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Respite
As my DW keeps moving more into Stage 6, I've been thinking about how I have fought to get respite this past year and how much I am changed by it…in the best ways. I retired early, after crashing hard at my new job. Had to take an FMLA I had gotten so low and after having two weeks off with me just sitting in a chair,…
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POAs and requirements for incompetence
My mom was recently diagnosed with Alzheimer’s, and I’ve started the planning process with her. One thing I’m struggling with and can’t seem to get a straight answer on is the wording of her health care POA, It states that she needs to be determined incompetent by a medical professional before decisions can be made on her…
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End Stage
Hi. Mom is 86 had Alzheimer’s for 8 or 9 years maybe more. She is definitely in late/end stage. She sleeps 90% of the time. Been non verbal for over a year at least. Getting frail. Is this possibly a sign that this is close to end? My sister lives the closest so I don’t get to see her a lot. And don’t get much feedback.…
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Grief Counseling: Yay or Nay?
My beautiful Mom transitioned this past August. I miss her every single day. It's painful, actually, and I know only a couple of months have passed, but time is not healing. Every day without her is painful. As her only child and primary beneficiary, I have access to grief counseling that her health insurance policy offers…
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Feeling sad and drained.
Hi everyone. I am new to this group, as I am finally trying to better myself by seeking some sort of help. I am 20 years old, and my mom has just been officially diagnosed with Alzheimers. I am the youngest of 4 siblings by 10+ years and I am still living at home and going to school. My dad is still working and my siblings…
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New diagnosis
I'm 72 years old. I was diagnosed with Alzheimer's in September 2025. My neurologist said I will be at this stage 2 1/2 to 3 years. Then I will progress to next stage. I'm not eligible for infusion because of brain bleed and APOE 4 type. I live alone. This is very scary. I don't know how long I should plan to be able to…
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Experiences with anti-amyloid therapies (Leqembi or Kisunla)
Hi, I'm new to the community. My mom was recently diagnosed with MCI, blood test positive for AD. It seems there may be some serious risks with the anti-amyloid therapies but do the benefits out weigh the risks? I wanted to see if anyone would share their experiences with anti-amyloid therapies (Leqembi or Kisunla).
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Early onset Alzehiers
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
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Early onsite alzeheirs
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
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Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophrenia but turns out I was wrong. He refuses treatment and therapy in every way. I try my hardest to support him with my…
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New here and learning
Hi! My mom is 95 and mid stage dementia. I moved her in about 6 mos ago and I am the only sibling left. I was able to get her on hospice for her COPD (also has cancer but they are keeping her on hospice for the COPD) but she is not actively dying. In fact, her dementia is far more difficult than her illnesses. They come 5…
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No short term memory
My DH is in the same category. Honestly, the repetitive questioning drives me crazy. I constantly pray for patience. Sometimes I don't answer my DH and a lot of times I remove myself and go to another room to regroup.
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Missing my mom
My mom has dementia and she fell a couple of months ago fractured her pelvis and was in the nursing home for a couple of months for rehab. She did come home but we felt she needed more care than what I could give her. It’s just been me and my mom since my dad passed away in 2002. I’m so full of guilt for putting her in a…
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Just venting
Today is a UGGGG day. Everything is do is meet with a hateful attitude. Want to scream or cuss but I don't. I just go in the next room and scream silently UGGG!
