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How to Parent a Parent: When They Need Help But Think They Are Fine
Hi, all, My mother has always been a huge extravert. But as her Alzheimer's progresses, she's starting to become more socially isolated and doesn't like meeting new people. She's also kind of "moody" at times and sometimes doesn't even want to talk with her friends. We're no longer comfortable with her being home by…
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In Home help
We had an incident last week: I left my husband alone for 90 minutes while I ran errands and when I returned he had either allowed a total stranger into our house to "view something" in the backyard or he hallucinated the entire episode. Then this week his diagnosis was changed from mild cognitive impairment to early…
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Communication
We are so frustrated. I don’t always know how to help him. My husband tries really hard to start a conversation with me or express a concern or fear he has. Sometimes I can only pick out a couple of words. I have no idea what he is trying to tell me. Sometimes I can read between the lines and go with my gut on what he is…
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Decisions
so my dad has a general diagnosis of dementia. Friends are telling me I should bring him to a neurologist. I believe he’s in a moderate stage. I don’t see the purpose of discovering what kind of dementia? It’s so disruptive to take him out of his home in memory care and to appointments. Weighing the pros and cons.…
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Books that were recommended to me
The Social Worker, Tessa, at The Memory Center Clinic (Dept of Neurology) at the University of Chicago Medicine recommended these 2 books to me, at Ray's appt last Fri. Have any of you checked these out? I read the reviews over at Amazon.com. I ordered these. I'm a retired dinosaur RN. "Travelers to Unimaginable Lands" by…
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LO keeps asking how long he will be visiting
Hi everyone, Traveling with my LO and he has asked several times how long he will be visiting. I said about a week. He will actually be staying permanently. I am trying to come up with a go around but need some help. Anyone?
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Everywhere at the end of time
“My dearest wife, is this how the world seems to you? Dear God in heaven.” “Everywhere at the end of time,” a six-album recording by Leyland Kirby “The Caretaker,” was released over a three-year period between 2016 and 2019. It is an art-music creation that takes the listener though the stages of Alzheimer’s and dementia,…
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Additional ‘care’ still needed in memory care?
My father is likely entering ‘early-late’ stage. He is still mobile with a walker but increasingly unsteady with difficulty getting on his feet. He can get to and from the bathroom and is primarily continent during the day though he can often have accidents. Incontinent during the night. But the biggest change I’ve noted…
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Baby Doll or Fidget Blanket
My Sweet mom is in a nursing home and is beginning to fidget with her hands. She likes to try to fold her clothing protector, and my one sister wants to get her a baby doll. My other sister suggests a lap blanket with things on it for her to play with. Does anyone have any thoughts on which is better? Thank you!
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Sensitive situation
this topic I have not seen anywhere on this sight and am somewhat hesitant to bring it up. My DW has become very sexual To the point that it takes a big piece of the day. I was wondering if anyone else has had this situation and how to handle it. I just don’t want it to become so bad that it occurs at inappropriate times.…
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Things to keep my LO moving
Hello all, Recently brought my LO back home with me. We made it! Then I got sick and haven’t been feeling great but getting better. I wanted to know if anyone has any ideas to get my LO moving. I work from home and because I have been sick we haven’t done much. My LO doesn’t generally get up early so once he does I would…
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Recently Diagnosed MCI - Questions Posed
Invite your thoughts on my take on MCI diagnosis: having been diagnosed with MCI and experiencing what seems to be a downward progression, having researched pretty thoroughly it seems to me that the best thing(s) I can do are: (a) exercise daily; (b) stay engaged with others - i.e. don't isolate; (c) pursue natural…
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I'm newly diagnosed and scared
Hello, I am not new to this site as I was a caregiver to my mom who had dementia. She died in June of 2017, and now I have just been diagnosed with early onset. I'm only 51 and I'm scared because I've seen first-hand what dementia does to a person and to their family and I am just terrified. It's hard to talk to my family…
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Not sure what to say when he doesn’t remember
We had some friends over for dinner last night and had a great time. My DH today is asking when everyone is coming over. I said they were all here last night for dinner and he said “I wasn’t there!” or “You had them over without me”. I just don’t know how to respond to this type of thing. He does this frequently. Any…
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Early stage Dementia - Advocating for PT and OT at home
My mom was diagnosed with early stage dementia (March), neurology scan, neuropsych testing done. Balance and coordination are changing quickly. Despite outpatient Physical therapy (19 sessions btw January to July), she continues to have wobbly balance issues, particular when stepping onto gravel surfaces or going down…
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EO at 50
Hi All Two years ago I was diagnosed with EO. I am now 52 years old and really battling with this. I just can't accept the fact that this has happened to me. The frustration and anger is all encompassing. My wife has been the most supportive, but I can't stop feeling the guilt and shame of what this disease has robbed me…
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Behavior
I am so confused on how my dad can appear so “with it” and remember certain things and then be totally off in the next sentence?! Seriously, I have beaten myself up many a time for placing him in memory care but can now see VERY clearly he needs to be there. But I leave scratching my head sometimes!
