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New to the group!
Hello everyone! My name is Nicole and my Dad has recently been diagnosed with Alzheimer’s and Dementia. He has been in a cognitive decline for a couple of years but just went to the neurologist last week to confirm his diagnosis. I feel like since then it’s made me sad . I’m trying to do what I can to help . He lives at…
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New here
We still have hope as we breath
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What is a "good" day for someone with dementia/alzheimers?
I've been told that my brother was diagnosed with Alzheimer's. However, when visiting him, I am not seeing any indication at all. Does having a good day mean the complete absence of symptoms? I am very concerned that his wife is exaggerating. I don't live in the same state, so I don't seem him all the time. However, my…
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Guacamole...
My husband was diagnosed with Alz. a year ago, though I had been taking notes on things I had been noticing for at least 3 years prior to that. He's still quite capable of caring for himself and still does small projects around the house. Most people only seem to notice that he can't think of certain words now and then.…
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Memory Test struggles
My wife was diagnosed with early onset about 6 months ago, although I had been noticing problems and changes several months before that. She is currently receiving monthly Kisunla treatments - she's had three so far. At her last treatment she was given a "memory test" - she was asked several basic questions (what State do…
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Feeling So Lost
Hello everyone, I’m thrilled to have found this site. I have been feeling so lost, confused, sad, and hopeless. my husband of 54 years was diagnosed with Alzheimer’s over year ago. He is progressing rapidly and as I continue to just try with all my strength to make it through another day, I’m thankful to have found this…
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Living with Alzheimer’s or Other Dementias
Living with Alzheimer’s disease or other forms of dementia presents significant challenges for both the individual and their loved ones. These conditions progressively impair memory, thinking, and behavior, impacting daily life. Below is a concise guide on managing Alzheimer’s or dementia, tailored to your interest in…
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Grief while still caring for LO
I just need to vent to someone that understands. Mom is in MC so I know I am not dealing with as much as many here, but it is so hard. She is sad, angry, scared and confused and any one of those is hard to watch your Mom go through. I miss my Mom and all the good times. I had my doctor say “it must be easier now that she…
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Delirium vs night terrors, what's the difference?
My DH has VD and has interrupted sleep for over 7 yrs. I don't notice any afternoon or early evening agitation. He falls asleep within 5 min of hitting the pillow and is asleep for 60-90 min and then the up/down repeatedly going to the bathroom begins. 150 mg trazadone has helped decrease the uo/down frequency from 20+ to…
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Report to DMV
have any of you resorted to reporting your loved one to the DMV due to their diagnosis? How did that go? Was it really anonymous?
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He won’t go to the bathroom
My DH is recently incontinent. Luckily I’ve been able to get him to wear depends. But lately he just will not go to the bathroom. He’ll go hours without urinating (or I guess urinating in the depends). When he acts like he needs to go, I ask him if he needs to use the bathroom and he says, yes where do I go? I take him to…
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Stages
Who determines the stages and how are they determined? The most frustrating p pop art of this disease for me is not knowing exactly what my DH has Dementia or Alzheimer’s). And what stage? His primary referred to his disease as Dementia and the neurologist referred to it as Alzheimer’s. They have him on 29mg of Memantine…
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Mom is transitioning
I never saw someone I loved so dearly suffer like my Mom. It's all in God's hands now. I am so tired.
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Moderate dementia
After years of falling, stuttering and memory problems I was diagnosed with moderate dementia My husband can't handle and/or accept my diagnosis. He is an alcoholic and he can't help but argue with me, yelling Has anyone else feel this way. I am n o with 70
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Taking care of my Mom
My Mom has Dementia, still living home with my dad, and I go to their home every day to help them. She accuses my dad that he is having sex with a 13 year old girl along with me and my 2 other sisters. Some days she is good then other days really off the wall. I get very upset because I protect my dad. I know I shouldn’t…
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home care vs assisted living
My mom has Alzheimers and my dad has dementia. I'm trying to decide whether to place them in an assisted living facility or hire 24/7 home health care in their home. They live in NY and I'm in MA. Does anyone have experience with either? I'm trying to think of a list of pros and cons. Thanks.
