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New to the discussion and terrified
My DH was diagnosed in March 2024 with mild cognitive impairment. We looked at the diagnosis with horror and a gift that we could try and slow the progression. Two weeks ago he had a sudden incident of bizarre walking and falling. He said he felt like he had no control of his movements. We saw our family doctor had an MRI…
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Rookie needs advise on neurologist
Rookie here.I learn a lot from the discussions and I intend to continue. I'm the caretaker of mu 82 year old wife, who was recently diagnosed with lesions on her brain, but no indication of stroke. The docs only say "altered mental status". She was fine one day and then started to lose it the next. She has COPD and is…
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clearing mucus from the chest in late dementia
Alzheimer's has taken my 83yo wife into its late stage, and she recently caught a cold or pneumonia. She improved in the hospital, appears not to have an infection now, but three weeks later at home she still has a wet cough, usually when lying in bed, which is most of her time. The cough interrupts her badly-needed sleep.…
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New Role as Conservator and Guardian after Theft by POA
After a difficult effort to force my sister's POA (her son) to resign when we discovered he had taken more than half of her wealth, I am stepping into the role of her conservator and guardian which I am doing from across the country. My sister, who is in a moderate stage of dementia, is safe in an assisted living residence…
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MY MOM HAS EXTREME PARANOIA TOWARDS ME
Hello-- 8months ago my Mom had an MRi done to her brain but there was no exact diagnosis based on the results of the MRI> We also saw a Neuro-Pysch-- and he only spent a few minutes with her and I had to be the one to tell the story about her accusing me of stealing her under garments, jewelries, clothing, remote control,…
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Medication
My wife has been recently diagnosed with Early Dementia/ Alzheimer’s. I discovered yesterday that she has not been taking her prescribed medications on an everyday basis. After a huge battle, she finally relinquished control her pill box and leave it in a place where I can conveniently check. I have hidden her dementia…
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1st Lequimbi Infusion..
Is finally on my calendar for Oct 30. YAY!! It's been a long slog but it is almost a reality. Very pleased. 😁
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Contesting my mom's will.
My sister told me about how family members fight over the will. I've been naive thinking black and white and that the will is going to be carried out as intended by my mom.
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Will CPAP Really Help?
Hello friends, Dad is 79yo, had a CPAP maybe 20 years ago. Neuro thinks new CPAP is going to be a game changer/golden ticket bc of his brain scan and assessments. His sleep study showed low/moderate apnea. He's in a care home, not MC, so staff will check on him but they don't do intensive ADL's- I'd have to get home care…
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
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early onset dementia and memory care
My wife is 69 years old and has early onset (56 years old) vascular dementia. I placed her in memory care early last month. Her biggest complaint is that all the residents are older and more impaired than she is. Most of the other residents are late 70s and early 80s. Some are in the very late stages but many are not. My…
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The Weight of Waiting
There’s a lot of weight on my shoulders. My DH is stage 6 of Alzheimers and I find myself weighed down, emotionally stuck in the waiting room of his life, our life, my life. Time is timeless. Its a surreal world of melting clocks and drooping watches and living in a dream-like nightmare that did come true. The…
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Support group
I came looking for help, understanding, support. Husband newly diagnosed. Without offense, I must say it’s scarier being here than being lost and alone in my real life. No. I didn’t come here for the fantasy of “it will be ok” but it’s all so hopeless. I see major failings in my husband every week. Something new every day…
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Mixed dementia
My dad has mixed dementia vascular and alzimers hes 95 I have carers coming in once a week to help me as I can’t deal with it alone sometimes I cry about it
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Other Caregivers Dealing With Menopause?
Hello, Dad is in a care home, but I do all the $$, medical, have moved him 2x, sold his house, etc. I'm 54, menopause has drained so much of my energy and brain fog is real. Was on HRT which fixed these things, but had to go off bc of other side effects (inner ear problems- vertigo, dizzy, motion sick). The fatigue some…
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Newly Diagnosed with Mild Cognitive Impairment
Hi everyone..I am 58 year old School Counselor newly diagnosed with MCI, based on Montreal Assesment. I have a variety of risk factors--family hx on paternal side (Grandmother, Uncle, Father) plus I have Type II Diabetes, Sleep Apnia, Peripheral arterial disease, etc. I am scheduled for a workup--blood test, MRI, and…
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Results from Aircept
Have any of your parents been on Aircrpt? Did it help? Hurt? Side Effects?
