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Frustrated
does anybody feel like they are frustrated and can’t do anything all I’m doing is a Word Search online and it feels like I can’t even do it.
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Just dropping in
It's been a while since I've posted. I've been reading some of the threads, and nothing seems to have changed. It's still heart break and difficulties, and carrying on. I'm sorry that good people have to deal with such a difficult problem. For those of you who had a LO pass on, I can't say I'm sorry they are no longer with…
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Coping with grief
My wife passed 8 days ago. I was her full time caregiver for 3.5 years. I read a lot about the grief process and what to expect after a spouses passing. There are 2 things that happen to someone in my situation. A tremendous euphoria comes over you after your spouse passes because the weight of care giving is relieved.…
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Feeling guilty
We’re moving my mom into a smaller apartment in Independent Living this weekend since I’ve had to up her caregiver hours recently and the cost of her 1-bedroom has recently gone up significantly. My hope is to give her more time where she is happy before making a bigger move. But of course she’s just annoyed and unhappy…
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Do former caregivers get anosognosia?
I'm just wondering - after all that I've been through and all that I've learned, is it possible that I might have insight into my disease if I develop Alzheimer's? Or am I just as likely to give my future caregivers the same hard time that my hubby gave me and my brother is now giving me? Both men angrily denied that there…
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Feeling Guilty/Stressed
Hi Everyone - first time here. My father had a stroke last March and was diagnosed with Alzheimer's/Dementia....he is around Stage 4-5. I am an only child and we had to move him in with my family....Husband and 2 kids (13 and 11). It's been a little over a year and it's really taking a toll on me. My job is being really…
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Night time going home trips
LO will drag herself (or I'll help her) get to bed. Usually falls asleep in the recliner. Just totally tired. Probably around 9-10. And suddenly reappear with her comb and brush. Refreshed and ready to go. We go and she nods of on the trip. Help her to bed. And about an hour later back with comb and brush ready to go. One…
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Recent Diagnosis
I was just diagnosed yesterday with early stage Alzheimer’s. I am overwhelmed with fear. I go from being hopeful to having very little hope at all. I’m afraid of who I will become and what my illness will do to my partner. I came here for emotional support and guidance regarding how to move forward.
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The ups and downs of this disease
Just venting here! I wish I could understand/predict what will affect my MIL's behavior! Two recent events and she reacted the opposite way in both situations than I was prepared for. We recently took her across the country, on the plane, to visit family. We discussed it for months before. I very much expected a panic…
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Running away from me
I had an appointment with my eye doctor and took my DH with me because I couldn’t find anyone to stay with him while I was gone. We checked in and had a seat in the waiting area. After about ten minutes he got up and started heading toward the restroom. I got up to make sure he went into the right one. I tried to take his…
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TV help
I just heard about Jubilee TV. A caregiver can control a LO's TV from afar via a smartphone app. This might solve a lot of headaches. Iris
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Delusions have started for my PWD and I feel lost
Hi, I am the grand daughter and I help give care to my PWD. She has mid stage altzeimers dementia.I've noticed she's started to remeber false memories that didn't happen. She's started to see "animals" that aren't there. this is new. I've noticed this within the last month. How do I go about handling this? What should my…
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Wandering
Question: how to redirect or distract a LO that has begun their journey to “that” place. Many posts on this forum about wandering and attempts to redirect/distract before, but, i could use some thoughts on how to get a LO that has started of on their journey. I have posted before about wandering and a recent event. 99% of…
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plan
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If YOU had to pick a med for your loved one...
This probably sounds like a weird question and yet it is exactly what the pharmacist asked of us! He called us and told us that the geriatrician gave us three categories of meds and let us kind of pick what we wanted to try!! So the category was anti-anxiety meds, anti-convulsant meds, and anti-psychotic meds. We were kind…
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So which end is up?
