-
DH now stage 6
my DH is now stage six. I’m exhausted physically and mentally. He hallucinates, delusional, wanders, paranoid, agitated and confused. The speech is so bad. He can say a word and make a somewhat sentence but cannot put two sentences together to make a thought. He sometimes thinks his children are small. He asked me to tell…
-
Alzheimer's homebound status
Am I correct here? Medicaid pays for 35 hours of home care for people who are homebound and people with Alzheimer's who are a wandering risk are considered homebound. Please correct me if you think I've misinterpreted this. Here are my references: From Google AI: Yes, wandering can qualify for Medicaid homebound if it…
-
Help - Decisions and Options: Any advice/suggestions are appreciated
My DH was admitted on Sept. 2 with COVID. He is off of isolation and want to transfer him out of the hospital. They have been unable to come up with the right meds to calm his anxiety (he constantly wants to get out of bed because he thinks he has to urinate, but he doesn't). He has been checked for a UTI. They have had…
-
UTI or Just a Progression of the Disease.
My DH has been sleeping almost around the clock for the last 3 days and eats only small amounts of food when hand feed. He will walk with assistance but very slowly. He does not appear to be pain. This new behavior came on suddenly. He was walking unassisted, feeding himself and sleeping maybe 8-10 hrs a day prior to the…
-
Mother causing herself ulcers yelling at my dad every day
My mom is at the stage where she is having delusions of my father cheating on her. The only new memories she seems to hold onto these days are the ones she's made up or if something happened that made her angry. He is her primary caregiver and all she does is screen at him all day that he's a horrible husband and doesn't…
-
Your thoughts on Aircept
My DH was diagnosed “probably vascular dementia”, scored 22 on cognitive test and is 70 years old. The doctor made no other recommendation other than to start taking Aircept. he has no other health problems What are your thoughts on this drug is it worth trying? He is very thin and has dizziness in morning. Doctor said to…
-
Early onset Alzheimer’s
Does anybody get frustrated doing games on the I pad feels like I can’t even do a word search with out getting frustrated these days.
-
Who’s Here ???
-
New here
My husband was diagnosed around six years ago. I would guess stage 5 and some stage 6, He has had difficulty speaking his thoughts for quite awhile but understands what I am saying as long as I am clear and concise. It is so hard to explain your alzheimer spouse to others they would have to live and deal with them 24/7 to…
-
Well Spouse Association
Has anyone heard of or joined Well Spouse Association? If so, what are your thoughts?
-
FTD Awareness
Hi all - it's World Frontotemporal Degeneration Awareness Week. I know that everyone here is more than aware of FTD among other dementias. Heck, we live on the front line. But incase you need resources, I want to make sure you have the link to the site for the Association for Frontotemporal Degeneration. They have…
-
G
-
M
-
When is memory care needed
My dad has EO, he is turning 65 next week, so super young. He lived with my husband and I for 3 yrs. And we moved him into assisted living in Jan. We are currently sitting in the hospital going on day 3 here. They are finding quite a bit going on. He is no longer swallowing properly and now needs all of his liquids…
-
new to dementia
To start out with my husband and I are married in name only, the marriage died long ago, I do care for him, and we live in the same house, but different floors. My husband was diagnosed with dementia 2 years ago, but within the past 3 months I've seen some decline. I was in denial until he couldn't check the fluids in the…
-
Pronounced Lean
My DW has been taking Galantamine for a couple of years. Progression has been fast and she almost can't speak anymore. So, the neurologist said, "Let's try Memantime". I'm not sure why I said yes at this stage, but for the speech issue. Hoping against hope it might give DW a little more time speaking, I guess. I've noticed…
-
New Medications for DH
My DH has been in the hospital in the geri-psych unit for a week now due to extreme agitation and aggression. Previously he was on Seroquel, Trazadone, and Lexapro. Due to the affects on his heart, Long QT, the doctor has changed his meds to Abilify and Zoloft. Do you think these will tamp down the aggression and agitation…
-
interesting delusion
Today I dropped my DW (stage 5/6 vascular dementia) off at the salon to get a haircut. Fortunately, her stylist is very understanding and patient. I returned 45 minutes later to pick her up. I paid my wife's bill and scheduled her next appointment. The whole interaction was pleasant and uneventful. Several hours later…
-
Not asking for any help
I had an initial consultation with elder law. Lots of paperwork and mom doesn't want lawyer to know about her finances. I asked mom about Medicaid planning and asset protection but showed no concern. I told her about her losing everything if she and dad need to be placed in a home and can't afford it in the long run. She…
-
New Symptoms and Much Denial in Spouse
At first I thought it was distraction. Not following through on plans, forgetting words. Then I thought it was depression. Denied. There was a change in smell and taste. Tests were negative. Now this could be early dementia. My spouse is 58 years old. I told her I was concerned and I was dismissed but she finally agreed to…
-
What to expect in first month at MC
Taking the big step. My husband is going to MC today. A few things are bugging me. I’m not convinced either that he is ready and stabilized enough, or if this step would even be necessary if he had more appropriate hospital care in a geriatric GPU. Will be saying lots of prayers that this will all work out. Setting all…
-
Boy do I need help
this is my first post. My 78 yr old DH is full into dementia. He had a stroke a few years ago then ended up in the hospital with Covid and pneumonia for a week. He was very delusional there and carried on when home. He is able to dress, do all personal hygiene, he can do pretty much all he’s even driving with the 6 month…
-
update information scam
Just received our third call in three days to update our medical information. First call alluded that they were from CVS. Spoiler alert -they were not. Next two said 'medical supply company'. All three asked if I had back pain or leg pain. No idea what they were trying to sell me as my answer was the same each time --…
-
Llooking for alternative treatment options
Hello, I am being evaluated for Vascular Dementia. MRI showed plaque build up, cognitive test showed difficulty in executive decision making. Live near Dallas. Looking for doctor/alternative treatment options .
-
Meal Ideas
Hi everyone! My mom previously was an adventurous eater. Lately, she has trouble with finding foods she likes to eat. Her tastes have changed and she tends to just eat "junk" (chocolate, pretzels, peanut butter crackers, ice cream). Even things she liked a week ago, she says she does not like them anymore. We're trying to…
-
Door Monitors/Alarms
Need suggestions for the best type of door monitor/alarms. I have just recently noticed my DH stops and stares - likes he's lost. This has happened the last two mornings. I want to be proactive in case he starts to wander. Could you please share with me your experience with door monitors/alarms? Thanks.
-
Looking for a volunteer to add as Leader of the new caregivers group
Hi friends - I'm hoping someone will help with the new caregivers group. Anyone can add posts there, but I think I'm the only one who gets alerts when there is a new post. I'm hoping that someone (or several someones) will agree to be "leaders" so members, especially new members, will get responses if they post to the…
-
I'm making a little progress with my brother
Today, his doctor's office actually called me back for the first time. They're going to send me a copy of the neuropsych report. They're calling it "mild" dementia. As we all know, it doesn't stay mild. It always progresses. I asked them to put me down as an emergency contact. They'll probably have to confirm that with…
-
Medicare Advantage Dementia CSNP
Does anyone know of a Medicare CSNP (Chronic Special Needs Plan) that focuses on dementia patients?
-
Any Advice on Calming an Anxious, Aggressive Sufferer?
My wife is now more frequently becoming upset and anxious over (usually imaginary) concerns. I no longer attempt to reason or disagree with her, but have trouble calming her down. She is sometimes very verbally and physically abusive. She will calm down if I have her talk to her daughter on the phone. If I can't reach her…