't have much at all financially. I have made budgets for us but DH…
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Moving Mom to assisted living details overwhelming
Mercy. I am going back and forth with moving Mom with dementia to assisted living or memory care. Now she is home alone. I come every three days to clean her diabetic wounds. My two adult children have mental/emotional challenges; so help is sporadic. I was offered Social Worker options for assisted living using her…
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New here
Good morning everyone. I finally took the step for myself. Talking to someone else about what is happening in my life right now and them knowing how I feel. It’s hard to tell someone who don’t know this disease to every understand. Hopefully I can remember this tool and utilize it. Well, my name is Mia. I been caring for…
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When is it time…
How do you decide when to seriously consider MC? My DH is okay as long as you don’t say no. Trying to distract or re-direct works sometimes, if not he gets mad…not physically aggressive, but looks angry and says things like ‘you always think your right, this is my house I can do what I want, I’m leaving tomorrow”. I think…
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Aunt with dementia and POA
Hello. Lurking and new here. I saw a post about feeling guilty for giving up power of attorney. I am in the same boat. My aunt gave me POA and I live long distance from her. I never knew about it until she told me afterwards. It was a springing POA, and I never wanted it and she knew that. She moved out of state to be…
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Confabulation of cheating
My boyfriend has confabulated a story that is getting more elaborate every time he brings it up. He truly believes that I cheated on him with one of my roommates, while he was living in the same house. He now brought up that I said his name in my sleep the other night. I am at a loss as he hasn't been diagnosed with…
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Roller Coaster/Long Distance
Edited - attempt to clarify questions New here. I am a 6 hour drive from my parent's, currently able to visit about monthly. Can't count the trips in the last two years. Only child ( with a thankfully helpful spouse). Mother with MD > VD + light AD from the primary diagnosis. She is in hospice care and likely LS by…
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What did the initial drop off to memory care look like?
how did you get your loved one to memory care? Apparently pretty much no one wants to go. How did you get them in the door and what did you tell them when you dropped them off? How many people knew about the plan? I'm concerned my parent will call me everyone including people we haven't told about the placement. How long…
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New Year
For those of us who placed our loved ones in MC in 2024, the New Year represents the first year we are no longer providing care 24/7. Nonetheless, we experience sadness, worry, and exhaustion as we struggle to reinvent our lives. We cared for our loved ones for so long until we truly couldn't anymore. We don't miss their…
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Programs for late stages
My mom is 74 in we are told she’s in the late stages of Alzheimer’s. She has started having issues swallowing. She can no longer follow conversation. She just tells you the same stories. She is still verbal but just can’t find the right words. She can barely answer questions without being confused. We have to help with…
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Supporting both parents
Both my parents (79 and 78) live with us in their own attached apartment. My mom (79) is in the very early stages and is still very active. My dad is struggling with her memory changes and becomes angry and frustrated with her. I am looking for how best to support my dad wand how best to support myself as we navigate this…
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BiPap usage as dementia progresses
My husband just got diagnosed with Alzheimer's and around the same time he finished a sleep study and found that he has central sleep apnea caused by his congestive heart failure. He has been using a BiPap since November and is doing well. My question is… what should I expect as this disease progressess. Will he most…
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Stages of Alzheimer's
I'm new here and new to caring for someone (my 82 year old husband) who just got diagnised with Alzheimer's. Early stages so I know we have a long road ahead of us. As I read some of the message boards here, I see everyone talking about the stages of the disease and mention stage 8. When I Google the stages, I only find…
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I'm learning to accept this new reality
Hey I'm a 35 year old man who takes care of his mother. She lives a few blocks from me and is going through dementia. Early 2024 is when I first noticed signs. My mom is 77 years old, she is my heart, my Queen. She fights me on EVERYTHING and feels I'm taking her independence from her. I don't really get help from my…
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How To Talk To Mom Resisting Help?
My mom has dementia and my dad is primary caregiver with my siblings and I supporting. She can’t be alone for long ( leaves stove on, wanders into neighbors apartment etc) so we plan to alternate working from their apartment once a week for 3 or 4 hours so dad can leave and get a break. Any ideas on how we present it ? She…
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Options
What are my options for care for my husband if I make too much money for Medicaid and not enough money for long term memory care? My husband is in mid stage Alzheimer’s and very difficult.
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Dementia acceptance
New here. My mother has moderate stage of dementia but does not believe or accept that she has it. She was diagnosed about 3 years ago and now believes she just has bad short term memory due to being 82 years old. She has transitioned from being angry and mean to making up false memories and rearranging the house every…
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Don’t know what to do
My parent has had dementia for years and was holding fairly steady. They turned 100 a couple weeks ago and it’s like a button was pushed. Forgot how to use the bathroom, kicks & screams when I try to help etc. I got them to wear an incontinence brief but they refuse to take it off. Help….
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Christmas gifts
Mom is in AL. She hoards and we have not taken her to the store for the last 3 months because she insists on buying things she doesn’t need. She is finally just starting to tell me if she needs something vs telling me I need to take her to the store. She is mid stage and insists on independence. She loves Christmas and…
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Casava Trial
Beset by fraud allegations and government probes, Cassava pulls plug on all ongoing studies of simufilam. My DH and I went through a horrible experience with this trial. They waited until the day he was supposed to transition into the open label live drug and then told us they would not continue. 18 months of hope and…
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Struggles with hygiene - how hard to push
I know this is such a common problem with PWD. My DH will not shower so after trying all the normal suggestions about warming the water first, warming the towels, etc, I started using rinse free soap on a soft washcloth. Tried to do a few body parts every day or so or hand him the cloth. But lately he even refuses that -…
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Ouch
The holidays sure have a way. I know I’m lucky to still have my DW, but … She asked me to take her to go Christmas shopping the last month, so I did. She got presents for everyone in her family…except for me. Put that there in the things that hurt category.
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mom coming home,the dilemma
Hi i am new here, my mom Alzheimer/dementia has been getting progressively worst over last few weeks, she is in nursing home facility. i am working on bringing her home. in these few weeks, she has been having a deep sense of sleepiness. not due to meds. we found out Friday her kidney r functioning at 49 percent, part…
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Suggestions and thank you
My mom lives in DC and I live in Virginia. For the past few months, my husband and I, have been traveling back and forth. I am a special education teacher. I was missing so many days. I was made to take off from work without pay (all my PTO was used up) to get things straight to bring her with us. It's been a…
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How does one go about finding a clinical trial?
My mom was recently diagnosed with MCI/dementia. Since she is in the beginning stages, she'd like to participate in clinical trials to help with research. Her mother had Alzheimer's and participated in a trial and she would like to do the same. I don't know where to start. Thanks for your help.
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Searching for answers
Hi … my message is very long so please bear with me The following paragraph outlines my current health situation regarding memory and concentration issues. Before and After 2024: A Timeline Before 2024, for 7 years , I had consistent issues with memory, specifically: ● Difficulty memorizing names and faces. ● Forgetting…
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primary caregiver diagnosed with terminal cancer
I am the primary caregiver to my longtime partner who has dementia. I just got diagnosed with terminal cancer and need to decide his next options. He has an adult daughter who is not very involved in his current care. And out of town siblings who might help. Who do I talk with first and when do I bring my partner into the…