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Rivastigmine
anyone have experience with Rivastigmine daily patches?
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Viscious Cycle
I'm tired. I'm exhausted. My mom, with moderate MD, is a handful. I don't know what's an MD symptom anymore or not. My mom has 40% bilateral hearing loss (probably much worse, actually) and cataracts in both eyes. Yet, she will argue with me and the doctors about how she "knows" she doesn't and has never had hearing or…
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Anyone ever attempted an RV trip with a cognitively impaired spouse???
Leaving soon in an RV trip to the Oregon Coast. I have realistic expectations and am hoping for 1 more trip up the Oregon Coast. We have many great memories of previous trips and hoping to take one more trip together while he still remembers. Bitter sweet for sure but wanting to do it for him and for me. Anyone RV'd with…
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Help. How do you handle it?
I really need some advice. My DH is aware of what is going on. He is not into ANY hobbies, unfortunately. He used to be a private pilot and we owned a plane, then we moved onto a boat for 8 years, in the far past he liked making model planes, but that is far past his capacity now. He really has no interest in doing…
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Men’s support group
I know there is a men’s support group called Light Lounge, found in a 2022 discussion thread. Are there any other men’s support groups you have knowledge of?
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Constantly organizing and starting over
It seems to me what I'm about to describe is a common behavior, but I didn't see it on the staging tool. It seems akin to the hunting and gathering in early stage 5 but I'm interested in input from other folks. When looking for a check book recently my DB's wife mentioned she had to be careful with her stuff. DB was…
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I don't need help video
This popped up in my feed and I thought I'd share.
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Mourning my mom
Hi everyone. My mom has been diagnosed with alzheimer's disease for about 10 years now. Last year, had to place her in a memory care facility(the hardest thing ever). She has been doing well there and they are taking great care of her. She is still declining tho. She is in the the final stage of alzheimer's. So she can't…
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itchy skin?
For the past several months, DH has had itchy skin—chest and back—after getting out of shower and when getting up/dressed in the morning. I know hot showers can cause this, he has actually "toned down" his prior hot showers. He doesn't scratch, but wants some cortizone cream put on places he meticulously points out.…
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Looking for care help for EO Alz Canton, GA
*** closed... thank you *** Hello. I am looking for someone to help my brother-in-law care for my sister. She is 61 with beginning late stage Early Onset Alzheimers. They live in the Woodstock/Canton area. What is the best way to find someone that knows what they are doing? He has interviewed so many that don't quite get…
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Need advise
New to this platform. My mom has been living with me for 5 years. I discovered all the symtoms of memory loss almost two years ago. I have 4 siblings but receive very little help from one and help when needed by the other. Two siblings refuse to have contact with my mom. I am heartbroken bc of this. I don't know where to…
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Personal Stigma
Why is the stigma associated with mental health, dementia, Alz, etc. so pervasive? It affects all of us, even those afflicted……
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Can Anyone share positive stories of your LO moving to Memory Care?
I am curious to hear positive stories about Memory Care, if anyone here has any? I am waiting on that phone call from MC to move my mom into the facility. Mom is having big delusions that really stress her out at home and I wonder if she will benefit from the activities and positive distractions at MC ( I am trying to be…