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My DH is in early stages and I live far from family
My DH is 67 diagnosis MCI due to Alzheimer's. From the scale provided by someone on this site I would say he is stage 3. I live in South Carolina and my kids as well as his brother all live in upstate NY. My daughter a NP wants me to move back. I'm not totally against the idea but am not sure when would be the right time.…
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Dementia needs
My DH was diagnosed 9 yrs ago with early onset dementia and just recently with Parkinson. I've made the following purchases which have made both our lives better. A small,lightweight wheelchair from Amazon, adult bibs, washable mattress pads, a bedrail, satin sheets and silk pajamas to help him slide in and out of bed. I…
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Interested to know what Elder Law Attorney provides
My 69 yr old DH (I am 69 as well) was diagnosed last fall with ALZ. Guessing he’s in stage 3 with some stage 4 like unable to take care of finances, which in our marriage has always been my domain. Six or so yrs ago, we completed our wills, durable powers of attorney, a revocable living trust, etc. I am still his person…
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My Bestie
My best friend has developed delusions and very confused/rambling speech. No stroke or neurological issues. Her mom had Alzheimers. I'm at a loss as to how to support her through this journey. Her husband, who has dementia says she is "just fine". Any wisdom out there for an outsider?
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VRBO VS Hotel
I know our traveling days are winding down but DH wants to go see his father in Florida. All his family live in Florida. I think it will be ok because we have family all around. The only change is his father is now in assisted living so we can no longer stay in his house when visiting. DH was very familiar with the house.…
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Taking away beloved pets
My mom, with mid-stage alz, is currently in an Assisted Living Facility. We placed her there because she is extremely attached to her 2 dogs, and pets aren't allowed in memory care. We were trying to ease the transition so we chose AL. We have been here a week and it is painfully obvious she won't be able to function in…
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Information on Alzheimer’s drug therapies
https://www.brightfocus.org/resource/fda-approved-alzheimers-therapies/?lb=off&utm_campaign=fy26_adr_2603_stewardship_ea3&utm_medium=email&_hsenc=p2ANqtz-9_nkdjBJkPvm4VWCnPwnGjONHFAekf_gU1RC8UsDiBDIWDn_G4y-QM7fD0lpzB1nHZPoC3QwY5H1IBL1aQ5G3R3pyUYljmyARdkFx47haZTfFbvhw&_hsmi=411116446&utm_content=donor&utm_source=engagementTh…
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Working Through This New Diagnosis
I am now 57 and was diagnosed officially earlier this year. The doctors had an idea a few years ago, but after suffering the first Covid in 2020, they were unable to tell what cognitive impairment from the virus compared to dementia due to Alzheimer's disease. I had a 3-hour cognitive eval, the doctors agreed to wait to…
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Sleeping 12 hours a night
DH was diagnosed two years ago, but has likely been impacted for 6 years. He was quite accomplished, so he was able to “cover” for many of symptoms as he declined. While ALZ runs in his family (grandfather, father, aunt, uncle, but not his brothers - yet) DH was able to make it to age 60+ without symptoms. For most of our…
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Lip-smacking, teeth-chomping turned out to be seizures
I want to share something I’ve recently learned that might help others… Seizures are much more common in PWD than many of us realize, and they often don’t look like the typical “convulsive” seizures we think of or see in the movies. They can be very subtle—things like brief confusion, staring spells, or small repetitive…
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Asking for car incessantly!!!
DH has been asking for his car every day multiple times a day non stop and it’s driving me crazy! We told him it’s being fixed .. he doesn’t believe us, I change the subject works for a bit then ask again. Continues to call our 3 children and lately the grandchildren asking for his car! It’s been almost a year! Help how do…
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Financial Ruin
My mom has Alzheimer's and is in memory care, and we are running out of money. At the same time, my dad is quickly declining with dementia. They do not qualify for Medicaid. What does a person do when they can't afford care and nothing is available?
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My husband passed at home March 18
It was a long journey with my husband. He is finally set free from this horrible disease. My wish came true to keep him home until the end. My whole life was taking care of him and a deep void is something I have to get through. I never posted here much but I needed this outlet to say he is not with me anymore. Such mixed…
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I think I’m losing it
Lately I find myself wondering if it’s my DW that has Alz or is it me. I find myself thinking that it’s me that put the frying pan in the freezer or that I’m the one that can’t remember where anything is. It’s actually kind of disturbing. Is this a thing?
