-
Need advice
I am hoping someone out there has experienced a something similar and can provide some guidance. Background: My husband was diagnosed with Alzheimer’s “with a vascular contributing factor” in 2023. I would say he is probably in the moderate stage now. To the average person, he seems normal. Short term memory is really bad;…
-
Moving Mom
My sister and I are getting things ready in my mom's new room in Memory care. She will be moving in on the 2nd. Any advice from those that have already moved their parent? What things did you find helpful? What didn't go so great? Necessary items for the room? Any advice would be helpful!
-
Organizing home care
Hi everybody! I have learned much from this forum (thanks!), but now I face a new problem and need your kind advice again. My DW (82) has late-stage dementia. So far, I have been able to take full care of her (besides a bit of respite care from an aide), but all my current arrangements depend on my wife's ability to walk…
-
The Long Quiet
Dear Friends, I am quickly approaching ten years as a caregiver for my dear wife with late Stage 6 dementia. Alzheimer’s and dementia have long been known as The Long Goodbye because of the painfully long duration of the disease. No one knows how long their journey as a caregiver will go on, but I never imagined myself…
-
How to answer questions about going home.
My lo is in assisted living for past 3 weeks, she constantly cries that she wants to go home. She has moderate dementia and is 95 years old
-
How to Respond to Family/ Friends who mean well but their comments are a bit much at Times
A family friend says tell your mother Hello, even though she may not remember me. Or I heard she is really bad off.
-
A little pick-me-up
Sometimes the smallest kindest can make you feel so blessed. An old friend from our ski club who found out my circumstances sent me a gift box with this beautiful mug. I loved the message on it and wanted to pass it on to all of you awesome caregivers. We didn’t choose this life but we’re making the best of it out of love…
-
Should you tell mom that her brother has passed away?
New to the group here. Mom has late stage dementia, is 93 and her brother who lives in another state passed away. My dad who is 94 insists on telling her. I don’t think we should. I’ve gotten advice from medical professionals explaining the risks (and lean towards not telling her). I have to respect my dad‘s decision, but…
-
My Heart Will Go On..
I lost my husband and soulmate to Alzheimer’s one year ago today. It’s been a rough day. I miss him so much it hurts. I'm thankful for the beautiful memories we made. Love you LonHo! 🙏💜 https://www.youtube.com/watch?v=A3QAqZQYLIQ Every night in my dreams I see you, I feel you That is how I know you go on Far across the…
-
vitamin B12 abnormally High
Hello I recently had a diagnosis changed from early onset dementia to Mild cognitive Impairment after psychological testing. a few weeks ago I had a lumbar puncture test done and some blood work. In my cerebral spinal fluid I had abnormally very high vitamin b12 and abnormally high Red Blood cells in my CSF as well. my…
-
Dementia study done by the UK
https://www.dailymail.co.uk/health/article-15084673/sleep-brain-ageing-dementia-insomnia-brain-ageing.html Interesting.
-
End stage
My father insists on taking care of my mom till the very end. He is struggling medically as well and they need lots of support. They are currently in assisted-living however I’m wondering at one point do I insist on memory care?