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Skilled nursing care vs memory care
Looking for information and advice. We took my wife to a well-regarded memory care center but their assessment determined she had too many needs and required skilled nursing care instead. We were disappointed. The SN facility is more like a hospital ward than MC but the rooms can be personalized with some furniture,…
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Double Trouble - New to the group
I moved back to NE from Florida almost 3 years ago. I knew before I moved to Florida that my mom’s memory was getting increasingly worse. Once I moved back, I realized just how bad it had become in that short amount of time. We were able to get her to a neuropsychologist and have her tested. She has Alzheimer’s.…
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I wonder if I am seeing things not there
My wonderful husband of 49 years was diagnosed 2 years ago with MCI, he is slipping more (forgetting conversations that just occurred, throwing out items we need, personality changes, etc.) and I anticipate at our appointment with his neurologist later this month, he will "upgrade" his diagnosis. All of this being said, my…
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Leqembi
Just feeling blue this morning. Neurologist offered Leqembi infusions to DH with ALZ. DH is 90. It's 18 months of every other week infustions that will only delay the inevitble by months, not years, and if he does't have a brain hemmorage or stroke there are high odds of migranes and other side effects. We opted not to do…
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My DH has changed and I’m afraid
my DH just turned 70 but has been struggling with issues for awhile. He changes moods, is depressed and withdrawn, does not have healthy hygiene , smokes both pot and cigarettes , drinks a lot ( beer wine) has juvenile diabetes insulin dependent . He has started to misplace things, wallet keys, checkbook. He doesn’t pay…
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DH fixated on being able to drive.
DH is so fixated on being able to drive again he has become very depressed and says life is not worth living. He says he feels like he is in jail and can't do anything. I can drive him anyplace he would like to go. When I ask him where he would like to go he doesn't have an answer. Dr.'s have told him he shouldn't drive…
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T shirt question
A basic question about T shirts…the undershirt kind. DH has lost so much weight-and height-. that his size large T shirts are way too large now. The T shirts are very roomy and so long they come below his hips. When I get him dressed I am stuffing all this extra material in his pants so it doesn't hang below the outer…
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I am so scared
I'm so scared of what this diagnosis means for me and my mom. I've worked with a number of Alz patients while working in emergency psychiatric departments or adult psychiatric departments. It was brutal. Devastating to their kids and devastating to see their moments of clarity, briefly realizing they are losing their…
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Sharing a tip to get DW to change clothes
DW is early stage 6. For the past few months it has been a struggle / conflict to get her to change her clothes. I have found something that seems to work (for now) and would like to share. If I tell her to change right when she wakes from sleep, we are able to get into clean clothes with minimal to no resistance.…
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My Friend is legally blind: needs bookkeeping, billpay, computer assistance
Hello Alz community. I am a Reno based CPA and have a friend (She is located in Reno NV) who needs assistance with bookkeeping, bill pay, computer assistance and reading her mail to take care of her personal business matters starting at once a week. Do you have any recommendations?
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Balance
My DH is 25 year older than I am. He is 94, I am 69. I've known this was coming for about 15 years. Early years were challenging, but COVID was the hammer that drove nails into the structure of our lives. I moved him into a MC about a year ago. I was dealing with other "stuff" at the (my brother was killed in an automobile…
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I’m new
Im new to group chats and im new to my dad having dementia, im not new to dementia i did at home health care when I worked and i thought if my parents needed me to care for them i would b a pro but dementia is the worst disease. My dad is 65 and lived a very healthy life and that made him happy but I’m like my mom I just…
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Balance
My DH is 25 year older than I am. He is 94, I am 69. I've known this was coming for about 15 years. Early years were challenging, but COVID was the hammer that drove nails into the structure of our lives. I moved him into a MC about a year ago. I was dealing with other "stuff" at the (my brother was killed in an automobile…
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In Loving Memory of “Jo C”
I’m reaching out, again, on behalf of my beautiful mom, Johanna “Jo C” Richardson, a passionate Peer Volunteer for nearly 20 years. Many of you knew that Jo C had been diagnosed with a progressive lung disease a couple of years ago. The disease did progress and Mom passed away peacefully at home the evening of June 19,…
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Dad confused in his apartment - looking for stairs that don't exist
I'm looking for suggestions / tips about how to address my dad's search for stairs to go to his other apartment. He is 92, in a wheelchair - probably Stage 5 Alzheimers. He lives in a Memory Care facility in a studio apartment. He keeps looking for the stairs from the basement or to the 2nd floor to get to his "other"…
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Continuing ALZ Research
https://www.sciencedaily.com/releases/2025/11/251118220052.htm#google_vignette