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Discussion List
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Temporary home visit
I would like to take my wife home for about an hour so she can play with our cats. Our home is about 5 minutes from the memory care center. Cathy is in the upper levels of dementia. She can walk okay. The apartment is on the second floor (no elevator). She can walk okay. Please let me know if this is a good idea. On the…
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40Hz Light & Sound Brain Stimulation
I have been doing a lot of reading on how 40Hz Light/Sound Brain Stimulation can help Alzheimer (and other dementia) patients. This approach was hatched at MIT by a pair of MIT professors so there is science behind it. Two start-up companies are doing significant trials with their 40Hz products. The most prominent, is…
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Late middle stage dementia
I need some advice about my GF of 13years. My GF's dementia has been getting worse over the last 6 years. We live in Florida. She is at the point that she didn't recognize me when I drove up to her in my golf cart. She also didn't recognize my son last month. She has left at least 1 pot burning on the stove. She has gotten…
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New to this site
My husband of 40 years (he's 85) has dementia and recently the sundowning started. It is so frustrating and I don't even know how to respond. He thinks our bedroom is a hotel, that we are not in a house, that we don't own the house, etc. He is so confused at night. He doesn't know night from daytime. :(
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Feeling alienated
My husband was diagnosed with early Alzheimer’s in 2023. My guess he is in the moderate stage now. We moved to another state in 2022. I thought it would be a good move for him, as there would be groups he could join and be active. We also wanted to be closer to our grandchildren. We have not seen the grandkids as often as…
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next step with incontinence when no diaper products work
I am so fed up with wet sheets, blankets, clothing blankets etc. I posted in May and got lots of good suggestions on better products than Depends, but even with products that say Maximum absorption, he is wet every night. This morning I got him up at 5AM changed everything and at 830 he and the bedding were completely wet…
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Can Sundowning happen in the morning
My husband is in late stage dementia and the regressive changes are happening quickly. Sundowning at around 5 pm is a familiar pattern, and we have come up with some steps that reduce the effects. A new problem — In the morning, we're seeing something like sundowning. He might withdraw, he might get angry, it's a new thing…
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What a hell-a-la-boo
My story has been shared over the past 2.5 years, so I will pick up from where I left off. Mom is recovering nicely from her Ablation. I thank God for that. I am thankful also that her UTI and URI are both in the past. Sadly, what is also in the past, is her memory of events that led to her hospitalization 2 weeks ago,…
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long distant relationship
I have been with my partner for a couple years ,this week they was diagnosed with early Alzheimer's and I do not want to walk away ,I want to stay and go through this with them, looking for anyone who is going thru this for advice.
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Sexual aggression in MC
First post here...my dad was diagnosed with vascular dementia last summer. We recently had to move him into MC. He was adjusting well, but then he began exposing himself to others and some touching between him and others. He was moved out of MC onto a regular nursing home floor. A few days ago, the night nurse found him…
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Aricept dose adjustments
When our LO was diagnosed with dementia in Dec 2024, he was started on aricept, continues to take it before bed and right now not at his house so unsure of his dose. I estimate given the symptoms we are seeing he is probably mid to late stage 5. At this point in time would asking for his dose to be adjusted up, help with…
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I Need Help
Hello! My name is Aaliyah. I am 23. I was adopted by my grandparents when I was 2 months old. They've raised me without any help from my biological parents. In 2016, my freshmen year of highschool, I lost my grandfather to Alzheimer's. I took it insanely hard. I was one of the only ones he remembered in the end. I had…
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At the end
Day 5 of no food/water. Emotional rollercoaster. I've spent years anticipating this, but I didn't expect it to be this difficult. Yesterday I found a pressure ulcer on his coccyx because I've been avoiding the pain of repositioning. As a retired nurse, this absolutely gutted me.
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VA - Veteran benefits
Just wanted to give an update on possible Veterans Benefits. Service connected disability: File for it if the Veteran meets the qualifications. There is a list of diseases that are presumptive for Agent Orange. Parkinson's is on the list and I believe Alzheimer's & Dementia should be. I would file for Social Security…
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I need to tell my story of how I am here and how it has affected me
I am struggling, and have been masking for what seems like too long. I am burned out. I need someone to talk to about this, it's been a wild ride. I am in need of a listening ear. My husband has been diagnosed and I am really struggling to cope.