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Help! Overwhelmed and Dad won't address things
My mom (79) has dementia. I don't think she'll ever have any diagnosis. She won't even take her temperature. My dad (78) still has POA but won't do what's necessary for taking care of himself let alone her (i.e. meds, driving, home safety, home help, future planning, etc.) He/they don't know what state to live in when they…
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So Frustrated with Dr
DH with VD from several strokes has had interrupted sleep for 7+ yrs. Dr has him on trazadone 150 and now he is only up 5x night instead of 15-20. He now has nightmare episodes at night. We had a video appt with Dr today to discuss changing or adjusting meds to help us BOTH sleep, my idea.. I emailed Dr a heads up with the…
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What to do when vascular dementia causes your husband of communication
We are at the stage of his dementia where we cannot carry on a conversation. I cannot understand what he is trying to say. He has many health issues and I am afraid I won’t be able to know what is wrong. This is my first post. I don’t know what to do. Thanks
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Caregiver for dad
My Dad is 75 & has dementia. It’s so bad that he wasn’t paying his mortgage for over 7 months. My husband and family had to move in to help save the house. I work full time but took some time off to help get my dad situated. We’ve been living with him for a month now and I’m mentally, physically and emotionally exhausted…
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Alzheimer's quick progression after an illness?
My LO has been experiencing a Colitis flare-up and is really having a hard time. He was seen by a doctor, and we have a follow-up appointment scheduled. But it seems like his Alzheimer's has progressed a lot within just a week. I did see a video that mentions that people may "take a step" down after experiencing an…
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Angry right now
Anyone out there ever get frustrated to the point of even being angry at the total LACK of answers available for this disease? My mom is in (I think) Stage 4 Alzheimers. But then it could be Stage 5. I can’t get a good answer from a doctor. There are no good answers. No good answers on how long I can expect each stage to…
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Husband
Hi all, My husband has Lewy bodies and was saying last night he’s dying, he said it again in the early hours of this morning, can anyone give advice please.
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risperidone
My HWD is currently taking Donepezil and Sertraline. He has been so agitated and verbally abusive lately that his PCP has written a prescription for risperidone 5 mg. The listed side effects are pretty scary, but maybe at this low dosage they are not a big risk. I was wondering if anyone has experience with it that they…
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Decline after caregiver?
Mom lives with us and has for about a year and a half, but we had a daily caregiver (8 hours a day) coming for a little over 2 months to help with Mom after she had fallen late July of this year. It was usually the same person M-F and then another person who came for the weekends. Both ladies were awesome, and of course…
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Medication administration
Hi ! my mother has been getting very confused with taking her medication despite me setting up the pill organizer each week . It is clear I need to get some help because I can’t get there each day and night. What are your experiences ? Is this something Medicare covers ? Are there agencies that will just come in for this ?…
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Feeling extremely overwhelmed
I am a 55-year-old female caring for my 80-year-old mother. There are so many things to discuss, so I will try to start small. I live an hour and a half away from her, so expense-wise, and my own extreme anxiety and depression, it is hard to be there all the time. I call her daily to check in, but that conversation always…
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Safety gate for stairs?
Morning all, I'm new here and caregiving for my mom who's in stage 5. Increasing wondering at night, mostly in the upstairs hallway but occasionally venturing downstairs. Any stair gate recommendations? Thanks!
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Wow, I underestimated the loneliness
My husband went to memory care this week. It's going fine. He's settling in fairly well. I feel like a jerk for even saying this. I'm lost and lonely. I've never lived alone before (family, college, roommates, then my husband). I'm trying to keep busy. Dishes are done. Laundry is caught up (for the first time in 2 years).…