-
Finally have answers, now what?!
I had been telling the doctors that something was going with my mom for a year and they finally did test. This year the test confirmed that her memory is fading. I just hate that it took so long. My mom started needing more care now, so I had to put her in a rehab, because I am exhausted. I’ve been taking care of her since…
-
Just need to vent
My DH can’t accept that he has Alzheimer’s. Everyday things are getting harder for him and when I try to help or think of things to make ie easier for him and it doesn’t work I get yelled at and so does God. He refuses medication to help him so I feel like I am at a loss. Thank you for letting me vent.
-
Long Covid coexisting with Alzheimer’s
Hello. I have MCI/Alz confirmed by pTau217 and PetScan on December 1, 2025. I have not started either of the antiamyloid treatments yet. In researching both treatments, the side effects were concerning especially since I have Long Covid which causes neuro inflammation. Has anyone had antiamyloid treatment while they have…
-
Just need to talk to my friends (218)
Happy May Day!! Hard to believe the year is one- third gone already. Hopefully May will will be less stormy but with more rain. We're still in a drought in most of Oklahoma. Carl, I looked at pictures of your new car. I think it's pretty and looks roomy.. Hope you enjoy it.
-
Transitioning Colorado to Illinois
Good morning, My parents are both in various stages of dementia. Father Lewy Body and mom Alztimers. I do their finances, set them up with DivvyDose pharmacy, made sure they have no access to driving. My father recently had a pacemaker put in and has slid downhill the last few weeks. They are currently in Colorado and we…
-
Safe Return Medallion
Has anyone ordered one of these? I understand there is one for the "patient" and one for the caregiver. I read about it in a book and I can't find a place to order one.
-
Not thriving in MC
This is my mother’s sixth week in MC. There have been highs and lows in that time. If I’m being honest with myself the low periods are increasing in both duration and intensity. She rarely participates in activities and often needs encouragement to go to meals. We were hoping to see some improvement and it seems the…
-
Respite stay
Asking your thoughts on respite care. Where we live there are MC facilities that offer 30 day respite stays for the caregiver to get a break. I’m sure they would like to keep the PWD permanently so they offer this. I would love to have a break like this and also curious to see how my DW does but afraid the move there and…
-
Living Drama
-
Family Conflicts
My mom’s dementia was diagnosed 2yrs ago. I don’t get along with my 2 sisters. In the past 2yrs I have asked for help several times, especially to hire caretakers. They (POA) won’t hire more help. They are monitoring her through a Ring Doorbell Cam. Now, I believe they are monitoring me through this cam, which seems very…
-
When to prepare
Hello I am new to this group. Glad to have found it. My father has dementia and is slowly refuses to chew and swallow. He is mostly on bed and cannot move at all. I am hoping for any type of supports and advises and when I should be prepared for the next steps in his life.
-
Knowing What to do
My brother & I are working together now to support my mom who was just diagnosed officially with ALZ but has been showing symptoms now for at least 2 years. We want the best for her and to keep her safe and we both are heartbroken. Her short term memory is mostly gone. She has some word and name retrieval issues, and has…
-
Keep hope alive!
Lets start with the premise that in the future, this will be gone or under control. Lets work backward. How to we get there with current technology. My premise is neuroplasticity where the brain develops new pathways to think and remember. Next premise is slowing down or eliminating plaque accumulation. Huperzine A is…
-
Communitating with others
Hi All, My name is Vicki and I am new to this group. I am having difficulty communicating with "friends" who no longer want to listen to what I have to say! Also does anyone know of a support group on Zoom that has a ongoing discussion? Vicki
-
Should we travel?
My DH has been diagnosed with MCI although I suspect that he is further along in the process. He has always been close to his sister who lives several states away; and her husband passed away recently after a difficult battle with ALS. His sister is hosting a "celebration of life" open house at her home in a few weeks in…
-
Is this Possible
My DH who has dementia and I estimate is in the beginning to mid stage 5. Just for the heck of it I asked him yesterday to draw a clock and put the hands at 3:00. He did it perfectly in less than a minute. This has really thrown me for a loop. Is this possible, has anyone had experience with this?