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Negativity
My DH has been diagnosed with mild cognitive impairment by his primary care physician. So far, this has been really hard. I wrote a list of all the behaviors I see at home, it is not his memory it is “faulty” thinking. I gave my list secretly to the neurologist’s medical assistant to give to the doctor. Then the doctor…
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Behavior change question.
My DH has started Saying I Don't Know What To Do. This started when he wakes up at night and now has progessed to morning and occasionally threw out the day. Has anyone experienced this? And if so is this a temporary change or has it become permanent? 5 1/2 years diagnosed. Thanks
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DBAT Scale; FAST Scale; and others?
Which of these scales have you folks found to be helpful? I am the sole caregiver for my 72 yo DH with dementia/Alz. We live in a rural mountain area. (We have all 4 seasons here).
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Looking for advice
My DH has ALZ, somewhere in Stage 3-4. Last night, we were having a conversation and he stopped mid-sentence with a blank look on his face. When he recovered a few seconds later, he realized that something was "off" and obviously very concerned about what had happened. He had forgotten what he was talking about. He was…
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Eating habits
My DH has a habit of eating his meal very quickly, like he's aftaid he'll never see food again. We have accidents of him knocking his glass over, dripping food everywhere, but so far no choking, which I worry about. He was a firefighter for 33 years and I know they all ate very quickly in case the alarm went off, so I'm…
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Defining "self-care" as a caregiver?
I thought I knew what it meant… I mean, generally, yeah. But for a caregiver of a spouse with YOA, I'm realizing I kinda don't know what that actually looks like. I'm going 110mph all the time and my brain hurts (not to mention my eyes from all the reading, forms, etc.). I'm looking for hacks & visualization re: what…
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I just need to vent
It’s been said that no good deed goes unpunished…how true this idiom is. My husband had been wanting a dog since we lost our last one. I wasn’t sure we were ready but in a weaker moment I saw a dog on the county shelter site that looked like she would be perfect. She is 8 years old so no longer a puppy, was supposedly…
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Not sure what to do!
Back in February my mom wasn't answering her phone one morning. I went to her house and found her on the floor of her bedroom, presumably she had been there most of the night. Long story short, after a month in skilled care, she went to an assisted living facility and she will not be going home. She is not adjusting well…
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Looking for Work From Home Opportunities
Hello, I thought this would be a good place to ask since other people might have the same or a similar struggle. I stopped working in July after I abruptly decided to come care for my Grandmother who is level 5 LBD. I have since depleted my savings and I am not getting paid for her caregiving. Although I have applied for…
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Before diagnosis
My dad has not been diagnosed yet but we are in a difficult situation. My dad is having short term memory loss issues. He is 86. He is a physician and probably the smartest man I have ever known. He has always been the patriarch of the family and in charge of everything. He does not want to relinquish any of that control.…
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Ideas for managing bad habits
My MIL has taken to spitting in the house. She'll eat a meal, and I guess bits of food will stay in her mouth, even though we tell her to stay at the table until she's finished swallowing and try to get her to drink before leaving the room. Once she gets settled in the living room, she'll start spitting those bits of food…
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Stuck Between a Rock and a Hard Place
My mom moved in with my wife and me about 5 years ago (all my wife's wishes). The dynamics have been rough especially with a language barrier. I'm stuck translating and lately the fights are bad. My mom doesn't want to have caregivers on Sunday late afternoons 2-6pm so that my wife and I can have date night. She wants to…
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Hospice.
Hi: My DW has had VD for almost 3 years. She is 78. She has now been in Hospice for 4 months. I go to see her daily, she is bed bound. She can no longer walk, talk, feed herself or help herself daily bathroom care. The must put her in a wheelchair in the morning so she can be feed. She cannot move her hands or feet. If she…
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Decision Time: To Live or Not to Live
My head has been pounding all day. My DM made me her all-in-all as it pertains to her end of life matters. Out of 2 children borne, only 1 remain. Me! A terminally ill retired RN. When mom was in her "right mind," she NEVER wanted surgical attempts be made to correct her Afib. With Vascular Dementia and Alzheimers now…
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How to respond when they are confused over reality and what they believe
Sorry this post is so long. Guess I really needed to vent in addition to asking this question. Here I am again after a while away. Seems life with my DH has consumed me a bit. I realize I need to come out from that and get back into reading posts here and asking for help. My DH is mid stage 5, but still able to care for…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
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