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Will I ever be happy again?
I am feeling so hopeless. Ever since my dad died in December I’ve been so worried about my mother who lives alone 2.5 hours away from me, I can barely function. We now have her set to move into AL near me in 2 weeks, and my anxiety is worse than ever; partially because I’m worried about what to do when she begs to go home,…
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Elder Law
I know that my DW condition will get worse over time and I may not be able to care for her in our home. If anyone has reached this stage have you got an Elder Attorney involved and is this advisable…God knows I don't have all the answers.
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US SSA does not recognize POA
This may be well known to most of you, but it was news to me only a few days ago. Social Security agents could not talk to me about my dad’s benefits, since SSA does not accept DPOA. I had to apply directly to the SSA to be a “representative payee.” It would have helped if I had known that term! The process was not that…
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Just need to talk to my friends (217)
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good books on alzheimers
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Reassure me that I am doing the right thing
My dad passed away in December and my mom has been living alone ever since, 2.5 hours away from closest family (me). She has what my brother and I believe to be stage 4 dementia based on the DBAT assessment. Last month her PCP only diagnosed her with "memory loss," she scored a 24/30 on the MMSE, but he did take away her…
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Dealing with anger
This is my first time here. I've spent a lot of time reading some of the questions and answers but haven't found my specific concern. My father is 90 and has some dementia symptoms (we don't have a diagnosis yet). He and my mom live in their home. My mom does most of the work in the home including cooking, with some…
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DENTAL CARE
What are my options and resources for diagnosing and treating dental pain. My spouse is non ambulatory so an office visit is not possible. She is also under hospice care.
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Doesn't know who I am
When I went to bed last night Doug asked me what my name was. God I hate this disease. It's like death from a thousand cuts.
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The "Trial Period" approach
I posted yesterday about how we are putting my mom into an AL community in a couple weeks. She agreed to go there, thank god, mostly after we followed the facility's recommendation of telling her it's a 30-day trial period. This seems to be a common approach. However, I feel like this is going to backfire on us.…
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Just need to talk to my: friends (216)
Sorry, just forgot, crept up on me. Not doing a very good job of concentrating. Couldn't find my bread knife anywhere so thought I would have to go through the trash. Thought I would give Stormy a milk.bone and it was in the box. I use it to open those big boxes. Thanks for reminding me.
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Concerned newcomer
Hi, I just created an account for this group,hoping to find support and helpful information. I am a loving partner to a 76-year-old woman who has been exhibiting memory lapses, delusions, and paranoia. I care deeply for her and am trying to figure out how best to help her, beginning with that first awkward, sensitive…
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Leqembi
Hi, Dad went for his first MRI after 1 month of being on Leqembi. The doctor's found internal bleeding and brain swelling. Dad will stop taking infusions. In June the doctors will give him another cat scan to check his brain. If he improves, they will put him back on leqembi. Honestly, I am against him doing this infusion…
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Anyone Living in CCRC?
Is anyone on the forum living in a Continuing Care Retirement Community? If so, did you have to undergo health assessment because your LO has an ALZ diagnosis?
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Overwhelmed
My DW was just diagnosed with Alzheimer’s in January. I started noticing things last September and she went through extensive testing. She’s only 53 yrs old and our lives have turned upside down. She lost her job last August which was 60% of our income. A daughter, freshman at UNM, and a younger daughter Junior in high…
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Having a hard time about my dads diagnosis.
Preface: (DAD WAS VERY RECENTLY DIAGNOSED & PUT IN A HOME ABRUPTLY SO IM STILL IN SHOCK) Hey! My name is Blair and I’m 28, I have 4 beautiful boys, ages 1,3,5&7. My dad can’t remember their names or how many I have. I’m having a hard time. He was just out into a home in September. He hates it but it’s for his safety. We…
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49 Early Onset
I was finally diagnosed March 16th after 3 years of trying to get help thinking I was going crazy. I’m really angry that a neurologist dismissed me years ago claiming I was flunking the cognitive tests on purpose for attention. Fast forward and now I’m moderately effective with this nasty disease. So many emotions
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Blood pressure dropping?
