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Hello everyone, I'm a Industrial Design student currently trying to design a product that could help prevent dangerous wandering in people living with dementia. My grandmother has dementia, and right after moving houses she had a few bad wandering incidents at night that could have ended badly if she hadn't been found by…

Hello. I am new to this forum. My mom has dementia. It started when she was 54 years old. She is now turning 62 in August. We are at the point where she has been hysterically crying for the past 9 days straight. She started Rexulti in December of 2025. We were thinking that maybe that could be part of it. She is now losing…

I haven’t been here in awhile. Mom is in MC. She’s 73. I have a 5 year old. Husband is away for work. Old pic popped on my phone of my daughter and mom just a year ago. She was in MC then (been there almost 2 years now). I just can’t believe how fast this all went down. In the picture she is smiling with my daughter. Now,…

Hello, My DH was diagnosed with mixed dementia and in moderate phase (start of stage 5 in the 7 phase model). I knew he had it and had to push his PCP to test him. 2 yrs later and they tell me something I already know. So frustrating. His neurologist prescribed donepezil, but he doesn't want to take it and the research…

my mom was diagnosed with FT dementia 7 years ago. At that time, she was still living in IL with my dad. since then, her condition has progressed to the point where we decided to move her to MC. One of my to-do items along with the move was to get her an appointment to be seen by a neurologist again and reevaluate. But at…

Briefly my DW is in stage 7, under hospice, on several meds including serequol, depakote, lexapro, and Valium as needed. Also temazepam for sleep. Total aphasia. Days are usually 80% walking, bumping, mumbling (all the time) and 20% laying down or sitting. The issue is she’s usually walking with eyes almost closed. Can’t…

As my DH is approaching the last stage of Alzheimer’s I am struggling to find diapers that actually work without leaking. I have found good pads for underneath but have to wash them almost every morning as they are wet. It seems to leak out the top and I have found that all brands sit low on his waist. Has anyone had good…

The geriatrician my DH sees has ordered palliative care and we've seen first a registered nurse and then a nurse practitioner. I wondered if anyone has experience with pallilative care and if it's helped. What are the benefits of palliative care. I was told they would be able to transition him to hospice if/when the time…

Yesterday was our 47th anniversary. So I got a nice card for my wife who has FTD and put a loving note in it. I had a dentist appointment at 2:00 to finish two crowns so I spent quite a while there. She never got up until I woke her up at 5:00 for dinner. I gave her the card and she had no comment. At dinner she announced…

Not sure what stage of Dementia my mom is in but she needs care 24/7 but she still can eat without choking, She watches TV , smiles and still laughs, eats snacks sometimes will feed herself but I’m having a hard time just thinking she might pass sooner or later

We moved Mom in to AL today. It went a little better than I expected. She loves her room. But she is very angry that they took away her medication and have to administer it to her. She doesn’t understand why. She is also annoyed that people keep stopping by to take her vitals etc. She says “I didn’t think I was coming to a…

I have a few supplies that I no longer need and I’d like to offer them to this group. It’s not much, but this forum was so valuable to me I would like to offer these items here first. If you want any or all of these send me a private message with your address. First come, first served (I’ll pay shipping for US): 2 bottles…

We are moving my mom into an AL near me tomorrow. (If you have not seen my previous posts, ever since my dad died in December she has been living alone 2.5 hours away.) She has been cooperative and somewhat willing to do this, which even one month ago I would never have dreamed possible. But still makes lots of comments…

Mom has yet to agree to see a neurologist to get a confirmed dimentia diagnosis. Her primary doctor has written a letter that she has cognitive decline and unable to make medical decisions. We are hoping now the POA and healthcare authorization we have will help us since the Dr wrote the letter. This week mom is having…

Last Thursday hospice came to the house to do an evaluation on my husband. I told them I thought he was in stage 6. After answering some of their questions the nurse said he’s in stage 7. That caused my heart to skip a beat. He got out of the hospital last Tuesday after being treated for a UTI that turned into an…