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Heartfelt Gratitude
I’m overwhelmed at the kindness, concern, and helpful suggestions of books, online therapy, and other resources- especially the reminders of the importance of self-care. The latter is the one I have always had a difficult time with but I know and heed all your comments. That said, does anyone have any recommendations for…
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Caregiver who is a nurse
Hi, This is my first post. My mom has dementia that has progressed to moderate. She is very stubborn and becomes belligerent if she does not get her way. She does not realize that she has memory issues and doesn’t understand why we are not allowing her to be alone. She is refusing to shower because she thinks she showers…
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Take Them With You…
I saw this today and really needed it. I went somewhere today by myself and carried Lonny with me in my heart. 💜
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What Happened?
Hello. I am new to this resource and have greatly appreciated all the advice/stories/information I have read so far! The clinical suspicion for my DH is EO AD. Less than 2 years ago, dimentia hit my dad hard and fast. I spent 6 months supporting him and my mom through it all. My mom needed a high level of emotional support…
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The Good , the Bad , and the Ugly of late stage 7
I’m posting this mostly for Josey Wales, and for others who are now in 7 . I want to be fair and give an accurate picture of what it looks like for others. So just as a little review, my husband 59 has had Alzheimer’s for 7 years. He has never hit a plateau , but just crawls along at a glacial pace. He is at home on…
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Thinking about infusions.... Leqembi or Kisunla??
I am looking into the two different infusions available for Alzheimer's where I live. I have like a thousand questions but here are a few.... Which "brand" is most effective? Which has least side effects? Are the infusions painful? If they do cause side effects... How long do they typically last? Can you "gut it out" or…
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Could incontinence be from medication?
My DH is on a low dose of risperidone 0.25 mg twice a day and 25 mg Zoloft once a day. A few weeks after starting them he became incontinent. From what I read it’s a rare side effect and at this low dose I thought it was just a coincidence and that it was just the inevitable progression of the disease. Has anyone else…
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Taking Away Driving Privileges
My DH (57) was diagnosed a little over a year ago with EOAD. He’s not quite in stage 4 yet, and still drives only to places in a 5 mile radius of home. And only to places that he goes regularly like the grocery store and they gym. I know that eventually he will have to stop driving but I dread that because he feels that’s…
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Angery Mother
I’m having major problems with my mom. Within the last four weeks if she doesn’t get her way, she will call me names not the nice ones either. I also moved in with her two years ago when she was first diagnosed with dementia she will also tell me that I need to move out. If she’s not getting her way. We have an appointment…
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Grief about the loss of relationship with mom
Hi everyone, this is my first post. I was wondering if anyone had been through something like this. My mother has Alzheimer's. I had a friendship with her over the years and now that's obviously changed and shrunk due to the disease. I understand that the disease has affected her brain and stolen her ability to manage…
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PWD calling police repeatedly
What can we do? PWD (Dad) keeps calling the police reporting his car stolen and they’ve had to come out repeatedly. His car is not stolen, though it is gone because he stopped being able to manage maintenance and repairs even with assistance, and should not be driving anyhow. What do we do? This is a huge waste of the PD’s…
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Saw Mom after three weeks
Hello, I basically write updates on here so I remember when I saw my Mom at the nursing home. I need to also vent somewhere that other people understand. I hope I can help others here as well. Mom has lost a lot of weight, I am afraid to feed her because she can choke from food. And I believe I am not qualified to feed…
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Reminder: hospital induced delirium is real
My husband was released from 2.5 days in the hospital. I spent all day Sunday and Monday with him except to run home to feed the dogs and let them out to pee. I left the hospital at 10 both nights to sleep at home. First night he had sun downers, calling me multiple times until 2:20 am. The 2nd night was pure hell. We live…
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Break in the Fog
I wanted to share my recent experience. I visited my mother yesterday, and I wasn't expecting much because she has been showing late stage six behaviors for several weeks now. The last lucid moments I had with Mom were during Mother's Day and early June. The decline was at first rapid when she qualified for hospice care in…