DH has had blood pressure readings that have continuously dropped over several weeks. He was having a variety of readings in past years…. from 120/70 to an occasional 155/60… he is late stage 6 and lots of decline. Hospice has been involved for for two months, and the nurse has noted a steady drop ….2 weeks ago was 120/?…
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Ambiguous loss
I haven't been here in a long time, hi to all of you who remember me. Quick background - DH showed signs of dementia somewhere around 18 years ago, before age 45. He's now 62. 4 years ago he moved into memory care, but by that time he was barely walking, didn't know anyone, couldn't eat with utensils, and was peeing…
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Holiday decorations
I see a lot of families decorating their loved ones door or room with holiday decorations. Do people with mild to moderate dementia generally appreciate this similar to how basically any child is going to enjoy decorations for any occasions. Or are decorations appreciated or not appreciated more on an individual basis?
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Trouble with letting go of desire for control
For a year my brother dealt with stomach cancer. There were signs that my mom's memory was failing, but it didn't seem too bad. With all the attention on my brother, we put a blind eye on those issues. When he died, we couldn't be blind any more. We could handle taking over paying her bills, managing her doctor's…
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Placed mom in AL home last week
This will probably be a long drawn out vent. Back in December 2024 my mother was diagnosed with Alzheimer’s and vascular dementia. My sisters and I tried to do everything we could for that following year to keep her in her house my mother has begged me and my husband for the last 15 years or more to never never never take…
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Sleeping more
Just a quick question my DH 78 years old VD 6 or 7 non verbal with Aphasia is sleeping more and more particularly during the day is this a sign of further decline. He is only on high blood pressure medication. What are the signs he is reliant on me 24/7.
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Affairs, Divorce, and Dodging a Bullet
Very long post alert. I only come to you all because even if your situation isn’t like mine, I know I will get wise (and hopefully not too brutal) counsel from the other travelers on this journey. I am 64, still working - now 2 jobs. My DH is 63 yo and is: ◦ not diagnosed with dementia ◦ Has multiple health issues…
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Brain Honey
Just watched a video by Bill Gates extolling the benefits of a product called Brain Honey. He claimed it could reverse the effects of dementia in even stage 7 victims. At the end, he was selling a 6 month supply for about $300.00. I see it's on Amazon for under $90.00 for a 5 month supply. Has anyone tried this??? I know,…
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EOAD WHO SMOKES
My LO is 65 who was just diagnosed this past year. He has CAD/PAD/PACEMAKER/DM2. So basically, a mess physically before even being diagnosed with ALZ. He just started smoking a year ago on a daily basis. Before that it was basically just a pack a month. Now his VASC doctor is really pushing for him to stop smoking. I…
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Send me good luck!
I'm transferring my parents to another memory care across the country this so I can monitor her care closer. I'm nervous about all the logistics and praying the airport isn't a disaster zone. And of course we have the actual drop off which I'm praying is ok. And then there is the weight of being solely responsible for a…
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I Feel I’m loosing my mind…
My aunt has dementia I care for her she has no kids. My mother just got diagnosed on top f this last week ( she’s in denial) I’m the only daughter I care for her as well . My husband is terminal ( multiple myeloma and chronic lymphocytic leukemia) I need advice , tips… ideas I’m in a whirlwind I can’t loose control I’ve…
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Hospitalization
My mom (87YO) in MC tried to escape yesterday. She was severely agitated and combative with the staff (pushing the doctor and squaring up against nurses and people trying to help her). My sister and I were called to see if we could come by to try to de-escalate the situation. Long story short…we couldn't (In fact I think…
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My DH is in early stages and I live far from family
My DH is 67 diagnosis MCI due to Alzheimer's. From the scale provided by someone on this site I would say he is stage 3. I live in South Carolina and my kids as well as his brother all live in upstate NY. My daughter a NP wants me to move back. I'm not totally against the idea but am not sure when would be the right time.…