When my mother with early-to-moderate dementia has a bad day--ie., crying, anxious, or angry--I find it greatly affects my own mood. I am having a hard time separating my own feelings from hers, I guess. I have recently been prescribed Lexapro and it is helping to some degree, but I am wondering how other people manage to…

My LO misplaces & has forgotten how to use her iphone and mac. She was not able/willing to use a Jitterbug. Have you found it helpful to use labels like "phone box" or "computer shelf"? What about simple instructions like "press button on right side of phone to turn on"? Thanks to everyone who posts; I've learned a lot…

My wife, officially diagnosed with Alzheimer’s last July, is in outstanding physical condition for an 86-year-old. This is a doubled-edged sword, because she exhibits periods of violent behavior and because she’s a strong person, she’s difficult to contain. She’s can be downright dangerous. I am her sole caretaker and I…

Im caring for my husband of 47 years, about 6 years in now, so far, not difficult except for watching steady decline of smart, healthy partner, which, of course you all know kills us a bit each day. He is good tempered, does as I say, is comfortable to be around, he mostly watches TV or sleeps but we can no longer carry on…

and thought it’s time to introduce myself. My DH was diagnosed with MCI a year ago after a lengthy wait for cognitive testing and then another 8 months for Neurology. It has now progressed to Alzheimer’s. All I can say is it’s been hard and I’ve learned so much already from this group over the past year so thank you. I…

Hello! My husband hasn’t been officially diagnosed, however, being around a friend of my mother I know. We’ve been to a neurologist twice, but he told me he wasn’t “comfortable” making a diagnosis at that time and for me to keep a record of things until the next appointment in June. So, my question today is how do I not…

I helped my mother find a SNF for my grandmother decades ago, but there were like 3 choices in her area… and I don't think there were any MC options near her at the time. Now, I live in a city where the choices are overwhelming (which I imagine is actually a blessing). What am I looking for? I have read that I need to get…

I am really struggling with this MCI diagnosis and what life is going to be like in 1, 2, 5 years ahead. My older sister died from ALZ and it was horrible. How do you live on day at a time with this diseases ?!?

My DH starts Leqembi next week. I know the process takes at least 5 hours. My question is this: Can he bring drinks, snacks while he is having the treatment. He should bring something to read I would think. Is someone allowed to stay with him and or come and go during the treatment. Just curious so we can plan the day.

I’ve been reading a lot of posts about caregivers moving their loved ones into facilities once they can no longer care for them. I am not there and I’m praying that the time won’t come when I’m forced into a horrible decision like that. I feel that 80% of the folks that make the move can afford to do so. I’m just wondering…

My mom has been in an assistant living residency for two years. She thinks that someone is coming into her unit in the middle of the night and disrupting things. It causes her to be very upset. I have cameras in the unit and I can see everything that comes in or out of her place even when I explained that I can see she is…

If I’ve learned anything about this terrible disease is everyday seems to bring on a new challenge to deal with. My current challenge is my DW is going into the bathroom to urinate and stands in front of the sink and just pees. This happens in the middle of the night when I’m sleeping. I’ve tried to prepare for when she…

Hello! Happy to have found this forum because I'm so concerned about my dad. He has had memory impairment, social withdrawal, apathy and basically several symptoms that seem to be in line with Alzheimer's or pre-Alzheimer's MCI to me. Mom has been aware of the memory issues but taking a wait-and-see approach. Some things…

I’m on an early morning flight back from New York City. I really can’t even express completely how incredible the trip has been. Honestly. It felt like a series of religious experiences. I came to go to the opera at the Met. At first I thought, “what in the world was I thinking going to ‘La Traviata’ just 2 months after…

I thought these tips I read on Facebook might be helpful: You asked...and you shall receive! A blog reader recently asked me for a list of communication tips they could give family members for when they visited their parent with dementia. Here goes! Tips on Communicating with Someone Living with Dementia Connect, don’t…