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Recs and encourgament
My mom is newly diagnosed with Alzheimer’s at 62. The wait to see a neurologist is 7 months so we are reliant on her PCP. My father is sadly in denial or just needs more time to accept the situation. There are three adult children, two of which live in town. Sadly it feels like symptom wise, she has stepped off a cliff and…
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My DW is now refusing to take her evening medications.
Usually on queue, my DW will take her medications in the morning and in the evening. Today, I gave her the medications for the night, and she refused to take them. No matter what I tried, she would not take them. Her medications cannot be crushed and added to food (that's another story). It's very frustrating. What is a…
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I'm confused (again)
My Dad has Alzheimer's/vascular dementia. He was diagnosed three or four years ago, has been in memory care for two years, and on hospice for 8 months. He sleeps a lot. Probably 20 hours a day on average - he's awake from about 7:30 to 11:30 in the mornings. He gets out of bed about half of the mornings. He has lost a lot…
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Latest from 2026 Alzheimer’s International Conference
https://www.brightfocus.org/news/breaking-news-dispatch-alzheimers-oral-therapies-prevention-strategies-and-targeted-treatments-emerge/
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Refusing to go to the the doctor
I went to town today with DH. While at lunch, I mentioned going shopping while we're in the city Monday. He asked why we would be in the city. I told him he had an appointment with the brain doctor. He shook his head & said, "I'm not going." I said you promised the doctor you would come back in a year. He said, "I don't…
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Changing personality
This is my 1st time on here. I needed to vent. My wife has early onset and has mild cognitive impairment. She is still high functioning but has become very anxious. She gets riled up fast and takes it out on me. I am finding that I lose my temper when she is angry at me. Afterward, I feel bad cause “I should know better.”…
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On the verge of a nervous breakdown
Hi everyone I am new here and not sure what to say or even where to start I just feel like I am losing my sanity. I do not know if I am the only person this type of situation has ever happened to or if I really am going crazy. It is a complex story; 7 years ago, I moved in with my mom who had had a stroke and was in the…
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PET scan -Update
Update: The Neurologist said he is eligible for IV infusion medications based on his PET scan. We need to have a blood test done that would provide info regarding the likelihood of ARIA (brain bleeds), so we’re set to do that next week. If that comes back okay, they will set up the therapy plan and present it for insurance…
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Seroquel 25 mg
My DH started having started having delusions, some hallucations with hearing noises. He thinks men are hitting on me…family members, repairmen. Wants to go grocery store with me so men won't hit on me. Follows me around constantly. I am wondering if things will go down hill from here. The doctor precribed Seroquel 25 mg.…
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I am new to this group and am grateful!
Hello! My DH was recently diagnosed (December 2025) with AD at 70yo. In hindsight, I began noticing "questionable" moments here and there probably 2-1/2 to 3 years ago, but he had just retired and I chalked it up to a major life shift. About 18 months ago, my worry intensified but he would not hear of it. As the months…
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Learning what not to do
My husband has alzheimers. I just need a place to get good advice as to how to handle certain situations
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Re: Respite
Everyone tells me I need to take advantage of the respite being offered by friends - I have complied several times, however the fact that nothing is going to change with regard to caring for my spouse, especially at night. It’s only going to get more difficult and having an afternoon to do whatever for myself is like…
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Watching Alzheimer’s Take My Grandmother Changed Me! Now I Want to Build Something That Helps
After losing my grandmother to Alzheimer’s, I’ve been thinking a lot about how difficult this journey is for families and caregivers. I’m an engineer and want to use technology to make people’s lives more comfortable and better in this space, but I know I need to understand the real problems first. If you’ve worked in…
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end-of-life decisions
What are the options for a dignified death if your state has not legalized medical-aid-in dying (MAID)?
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When friendship is impacted
I suspect a dear friend of mine has early onset. This person's mother had Alzheimer's and passed away as a result. My friend is in their mid-60s and is dealing with the recent death of a spouse so for the past two or so years I've attributed recent behavior changes (verbal outbursts, mostly) to grief and having to navigate…
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Seeking volunteers to serve on Alzheimer's Association Early-Stage Advisory Group
I'm a member of the Alzheimer's Association Early-Stage Advisory Group (ESAG). This year's diverse group includes 10 others besides myself, with a variety of education and work experiences. I've learned they are all much better communicators than I am. :) ESAG members serveone year terms, the new group will start on July…