-
Gentleness and Continuation
I guess after reading about so many other situations I have it very easy. My DH is not aggressive, he’s very sweet and kind the sort of person that everyone loves. He gave up driving relatively easily and is quite good as a passenger, he accommodates most of my wishes if I manipulate the circumstances to suit. We go to the…
-
Wedding Ring
My DH lost his wedding a while back but keeps thinking he just lost it. He just told me he lost his wedding ring and said “ I know I had it yesterday” but he didn’t. I’m concerned now cause of the distress this is causing him. I’m acting nonchalant but he’s clearly worried. Should I go buy a new one and pretend I found it?…
-
worried about my own memory
My husband was diagnosed with early stage Alzheimers and lately I am wondering if I have alzheimers. I do not know if it is from the stress. He is very negative and constantly talking about what is wrong with him. I try to be patient but it is sometimes difficult with his pessimistic attitude. I am not sure if anyone else…
-
Bathing why it’s a struggle
I’m new to all this and the group. Yesterday was a bad day for me I have never reached out before but mum for the first time ever got so angry and nasty to me it was a shock never has she done this before in my whole life and I’m 52. All because I’m trying to get her to bathe. I hope and pray she doesn’t start to associate…
-
"Exhaustion" by Michael J Whelan
I follow Michael on X (Twitter). His is a stage 4 cancer survivor & his wife Rebecca has Parkinson's & now Parkinson's Dementia. He has such a way with words. He expresses what many of us feel. He posted this today: "A Letter to Exhaustion.by Michael Whelan Chapter 21. An except from my memoir. Dear Exhaustion, You didn’t…
-
Elizabeth Dole Foundation assistance for caregivers of veterans
if you are the caregiver of a veteran, contact the Elizabeth Dole Foundation for assistance. Veterans do not have to have a disability rating to qualify for assistance. Go on their website and fill out the intake form. I posted further information on the caregiver information page with their phone number and assistance…
-
I don’t think I can do this
My mother and stepfather had both been in decline for several years and I have tried multiple types of interventions and been spending about half of my time with them at their house 2 ½ hrs from me for about a year. Two months ago my stepfather became ill and he died a week ago yesterday. I had been at their house pretty…
-
The move from Al to a SNF
We moved mom yesterday. We told her about a week before the move (my brother insisted). When we got there she had packed up everything in the room. My brother insisted we bring whatever she wants, that there is room for. When I asked mom what boxes go she points to a pile. I bring them to my car and they have sewing…
-
It Is Over
Three weeks ago my dear wife of 57+ years ended her battle with this cruel and heartless disease, Alzheimer/Dementia. She declined very fast over the few weeks prior. I promised her at the start that I would do my best to never put her somewhere for her care but, rather, have her at home forever. While it does nothing to…
-
Stopped Memantine
Hey everyone! So I just wanted to share a bit of my journey with my Mom with Dementia. We were giving her Memantine and the whole time she was on it she was having vivid dreams that woke her up and made her really upset in the mornings. We consulted our doctor and we stopped taking it. There have been fewer wake ups and no…
-
When did you insist they stop driving?
DH is in the early stages - mostly stage 3 with some stage 4. I do 90% of the driving, but on the occasions that he does drive, I haven't noticed any difficulties. However, I am noticing more instances of general confusion in following conversations, understanding instructions, maintaining a calendar, etc. He is awful with…
-
beginning this journey with my mother. feeling alone
Hi, I feel really alone. I am new to all of this. This is the first time I have gotten into this website. Will have my first support group meeting next week. My mother lives far from me and I believe she has some sort of dementia, but early stage. My mother's short-term memory is not good. She has forgotten how to use the…
-
Notary for Power of Attorney in Pennsylvania - Questions
Loved one has dementia. Some days are more lucid than others. They need someone to handle their affairs though. Loved one has not paid property taxes or filed tax returns in a couple of years. We just paid their property tax for them (5K) although they have the assets to do this themself. The social worker at the memory…
-
DW’s anger
I have noticed that my DW easily angers and directs it at me, but will turn around and be polite to others. Has anyone experienced this?
-
Morning thoughts
This morning…The Puzzle I emptied the new puzzle package onto the table I use for my newest obsession, assembling puzzles. I usually work on 1,000-piece puzzles but this one seemed to have 10,000 pieces. It seemed impossible at first, but I resisted the notion of discarding it. I figured there must be a solution. I was…
-
Directions
My lo has moderate dementia and cannot follow simple directions such as locking her door. How do I handle that?
-
Looking into Memory Care and Very Sad
My DH is currently in the hospital after he got out of the car when I was at a stop sign, refused to get back in, and crossed a busy 4 lane street during rush hour. Cars had to stop and change lanes to avoid hitting him. I called 911 while he crossed back over again and still kept walking and wouldn't get in the car.…
-
Where to Start???
I have hundreds of questions… Where do I start? My mom lives with me and has dementia. She needs assisted living and help with finances. Where do I start? She owns a home in South Carolina that I don’t want to sell, but may be my only option. Is there a way to protect the house? I believe she would qualify for Medicaid.…