Welcome to ALZConnected! You are not alone.

Just a vent… I made the tragic error today of forgetting that my mom is not really the same person anymore, the mom I used to be able to have meaningful talks and heart-to-hearts with. … We were having such a nice visit today. I took her my old baby book and we had such a fun time reading it together. Things took a turn…

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Hello dear community, I am having one of those days when I question my decisions and see faults and what's lacking. I know that's silly because over these 2+ years I've done several things that needed doing to keep dad safe. Ugh. The reality, though, is that even when I remind myself of the positives I still feel critical.…

Hello all. I am new here and feel like I’ve found myself on a very fast track in this journey. Starting around 2023, my DH’s doctors began mentioning dementia, but we never got a firm diagnosis or clear treatment plan. They just kept re-doing the SLUMS test, and while we knew something was wrong, things still felt somewhat…

Hi, new to this community and have many questions, but the one that's top of mind today is that my DH, who was diagnosed with VD but also elevated levels of Alzheimer's last summer, seems to be slipping away faster all the time. He's now very weak and wants to sleep almost all the time. We've been letting him eat breakfast…

Hello All, It's me again, with the ongoing car dilemma. We sold my husband's car in late May. He had not driven it in over a year. Now that it is gone, he is insistent that he needs a new car. He talks about it every day, to anyone who will listen. Every time we drive somewhere, he is pointing out how everyone has a new…

Good Morning, My DH was diagnosed with EOA 8 months ago. He is 54 I am 58. He was working as a lineman until 2024, he was working 70+ hrs a week, I am an ER nurse I work 24 hours nights. I have assumed the role of everything, which is ok but frustrating at times! Esp when he asks what can I do? in the beginning i would…

My mom (early-mid ALZ) lives in AL (without support, but has restrictions, not allowed to leave building w/out family) had tried to sign up to go into San Francisco in the AL van to see the Monet & Venice exhibit, but the AL appropriately didn't let her go, telling her it was booked. The residents are not chaperoned, just…

My DW with MCI frequently tells me she wants to go home. However we have been in our home for 40 years. I don't know how to deflect her from that thought.

My husband was diagnosed with dementia yesterday and I’m not sure how to feel about this. I am 43 and he is 65

Timely info and very good presentation from a Scientist/Caregiver- Neal K. Shah, Research Triangle Park https://youtu.be/a8rPct94I-k?si=tFs6gF24oj_B1KeV

The Peter Attia Drive podcast episode #399 with Gayatri Devi, MD - the evolution of Alzheimers disease and treatment. She shares some hopeful information about the future of treatment.

My DH was recently diagnosed with mild ALZ. We have a family reunion coming up and I feel like we should let his two siblings know. Is that something he should be a part of or should I be telling them without his knowing? So much of this journey makes me feel like I’m having to do or say things behind his back because he…

Hi. A few weeks ago my mom was having issues communicating, seemingly out of nowhere. She would just stop talking and looking to me as if she wanted me to answer for her and shrugging. After lots of doctor’s appointments, they think it was TIA. Since starting Plavix, she’s had no more episodes, but during the barrage of…

I'm new to all of this. From a recent assessment and from what I read here, I think DH is at stage 5 dementia. So I think placement in MC is needed, within the year probably. General question: I assume that once placed, I will be the person to take him to MD appointments as needed? (I have done that for him for years). I'm…

My DH is entering stage 6 of Vascular Dementia. He is beginning to get agitated at times and so far I have been able to redirect him. I fear that his agitation will progress. I wanted opinions on medication for agitation. Our PCP said that the meds could progress him faster. I hate to give him anything to escalate this…

My DH was diagnosed a year ago, but was having issues for a few years prior. I thought the progression was slow, but this past week has been a big change. He's either so sleepy, crabby or not eating. I don't know what's happening. He was upset with me this morning for going to work, telling me I don't have enough time for…

My wife just started something new last week. She is grinding her teeth incessantly. She is 8+ years since Alzheimer's diagnosis and in early stage 7. Of all the symptoms she has exhibited over the years, this is one of the most excruciating. Anybody have any experience with this behavior?

I am struggling with helping my Mom feel she still has a purpose. After 2 1/2 years in AL, she was recently (3 weeks ago) moved to MC. Her anxiety was increasing and staff felt as though the smaller environment would be better for her. In between activities (she would go, but rarely actively participate) she didn't know…

Both of my parents have memory issues. My mom has a diagnosis of Alzheimers- probably late stage 4, and my dad has dementia, non specified, because he refuses to see a doctor. I don't want to spend time with them anymore because it's hard—— for all the reasons. In an effort to keep this post short, they are safe, have…

I’m brand new to this group. My husband and I are on a journey to find out what is happening with his health. He has multiple issues (heart, GI, lungs) that we are having tests and appts. When his PCP ordered lab work, I asked him to check his Ptau217 as I’ve noticed some behaviors that seemed off. Well, the Ptau217 came…

Just rambling really, however this phrase, which totally amused me and made me laugh ‘Big Girl Pants’ was brought to my attention by our executive daughter on her rise upwards in the work field. She said to me “well I’ve got the job, now I have to put on my Big Girl Pants and show how mature I can be”. I found this phrase…

Was wondering if anyone here had to go through the courts for guardianship when trying to place their spouse in MC, and how it worked out. My husband with AD has NPD, anasognosia and extreme paranoia/delusions. I am his sole caregiver and have almost reached the point where I can no longer handle him. I know that if I need…

I placed my DW into MC last Wednesday. At the suggestion of the facility we agreed that I would give my DW about a week to get her accustomed to her new surroundings. I’m planning on my first visit this coming Wednesday. I’m curious to see from you folks that have a LO in MC, how your first visit went.

My mom (77) was diagnosed with Alzheimer's formally a year ago but has been showing signs of memory loss for about 15 years. She is on Aricept now but at her last doctor's appointment it was suggested they add Namenda in 6 months to a year. I'm not sure why the suggestion and not starting right away but I do know that it…

I didn't see the DBAT form on the Dementia Resources page here or on the Alzheimer's Assoc site. I'm wondering if this tool is outside the scope of AlzConnected? If it's cool for AlzConnected, does anyone have enough experience with it's use to answer some questions about some of the terminology, who fills out such a…

I guess I'm just venting because the nursing home called again at 6 am to tell me that my DH was found sitting on the floor again at 4:30 AM. This is the second time within the past 5 days that he was found on the floor. DH is stage 7 and on hospice. He can no longer walk, but he can slide himself off the bed, which has an…

Hi everyone- I am new to this. My mom has some kind of dementia. She is very difficult to get to the doctor, talks in circles and lies and makes up excuses why she can’t go. I need for her to see a physician so they can declare her incapacitated so her Medical POA will be invoked, so I can legally help her stay safe. She…

I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…

When DW was diagnosed about 5 years ago, she was wearing contact lenses. Soon after diagnosis, she willingly changed to eyeglasses. Recently, she is increasingly indifferent to wearing her eyeglasses. She is now stage 6. Having been with her during her last two eye exams, I doubt her prescription has changed much. She has…