-
Crying often, delusional
Hi, my 85 yo dad was diagnosed 2.5 years ago. Overnight, it seemed, his behaviors worsened. He cries a lot, says he wants to go home and asks where all the other people are. It’s heartbreaking to see this. I am his primary CG. My brother is flying in soon to take over for a few days. My world has shrunk so much. I want to…
-
Sharing your LO's background with various providers
My mom has been in the hospital a few times (including the ER, behavioral health, ICU, regular hospital) and also has home care aides and home health nurses come by. Every time we interact with a new provider we need to repeat the same information over and over again, adding in anything new. I started collecting some of…
-
Living with Alzheimer's
I was diagnosed with Alzheimer's two years ago. To others living with it - keep busy! I have joined a book club at the local library (which also offers activities), walk at the local park daily, church actiivities, senior citizen club, etc. Keep engaged! The Neurologist who diagnosed my illness was cold and offered no…
-
Checking in
My sister lives 8 hours from me and is in a rather fluid period of decline. She has 24hr care as we navigate a new living situation. I have a ring camera that allows me to see her in her living room. I’m wondering if I should bother calling her when I see she is disengaged ( just sitting and staring) I have had one…
-
OCD
Is OCD a symptom of dementia? My DH can spot a crumb on the floor 20 feet away and have to pick it up. We walk several miles every morning and he has to pick up every single little thing in the street and put it in a bag for trash – – yes, that includes leaves. He will vacuum up seeds that have fallen from a plant and…
-
EOAD
Are any of you folks dealing with a LO that has been diagnosed with EOAD? My DW was diagnosed October 2023 after a good year or more of jumping through the hoops with the medical/insurance industry. We finally had to go outside of our insurance to get the final diagnoses. In 2023 she was probably stage 4 but is now…
-
Gamma Wave (Genus) Therapy
developed by MIT, now in clinical trials. supposed to activate brains immune cells to clear waste including amyloids. home devices (both light and sound) available although not fda approved. has anyone tried them?
-
huperzine a
supposed to increase acetylcholine in brain which is a chemical messenger impacting memory and neuroplasticity. ive read that when taken you should allow a day or two off periodically so that acetylcholine doesnt get too high. has anyone taken it? dosage (200 mg, other?),frequency? effectiveness?
-
Memory Care Facility
Anyone in Massachusetts have their LO in a memory care facility and have to pay with their own finances being they do not qualify for Medicaid. I have checked into one near me and there is no way I could afford it without going bankrupt in a very short period time. Any information will be appreciated….thank you.
-
ADL and respite care
Does anyone have any suggestions for in home companionship and care with ADLs for my husband.
-
Dad's Almost Totally Impossible to Communicate With - Help Needed
[I've been a lurker for a few months, but I'm hoping to get some advice. Thanks, in advance.] My Dad (82) was diagnosed with early-stage Alzheimer's just under a year ago. Yes, I was floored. But it made sense, too. We'd been fighting for a few years regarding how he's [not] been communicating me in a reliable manner. For…
-
Alzheimers drug horror story from the NYT
https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?ogrp=ctr&unlocked_article_code=1.UU4._7lR.3WFk8efLcVB9&smid=url-share I hope this link works but this is a gift article which I can reprint its all here in a number of sections It is the worst ethical violation I have seen in my entire career…
-
OT and Cognitive Therapy for Alz Dem
What types of things do you do in OT? My DH goes to OT and so far we have created an activity board to help him remember what he did during the day, and we are working on a Memory Book for him. What other things have you done? I want to make his iphone easier for him to use. Any other ideas that are helpful? Thanks!
-
Depends or other for "egg shaped" man
Hello, My LO is a pretty typical shaped older man-5'9" 215# - big belly, flat butt and thin legs. His urinary incontinence is getting worse but nothing fits right so there are leaks, esp in the back. He's tried Depends pull ups and 2 of the disposable underwear style for men. Getting to the point that they're not optional,…