Yesterday, my DH and I saw the neurologist in response to recent deepening confusion. But at the appt, he was on track, MMSE test higher than last year and he sounded much like his old self. I was shocked. From there the conversation with neurologist was light and overly optimistic. My DH said he exercised regularly,…
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Smoking and AL help
Looking for advice… My LO, a parent, is a lifelong smoker, which is problematic now that he needs a more supportive living arrangement since none of them allow indoor smoking and winters here get brutal. Ultimately, it looks like we’ll need to explore cessation (which has been tried so many times already) since this is…
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Sleep
I have read several posts about long sleep sessions. I think I even posted one. But, up til this month they have been maybe one a month. This month they are weekly. Normal bed time between nine and ten. Later if the "going home clause" is invoked. She is normally up ten or eleven. Getup time has moved out til as late a…
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Does she really have Vascular Dementia?
My mother received a diagnosis of advanced vascular dementia during a recent hospital stay. She was in the hospital after seeing robbers in her apartment and fleeing to her neighbor’s apartment. She is currently at an ALF after a month in memory care. Everyone around her or people I talk to say she has dementia, but I am…
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stress
You guys, I feel like I can sense the stress related chemicals having an impact in my body. Like I feel like I am running "hot" or revved up. I guess this is what this season feels like. Or at least I keep telling myself that it is due to this current season. I've mostly talked about dad here. Mom also struggles, but is…
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Does your loved one complain??
like I always say for now my wife isn’t too bad yet, but was wondering do others complain of issues like stomach ache , back pain, leg pain etc????
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Out of ideas
My Mom has been in memory care almost a year now. It will be a year the first week of September. She was in AL at the same facility for about six weeks before they insisted she be moved to MC. She was wandering at night and anxious most of the time. Once in MC, there was a transition phase, but it didn't have anything to…
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Neurologist visits
After my mother was officially diagnosed with Alzheimer's (lumbar puncture test), we met with the neurologist very briefly, but he didn't make a clear determination of her progression in the stage of the disease. We are scheduled to see him again in October. I'm not sure if he intends to run a battery of cognitive tests or…
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Random Bits
I am so sure we all see a variety of new behaviors in our LOs, some of them even maybe lighthearted (if still sad). My wife now thinks the local newscasters are looking at her from the TV. She finds that fun and funny.
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smoking. How do you all deal with it. I am
running out of ideals. Peewee (My Husband) Smokes so much more now than he ever has before. It's because he can't remember when he put the last one out. What he don't smoke himself he gives away. Has anyone's loved one just forgot that he or she is a smoker and just quit?
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High Anxiety / Anger Issues
I am trying to help my 81 year old father who is my mothers primary caregiver. They still live in the house they raised 3 boys in for the last 56 years. I work two jobs one of which is caregiving for seniors in the evenings and weekends. I am the only one able to help my father as my younger brother has passed and my older…
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Any advice on potty issues?
I am caregiver to both my parents right now, my mom with AD and Dad with D. Dealing with Dad yelling at mom because he can't remember that she can't remember. She is to the point where she tries to pretend she understands what you say, but literally understands next to nothing of what you say. And Dad forgets things and on…
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In-Home Respite Care
I am new to posting. My DW was diagnosed with ALZ about 5+ years ago. Her Neurologist says that she is toward end of MS ALZ. I am her only caretaker and spend nearly all of every day with her. I need to to get her to accept someone coming to the house so that I can get some respite time but she is adamant that she doesn’t…
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Memory care placement update
as some of you may recall I placed my sweet Tommy in memory care 2 weeks ago. It was soul sucking, one of the worst things I’ve ever had to do. The placement day was terrible but I followed the doctor and directors instructions and didn’t visit for the first 2 weeks. I went today for my first visit and it couldn’t have…
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The incontinence blues - I'm not handling it well
We've had a couple of rough days. Over the last few weeks my husband has moved into full time incontinence. He's been incontinent for a while, but until a few weeks ago it was almost always urinary and not all the time. Then The last 48 hours... Fecal incontinence and he's fighting me hard on clean-up. He won't let me…